Re: Food. I literally chase...

[Guest guest]

How old is she?

Is she recovering?

Once she is recovered, life will be a little bit more normal. I do know

two boys that are 10 and recovered. They were on very strict diets and

now can eat most anything, however, they choose NOT to because of how it

makes them feel.

When we have parties or celebrations here, we do not focus on food. We

decorate like crazy, plan lots of games. Just recently my sister had

her daughters birthday party at our home. She is NT is has no food

restrictions and neither did most of the guests. However, she respected

that my sons did and we did not focus the fun on cake or icecream. We

did a present parade. We lit a candle and her mother held it in the

front of the parade. Each of the guests carried the present they

brought, and in a line, paraded with the presents and sang happy

birthday to my neice. She LOVED it. We sat he in a special princess

chair and at the end of the song, every piled the presents around her.

Not one child asked for the cake. We did have platters of food set out

during the party and the kids just grazed. We made tiny kabobs with

fancy tooth picks. We cut up cooked meat into tiny pieces and stuck it

on the toothpick alternating with grilled vegetables. We did adult size

ones too.

We also had slushies in fancy glasses and fancy straws. My guys loved

it. We didn't add anything to my guys slushed ice but we did add some

apple juice to the other kids slushed ice.

You can still make occasions for her special, even when she cant eat the

food.

When my boys get invited to parties, I usually work things out with the

family beforehand and no one cares. At one party the mom saved the cake

until last and we picked them up about 15 minutes early. The mom told

me after they did the big cake scene, the kids didnt want it anyway.

Another time, the party throwers, gave my boys a little gift to unwrap

while the rest of the kids ate the cake. The rest of the kids were jealous.

For halloween, I bought dollar store toys and delivered them the morning

of halloween to all the neighbours houses and explained that my boys had

severe allergies but I wanted them to enjoy halloween. I said we woud

be coming around dressed as two little dragons so they knew which ones

they were (most of them knew them anyway). As soon as we arrived, they

knew who we were and dropped the toy in their goodie bags.

You can keep the fun in her life without her feeling left out just

because of food. It takes a little work but it can be done.

It will get better.

All the best

Arias wrote:

> my daugter around all day .. to make sure she doesn't eat anything but

> vegetables, meat and water. Sometimes rice pasta. It is the biggest

> pain and her life is hell because of it. She has been left out of

> every party and special occasion. Does anyone go through this? I know

> I have to do this, and it would be criminal to give her anything that

> hurts her, but this is really hard for her. She gets madder and madder

> each year. All these food restrictions are horrible for a little

> person. Just wanted to vent!

>

>

> ------------------------------------

>

> =======================================================

>

[Guest guest]

Thanks. I do a lot of the same things, but I have to admit... I am

just exhausted. I am not giving up, but I feel like sometimes I am

just out of " juice " ... I was never really consistent either because

the diets kept changing and we didn't know what she was reaction to.

I even moved out of my house because I thought mold was making her

sick. It has been going on for 7 years. I just recently discovered

that she was harmed by mercury and probably the Hep B vaccine. So

needless to say my daughter is probably really confuse with all that

I have tried to cure her. Ugh....I was going in circles. Now... at

least I know what was wrong with her. Thank goodness I found you guys.

On Aug 23, 2008, at 9:33 AM, cnickerson wrote:

> How old is she?

> Is she recovering?

> Once she is recovered, life will be a little bit more normal. I do

> know

> two boys that are 10 and recovered. They were on very strict diets and

> now can eat most anything, however, they choose NOT to because of

> how it

> makes them feel.

> When we have parties or celebrations here, we do not focus on food. We

> decorate like crazy, plan lots of games. Just recently my sister had

> her daughters birthday party at our home. She is NT is has no food

> restrictions and neither did most of the guests. However, she

> respected

> that my sons did and we did not focus the fun on cake or icecream. We

> did a present parade. We lit a candle and her mother held it in the

> front of the parade. Each of the guests carried the present they

> brought, and in a line, paraded with the presents and sang happy

> birthday to my neice. She LOVED it. We sat he in a special princess

> chair and at the end of the song, every piled the presents around her.

> Not one child asked for the cake. We did have platters of food set out

> during the party and the kids just grazed. We made tiny kabobs with

> fancy tooth picks. We cut up cooked meat into tiny pieces and stuck it

> on the toothpick alternating with grilled vegetables. We did adult

> size

> ones too.

> We also had slushies in fancy glasses and fancy straws. My guys loved

> it. We didn't add anything to my guys slushed ice but we did add some

> apple juice to the other kids slushed ice.

>

> You can still make occasions for her special, even when she cant

> eat the

> food.

> When my boys get invited to parties, I usually work things out with

> the

> family beforehand and no one cares. At one party the mom saved the

> cake

> until last and we picked them up about 15 minutes early. The mom told

> me after they did the big cake scene, the kids didnt want it anyway.

> Another time, the party throwers, gave my boys a little gift to unwrap

> while the rest of the kids ate the cake. The rest of the kids were

> jealous.

> For halloween, I bought dollar store toys and delivered them the

> morning

> of halloween to all the neighbours houses and explained that my

> boys had

> severe allergies but I wanted them to enjoy halloween. I said we woud

> be coming around dressed as two little dragons so they knew which ones

> they were (most of them knew them anyway). As soon as we arrived, they

> knew who we were and dropped the toy in their goodie bags.

>

> You can keep the fun in her life without her feeling left out just

> because of food. It takes a little work but it can be done.

>

> It will get better.

>

> All the best

>

>

>

> Arias wrote:

> > my daugter around all day .. to make sure she doesn't eat

> anything but

> > vegetables, meat and water. Sometimes rice pasta. It is the biggest

> > pain and her life is hell because of it. She has been left out of

> > every party and special occasion. Does anyone go through this? I

> know

> > I have to do this, and it would be criminal to give her anything

> that

> > hurts her, but this is really hard for her. She gets madder and

> madder

> > each year. All these food restrictions are horrible for a little

> > person. Just wanted to vent!

> >

> >

> > ------------------------------------

> >

> > =======================================================

> >

[Guest guest]

How did you decide on this diet for her? Is this organic free-range meat? Any

reason you're avoiding plant proteins? Any reason you avoid quinoa? My husband

and I are long-term (30+ and 15+ years) and I'm gluten-free. It's tough but

nowhere near " hell " . We had a vegan, gluten-free wedding reception dinner and

cake.

S S

Food. I literally chase...

Posted by: " Arias " thinkingheads@... denise_arias

Sat Aug 23, 2008 7:08 am (PDT)

my daugter around all day .. to make sure she doesn't eat anything but

vegetables, meat and water. Sometimes rice pasta. It is the biggest

pain and her life is hell because of it. She has been left out of

every party and special occasion. Does anyone go through this? I know

I have to do this, and it would be criminal to give her anything that

hurts her, but this is really hard for her. She gets madder and madder

each year. All these food restrictions are horrible for a little

person. Just wanted to vent!

[Guest guest]

Have you considered trying Houston Enzymes? www.danasview.net has info about

what she had to do so her kids could tolerate certain foods. Is your daughter

on probiotics?

S S

Re: Food. I literally chase...

Posted by: " Arias " thinkingheads@... denise_arias

Sat Aug 23, 2008 9:36 am (PDT)

My daughter seemed to react to everything she put in her mouth. Even

suppements. It is getting better. I guess now.., I am keeping her

away from gluten, dairy, preservatives, saylysiates, sugar. So its

really a lot. I hope after chelation she can handle more. She got

violent on almost everything. She raged 24/7...

Is that an autisic trait?

[Guest guest]

First I want to say my nt son has severe food allergies. I don't keep him

away from " most " social events (except like going to something that is

involved with peanuts, like crafts with peanut butter, restaurants that

serve peanuts. He's at any birthday party, I just ship is safe food.

My guy can do safe chips, kid enough, meats, safe fruit, I make his ice

cream, bread, cookies, it does work. He does great.

Sorry for your pain.

Tammy

[ ] Food. I literally chase...

my daugter around all day .. to make sure she doesn't eat anything but

vegetables, meat and water. Sometimes rice pasta. It is the biggest

pain and her life is hell because of it. She has been left out of

every party and special occasion. Does anyone go through this? I know

I have to do this, and it would be criminal to give her anything that

hurts her, but this is really hard for her. She gets madder and madder

each year. All these food restrictions are horrible for a little

person. Just wanted to vent!

[Guest guest]

Hi ,

We use American Health non-dairy chewable enzymes which we special order through

Whole Foods Market. They used to stock it. We usually get the banana, they

also have strawberry and blueberry. We just want to dairy-free, gluten-free,

soy-free maintenance dose so it works for us. Trienza is new but sounds like it

would be good to try if the ingredients all look like ones she can handle.

S S

Re: Food. I literally chase...

Posted by: " Arias " thinkingheads@... denise_arias

Sat Aug 23, 2008 3:14 pm (PDT)

Not really. She was taking something called Florastore... but I hear

it is yeast and it is being eaten up by the Diflucan that she is on.

I am curioius why the nutritiionist gave her florastore knowing that

she was on Diflucan. I emailed Andy to see what the best probiotic

is. I just don't want to keep buying all of these supplements and not

get the wrong stuff again. I have spent thousands and thousands of

dollars, as you can probably relate to! BTW would I start with

Trienza enzyme?