Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 If you want any real hope for your kid to get well, you'll have to take more responsibility than this - you don't just let the doctor tell you what to do. Last time you did that they turned your kid autistic - what is going to happen to him this time around? You'll find a lot of useful information in the files section of this list, especially the FAQ. Andy > > I have done some research & I have made the phone call to the DAN dr but I have to wait & g thru a conference w/ other newbies before my son gets any tests. > > I printed a starter list off of Generation Rescue but nervous about it. My theory is to build his system up w/ vitamins & the colostrum & enzymes before we start the detox....or should I be doing anything w/out the dd approval? ahhh! I am just so anxious to get started but don't wanna mess my son up more....HELP! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 > > I have done some research & I have made the phone call to the DAN dr but I have to wait & g thru a conference w/ other newbies before my son gets any tests. > > I printed a starter list off of Generation Rescue but nervous about it. My theory is to build his system up w/ vitamins & the colostrum & enzymes before we start the detox....or should I be doing anything w/out the dd approval? ahhh! I am just so anxious to get started but don't wanna mess my son up more....HELP! > Do what feels comfortable to YOU. Don't put too much stock in waiting for someone else's approval. Other people are good for informational feedback, not for making decisions about your life or your child's life. You will probably do it gradually, but reclaiming your innate ability to make judgment calls for yourself is a big part of this journey. For me, that part of it has been totally wonderful. So don't be scared of it. :-) I haven't done chelation with my kids but have done vitamins, dietary changes, etc and seen a lot of improvements. Some kids won't get better that way and some will. I recommend you start with a piece of the puzzle that you can wrap your brain around and that makes sense to you. As you go along, other things will eventually start to make sense too. Good luck with this. And welcome to the group. Michele http://www.healthgazelle.org http://www.kidslikemine.org http://www.solanorail.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Hi Sheena, there are quite a few things you can get started on for instance; would you consider diet changes-removing casein, gluten, going very low sugar, get rid of all preservatives and artificial colors....start with a high quality probiotic, digestive enzymes, a good multi vit (without copper or iron), cod liver oil and omega 3 fish oil. I recommend adding one thing a week keeping notes about what you see. You may want to try a naturopathic yeast killer-great suggestions will come on this list, really take a look at your home and think about removing;products with perfumes and dyes, clothing with anti-flammable chemicals, harsh cleaning products with hazardous chemicals in them. You can begin Epsom salt baths (I like Walgreens brand best). I would say keep reading too, Jepson, McCandless, Boch, Seroussi, boards like this one. It is overwhelming in the beginning but sooner than you know it you will be helping a new mom with this stuff.FYI, you can get a Rescue Angel at Generation Rescue, free, solid support in Bio medical treatment. Best of luck, you can do this, Alison M -------------- Original message ---------------------- From: " Sheena " <speak2sheenalynn@...> > I have done some research & I have made the phone call to the DAN dr but I have > to wait & g thru a conference w/ other newbies before my son gets any tests. > > I printed a starter list off of Generation Rescue but nervous about it. My > theory is to build his system up w/ vitamins & the colostrum & enzymes before we > start the detox....or should I be doing anything w/out the dd approval? ahhh! I > am just so anxious to get started but don't wanna mess my son up more....HELP! > > > ------------------------------------ > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Welcome to the list. You're in the right place. Most of us chelate without a doc. Most DAN! docs use a dangerous protocol. S S newbie to biomedical Posted by: " Sheena " speak2sheenalynn@... speak2sheenalynn Tue Oct 28, 2008 7:11 pm (PDT) I have done some research & I have made the phone call to the DAN dr but I have to wait & g thru a conference w/ other newbies before my son gets any tests. I printed a starter list off of Generation Rescue but nervous about it. My theory is to build his system up w/ vitamins & the colostrum & enzymes before we start the detox....or should I be doing anything w/out the dd approval? ahhh! I am just so anxious to get started but don't wanna mess my son up more....HELP! ------------------------------------------------------------ Photo Search Click here to find the perfect picture with our powerful photo search features. http://tagline.excite.com/fc/JkJQPTgKO6InWvUggRdgDuWOvd6uHXERhnMBA8DgcDWLZ1n1Kup\ Xyw/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 WOW! I expected encouragement, not to be down graded for being cautious! Doctors didn't TURN my kid autistic! I was asking if I should build his system up with the enzymes and the vitamins before I start detox. Next time be a little more sensitive to the email and not so NO IT ALL! This is a message board for help! If I wanted to be criticized, I'll go to my parents house! > > > > I have done some research & I have made the phone call to the DAN dr but I have to wait > & g thru a conference w/ other newbies before my son gets any tests. > > > > I printed a starter list off of Generation Rescue but nervous about it. My theory is to > build his system up w/ vitamins & the colostrum & enzymes before we start the detox....or > should I be doing anything w/out the dd approval? ahhh! I am just so anxious to get > started but don't wanna mess my son up more....HELP! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Thank you for welcoming me! I have started on Cod Liver Oil and B12 dissolves and Achidophilis this morning. My theory is to build him up before I tear him down with the chelation. I dunno if that's right, but that's what my heart tells me to do. I don't wannt get his system broke down in this perfect season for cooties! Oh, and we have also cut out the dairy. That seems to be his main culprit that I can take out immediately. I need to find a good vitamin for him to go along with my build him up theory, any suggestions? > > Welcome to the list. You're in the right place. Most of us chelate without a doc. Most DAN! docs use a dangerous protocol. > S S > > newbie to biomedical > Posted by: " Sheena " speak2sheenalynn@... speak2sheenalynn > Tue Oct 28, 2008 7:11 pm (PDT) > I have done some research & I have made the phone call to the DAN dr but I have to wait & g thru a conference w/ other newbies before my son gets any tests. > > I printed a starter list off of Generation Rescue but nervous about it. My theory is to build his system up w/ vitamins & the colostrum & enzymes before we start the detox....or should I be doing anything w/out the dd approval? ahhh! I am just so anxious to get started but don't wanna mess my son up more....HELP! > > ------------------------------------------------------------ > Photo Search > Click here to find the perfect picture with our powerful photo search features. > http://tagline.excite.com/fc/JkJQPTgKO6InWvUggRdgDuWOvd6uHXERhnMBA8Dgc DWLZ1n1KupXyw/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Yes, we have have cut out the dairy for now. We always limit sugar and we eliminated harsh cleaning chemicals a loooong time ago. We have added cod liver oil, B12 dissolves, achidophilis this morning. I am on the lookout for a vitamin now and have ordered the enzymes and the colostrum. My theory is to build his system up and get it ready for the chelation. I dunno if that's what I'm supposed to do, but what I feel I should do when the weather outside is frightful! Thankyou for making me feel like I am not alone! > > Hi Sheena, there are quite a few things you can get started on for instance; would you consider diet changes-removing casein, gluten, going very low sugar, get rid of all preservatives and artificial colors....start with a high quality probiotic, digestive enzymes, a good multi vit (without copper or iron), cod liver oil and omega 3 fish oil. I recommend adding one thing a week keeping notes about what you see. You may want to try a naturopathic yeast killer-great suggestions will come on this list, really take a look at your home and think about removing;products with perfumes and dyes, clothing with anti-flammable chemicals, harsh cleaning products with hazardous chemicals in them. You can begin Epsom salt baths (I like Walgreens brand best). I would say keep reading too, Jepson, McCandless, Boch, Seroussi, boards like this one. It is overwhelming in the beginning but sooner than you know it you will be helping a new mom with this stuff.FYI, you can get a Rescue Angel at > Generation Rescue, free, solid support in Bio medical treatment. Best of luck, you can do this, Alison M > -------------- Original message ---------------------- > From: " Sheena " <speak2sheenalynn@...> > > I have done some research & I have made the phone call to the DAN dr but I have > > to wait & g thru a conference w/ other newbies before my son gets any tests. > > > > I printed a starter list off of Generation Rescue but nervous about it. My > > theory is to build his system up w/ vitamins & the colostrum & enzymes before we > > start the detox....or should I be doing anything w/out the dd approval? ahhh! I > > am just so anxious to get started but don't wanna mess my son up more....HELP! > > > > > > ------------------------------------ > > > > ======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 we just started this journey 3 months ago with our 23 month old son, that is non-verbal. so far so good, take it slow though at least at first. do start one thing at a time. we just ordered super nu-there multi vitamin, we haven't tried it yet but im hoping he will take it with ease. i will say however that you might want to start with a plain multi as the super is formulated for asd, and we added the extra b-6, magnesium, alittle at a time to make sure it didnt bother him. now after he handle that im going to try the multi w/ added b-6 and mag already in it. keep a journal and dont forget alot is trial and error. From: Sheena <speak2sheenalynn@...> Subject: [ ] Re: newbie to biomedical Date: Wednesday, October 29, 2008, 9:18 AM Thank you for welcoming me! I have started on Cod Liver Oil and B12 dissolves and Achidophilis this morning. My theory is to build him up before I tear him down with the chelation. I dunno if that's right, but that's what my heart tells me to do. I don't wannt get his system broke down in this perfect season for cooties! Oh, and we have also cut out the dairy. That seems to be his main culprit that I can take out immediately. I need to find a good vitamin for him to go along with my build him up theory, any suggestions? > > Welcome to the list. You're in the right place. Most of us chelate without a doc. Most DAN! docs use a dangerous protocol. > S S > > newbie to biomedical > Posted by: " Sheena " speak2sheenalynn@ ... speak2sheenalynn > Tue Oct 28, 2008 7:11 pm (PDT) > I have done some research & I have made the phone call to the DAN dr but I have to wait & g thru a conference w/ other newbies before my son gets any tests. > > I printed a starter list off of Generation Rescue but nervous about it. My theory is to build his system up w/ vitamins & the colostrum & enzymes before we start the detox....or should I be doing anything w/out the dd approval? ahhh! I am just so anxious to get started but don't wanna mess my son up more....HELP! > > ------------ --------- --------- --------- --------- --------- - > Photo Search > Click here to find the perfect picture with our powerful photo search features. > http://tagline. excite.com/ fc/JkJQPTgKO6InW vUggRdgDuWOvd6uH XERhnMBA8Dgc DWLZ1n1KupXyw/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Thanks so much! I do feel like I am the only person in the world that fights for my child, but reading books and finally finding this group-I AM NOT ALONE ANYMORE!!!! I have a strong desire to " fix " my son, even though, these days it's more fine tuning. When he was 4 and this crazy tornado of events started, he was a mess. I read everything I could get my hands on and I read everything on the internet and then made an educated guess as to where to start. He's almost 11 now and not even on the ADHD radar anymore. We never discolsed his " specialness " to any school because Miles desperately wanted to be " normal " . Teachers were all the time trying to diagnose him with Add and Adhd, but we just kept marching down our road of recovery. WE are now at a point where we are peering out at the typical world and thinking it is possible for him to fit in with no labels and just be a kid that doesn't drink milk. LOL! When I read McCarthy's book and found that I could do even more to bring him totally out of the box or outta the window as she calls in and CLOSE IT behind us, I was so excited, but nervous at the same time!! I'm so glad I found this group. It's a nice feeling-that I'm not alone in the fight. > > > > I have done some research & I have made the phone call to the DAN dr > but I have to wait & g thru a conference w/ other newbies before my > son gets any tests. > > > > I printed a starter list off of Generation Rescue but nervous about > it. My theory is to build his system up w/ vitamins & the colostrum & > enzymes before we start the detox....or should I be doing anything > w/out the dd approval? ahhh! I am just so anxious to get started but > don't wanna mess my son up more....HELP! > > > > Do what feels comfortable to YOU. Don't put too much stock in waiting > for someone else's approval. Other people are good for informational > feedback, not for making decisions about your life or your child's > life. You will probably do it gradually, but reclaiming your innate > ability to make judgment calls for yourself is a big part of this > journey. For me, that part of it has been totally wonderful. So > don't be scared of it. :-) > > I haven't done chelation with my kids but have done vitamins, dietary > changes, etc and seen a lot of improvements. Some kids won't get > better that way and some will. I recommend you start with a piece of > the puzzle that you can wrap your brain around and that makes sense to > you. As you go along, other things will eventually start to make > sense too. > > Good luck with this. And welcome to the group. > > Michele > http://www.healthgazelle.org > http://www.kidslikemine.org > http://www.solanorail.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 > > Thanks so much! I do feel like I am the only person in the world > that fights for my child, but reading books and finally finding this > group-I AM NOT ALONE ANYMORE!!!! I have a strong desire to " fix " my > son, even though, these days it's more fine tuning. > > My sons are 18 and 21. Over the years, I have seen a LOT more improvement than I ever imagined was possible. I'm 43 and still seeing improvements in medical issues that doctor's think are incurable. So just keep plugging away. If you don't understand something on list, sometimes if you just keep reading, it eventually begins to make sense. I have dropped a lot of lists where the goal was " symptom management " of one thing or another. I stick with this one because I see people really resolving issues that other people accept as unresolvable. :-) And I've gotten a lot of my best information here for addressing issues that no one else seems to know how to address. Peace. And good luck. Michele http://www.healthgazelle.org http://www.kidslikemine.org http://www.solanorail.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Comments interspersed. S S Re: newbie to biomedical Posted by: " Sheena " speak2sheenalynn@... speak2sheenalynn Wed Oct 29, 2008 6:18 am (PDT) Thank you for welcoming me! I have started on Cod Liver Oil and B12 dissolves and Achidophilis this morning. *In the future it's usually best to start one new thing at a time so you can tell what's doing what. My theory is to build him up before I tear him down with the chelation. *If done properly chelation does not tear one down but getting supplements in place is a good idea. I dunno if that's right, but that's what my heart tells me to do. I don't wannt get his system broke down in this perfect season for cooties! Oh, and we have also cut out the dairy. *Good. Are you using dairy-free acidophilis? That seems to be his main culprit that I can take out immediately. I need to find a good vitamin for him to go along with my build him up theory, any suggestion? *Many of us do better with combinations of individual supplements rather than multivitamins or minerals. How old is your child? Did he or she regress or seem to have ASD from birth? Does he or she have ANY mercury amalgam dental fillings? Did he or she have vaccines? What are the ASD trait of most concern to you? Many on this list were mercury poisoned and otherwise damaged by vaccines which is what Andy was talking about regarding " the doctor made your kid autistic " . Many parents trusted that doctors wouldn't use vaccines if they were unsafe and now they know better. Consider doing a DDI hair elements test and applying counting rules. ------------------------------------------------------------ Business Phone System Click here for free information on business phone systems from top companies. http://tagline.excite.com/fc/JkJQPTgMtNb0ELFKn8lUTBHaXchAtrhWdW145mFDkSutDrA71FT\ WGc/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Isn't colostrum dairy-based? S S Re: newbie to biomedical Posted by: " Sheena " speak2sheenalynn@... speak2sheenalynn Wed Oct 29, 2008 6:24 am (PDT) Yes, we have have cut out the dairy for now. We always limit sugar and we eliminated harsh cleaning chemicals a loooong time ago. We have added cod liver oil, B12 dissolves, achidophilis this morning. I am on the lookout for a vitamin now and have ordered the enzymes and the colostrum. My theory is to build his system up and get it ready for the chelation. I dunno if that's what I'm supposed to do, but what I feel I should do when the weather outside is frightful! ------------------------------------------------------------ Cash Advance Need cash? Click to get a cash advance. http://tagline.excite.com/fc/JkJQPTgKV8vG0cywEX0zgqc5Cp4MOK3NDjD4DF3Q4cI0kQqMT5p\ x2A/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Hi Sheena, This ended up being pretty long, sorry ;-) I'm going to reply to a bunch of your posts in one, if you don't mind. It sounds like you are fairly well read about a lot of this. This list will be a great resource for you. I'd love to know more about you child; his diagnosis, age, etc. I'm curious what you think was the stimulus for his diagnosis. Many here think the vaccines got their kids, as do I. Others believe it was mom's amalgam fillings and fish consumption introducing mercury in the womb. Some feel it is a combination of genetics and outside/environmental influences. Also, how old is your son? Has he had any dental work, any silver fillings? No one should chelate with mercury in their mouth. It will move it around and cause worsening symptoms. What have you notices are his biggest problems? Any yeast? Stimming? Tics? Language? 1st, don't be too hard on Andy, even if he seems hard on you. His matter of fact style was developed after years of watching parents hurt their children trusting doctors to know how to safely heal them. One of the first recommendations people make newcomers here is to get Andy's book, Amalgam Illness. As you go, if you can get past the bluntness of his style, you will find that Andy's help and chelation protocol is what is recovering many children. It is safe, low dosage and slow. Which leads me to your comment about tearing your child down with chelation. That is something that DAN! doctors and other misinformed chelation docs do. They try to give infrequent high doses of chelators which make the metals redistribute and cause more problems. Many on this board have come here for help after trying it the doctors' way. Andy is just direct, and because he doesn't want to see more children get hurt. His frustration may show, but try to not take it personally. The first Andy post I saw shocked me too. :-) You will also find many other very helpful people here, some who have adopted Andy's style, some who are a bit more tactful. You are in a good place to start though. When you do see your doctor about chelation, it is best to have as much info as you can about safe chelation and lead the doctor. Of those who still do use doctors here, many have learned to ask the doctor if they will support them using Cutler (Andy's) protocol. But, if you want to save a lot of money, this is something that you can do on your own. We do, as do many others here. We have a naturopath and basically just told him what we are doing, but never asked for his input or approval. He's quite okay with that. He uses EDTA - which is a no-no with mercury poisoning. One day, I hope to be able to educate him. We met another naturopath at a conference who is helping us with a few things, watching and anxious to see how we do. As long as your child isn't one of the very few who don't do well on ALA or DMSA when using the right dosage, this will not tear your child down following Andy's protocol. I spent many months preparing my son for the start, and though I don't regret it, found that chelation didn't really have any negative affects on him. I've watched month after month as the yeast has gone down, language and OCD have improved, and he's just all around doing so much better! In retrospect, I could have started sooner, but did what was comfortable for me. That is the best bet. If you are comfortable with it, you are bound to make better decisions. As for starting supplements, I did see that you started a few at a time. The best bet is to start only one at a time. You will be surprised what a child will react to, simple, supposedly common things become demons for our children. If you start one at a time and wait 4 or 5 days, you will be able to notice whether or not a specific supplement is a problem. It may seem like it will take longer to start this way, but it is worth it in the long run. Slow and steady, this is not a sprint but a marathon. I started my son at 17 years old, so it had been a long life for him even though mildly affected. After time on this message board, though I wanted him better fast, I knew that slow was a good thing to do. I also started my NT daughter at the same time. I had previously put supplements in place for a mito dysfunction problem. It took probably 4 weeks to get all the mito cocktail supplements on board, but what is four weeks when she had been suffering for 12 years? Now, at 14 yo, she no longer has the mito dysfunction symptoms, and we have just removed her final supplement this week. We will still chelate for quite some time though, and supplement during rounds since magnesium needs to be up for her on a round. We have finished 6 months at low dose, and are excited to see what the next 6 months brings. Also, when you see your doctor to discuss chelation, DO NOT allow him to do a challenge test. Many insist on doing this to the detriment of our children. A challenge test puts a one time large dose of chelator in your system. The chelator cannot hold all the metals it picks up until the urine test, and drops them in the body wherever. This often causes serious suffering and set backs for the child. If you want to know if your child is poisoned, the best way is to do a DDI Hair test and apply the counting rules from Andy's book " Hair Test Interpretation, " or to do a French porphyrins test I believe. Mercury hides, and pumping a bunch around the body so some can come out in the pee isn't really any more telling than a blood test. When chelation does start, the dose should be very low, not 100mg, but 1/8-1/4 mg per pound of body weight. So, if your child is 100 lbs, then you should start at no more than 25mg, and this is a bit high. We actually started at 1/16mg per pound and saw great progress. After 6 months, we are up to 1/12 mg per pound. The upper end is 1/2 mg, but that isn't where you want to start. Then, the chelator should be dosed on the half life so their is enough in the body to keep the metals moving out and not drop them. The half life for ALA (alpha lipoic acid) is 3 hours, for DMSA it is 4 hours. Those are the safest and don't require a prescription. Most here, though not all, follow that dosing for 3 days on at either 4 or 11 days off. Hope in all that you found something you could use. Blessings to you and your child on your journey! P. > _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 what do you mean the DAN protocols are dangerous? [ ] Re: newbie to biomedical > Welcome to the list. You're in the right place. Most of us chelate > without a doc. Most DAN! docs use a dangerous protocol. > S S > > newbie to biomedical > Posted by: " Sheena " speak2sheenalynn@... speak2sheenalynn > Tue Oct 28, 2008 7:11 pm (PDT) > I have done some research & I have made the phone call to the DAN dr but I > have to wait & g thru a conference w/ other newbies before my son gets any > tests. > > I printed a starter list off of Generation Rescue but nervous about it. My > theory is to build his system up w/ vitamins & the colostrum & enzymes > before we start the detox....or should I be doing anything w/out the dd > approval? ahhh! I am just so anxious to get started but don't wanna mess > my son up more....HELP! > > ------------------------------------------------------------ > Photo Search > Click here to find the perfect picture with our powerful photo search > features. > http://tagline.excite.com/fc/JkJQPTgKO6InWvUggRdgDuWOvd6uHXERhnMBA8DgcDWLZ1n1Kup\ Xyw/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 > > Hi Sheena, > > This ended up being pretty long, sorry ;-) > > I'm going to reply to a bunch of your posts in one, if you don't mind. > It sounds like you are fairly well read about a lot of this. #Well I was a single mother w/no where to turn, so my comfort was books. Some I thought were a bit far fetched, but I picked & chose from all & formed my own way for Miles. This list > will be a great resource for you. I'd love to know more about you child; > his diagnosis, age, etc. I'm curious what you think was the stimulus > for his diagnosis. Many here think the vaccines got their kids, as do > I. Others believe it was mom's amalgam fillings and fish consumption > introducing mercury in the womb. Some feel it is a combination of > genetics and outside/environmental influences. Also, how old is your > son? Has he had any dental work, any silver fillings? No one should > chelate with mercury in their mouth. It will move it around and cause > worsening symptoms. What have you notices are his biggest problems? #My son will be 11 in nov. He had 4 seizures after his MMR vaccine, but he developed on schedule & actually advanced on his communication & he picked up things like a sponge-he loved learning! He was obsessed w/ it! After I found my younger son screaming at the hands of Miles tryin to see how far his brothers arm would bend before it broke at age 4, I dove into books & research on why my son would do such a thing. I then figured out that he was on the autistic spectrum & rearranged our lives to make him " normal " . I loked for outside reasurance, but my x husband convinced me that if I did he would take both my sons from me & since he had the cash flow to afford such attorneys to do so, I just settled us in for a battle alone. I think I did pretty good since teachers never caught on to the autism, just accused him of bein adhd a few times. We visited homeopaths & that helped & since my x husband has disappeared from the picture, I have felt free to get Miles into therapy & when hthe doctor got to know Miles he said he had autistic tendencies. I shook my head agreeing. Then he laughed at me for not suggesting autism before. I told him I wanted him to find it for himself. It took him 6 months to find! > Any yeast? Stimming? Tics? Language? #I'm not sure on the yeast. Haven't read enough I guess to determine that. I know now Miles settling mechanisms are calls stims. He whistles & knocks & taps. He does some other things when stresed, they differ. He spins too. > > 1st, don't be too hard on Andy, even if he seems hard on you. His > matter of fact style was developed after years of watching parents hurt > their children trusting doctors to know how to safely heal them. One of > the first recommendations people make newcomers here is to get Andy's > book, Amalgam Illness. As you go, if you can get past the bluntness of > his style, you will find that Andy's help and chelation protocol is what > is recovering many children. It is safe, low dosage and slow. #I can agree w/ his frustration, but if it comes off as arrogance, he will not sway anyone. Its easier to get flies w/ honey than vinegar-isn't that what they say? I'd listen to a sweet person who knows little over a cocky person who knows it all. Which > leads me to your comment about tearing your child down with chelation. > That is something that DAN! doctors and other misinformed chelation docs > do. They try to give infrequent high doses of chelators which make the > metals redistribute and cause more problems. Many on this board have > come here for help after trying it the doctors' way. Andy is just > direct, and because he doesn't want to see more children get hurt. His > frustration may show, but try to not take it personally. The first Andy > post I saw shocked me too. :-) You will also find many other very > helpful people here, some who have adopted Andy's style, some who are a > bit more tactful. You are in a good place to start though. > > When you do see your doctor about chelation, it is best to have as much > info as you can about safe chelation and lead the doctor. Of those who > still do use doctors here, many have learned to ask the doctor if they > will support them using Cutler (Andy's) protocol. But, if you want to > save a lot of money, this is something that you can do on your own. We > do, as do many others here. We have a naturopath and basically just > told him what we are doing, but never asked for his input or approval. > He's quite okay with that. He uses EDTA - which is a no-no with mercury > poisoning. One day, I hope to be able to educate him. We met another > naturopath at a conference who is helping us with a few things, watching > and anxious to see how we do. As long as your child isn't one of the > very few who don't do well on ALA or DMSA when using the right dosage, > this will not tear your child down following Andy's protocol. I spent > many months preparing my son for the start, and though I don't regret > it, found that chelation didn't really have any negative affects on > him. I've watched month after month as the yeast has gone down, > language and OCD have improved, and he's just all around doing so much > better! In retrospect, I could have started sooner, but did what was > comfortable for me. That is the best bet. If you are comfortable with > it, you are bound to make better decisions. #I have made appointments w/ 2 doctors. One for mineral & heavy metal testing & one is a seminar for parents to intro them to biomedical treatment. I like to keep my options open. I want to chose the right doctor not just find a dr. What & how do I get the hair test? > > As for starting supplements, I did see that you started a few at a > time. The best bet is to start only one at a time. You will be > surprised what a child will react to, simple, supposedly common things > become demons for our children. If you start one at a time and wait 4 > or 5 days, you will be able to notice whether or not a specific > supplement is a problem. It may seem like it will take longer to start > this way, but it is worth it in the long run. Slow and steady, this is > not a sprint but a marathon. I started my son at 17 years old, so it > had been a long life for him even though mildly affected. After time on > this message board, though I wanted him better fast, I knew that slow > was a good thing to do. I also started my NT daughter at the same > time. I had previously put supplements in place for a mito dysfunction > problem. It took probably 4 weeks to get all the mito cocktail > supplements on board, but what is four weeks when she had been suffering > for 12 years? Now, at 14 yo, she no longer has the mito dysfunction > symptoms, and we have just removed her final supplement this week. We > will still chelate for quite some time though, and supplement during > rounds since magnesium needs to be up for her on a round. We have > finished 6 months at low dose, and are excited to see what the next 6 > months brings. #Pardon my ignorance-what is mito dysfunction? > > Also, when you see your doctor to discuss chelation, DO NOT allow him to > do a challenge test. Many insist on doing this to the detriment of our > children. A challenge test puts a one time large dose of chelator in > your system. The chelator cannot hold all the metals it picks up until > the urine test, and drops them in the body wherever. This often causes > serious suffering and set backs for the child. If you want to know if > your child is poisoned, the best way is to do a DDI Hair test and apply > the counting rules from Andy's book " Hair Test Interpretation, " or to do > a French porphyrins test I believe. Mercury hides, and pumping a bunch > around the body so some can come out in the pee isn't really any more > telling than a blood test. When chelation does start, the dose should > be very low, not 100mg, but 1/8-1/4 mg per pound of body weight. So, if > your child is 100 lbs, then you should start at no more than 25mg, and > this is a bit high. We actually started at 1/16mg per pound and saw > great progress. After 6 months, we are up to 1/12 mg per pound. The > upper end is 1/2 mg, but that isn't where you want to start. Then, the > chelator should be dosed on the half life so their is enough in the body > to keep the metals moving out and not drop them. The half life for ALA > (alpha lipoic acid) is 3 hours, for DMSA it is 4 hours. Those are the > safest and don't require a prescription. Most here, though not all, > follow that dosing for 3 days on at either 4 or 11 days off. > > Hope in all that you found something you could use. Blessings to you > and your child on your journey! > P. > #Thanku! All your info was very informative & very friendly! I hope we can become friends thru this. I could use one. Talk to u soon! > > > > > > _ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Sheena, The hair test is done by Doctor's Data and info about getting it is in the files section. You need to request a specific one. Others can help you more with that. Once I got on board, I decided that it was pretty obvious we were mercury toxic, so needed no hair test to make the decision to chelate. It is good to know if there is lead too, that makes a difference in which chelator you choose. As for the MMR, with what you said, I'd say it was definitely that which contributed, even if he didn't seem to regress right away. Sometimes it takes a while for all the symptoms to kick in. Mine didn't immediately regress either, but I can point to issues after each vaccination. We are now vaccine free; no more for anyone in the family. After watching what they did to their two youngest siblings, none of my kids want to ever vaccinate their children either. I'm impressed with all you've done for your son on your own. Most everyone on this board can relate to the massive amounts of reading. I never even bothered with a diagnosis for my son, since I'd never heard of anything before coming to this board that would help him. As for yeast, chances are good it may be an issue. I didn't realize my son had it until I accidentally used GSE to treat it. I thought I was treating tonsillitis, and it ended up being his head was full of yeast! Now the signs are so obvious it is almost scary to think how long I didn't know. One of the best things you can do to use this board wisely, is after reading the files section, post about specific issues you are having with your son that you want to address. Many here have been there, and have lots of sage wisdom to offer. That is how I figured out my NT daughter's mitochondrial dysfunction. Between things like lots of ear was, teeth grinding and stomach aches, the people here led me to that problem. I then added her supplements, and WOW what a different kid she is today. Another great place to look for info is http://www.danasview.net - run by our very own Dana, who has lots to offer on her site. FYI- the mito dys is a problem processing fats and nutrients properly. The cells don't receive like they should. That is an oversimplification, but pretty much it in layman's terms. It is another possible outcome of mercury poisoning which is also treatable. For my daughter, 12 years of h*** turned into a very happy life. She was so uncomfortable before the mito cocktail and chelation. You will find many friends here. Trust that they will always want what is best for you and your son. Though there are disagreements, this is one of the tightest knit and trustworthy message boards I've ever had the pleasure of participating with! P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 P wrote: > > 1st, don't be too hard on Andy, even if he seems hard on you. His > > matter of fact style was developed after years of watching parents hurt > > their children trusting doctors to know how to safely heal them. IMO that's no reason not to respond to his style when it is " hard on " people. Obviously opinions differ on this point, and obviously Andy continues to choose the sytle he is choosing. One of > > the first recommendations people make newcomers here is to get Andy's > > book, Amalgam Illness. As you go, if you can get past the bluntness of > > his style, you will find that Andy's help and chelation protocol is what > > is recovering many children. It is safe, low dosage and slow. > > #I can agree w/ his frustration, but if it comes off as arrogance, he will not sway anyone. Its easier to get flies w/ honey than vinegar-isn't that what they say? I'd listen to a sweet person who knows little over a cocky person who knows it all. Well, I think you referred to his style in an earlier comment as " know it all " (you used all caps). ( " If I wanted to be criticized, I'll go to my parents house! " ) The most useful (read: safe and effective) method for mercury chelation is " Andy's method " , also known as frequent low dosage chelation. There are a couple of lists where it is widely used or " the norm " -- but there are VERY few others besides Andy who promote it in any way. Andy is the expert on this method, which I consider by far the best method. (There are also a FEW others who are experts regarding this method, but Andy did originate it, and so people give him a unique degree of authority about it. Rightly IMO.) You don't need to like his style in order to use this method, however. Here are some basics about how it works: http://home.earthlink.net/~moriam/Andy_dose_sched.html I have documented many aspects of how to use low frequent dosage chelation (aka " Andy's method " ). I express things differently than Andy, if that's any help LOL. I am almost gruesomely intent on " the details " of things and trying to make things clear/complete. This often results in my using many many words (where Andy is more terse). > #I have made appointments w/ 2 doctors. One for mineral & heavy metal testing & one is a seminar for parents to intro them to biomedical treatment. I like to keep my options open. Yeah for you! I like to explore lots of options while I'm evaluating. I think that if you're willing to dive into this topic (which can be pretty daunting), you'll eventually choose the low frequent dose method. But checking out the options is very good IMO. As far as the testing goes, I'll also comment that most of the tests someone would do are useless or darned close to it. There's more about that at the URL cited below: > I want to chose the right doctor not just find a dr. What & how do I get the hair test? http://home.earthlink.net/~moriam/HOW_TO_hair_test.html Again, this is not a short answer, it is a longer answer. But it does contain the info on where to actually order the test and so on. (Price is probably wrong for years now.) There's also a page there about some options for locating appropriate doctors (in another file located at http://home.earthlink.net/~moriam/ ) Although I am detailed and thorough, sadly my pages are VERY out of date -- I have not updated them in several years, and there are always changes (e.g. new sources for buying chelation agents). I can't stop to let myself think about this though. Fortunately the info on chelation agents, dosages and timing really doesn't change. good wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 OOPS! I realized after re-reading this that I spelled know wrong... computer freeze, gotta' love it! I wanted to elaborate on my response to Andy.... I don't think the Dr turned my kid autistic. I beleve that God has the almighty power and to say that doctors have the power to pick and choose which kids to give autism is rediculous! I think doctors " practice " medicine and sometimes they are right and sometimes they are wrong. And for those who knew what they were doing when they gave those mercury shots to our kids-God will sort that out in the end. Our job, as assigned by God, is to play the hand we've been dealt and now that we know better- educate those who don't. But the day I think I know it all is the day God will give me something to teach me I haven't even begun! I think that's where the doctors went wrong-they forgot they were practing medicine and they believed they had perfected something. I didn't ask to be given half the stuff I have to deal with in my life, but I do and that's because God gave them to me for a reason. > > > > > > I have done some research & I have made the phone call to the DAN > dr but I have to wait > > & g thru a conference w/ other newbies before my son gets any > tests. > > > > > > I printed a starter list off of Generation Rescue but nervous > about it. My theory is to > > build his system up w/ vitamins & the colostrum & enzymes before we > start the detox....or > > should I be doing anything w/out the dd approval? ahhh! I am just > so anxious to get > > started but don't wanna mess my son up more....HELP! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Yes, they are dairy free. Mostly I would like to " fix " his screaming and tantraming (is that a word) when things get overwhelming for him. I'd love to have him eventually be able to not have to schedule everything-be spontaneous without a meltdown. He had 4 seixsure bwtween 15 months and 24 months, but didnt regress until 4 years old. It's like someone flipped a switch, he went from sweet and loving to my little monster. I dunno if you read the other comments, but he tried to break my younger sons arm and that's when I realized something was wrong. Your info is very helpful! I will add the supplemnts one at a time now on. Thankyou! > > Comments interspersed. > S S > > Re: newbie to biomedical > Posted by: " Sheena " speak2sheenalynn@... speak2sheenalynn > Wed Oct 29, 2008 6:18 am (PDT) > Thank you for welcoming me! I have started on Cod Liver Oil and B12 > dissolves and Achidophilis this morning. > > *In the future it's usually best to start one new thing at a time so you can tell what's doing what. > > My theory is to build him > up before I tear him down with the chelation. > > *If done properly chelation does not tear one down but getting supplements in place is a good idea. > > I dunno if that's > right, but that's what my heart tells me to do. I don't wannt get > his system broke down in this perfect season for cooties! Oh, > and we have also cut out the dairy. > > *Good. Are you using dairy-free acidophilis? > > That seems to be his main > culprit that I can take out immediately. > > I need to find a good vitamin for him to go along with my build him > up theory, any suggestion? > > *Many of us do better with combinations of individual supplements rather than multivitamins or minerals. > How old is your child? Did he or she regress or seem to have ASD from birth? Does he or she have ANY mercury amalgam dental fillings? Did he or she have vaccines? What are the ASD trait of most concern to you? Many on this list were mercury poisoned and otherwise damaged by vaccines which is what Andy was talking about regarding " the doctor made your kid autistic " . Many parents trusted that doctors wouldn't use vaccines if they were unsafe and now they know better. Consider doing a DDI hair elements test and applying counting rules. > > > > > ------------------------------------------------------------ > Business Phone System > Click here for free information on business phone systems from top companies. > http://tagline.excite.com/fc/JkJQPTgMtNb0ELFKn8lUTBHaXchAtrhWdW145mFDk SutDrA71FTWGc/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 We've got a very sweet talking person on another list who is leading a whole bunch of parents to do things for their kids that will just cause a concentration of mercury in the brain and other organs. Sometimes the honey approach is poison, but it sounds sweet and tastes great, and everyone feels good about themselves so they lap it up. moriamerri wrote: > > > > P wrote: > > > 1st, don't be too hard on Andy, even if he seems hard on you. > His > > > matter of fact style was developed after years of watching > parents hurt > > > their children trusting doctors to know how to safely heal them. > > IMO that's no reason not to respond to his style when it is > " hard on " people. Obviously opinions differ on this point, > and obviously Andy continues to choose the sytle he is choosing. > > One of > > > the first recommendations people make newcomers here is to get > Andy's > > > book, Amalgam Illness. As you go, if you can get past the > bluntness of > > > his style, you will find that Andy's help and chelation protocol > is what > > > is recovering many children. It is safe, low dosage and slow. > > > > > > > #I can agree w/ his frustration, but if it comes off as arrogance, > he will not sway anyone. Its easier to get flies w/ honey than > vinegar-isn't that what they say? I'd listen to a sweet person who > knows little over a cocky person who knows it all. > > Well, I think you referred to his style in an earlier comment > as " know it all " (you used all caps). ( " If I wanted to be > criticized, I'll go to my parents house! " ) > > The most useful (read: safe and effective) method for mercury > chelation is " Andy's method " , also known as frequent low dosage > chelation. There are a couple of lists where it is widely > used or " the norm " -- but there are VERY few others besides > Andy who promote it in any way. > Andy is the expert on this method, which I consider by far the > best method. (There are also a FEW others who are experts > regarding this method, but Andy did originate it, and so people > give him a unique degree of authority about it. Rightly IMO.) > You don't need to like his style in order to use this method, > however. Here are some basics about how it works: > http://home.earthlink.net/~moriam/Andy_dose_sched.html > <http://home.earthlink.net/%7Emoriam/Andy_dose_sched.html> > > I have documented many aspects of how to use low frequent > dosage chelation (aka " Andy's method " ). I express things > differently than Andy, if that's any help LOL. I am > almost gruesomely intent on " the details " of things and > trying to make things clear/complete. This often results in my > using many many words (where Andy is more terse). > > > #I have made appointments w/ 2 doctors. One for mineral & heavy > metal testing & one is a seminar for parents to intro them to > biomedical treatment. I like to keep my options open. > > Yeah for you! I like to explore lots of options while I'm > evaluating. I think that if you're willing to dive into this > topic (which can be pretty daunting), you'll eventually choose > the low frequent dose method. But checking out the options is > very good IMO. > > As far as the testing goes, I'll also comment that most of the > tests someone would do are useless or darned close to it. > There's more about that at the URL cited below: > > > I want to chose the right doctor not just find a dr. What & how do > I get the hair test? > > http://home.earthlink.net/~moriam/HOW_TO_hair_test.html > <http://home.earthlink.net/%7Emoriam/HOW_TO_hair_test.html> > Again, this is not a short answer, it is a longer answer. > But it does contain the info on where to actually order the > test and so on. (Price is probably wrong for years now.) > > There's also a page there about some options for locating > appropriate doctors (in another file located at > http://home.earthlink.net/~moriam/ > <http://home.earthlink.net/%7Emoriam/> ) > > Although I am detailed and thorough, sadly my pages are VERY > out of date -- I have not updated them in several years, and > there are always changes (e.g. new sources for buying chelation > agents). I can't stop to let myself think about this though. > Fortunately the info on chelation agents, dosages and timing > really doesn't change. > > good wishes, > Moria > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 , As a new member here, but not new to biomedical treatments and DAN it would be helpful for you all to really explain the theories behind concentrating mercury and what we should avoid, etc. Thanks a lot, Kathy Re: [ ] Re: newbie to biomedical > We've got a very sweet talking person on another list who is leading a > whole bunch of parents to do things for their kids that will just cause > a concentration of mercury in the brain and other organs. > > Sometimes the honey approach is poison, but it sounds sweet and tastes > great, and everyone feels good about themselves so they lap it up. > > > moriamerri wrote: >> >> >> >> P wrote: >> > > 1st, don't be too hard on Andy, even if he seems hard on you. >> His >> > > matter of fact style was developed after years of watching >> parents hurt >> > > their children trusting doctors to know how to safely heal them. >> >> IMO that's no reason not to respond to his style when it is >> " hard on " people. Obviously opinions differ on this point, >> and obviously Andy continues to choose the sytle he is choosing. >> >> One of >> > > the first recommendations people make newcomers here is to get >> Andy's >> > > book, Amalgam Illness. As you go, if you can get past the >> bluntness of >> > > his style, you will find that Andy's help and chelation protocol >> is what >> > > is recovering many children. It is safe, low dosage and slow. >> > >> >> >> >> > #I can agree w/ his frustration, but if it comes off as arrogance, >> he will not sway anyone. Its easier to get flies w/ honey than >> vinegar-isn't that what they say? I'd listen to a sweet person who >> knows little over a cocky person who knows it all. >> >> Well, I think you referred to his style in an earlier comment >> as " know it all " (you used all caps). ( " If I wanted to be >> criticized, I'll go to my parents house! " ) >> >> The most useful (read: safe and effective) method for mercury >> chelation is " Andy's method " , also known as frequent low dosage >> chelation. There are a couple of lists where it is widely >> used or " the norm " -- but there are VERY few others besides >> Andy who promote it in any way. >> Andy is the expert on this method, which I consider by far the >> best method. (There are also a FEW others who are experts >> regarding this method, but Andy did originate it, and so people >> give him a unique degree of authority about it. Rightly IMO.) >> You don't need to like his style in order to use this method, >> however. Here are some basics about how it works: >> http://home.earthlink.net/~moriam/Andy_dose_sched.html >> <http://home.earthlink.net/%7Emoriam/Andy_dose_sched.html> >> >> I have documented many aspects of how to use low frequent >> dosage chelation (aka " Andy's method " ). I express things >> differently than Andy, if that's any help LOL. I am >> almost gruesomely intent on " the details " of things and >> trying to make things clear/complete. This often results in my >> using many many words (where Andy is more terse). >> >> > #I have made appointments w/ 2 doctors. One for mineral & heavy >> metal testing & one is a seminar for parents to intro them to >> biomedical treatment. I like to keep my options open. >> >> Yeah for you! I like to explore lots of options while I'm >> evaluating. I think that if you're willing to dive into this >> topic (which can be pretty daunting), you'll eventually choose >> the low frequent dose method. But checking out the options is >> very good IMO. >> >> As far as the testing goes, I'll also comment that most of the >> tests someone would do are useless or darned close to it. >> There's more about that at the URL cited below: >> >> > I want to chose the right doctor not just find a dr. What & how do >> I get the hair test? >> >> http://home.earthlink.net/~moriam/HOW_TO_hair_test.html >> <http://home.earthlink.net/%7Emoriam/HOW_TO_hair_test.html> >> Again, this is not a short answer, it is a longer answer. >> But it does contain the info on where to actually order the >> test and so on. (Price is probably wrong for years now.) >> >> There's also a page there about some options for locating >> appropriate doctors (in another file located at >> http://home.earthlink.net/~moriam/ >> <http://home.earthlink.net/%7Emoriam/> ) >> >> Although I am detailed and thorough, sadly my pages are VERY >> out of date -- I have not updated them in several years, and >> there are always changes (e.g. new sources for buying chelation >> agents). I can't stop to let myself think about this though. >> Fortunately the info on chelation agents, dosages and timing >> really doesn't change. >> >> good wishes, >> Moria >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Another thing, that I was reminded of tonight, is the fact that he bruises easily. I just wondered if that was a specific deficiency I shoul address? > > Sheena, > > The hair test is done by Doctor's Data and info about getting it is in > the files section. You need to request a specific one. Others can help > you more with that. Once I got on board, I decided that it was pretty > obvious we were mercury toxic, so needed no hair test to make the > decision to chelate. It is good to know if there is lead too, that > makes a difference in which chelator you choose. > > As for the MMR, with what you said, I'd say it was definitely that which > contributed, even if he didn't seem to regress right away. Sometimes it > takes a while for all the symptoms to kick in. Mine didn't immediately > regress either, but I can point to issues after each vaccination. We > are now vaccine free; no more for anyone in the family. After watching > what they did to their two youngest siblings, none of my kids want to > ever vaccinate their children either. I'm impressed with all you've > done for your son on your own. Most everyone on this board can relate > to the massive amounts of reading. I never even bothered with a > diagnosis for my son, since I'd never heard of anything before coming to > this board that would help him. As for yeast, chances are good it may > be an issue. I didn't realize my son had it until I accidentally used > GSE to treat it. I thought I was treating tonsillitis, and it ended up > being his head was full of yeast! Now the signs are so obvious it is > almost scary to think how long I didn't know. > > One of the best things you can do to use this board wisely, is after > reading the files section, post about specific issues you are having > with your son that you want to address. Many here have been there, and > have lots of sage wisdom to offer. That is how I figured out my NT > daughter's mitochondrial dysfunction. Between things like lots of ear > was, teeth grinding and stomach aches, the people here led me to that > problem. I then added her supplements, and WOW what a different kid she > is today. Another great place to look for info is > http://www.danasview.net - run by our very own Dana, who has lots to > offer on her site. FYI- the mito dys is a problem processing fats and > nutrients properly. The cells don't receive like they should. That is > an oversimplification, but pretty much it in layman's terms. It is > another possible outcome of mercury poisoning which is also treatable. > For my daughter, 12 years of h*** turned into a very happy life. She > was so uncomfortable before the mito cocktail and chelation. > > You will find many friends here. Trust that they will always want what > is best for you and your son. Though there are disagreements, this is > one of the tightest knit and trustworthy message boards I've ever had > the pleasure of participating with! > > P. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Hi Kathy, I planned to reply to your other post re DAN! protocols and how they were unsafe, so just picked it up here. The safest way to chelate is to use small doses on the half-life. This makes sure there is a consistent amount of chelator in the body to keep the metal moving all the way out the door. What many DAN! docs do is us high, irregular dosing. That is what is dangerous. They mobilize a bunch of mercury, then let it drop where ever it happens to let loose. Some may make it out, but the rest will redistribute in bones, tissue or even the brain. This causes serious issues for those trying to recover. Some of the people on this board have come here after such episodes of bad protocol, and the stories are scary. Some docs don't even bother to make sure that you don't have amalgam fillings, which will give off mercury and make it so more will redistribute. Others use unsafe chelators like EDTA, which is more for heart patients, but there are still even better things than EDTA for them. Some will use things they think are chelators, but which don't really work to get the metals out. One of the biggest no-nos I've run into from DAN! doctors since frequenting this board is the challenge test. Many docs seem to think that they need to do a challenge test to prove there are metals before it would be right to chelate. The challenge test consists of one mega dose of chelator, then a urine test. The problem is, any mega-dose chelation is going to move something out, but drop more in new places. Then, you have redistribution, and an obvious, but no helpful test result. I've heard of some DAN! docs recommending all the right supplements for chelation, but then telling the patients NOT to take them during chelation. So, the body gets a slam of mineral depleting large dose chelator, but no replenishment until AFTER chelation. The most recent concern here was the mom who was told to give her child an excessively large quantity of water with each chelation dose. If dosed properly, every 3-4 hours, then that amount of water could easily lead to water intoxication and death. Redistribution isn't helpful at all. It just takes the bad and puts it in a new place, but it leaves it in. The idea is to get all the mercury, lead or other metal out. It takes time to do it safely and comfortably with minimal redistribution. Some DAN! docs and others seem to be learning. I've recently heard several reports of people coming here with DAN! doctors who had almost gotten it right. That is encouraging. As far as knowing what to avoid, the best thing to do is continue to read posts, read the archives, read the files and get Andy's book " Amalgam Illness. " I love the supplement section in the book too. It is very helpful. I worked on supplements for many months before beginning to chelate on my own, without a doctor. When I was comfortable that I had read all that I needed to know, then we started. Each of our kids is individual, so there really isn't a good outline I just took what I saw that applied to mine and made my own decisions about safety. Hope something there helps with the question. I'm sure others will have input too. Hopefully, they are more eloquent than I am! P. Hudson wrote: > > , As a new member here, but not new to biomedical treatments and > DAN it > would be helpful > for you all to really explain the theories behind concentrating > mercury and > what we should avoid, etc. > Thanks a lot, > Kathy > > -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Hi Kathy, Forgive me for butting in here -- I think my answer may differ from 's (but may surprise me if he's very very familiar with the files on my website?) If you go here http://home.earthlink.net/~moriam/ANDY_INDEX.html#steady_level you can find a bunch of explanation about mercury redistribution with " bad " dose timing. It may not answer all your questions, but it should be at the least a good start. I appreciate that as a new person, there's a lot that's new -- and I'm trying to direct you to some of it that I've " cataloged " . Actually, this page " Andy Index " can answer a lot of questions for you once you get familiar (and I do mean VERY familiar) with how it is organized. best, Moria > >> > >> > #I can agree w/ his frustration, but if it comes off as arrogance, > >> he will not sway anyone. Its easier to get flies w/ honey than > >> vinegar-isn't that what they say? I'd listen to a sweet person who > >> knows little over a cocky person who knows it all. > >> > >> Well, I think you referred to his style in an earlier comment > >> as " know it all " (you used all caps). ( " If I wanted to be > >> criticized, I'll go to my parents house! " ) > >> > >> The most useful (read: safe and effective) method for mercury > >> chelation is " Andy's method " , also known as frequent low dosage > >> chelation. There are a couple of lists where it is widely > >> used or " the norm " -- but there are VERY few others besides > >> Andy who promote it in any way. > >> Andy is the expert on this method, which I consider by far the > >> best method. (There are also a FEW others who are experts > >> regarding this method, but Andy did originate it, and so people > >> give him a unique degree of authority about it. Rightly IMO.) > >> You don't need to like his style in order to use this method, > >> however. Here are some basics about how it works: > >> http://home.earthlink.net/~moriam/Andy_dose_sched.html > >> <http://home.earthlink.net/%7Emoriam/Andy_dose_sched.html> > >> > >> I have documented many aspects of how to use low frequent > >> dosage chelation (aka " Andy's method " ). I express things > >> differently than Andy, if that's any help LOL. I am > >> almost gruesomely intent on " the details " of things and > >> trying to make things clear/complete. This often results in my > >> using many many words (where Andy is more terse). > >> > >> > #I have made appointments w/ 2 doctors. One for mineral & heavy > >> metal testing & one is a seminar for parents to intro them to > >> biomedical treatment. I like to keep my options open. > >> > >> Yeah for you! I like to explore lots of options while I'm > >> evaluating. I think that if you're willing to dive into this > >> topic (which can be pretty daunting), you'll eventually choose > >> the low frequent dose method. But checking out the options is > >> very good IMO. > >> > >> As far as the testing goes, I'll also comment that most of the > >> tests someone would do are useless or darned close to it. > >> There's more about that at the URL cited below: > >> > >> > I want to chose the right doctor not just find a dr. What & how do > >> I get the hair test? > >> > >> http://home.earthlink.net/~moriam/HOW_TO_hair_test.html > >> <http://home.earthlink.net/%7Emoriam/HOW_TO_hair_test.html> > >> Again, this is not a short answer, it is a longer answer. > >> But it does contain the info on where to actually order the > >> test and so on. (Price is probably wrong for years now.) > >> > >> There's also a page there about some options for locating > >> appropriate doctors (in another file located at > >> http://home.earthlink.net/~moriam/ > >> <http://home.earthlink.net/%7Emoriam/> ) > >> > >> Although I am detailed and thorough, sadly my pages are VERY > >> out of date -- I have not updated them in several years, and > >> there are always changes (e.g. new sources for buying chelation > >> agents). I can't stop to let myself think about this though. > >> Fortunately the info on chelation agents, dosages and timing > >> really doesn't change. > >> > >> good wishes, > >> Moria > >> > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 > > Another thing, that I was reminded of tonight, is the fact that he bruises easily. I just wondered if that was a specific deficiency I shoul address? > Can be (lack of) vitamin C. Don't know if there are other things that cause bruising easily. Moria Quote Link to comment Share on other sites More sharing options...
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