Re: Re: Andy/Dana-Seizures

[Guest guest]

I am sorry. I meant to say that the doctor told me to try B-

Complex... but someone told me that the B-Complex wont't work

without the Magnesium. But when I gave the Magnesium citrate.. it

made her violent. Can B-Complex work without the Mag. Citrate?

On Sep 23, 2008, at 1:32 AM, andrewhallcutler wrote:

>

> >

> > My dd had an eeg, and the nuerologist said she is having teeny

> > siezures, but not to worry about it. He/she said they usually

> outgrow

> > them. I then had another one done, and the Nuerologist said she

> should

> > be put on trileptal, which I did... she went wild on the stuff. The

> > nuerologist then said take her off.. because the siezures werent

> that

> > bad anyway. I saw an epileptologist who said try B-Complex vitamins

> > and Gava, which I did, but I took her off them, because someone said

> > the B-Complex won't work with Mag. Citrate,

>

> B complex and mag citrate work fine together.

>

> > and she couldn't take the

> > stuff. It made her crazy. I then took her for a sleep study. The

> > nuerologist said, " she needs to be put on meds " which I did. I put

> her

> > on Gabapentin, and it didn't help.

>

> Ummmm.... if this is an accurate rendition of what happened you

> need to go see some

> doctors who do actually know something about medicine. The

> neurologist sounds like a

> good candidate.

>

> Seizures aren't something to be ignored. They need to be

> controlled. Failing on a

> medication doesn't mean no medication will work, you ought to try

> another.

>

> Also it would be very helpful to tell us what the eeg report said,

> and the words the

> neurologist used. These might be words like focal, general,

> complex, simple, partial, etc.

> This is the kind of info the doc would use to decide what

> medication to offer.

>

> At this point they might offer something like Depakote or Lamictal.

>

> > She is getting better on the Diflucan and doing the chleation, but

> > still gets wierd at night, and now I am starting to think

> perhapse the

> > siezures have something to do with it.

>

> Seems pretty likely.

>

> > But how do I get a straight answer, as to how serious they are?

>

> Straight answer: they are serious.

>

> > I also read that yeast can cause

> > seizures. I don't see her having any seizures, but they said they

> are

> > happening at night. Any advice would be soooo appreciated. What

> would

> > you do?

> >

>

>

>

[Guest guest]

----- Original Message -----

From: Arias

I am sorry. I meant to say that the doctor told me to try B-

Complex... but someone told me that the B-Complex wont't work

without the Magnesium. But when I gave the Magnesium citrate.. it

made her violent.

===>Try another form of magnesium, glycinate, taurate (very useful form of

magnesium for those with seizures, Taurine helps them hold on to the magnesium),

orotate. A lot of kids cannot take the citrate form.===>

Can B-Complex work without the Mag. Citrate?

===>Work as far as preventing seizures? For some it does, but you need

magnesium (500+mgs), and taurine (1-2 grams per day), and B6 within a B

complex. KAL makes an excellent coenzyme B tablet which can be crushed if yours

doesn't swallow pills. Also some have found Carnosine useful.

As Andy has stated, medication is usually needed, but I would have to try the

supplements first, hard-headed that way :-)

On Sep 23, 2008, at 1:32 AM, andrewhallcutler wrote:

>

> >

> > My dd had an eeg, and the nuerologist said she is having teeny

> > siezures, but not to worry about it. He/she said they usually

> outgrow

> > them. I then had another one done, and the Nuerologist said she

> should

> > be put on trileptal, which I did... she went wild on the stuff. The

> > nuerologist then said take her off.. because the siezures werent

> that

> > bad anyway. I saw an epileptologist who said try B-Complex vitamins

> > and Gava, which I did, but I took her off them, because someone said

> > the B-Complex won't work with Mag. Citrate,

>

> B complex and mag citrate work fine together.

>

> > and she couldn't take the

> > stuff. It made her crazy. I then took her for a sleep study. The

> > nuerologist said, " she needs to be put on meds " which I did. I put

> her

> > on Gabapentin, and it didn't help.

>

> Ummmm.... if this is an accurate rendition of what happened you

> need to go see some

> doctors who do actually know something about medicine. The

> neurologist sounds like a

> good candidate.

>

> Seizures aren't something to be ignored. They need to be

> controlled. Failing on a

> medication doesn't mean no medication will work, you ought to try

> another.

>

> Also it would be very helpful to tell us what the eeg report said,

> and the words the

> neurologist used. These might be words like focal, general,

> complex, simple, partial, etc.

> This is the kind of info the doc would use to decide what

> medication to offer.

>

> At this point they might offer something like Depakote or Lamictal.

>

> > She is getting better on the Diflucan and doing the chleation, but

> > still gets wierd at night, and now I am starting to think

> perhapse the

> > siezures have something to do with it.

>

> Seems pretty likely.

>

> > But how do I get a straight answer, as to how serious they are?

>

> Straight answer: they are serious.

>

> > I also read that yeast can cause

> > seizures. I don't see her having any seizures, but they said they

> are

> > happening at night. Any advice would be soooo appreciated. What

> would

> > you do?

> >

>

>

>

[Guest guest]

.

I need help understanding all of this. Your saying that I need

Magnesium and that I should find glycinate or taurate magnesium. Plus

get Taurine to give her. Also what is the orate? is that something

different? Also give her B6 within the B-Complex?and get carnosine?

Where can I start first? I need to go reeeaaaalllly sloooooowwwww.

She has gotten violent on EVERYTHING I have ever tried. I am thinking

that since I have her on yeast meds. things may be different this

time with trying things. Can you please tell me where you think I

should start? Do I start with a B-comples (with B6 in it) for a few

days, then add the Magnesium. And when I go to whole foods, do I ask

for Magnesium taurate, magnesium glycinate or orate? She can swallow

capsules. I had such a revelation last night in bed, that I need to

address the seizures again. Three nuerologists gave me 3 different

answers. Some said they were serious. The others said don't worry

about them. <sigh>

On Sep 23, 2008, at 7:56 AM, <Ladyshrink111@...>

<Ladyshrink111@...> wrote:

>

> ----- Original Message -----

> From: Arias

>

> I am sorry. I meant to say that the doctor told me to try B-

> Complex... but someone told me that the B-Complex wont't work

> without the Magnesium. But when I gave the Magnesium citrate.. it

> made her violent.

>

> ===>Try another form of magnesium, glycinate, taurate (very useful

> form of magnesium for those with seizures, Taurine helps them hold

> on to the magnesium), orotate. A lot of kids cannot take the

> citrate form.===>

>

> Can B-Complex work without the Mag. Citrate?

>

> ===>Work as far as preventing seizures? For some it does, but you

> need magnesium (500+mgs), and taurine (1-2 grams per day), and B6

> within a B complex. KAL makes an excellent coenzyme B tablet which

> can be crushed if yours doesn't swallow pills. Also some have found

> Carnosine useful.

>

> As Andy has stated, medication is usually needed, but I would have

> to try the supplements first, hard-headed that way :-)

>

>

>

> On Sep 23, 2008, at 1:32 AM, andrewhallcutler wrote:

>

> >

> > >

> > > My dd had an eeg, and the nuerologist said she is having teeny

> > > siezures, but not to worry about it. He/she said they usually

> > outgrow

> > > them. I then had another one done, and the Nuerologist said she

> > should

> > > be put on trileptal, which I did... she went wild on the stuff.

> The

> > > nuerologist then said take her off.. because the siezures werent

> > that

> > > bad anyway. I saw an epileptologist who said try B-Complex

> vitamins

> > > and Gava, which I did, but I took her off them, because someone

> said

> > > the B-Complex won't work with Mag. Citrate,

> >

> > B complex and mag citrate work fine together.

> >

> > > and she couldn't take the

> > > stuff. It made her crazy. I then took her for a sleep study. The

> > > nuerologist said, " she needs to be put on meds " which I did. I put

> > her

> > > on Gabapentin, and it didn't help.

> >

> > Ummmm.... if this is an accurate rendition of what happened you

> > need to go see some

> > doctors who do actually know something about medicine. The

> > neurologist sounds like a

> > good candidate.

> >

> > Seizures aren't something to be ignored. They need to be

> > controlled. Failing on a

> > medication doesn't mean no medication will work, you ought to try

> > another.

> >

> > Also it would be very helpful to tell us what the eeg report said,

> > and the words the

> > neurologist used. These might be words like focal, general,

> > complex, simple, partial, etc.

> > This is the kind of info the doc would use to decide what

> > medication to offer.

> >

> > At this point they might offer something like Depakote or Lamictal.

> >

> > > She is getting better on the Diflucan and doing the chleation, but

> > > still gets wierd at night, and now I am starting to think

> > perhapse the

> > > siezures have something to do with it.

> >

> > Seems pretty likely.

> >

> > > But how do I get a straight answer, as to how serious they are?

> >

> > Straight answer: they are serious.

> >

> > > I also read that yeast can cause

> > > seizures. I don't see her having any seizures, but they said they

> > are

> > > happening at night. Any advice would be soooo appreciated. What

> > would

> > > you do?

> > >

> >

> >

> >

>

>

[Guest guest]

thank you soooo much.

your advice means so much to me. i know your time is precious.... yet

you always respond to my emails. i feel like such a pain sometimes. i

have a little adhd.... so at times, things take awhile to sink it <sigh>

On Sep 23, 2008, at 8:39 AM, Jada wrote:

> Either vitamin works with the other or without the other. I don't know

> someone would say that other than they have no idea how vitamins work.

>

> If she tolerates one then, then give them, or give the one that she

> does tolerate. B complex should be yeast free. Try a different form of

> magnesium like glycinate if she reacts badly to citrate, or try epsom

> salt in her bath. but also make sure the vitamins you give are yeast

> free, coloring free, preservative free..etc. Or they won't be

> tolerated.

>

> Another thing: make sure this child is not ingesting any sugar

> substitute (splenda, etc) or msg. These can contribute to seizures or

> neurological problems.

>

>

> > > >

> > > > My dd had an eeg, and the nuerologist said she is having teeny

> > > > siezures, but not to worry about it. He/she said they usually

> > > outgrow

> > > > them. I then had another one done, and the Nuerologist said she

> > > should

> > > > be put on trileptal, which I did... she went wild on the

> stuff. The

> > > > nuerologist then said take her off.. because the siezures werent

> > > that

> > > > bad anyway. I saw an epileptologist who said try B-Complex

> vitamins

> > > > and Gava, which I did, but I took her off them, because

> someone said

> > > > the B-Complex won't work with Mag. Citrate,

> > >

> > > B complex and mag citrate work fine together.

> > >

> > > > and she couldn't take the

> > > > stuff. It made her crazy. I then took her for a sleep study. The

> > > > nuerologist said, " she needs to be put on meds " which I did. I

> put

> > > her

> > > > on Gabapentin, and it didn't help.

> > >

> > > Ummmm.... if this is an accurate rendition of what happened you

> > > need to go see some

> > > doctors who do actually know something about medicine. The

> > > neurologist sounds like a

> > > good candidate.

> > >

> > > Seizures aren't something to be ignored. They need to be

> > > controlled. Failing on a

> > > medication doesn't mean no medication will work, you ought to try

> > > another.

> > >

> > > Also it would be very helpful to tell us what the eeg report said,

> > > and the words the

> > > neurologist used. These might be words like focal, general,

> > > complex, simple, partial, etc.

> > > This is the kind of info the doc would use to decide what

> > > medication to offer.

> > >

> > > At this point they might offer something like Depakote or

> Lamictal.

> > >

> > > > She is getting better on the Diflucan and doing the

> chleation, but

> > > > still gets wierd at night, and now I am starting to think

> > > perhapse the

> > > > siezures have something to do with it.

> > >

> > > Seems pretty likely.

> > >

> > > > But how do I get a straight answer, as to how serious they are?

> > >

> > > Straight answer: they are serious.

> > >

> > > > I also read that yeast can cause

> > > > seizures. I don't see her having any seizures, but they said

> they

> > > are

> > > > happening at night. Any advice would be soooo appreciated. What

> > > would

> > > > you do?

> > > >

> > >

> > >

> > >

> >

> >

> >

> >

[Guest guest]

yes, but now i hear that you can give the b-complex by itself

(without the mag) if your giving really low doses. which i will be -

at first.

On Sep 23, 2008, at 9:03 AM, Jada wrote:

> Pardon the confusion on the B and Mag..I thought you meant that one

> could not be taken unless you had the other for supplementing. But you

> meant that you wanted to use them for seizures.

>

>

> > > > >

> > > > > My dd had an eeg, and the nuerologist said she is having teeny

> > > > > siezures, but not to worry about it. He/she said they usually

> > > > outgrow

> > > > > them. I then had another one done, and the Nuerologist said

> she

> > > > should

> > > > > be put on trileptal, which I did... she went wild on the

> stuff. The

> > > > > nuerologist then said take her off.. because the siezures

> werent

> > > > that

> > > > > bad anyway. I saw an epileptologist who said try B-Complex

> vitamins

> > > > > and Gava, which I did, but I took her off them, because

> someone said

> > > > > the B-Complex won't work with Mag. Citrate,

> > > >

> > > > B complex and mag citrate work fine together.

> > > >

> > > > > and she couldn't take the

> > > > > stuff. It made her crazy. I then took her for a sleep

> study. The

> > > > > nuerologist said, " she needs to be put on meds " which I did. I

> put

> > > > her

> > > > > on Gabapentin, and it didn't help.

> > > >

> > > > Ummmm.... if this is an accurate rendition of what happened you

> > > > need to go see some

> > > > doctors who do actually know something about medicine. The

> > > > neurologist sounds like a

> > > > good candidate.

> > > >

> > > > Seizures aren't something to be ignored. They need to be

> > > > controlled. Failing on a

> > > > medication doesn't mean no medication will work, you ought to

> try

> > > > another.

> > > >

> > > > Also it would be very helpful to tell us what the eeg report

> said,

> > > > and the words the

> > > > neurologist used. These might be words like focal, general,

> > > > complex, simple, partial, etc.

> > > > This is the kind of info the doc would use to decide what

> > > > medication to offer.

> > > >

> > > > At this point they might offer something like Depakote or

> Lamictal.

> > > >

> > > > > She is getting better on the Diflucan and doing the

> chleation, but

> > > > > still gets wierd at night, and now I am starting to think

> > > > perhapse the

> > > > > siezures have something to do with it.

> > > >

> > > > Seems pretty likely.

> > > >

> > > > > But how do I get a straight answer, as to how serious they

> are?

> > > >

> > > > Straight answer: they are serious.

> > > >

> > > > > I also read that yeast can cause

> > > > > seizures. I don't see her having any seizures, but they said

> they

> > > > are

> > > > > happening at night. Any advice would be soooo appreciated.

> What

> > > > would

> > > > > you do?

> > > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > >

[Guest guest]

what omega 3 can i give? she goes nuts on cod live oil.

is krill good?

On Sep 23, 2008, at 9:53 AM, rednews5 wrote:

> I am not ,

> but if I were going slow I would start with Chelated Magnesium. It can

> be bought at Whole Foods Market. It is one of the best absorbed

> magnesiums. My daughter is taking this at the high range of 1000 mg,

> but it is also helpful for constipation. So you need begin slow and if

> you see signs of loose stool then you back off a bit. If she does not

> tolerate it in pill form, liquid ionic magnesium is available and it

> is absorbed the best directly under the tongue.

>

> A B complex is also a good supplement to give. Vitamin B6 deficiency

> has been found in a high proportion of patients with epilepsy.

>

> Taurine is found to be helpful in some cases

>

> I would at some point consider Omega 3 as well, or increase mercury

> free fish daily.

>

> Here is a good article on alternatives:

>

> http://findarticles.com/p/articles/mi_m0FDN/is_1_12/ai_n19170695/print

>

>

> >

>

>

>

[Guest guest]

.

> I need help understanding all of this. Your saying that I need

> Magnesium and that I should find glycinate or taurate magnesium. Plus

> get Taurine to give her. Also what is the orate? is that something

> different? Also give her B6 within the B-Complex?and get carnosine?

> Where can I start first? I need to go reeeaaaalllly sloooooowwwww.

> She has gotten violent on EVERYTHING I have ever tried. I am thinking

> that since I have her on yeast meds. things may be different this

> time with trying things. Can you please tell me where you think I

> should start? Do I start with a B-comples (with B6 in it) for a few

> days, then add the Magnesium. And when I go to whole foods, do I ask

> for Magnesium taurate, magnesium glycinate or orate? She can swallow

> capsules. I had such a revelation last night in bed, that I need to

> address the seizures again. Three nuerologists gave me 3 different

> answers. Some said they were serious. The others said don't worry

> about them. <sigh>

On Sep 23, 2008, at 7:56 AM, <Ladyshrink111@...>

<Ladyshrink111@...> wrote:

>

> ----- Original Message -----

> From: Arias

>

> I am sorry. I meant to say that the doctor told me to try B-

> Complex... but someone told me that the B-Complex wont't work

> without the Magnesium. But when I gave the Magnesium citrate.. it

> made her violent.

>

> ===>Try another form of magnesium, glycinate, taurate (very useful

> form of magnesium for those with seizures, Taurine helps them hold

> on to the magnesium), orotate. A lot of kids cannot take the

> citrate form.===>

>

> Can B-Complex work without the Mag. Citrate?

>

> ===>Work as far as preventing seizures? For some it does, but you

> need magnesium (500+mgs), and taurine (1-2 grams per day), and B6

> within a B complex. KAL makes an excellent coenzyme B tablet which

> can be crushed if yours doesn't swallow pills. Also some have found

> Carnosine useful.

>

> As Andy has stated, medication is usually needed, but I would have

> to try the supplements first, hard-headed that way :-)

>

>

>

> On Sep 23, 2008, at 1:32 AM, andrewhallcutler wrote:

>

> >

> > >

> > > My dd had an eeg, and the nuerologist said she is having teeny

> > > siezures, but not to worry about it. He/she said they usually

> > outgrow

> > > them. I then had another one done, and the Nuerologist said she

> > should

> > > be put on trileptal, which I did... she went wild on the stuff.

> The

> > > nuerologist then said take her off.. because the siezures werent

> > that

> > > bad anyway. I saw an epileptologist who said try B-Complex

> vitamins

> > > and Gava, which I did, but I took her off them, because someone

> said

> > > the B-Complex won't work with Mag. Citrate,

> >

> > B complex and mag citrate work fine together.

> >

> > > and she couldn't take the

> > > stuff. It made her crazy. I then took her for a sleep study. The

> > > nuerologist said, " she needs to be put on meds " which I did. I put

> > her

> > > on Gabapentin, and it didn't help.

> >

> > Ummmm.... if this is an accurate rendition of what happened you

> > need to go see some

> > doctors who do actually know something about medicine. The

> > neurologist sounds like a

> > good candidate.

> >

> > Seizures aren't something to be ignored. They need to be

> > controlled. Failing on a

> > medication doesn't mean no medication will work, you ought to try

> > another.

> >

> > Also it would be very helpful to tell us what the eeg report said,

> > and the words the

> > neurologist used. These might be words like focal, general,

> > complex, simple, partial, etc.

> > This is the kind of info the doc would use to decide what

> > medication to offer.

> >

> > At this point they might offer something like Depakote or Lamictal.

> >

> > > She is getting better on the Diflucan and doing the chleation, but

> > > still gets wierd at night, and now I am starting to think

> > perhapse the

> > > siezures have something to do with it.

> >

> > Seems pretty likely.

> >

> > > But how do I get a straight answer, as to how serious they are?

> >

> > Straight answer: they are serious.

> >

> > > I also read that yeast can cause

> > > seizures. I don't see her having any seizures, but they said they

> > are

> > > happening at night. Any advice would be soooo appreciated. What

> > would

> > > you do?

> > >

> >

> >

> >

>

>

[Guest guest]

----- Original Message -----

From: Arias

yes, but now i hear that you can give the b-complex by itself

(without the mag) if your giving really low doses. which i will be -

at first.

===>You CAN give the B6 without magnesium, but B6 will increase the

requirement for magnesium. And magnesium helps with nighttime bedwetting, don't

ask me how and everytime we gave too much B6 and failed to increase magnesium,

ours wet the bed at night and she had been night trained since she was 2.5

years.

Since magnesium is so critical for seizure control, I wouldn't try this. I

would give tiny amounts of b-complex for a few days to see if she tolerates this

and then quickly add in the magnesium you choose.

On Sep 23, 2008, at 9:03 AM, Jada wrote:

> Pardon the confusion on the B and Mag..I thought you meant that one

> could not be taken unless you had the other for supplementing. But you

> meant that you wanted to use them for seizures.

>

>

> > > > >

> > > > > My dd had an eeg, and the nuerologist said she is having teeny

> > > > > siezures, but not to worry about it. He/she said they usually

> > > > outgrow

> > > > > them. I then had another one done, and the Nuerologist said

> she

> > > > should

> > > > > be put on trileptal, which I did... she went wild on the

> stuff. The

> > > > > nuerologist then said take her off.. because the siezures

> werent

> > > > that

> > > > > bad anyway. I saw an epileptologist who said try B-Complex

> vitamins

> > > > > and Gava, which I did, but I took her off them, because

> someone said

> > > > > the B-Complex won't work with Mag. Citrate,

> > > >

> > > > B complex and mag citrate work fine together.

> > > >

> > > > > and she couldn't take the

> > > > > stuff. It made her crazy. I then took her for a sleep

> study. The

> > > > > nuerologist said, " she needs to be put on meds " which I did. I

> put

> > > > her

> > > > > on Gabapentin, and it didn't help.

> > > >

> > > > Ummmm.... if this is an accurate rendition of what happened you

> > > > need to go see some

> > > > doctors who do actually know something about medicine. The

> > > > neurologist sounds like a

> > > > good candidate.

> > > >

> > > > Seizures aren't something to be ignored. They need to be

> > > > controlled. Failing on a

> > > > medication doesn't mean no medication will work, you ought to

> try

> > > > another.

> > > >

> > > > Also it would be very helpful to tell us what the eeg report

> said,

> > > > and the words the

> > > > neurologist used. These might be words like focal, general,

> > > > complex, simple, partial, etc.

> > > > This is the kind of info the doc would use to decide what

> > > > medication to offer.

> > > >

> > > > At this point they might offer something like Depakote or

> Lamictal.

> > > >

> > > > > She is getting better on the Diflucan and doing the

> chleation, but

> > > > > still gets wierd at night, and now I am starting to think

> > > > perhapse the

> > > > > siezures have something to do with it.

> > > >

> > > > Seems pretty likely.

> > > >

> > > > > But how do I get a straight answer, as to how serious they

> are?

> > > >

> > > > Straight answer: they are serious.

> > > >

> > > > > I also read that yeast can cause

> > > > > seizures. I don't see her having any seizures, but they said

> they

> > > > are

> > > > > happening at night. Any advice would be soooo appreciated.

> What

> > > > would

> > > > > you do?

> > > > >

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[Guest guest]

No. Is it a stool test?

On Sep 23, 2008, at 10:48 AM, Kay wrote:

> I was just reading that some parasites such as human tapeworms can

> cause seizures as well. Has your child been ruled out for tapeworms

> from pork/beef??

>

> Kay

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