Re: Beth/was:what am I missing here?

January 7, 2009

----- Original Message -----

From: Beth

Out of pure curiosity, I had DS9's urine tested during a long round over

Christmas break. Wanted to see what was coming out. Our FNP had us do a 24 hour

collection. Round started that Sunday am, collection was from Thurs am to Fri

am, and round ended Fri pm.

Lab showed tiny amounts of lead, slightly more arsenic and almost NO mercury.

Did I ask for a useless test? Should I have tested stool instead? Am I doing

something wrong (chelating wise or test procedure wise)? Is it too early to see

much coming out?

===>It's hard to catch the sample at the right time and some kids don't

excrete much until a week or so after the round. What most people who have

tested have found on the low/frequent dose protocol is small levels of metals,

that's normal and what's to be expected on this protocol. A little at a time

that over time adds up to a lot. And you are just starting.

DS weighs 87 lbs, has been on 12.5 mg DMSA since the last weekend in June.

Added 12.5 mg of ALA in August and just a round or two ago upped ALA to about 16

mg. We have chelated most every weekend for 6 months.

His hair test met counting rules, and we saw great gains in the first few

rounds, so I don't think I misdiagnosed him.

We have seemed to be in the " stall " or plateau period for a while now. Is it

reasonable that I just wouldn't see in urine much if I'm not observing

improvemnts in behaviors?

===>Yes, this seems reasonable to me, but it's important to keep going, you

will get to more improvements eventually but this is a very hard time, much more

exciting in the beginning when all the good improvements are being seen. You'll

see more again.

any thoughts would be appreciated...

Beth

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