Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 Yes, I do and I did...<ggg> Don Terradon Unlimited http://www.TerradonUnlimited.com "People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000 -----Original Message-----From: Anita Rippel [mailto:anitarippe@...]Sent: Monday, November 13, 2000 7:40 PM egroupsSubject: [ ] New to group.Hi everyone! I just found your group and joined. My name is Anita, I have autoimmune hepatitis. I live in St. sburg, Florida. I've been reading some of the letters about SSDI. Are some of you saying it is possible to get SSDI if you have autoimmune hepatitis? Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 SSDI? Getting it. Due to AIH? Probably due to the OTHER problems associated with AIH (i.e cirrhosis, etc...) but approved in less then 90 days. Jen On Mon, 13 Nov 2000 20:00:05 -0600, egroups wrote: > Yes, I do and I did...<ggg> > > Don > Terradon Unlimited > http://www.TerradonUnlimited.com > " People who ask me how we can still have such a positive attitude after all > we've been through, have it all wrong.We've been able to get through all > that we have BECAUSE we have a positive attitude " . Don Hanson 8/2000 > [ ] New to group. > > > Hi everyone! I just found your group and joined. My name is Anita, I > have autoimmune hepatitis. I live in St. sburg, Florida. I've > been reading some of the letters about SSDI. Are some of you saying > it is possible to get SSDI if you have autoimmune hepatitis? Anita > > > eGroups Sponsor > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 Are you related to Ripple? Just kidding, bet you hear that all the time. LOL Genny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 Genny, you never know, I might be related to him I have been doing genealogy for a few years now, grin. Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 Hi Andy. I had trouble sleeping also while on treatment. In fact I still don't sleep more than 4-5 hrs at a time even though I stopped tx 6 months ago as a non-responder. My doc gave me ambien to use when I had been up for 24+ hrs straight maybe your's can prescribe some for you. Welcome to the group. Bobaces_showing <a-milburn@...> wrote: Hello everyone.I just wanted to introduce myself. My name is Andy. I'm on tx now and so far I consider myself lucky in the side effects dept. I was diagnosed 7 yrs ago. Before that, I went to a doc a few times. I noticed over the years that there was a subtle but noticable change in my health. Nothing ever showed in lab tests. At the time they didn't have tests for HCV. The last 7 yrs, though, has been a battle to find a doc who was willing to try treatment. It was frustrating. I could feel myself slowly but steadily worsening. The reason I'm on it now is because my alpha-fetoprotein level has skyrocketed.I guess I'm a little bitter with the medical community, but I feel a whole lot better finally letting it out. I'm sorry, I didn't intend to write a book. With this treatment I may be awake for two days before I can sleep. So, I'm very bored right about now.Thanks__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Welcome, Andy. We've all had our "challenges" dealing with doctors and insurance companies. Glad to have you and I look forward to hearing more from you. -dz-aces_showing <a-milburn@...> wrote: Hello everyone.I just wanted to introduce myself. My name is Andy. I'm on tx now and so far I consider myself lucky in the side effects dept. I was diagnosed 7 yrs ago. Before that, I went to a doc a few times. I noticed over the years that there was a subtle but noticable change in my health. Nothing ever showed in lab tests. At the time they didn't have tests for HCV. The last 7 yrs, though, has been a battle to find a doc who was willing to try treatment. It was frustrating. I could feel myself slowly but steadily worsening. The reason I'm on it now is because my alpha-fetoprotein level has skyrocketed.I guess I'm a little bitter with the medical community, but I feel a whole lot better finally letting it out. I'm sorry, I didn't intend to write a book. With this treatment I may be awake for two days before I can sleep. So, I'm very bored right about now.Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 You are such a wonderful sibling to help out this way. So many family members and friends just do not want to deal with it and so they try to love away the symptoms.. which is nice but doesn't work unfortunately. OR ignore the symptoms and make us feel guilty, lazy, and like hypochondriacs. You on the other hand are so willing to get involved. You will benefit from this too righti along with your brother. You'll learn so much that will help you both.. It's a long road ahead but in numbers is STRENGTH and in edcation as well. Liz ~~~~~~ " Happiness comes of the capacity to feel deeply, to enjoy simply, to think freely, to risk life, and to be needed. " **Storm on** ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ EMAIL: juliette@... **** liz_kitten@... PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK ADDult ADD GROUP PAGE: http://members.tripod.com/~LizK/addult.htm ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Hi - sorry to hear that your brother is struggling with ReA....but there are certainly more options available to him than NSAIDS. Have your brother ask his rheumatologist about Enbrel - it has been side effect free for me and very effective. It's very expensive...but if there is health insurance in place that shouldn't be a problem. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 Hi , I hate to say this, but your symptoms sound a lot like mine, which are caused by a herniated cervical disk. If you absolutely can't see a doctor, please avoid any lifting and get a book on exercises for neck pain. Also, you should avoid sleeping in a way that bends your neck. Buy a neck roll (Target sells pretty good ones stuffed with microbeads) and sleep with it around your neck, with your head propped either on a thin pillow or a towel—the point is to keep your neck supported and your head at a height that will keep your neck straight. If you do office work, make sure that your computer monitor is at eye level, so you're not straining your neck all day. Steve ambrookins <ambrookins@...> wrote: Hi everyone - I'm and I'm 28. I've been living with back and neck pain for at least 10 years. I've gotten used to it, since no one can really tell me if anything is wrong. Lately, though, I've developed an odd numbness and tingling started at my left shoulder going down my arm and back. It's worse when I sit, but present all the time. I don't have health insurance at this time, so going to the doctor is out of the question for now. I'm not horribly incapacitated, but am curious as to what this might be. My uneducated guess is that I have a pinced nerve, but I'm open to anyone else's opinion. I've had a stabbing-like pain on my left side, midback, ever since I was pregnant. (2 years ago). The spot is numb to the touch, but not very bothersome. Any guesses? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 Hi , I hate to say this, but your symptoms sound a lot like mine, which are caused by a herniated cervical disk. If you absolutely can't see a doctor, please avoid any lifting and get a book on exercises for neck pain. Also, you should avoid sleeping in a way that bends your neck. Buy a neck roll (Target sells pretty good ones stuffed with microbeads) and sleep with it around your neck, with your head propped either on a thin pillow or a towel—the point is to keep your neck supported and your head at a height that will keep your neck straight. If you do office work, make sure that your computer monitor is at eye level, so you're not straining your neck all day. Steve ambrookins <ambrookins@...> wrote: Hi everyone - I'm and I'm 28. I've been living with back and neck pain for at least 10 years. I've gotten used to it, since no one can really tell me if anything is wrong. Lately, though, I've developed an odd numbness and tingling started at my left shoulder going down my arm and back. It's worse when I sit, but present all the time. I don't have health insurance at this time, so going to the doctor is out of the question for now. I'm not horribly incapacitated, but am curious as to what this might be. My uneducated guess is that I have a pinced nerve, but I'm open to anyone else's opinion. I've had a stabbing-like pain on my left side, midback, ever since I was pregnant. (2 years ago). The spot is numb to the touch, but not very bothersome. Any guesses? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 Thanks for the info. I've been doing some light yoga and stretching, that seems to help a bit. I'll have insurance in a few months and I plan on going to the doctor then. In neck pain , Steve <underdog111@...> wrote: > > Hi , > > I hate to say this, but your symptoms sound a lot like mine, which are caused by a herniated cervical disk. If you absolutely can't see a doctor, please avoid any lifting and get a book on exercises for neck pain. Also, you should avoid sleeping in a way that bends your neck. Buy a neck roll (Target sells pretty good ones stuffed with microbeads) and sleep with it around your neck, with your head propped either on a thin pillow or a towel—the point is to keep your neck supported and your head at a height that will keep your neck straight. If you do office work, make sure that your computer monitor is at eye level, so you're not straining your neck all day. > > Steve > ambrookins <ambrookins@...> wrote: Hi everyone - I'm and I'm 28. I've been living with back and > neck pain for at least 10 years. I've gotten used to it, since no one > can really tell me if anything is wrong. Lately, though, I've developed > an odd numbness and tingling started at my left shoulder going down my > arm and back. It's worse when I sit, but present all the time. I don't > have health insurance at this time, so going to the doctor is out of > the question for now. I'm not horribly incapacitated, but am curious as > to what this might be. My uneducated guess is that I have a pinced > nerve, but I'm open to anyone else's opinion. I've had a stabbing- like > pain on my left side, midback, ever since I was pregnant. (2 years > ago). The spot is numb to the touch, but not very bothersome. Any > guesses? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 Thanks for the info. I've been doing some light yoga and stretching, that seems to help a bit. I'll have insurance in a few months and I plan on going to the doctor then. In neck pain , Steve <underdog111@...> wrote: > > Hi , > > I hate to say this, but your symptoms sound a lot like mine, which are caused by a herniated cervical disk. If you absolutely can't see a doctor, please avoid any lifting and get a book on exercises for neck pain. Also, you should avoid sleeping in a way that bends your neck. Buy a neck roll (Target sells pretty good ones stuffed with microbeads) and sleep with it around your neck, with your head propped either on a thin pillow or a towel—the point is to keep your neck supported and your head at a height that will keep your neck straight. If you do office work, make sure that your computer monitor is at eye level, so you're not straining your neck all day. > > Steve > ambrookins <ambrookins@...> wrote: Hi everyone - I'm and I'm 28. I've been living with back and > neck pain for at least 10 years. I've gotten used to it, since no one > can really tell me if anything is wrong. Lately, though, I've developed > an odd numbness and tingling started at my left shoulder going down my > arm and back. It's worse when I sit, but present all the time. I don't > have health insurance at this time, so going to the doctor is out of > the question for now. I'm not horribly incapacitated, but am curious as > to what this might be. My uneducated guess is that I have a pinced > nerve, but I'm open to anyone else's opinion. I've had a stabbing- like > pain on my left side, midback, ever since I was pregnant. (2 years > ago). The spot is numb to the touch, but not very bothersome. Any > guesses? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 Steve, do you know what isometric neck exercises are? or another word was translation? the chiros want me to start doing some, to stablalize my neck. i have a severely dislocating atlas with a reverse curve. are they the hand on the head ones? rotation ones? any thoughts. you sounded like you might know? thanks cindy Hi everyone - I'm and I'm 28. I've been living with back and > neck pain for at least 10 years. I've gotten used to it, since no one > can really tell me if anything is wrong. Lately, though, I've developed > an odd numbness and tingling started at my left shoulder going down my > arm and back. It's worse when I sit, but present all the time. I don't > have health insurance at this time, so going to the doctor is out of > the question for now. I'm not horribly incapacitated, but am curious as > to what this might be. My uneducated guess is that I have a pinced > nerve, but I'm open to anyone else's opinion. I've had a stabbing- like > pain on my left side, midback, ever since I was pregnant. (2 years > ago). The spot is numb to the touch, but not very bothersome. Any > guesses? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 Steve, do you know what isometric neck exercises are? or another word was translation? the chiros want me to start doing some, to stablalize my neck. i have a severely dislocating atlas with a reverse curve. are they the hand on the head ones? rotation ones? any thoughts. you sounded like you might know? thanks cindy Hi everyone - I'm and I'm 28. I've been living with back and > neck pain for at least 10 years. I've gotten used to it, since no one > can really tell me if anything is wrong. Lately, though, I've developed > an odd numbness and tingling started at my left shoulder going down my > arm and back. It's worse when I sit, but present all the time. I don't > have health insurance at this time, so going to the doctor is out of > the question for now. I'm not horribly incapacitated, but am curious as > to what this might be. My uneducated guess is that I have a pinced > nerve, but I'm open to anyone else's opinion. I've had a stabbing- like > pain on my left side, midback, ever since I was pregnant. (2 years > ago). The spot is numb to the touch, but not very bothersome. Any > guesses? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 Hi , Isometrics are pretty simple. First, press your palm against your forehead. Resist firmly with your neck muscles, holding for 5 seconds. Repeat 5 times. Then repeat this series pressing on one side of the head, then repeat again pressing on the other side. Finally, do the series pressing on the back of your head with both hands folded together to make a cradle. The last part is most important, because those rear muscles are especially helpful in keeping your head in alignment. Make sure to keep your neck straight and your chin tucked as you do all these exercises; otherwise you might hurt yourself. There are lots of other exercises that can help. For example, Robin McKenzie developed a series of exercises that are now standard in physical therapy. You could read his book (7 Steps to a Healthy Back and Neck), but I don't know if these exercises would be helpful or harmful for your particular condition, and I also think they are tricky to learn on your own (they are ineffective if your alignment isn't right as you do them, and that's hard for you to judge on your own). If you have health insurance, I strongly recommend that you have at least a few sessions with a physical therapist. In the meantime, please reread the advice I gave below regarding ergonomics. I was diligently following a physical therapy program, and I wasn't making much progress until I fixed my workspace and changed from a regular pillow to a neck support with only a very thin pillow under my head. I did this after noticing how much worse I was in the morning after a full night's sleep. After two weeks, I'm finally seeing some real relief and I've regained hope that I can get through this. Good luck! Steve grasshopperx_10 <woody10@...> wrote: Steve, do you know what isometric neck exercises are? or another word was translation? the chiros want me to start doing some, to stablalize my neck. i have a severely dislocating atlas with a reverse curve. are they the hand on the head ones? rotation ones? any thoughts. you sounded like you might know? thanks cindy Hi everyone - I'm and I'm 28. I've been living with back and > neck pain for at least 10 years. I've gotten used to it, since no one > can really tell me if anything is wrong. Lately, though, I've developed > an odd numbness and tingling started at my left shoulder going down my > arm and back. It's worse when I sit, but present all the time. I don't > have health insurance at this time, so going to the doctor is out of > the question for now. I'm not horribly incapacitated, but am curious as > to what this might be. My uneducated guess is that I have a pinced > nerve, but I'm open to anyone else's opinion. I've had a stabbing- like > pain on my left side, midback, ever since I was pregnant. (2 years > ago). The spot is numb to the touch, but not very bothersome. Any > guesses? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 Hi , Isometrics are pretty simple. First, press your palm against your forehead. Resist firmly with your neck muscles, holding for 5 seconds. Repeat 5 times. Then repeat this series pressing on one side of the head, then repeat again pressing on the other side. Finally, do the series pressing on the back of your head with both hands folded together to make a cradle. The last part is most important, because those rear muscles are especially helpful in keeping your head in alignment. Make sure to keep your neck straight and your chin tucked as you do all these exercises; otherwise you might hurt yourself. There are lots of other exercises that can help. For example, Robin McKenzie developed a series of exercises that are now standard in physical therapy. You could read his book (7 Steps to a Healthy Back and Neck), but I don't know if these exercises would be helpful or harmful for your particular condition, and I also think they are tricky to learn on your own (they are ineffective if your alignment isn't right as you do them, and that's hard for you to judge on your own). If you have health insurance, I strongly recommend that you have at least a few sessions with a physical therapist. In the meantime, please reread the advice I gave below regarding ergonomics. I was diligently following a physical therapy program, and I wasn't making much progress until I fixed my workspace and changed from a regular pillow to a neck support with only a very thin pillow under my head. I did this after noticing how much worse I was in the morning after a full night's sleep. After two weeks, I'm finally seeing some real relief and I've regained hope that I can get through this. Good luck! Steve grasshopperx_10 <woody10@...> wrote: Steve, do you know what isometric neck exercises are? or another word was translation? the chiros want me to start doing some, to stablalize my neck. i have a severely dislocating atlas with a reverse curve. are they the hand on the head ones? rotation ones? any thoughts. you sounded like you might know? thanks cindy Hi everyone - I'm and I'm 28. I've been living with back and > neck pain for at least 10 years. I've gotten used to it, since no one > can really tell me if anything is wrong. Lately, though, I've developed > an odd numbness and tingling started at my left shoulder going down my > arm and back. It's worse when I sit, but present all the time. I don't > have health insurance at this time, so going to the doctor is out of > the question for now. I'm not horribly incapacitated, but am curious as > to what this might be. My uneducated guess is that I have a pinced > nerve, but I'm open to anyone else's opinion. I've had a stabbing- like > pain on my left side, midback, ever since I was pregnant. (2 years > ago). The spot is numb to the touch, but not very bothersome. Any > guesses? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 THANK YOU STEVE.. That was very helpful!!! i had a feeling you would know. well i go to the chiropracter 3 times a week so i can't get into too much trouble.My chiro never tells me to exercise so i went to this place where 15 chiro's answer questions.. any way this one dc over there been doing it along time...i told him what i had, he told me isometrics and he said they are exercises a pt would give. I would have to start very very slow anyway. I saw your post and i thought steve will know!! that was helpful and i might even try to get that book, or maybe with summer coming maybe a few sessions with A PT LIKE YOU SAID. thanks!!!! CINDY > Hi everyone - I'm and I'm 28. I've been living with back and > > neck pain for at least 10 years. I've gotten used to it, since no > one > > can really tell me if anything is wrong. Lately, though, I've > developed > > an odd numbness and tingling started at my left shoulder going > down my > > arm and back. It's worse when I sit, but present all the time. I > don't > > have health insurance at this time, so going to the doctor is out > of > > the question for now. I'm not horribly incapacitated, but am > curious as > > to what this might be. My uneducated guess is that I have a pinced > > nerve, but I'm open to anyone else's opinion. I've had a stabbing- > like > > pain on my left side, midback, ever since I was pregnant. (2 years > > ago). The spot is numb to the touch, but not very bothersome. Any > > guesses? > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 THANK YOU STEVE.. That was very helpful!!! i had a feeling you would know. well i go to the chiropracter 3 times a week so i can't get into too much trouble.My chiro never tells me to exercise so i went to this place where 15 chiro's answer questions.. any way this one dc over there been doing it along time...i told him what i had, he told me isometrics and he said they are exercises a pt would give. I would have to start very very slow anyway. I saw your post and i thought steve will know!! that was helpful and i might even try to get that book, or maybe with summer coming maybe a few sessions with A PT LIKE YOU SAID. thanks!!!! CINDY > Hi everyone - I'm and I'm 28. I've been living with back and > > neck pain for at least 10 years. I've gotten used to it, since no > one > > can really tell me if anything is wrong. Lately, though, I've > developed > > an odd numbness and tingling started at my left shoulder going > down my > > arm and back. It's worse when I sit, but present all the time. I > don't > > have health insurance at this time, so going to the doctor is out > of > > the question for now. I'm not horribly incapacitated, but am > curious as > > to what this might be. My uneducated guess is that I have a pinced > > nerve, but I'm open to anyone else's opinion. I've had a stabbing- > like > > pain on my left side, midback, ever since I was pregnant. (2 years > > ago). The spot is numb to the touch, but not very bothersome. Any > > guesses? > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 Hi welcome to the group. Sorry to hear about your pain. There are several links in the links section you might check out. One is a site which can show you where problems in your neck or back can affect your body. That might help you narrow down where the trouble is. Also stretching is great drs say and there are several links there to wonderful stretching exercises that might help you. But I would suggest you strongly seek a dr as soon as you have insurance and find out what is going on. I am sure you would feel better knowing exactly what is going on and the dr can help you with ideas on what to do about it, whether its exercises, physical theraphy, shots surgery or other treatments. There are many to choose from so a dr can best guide you in what to do. Take care and best wishes. Sharon Group Owner > > Hi everyone - I'm and I'm 28. I've been living with back and > neck pain for at least 10 years. I've gotten used to it, since no one > can really tell me if anything is wrong. Lately, though, I've developed > an odd numbness and tingling started at my left shoulder going down my > arm and back. It's worse when I sit, but present all the time. I don't > have health insurance at this time, so going to the doctor is out of > the question for now. I'm not horribly incapacitated, but am curious as > to what this might be. My uneducated guess is that I have a pinced > nerve, but I'm open to anyone else's opinion. I've had a stabbing- like > pain on my left side, midback, ever since I was pregnant. (2 years > ago). The spot is numb to the touch, but not very bothersome. Any > guesses? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 Hi welcome to the group. Sorry to hear about your pain. There are several links in the links section you might check out. One is a site which can show you where problems in your neck or back can affect your body. That might help you narrow down where the trouble is. Also stretching is great drs say and there are several links there to wonderful stretching exercises that might help you. But I would suggest you strongly seek a dr as soon as you have insurance and find out what is going on. I am sure you would feel better knowing exactly what is going on and the dr can help you with ideas on what to do about it, whether its exercises, physical theraphy, shots surgery or other treatments. There are many to choose from so a dr can best guide you in what to do. Take care and best wishes. Sharon Group Owner > > Hi everyone - I'm and I'm 28. I've been living with back and > neck pain for at least 10 years. I've gotten used to it, since no one > can really tell me if anything is wrong. Lately, though, I've developed > an odd numbness and tingling started at my left shoulder going down my > arm and back. It's worse when I sit, but present all the time. I don't > have health insurance at this time, so going to the doctor is out of > the question for now. I'm not horribly incapacitated, but am curious as > to what this might be. My uneducated guess is that I have a pinced > nerve, but I'm open to anyone else's opinion. I've had a stabbing- like > pain on my left side, midback, ever since I was pregnant. (2 years > ago). The spot is numb to the touch, but not very bothersome. Any > guesses? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Hi; A very warm welcome to this group. I have a 7 year old grandson with autism, and I have learned so much from this group, and he is doing so much better with the protocol and all the other things we are using. Wish you luck on getting started, its quite overwhelming at first. Joyce. Quote Link to comment Share on other sites More sharing options...
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