Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 I would have started chelation much earlier--and still pounded my child with as much 1:1 therapy at the same time as I could afford (speech, o/t, AIT, etc.) In a message dated 1/10/2009 3:15:48 P.M. Central Standard Time, myrubygirl@... writes: Oh and a very easy thing you can do right now is start giving epsom salt baths. > > > > Hi. My name is Meg and I have a 13 month old son that I believe is on > > the autistic spectrum. I feel like we are racing against the clock > > and there are so many days that I don't know where to go, what to do, > > or how to help him. And so I ask...what would you do if you could > > start over again? What should we do first, second, third, etc.? I > > learn so much from the moms and dads who have gone before us. Thank > > you in advance for your thoughts. > > > > Meg > > > **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 We started GFCF diet at 2yo and ABA at 3yo. My son is now a 7yo and doing really well. He is mainstreamed without an aid in 1st grade. Is only pulled out of the classroom for speech. Most people don't even know he has a diagnosis. My only regret is that we didn't start biomedical sooner. We just started chelating about 6 month ago. We are seing amazing results. We went through many years of tantrums and bad behaviors because of yeast. I now feel his life and ours would have been much easier if we had treated the yeast sooner. I feel he would even be further along had we chelated earlier. Good Luck and I hope this helps. God Bless. Kelley From: megpizzica <megpizzica@...> Subject: [ ] If you could start over again... Date: Saturday, January 10, 2009, 2:12 PM Hi. My name is Meg and I have a 13 month old son that I believe is on the autistic spectrum. I feel like we are racing against the clock and there are so many days that I don't know where to go, what to do, or how to help him. And so I ask...what would you do if you could start over again? What should we do first, second, third, etc.? I learn so much from the moms and dads who have gone before us. Thank you in advance for your thoughts. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 In a message dated 10/01/2009 19:12:27 GMT Standard Time, megpizzica@... writes: What should we do first, second, third, etc.? I learn so much from the moms and dads who have gone before us. Thank you in advance for your thoughts. >>Houston Enzymes _www.houston-enzymes.com_ (http://www.houston-enzymes.com) Removed sugar MSG and Aspartame Gotten a DDI hair elements _www.directlabs.com_ (http://www.directlabs.com) Started support supps and probiotics, have gotten on with chelation AC style - see files section of this group Floortime 1:1 _http://www.mindspring.com/~dgn/playther.htm_ (http://www.mindspring.com/~dgn/playther.htm) HTH Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Hi Meg, this is what I wish I had done; I wish I had...chelated low frequent dose ala Cutler starting at 21 months when my son was dx, done food sensitivity test- to avoid those foods, put him on scd, if still nursing-myself as well, put him on probiotics, digestive enzymes, a good multi without copper or iron, beguan to treat yeast 1st with prescription antifungals then with naturals for long term, epsom salt baths, changed all the products in our house to healthier versions, done OAT test for parasites and yeast, done french porphyrins test at labbio.net for metals and oxidative stress, never let him have nitrous oxide, stopped vaccinating immediately and no flu shots ever, read the lable of everything that went in him and on him, begun working with good speech, OT and floortime folks, be in a good playgroup, begun working with a DAn to look at what needs supplementing.Primary mistake I made; I started with behaviorial interventions and didn't realize how sick my kid was medically until we were one full year into tx and he was 3.Heal the baby first, get loads of support for yourself, look at what goes into your body, supplement your body and nurse like crazy. your beautiful baby will be fine-if it is there you caught it well in time.My best to you, Alison M [ ] If you could start over again... Hi. My name is Meg and I have a 13 month old son that I believe is on the autistic spectrum. I feel like we are racing against the clock and there are so many days that I don't know where to go, what to do, or how to help him. And so I ask...what would you do if you could start over again? What should we do first, second, third, etc.? I learn so much from the moms and dads who have gone before us. Thank you in advance for your thoughts. Meg ------------------------------------ ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Meg, If I could start over again, first, I would never vaccinate, and second, I would have started with Homeopathy Center of Houston to detoxify the body and try to undo the damage done by vaccines. This is a hellish road, but you are onto this early and the earlier the better. Good luck, Chris > > Hi. My name is Meg and I have a 13 month old son that I believe is on > the autistic spectrum. I feel like we are racing against the clock > and there are so many days that I don't know where to go, what to do, > or how to help him. And so I ask...what would you do if you could > start over again? What should we do first, second, third, etc.? I > learn so much from the moms and dads who have gone before us. Thank > you in advance for your thoughts. > > Meg > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 I go through this in my head quite a bit! First I would stop vaccinating. Then I would do the GFCF diet. Then I would chelate with Andy's protocol. On top of that I would add all of the supps for the AC chelation. I wouldn't have worried so much about healing the gut before chelation, I would have just started a very low dose at a very early age. Also, enzymes for digestion and antivirals and antibacterials after a year or so of chelation. Good luck. The good thing is you know early and can start asap. > > Hi. My name is Meg and I have a 13 month old son that I believe is on > the autistic spectrum. I feel like we are racing against the clock > and there are so many days that I don't know where to go, what to do, > or how to help him. And so I ask...what would you do if you could > start over again? What should we do first, second, third, etc.? I > learn so much from the moms and dads who have gone before us. Thank > you in advance for your thoughts. > > Meg > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Oh and a very easy thing you can do right now is start giving epsom salt baths. > > > > Hi. My name is Meg and I have a 13 month old son that I believe is on > > the autistic spectrum. I feel like we are racing against the clock > > and there are so many days that I don't know where to go, what to do, > > or how to help him. And so I ask...what would you do if you could > > start over again? What should we do first, second, third, etc.? I > > learn so much from the moms and dads who have gone before us. Thank > > you in advance for your thoughts. > > > > Meg > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Totally agree too on the Epsom salt baths. It was the first thing we did and worked wonders for calming and sleep. @...: myrubygirl@...: Sat, 10 Jan 2009 21:15:24 +0000Subject: [ ] Re: If you could start over again... Oh and a very easy thing you can do right now is start giving epsomsalt baths.> >> > Hi. My name is Meg and I have a 13 month old son that I believe is on> > the autistic spectrum. I feel like we are racing against the clock> > and there are so many days that I don't know where to go, what to do,> > or how to help him. And so I ask...what would you do if you could> > start over again? What should we do first, second, third, etc.? I> > learn so much from the moms and dads who have gone before us. Thank> > you in advance for your thoughts.> > > > Meg> >> _________________________________________________________________ Windows Live™: Keep your life in sync. http://windowslive.com/explore?ocid=TXT_TAGLM_WL_t1_allup_explore_012009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 First I would stop vaccinating. Completely. Then I would get Andy's books - both of them. Run a hair test from directlabs.com - the hair elements test and decipher them using andy's books I might even run a porphryn's test from labbio.net so you have a baseline of where you started Then I would start adding the supplements necessary for chelation And then I would start chelating on the AC protocol - low and frequent dosing. Since he is 13 months old, you have a little bit of time before you can get going with Early Intervention, but once he passes the age that they will do an evaluation - do that asap and get services started. I wish I hadn't waited to get the ball rolling on this. Time is of the essence here. And spend as much 1 on 1 time as you can with him - and have others do the same. Look up the floortime approach and apply the skills to your play skills with your child. Be playfully obstructive to provoke a response, even if it is just a look. Hope this helps, Mom to - 4 years old - recovering from PDD-NOS Our recovery story: http://www.recoveringnicholas.com From: [mailto: ] On Behalf Of megpizzica Sent: Saturday, January 10, 2009 2:12 PM Subject: [ ] If you could start over again... Hi. My name is Meg and I have a 13 month old son that I believe is on the autistic spectrum. I feel like we are racing against the clock and there are so many days that I don't know where to go, what to do, or how to help him. And so I ask...what would you do if you could start over again? What should we do first, second, third, etc.? I learn so much from the moms and dads who have gone before us. Thank you in advance for your thoughts. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Find a homeopathic/naturopathic practioner who uses as Asyria machine to diagnose and cold lasers for detoxing. The laser work speeds up the recovery process. An Asyria machine will pick up every ailment and toxic hit to the system since almost conception. It is not a blood test or invasive in any way. I believe one of the masters of using this machine to be Dr. Cowden in Phoenix. From: megpizzica <megpizzica@...> Subject: [ ] If you could start over again... Date: Saturday, January 10, 2009, 12:12 PM Hi. My name is Meg and I have a 13 month old son that I believe is on the autistic spectrum. I feel like we are racing against the clock and there are so many days that I don't know where to go, what to do, or how to help him. And so I ask...what would you do if you could start over again? What should we do first, second, third, etc.? I learn so much from the moms and dads who have gone before us. Thank you in advance for your thoughts. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 I would have started Cutler protocol at least a year earlier, however in reality I did not know enough at that time to make that decision, and I probably would have chosen a damaging chelation protocol that our doctor at the time was trying to push. megpizzica wrote: > > Hi. My name is Meg and I have a 13 month old son that I believe is on > the autistic spectrum. I feel like we are racing against the clock > and there are so many days that I don't know where to go, what to do, > or how to help him. And so I ask...what would you do if you could > start over again? What should we do first, second, third, etc.? I > learn so much from the moms and dads who have gone before us. Thank > you in advance for your thoughts. > > Meg > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Maybe you should get a diagnosis first? What things suggest that your son is on the spectrum? I do think that a lot of the suggestions others had about a healthy diet, healthy environment (i.e. eliminating toxins) and testing for parasites/heavy metals, etc would be a good start, especially if you just know in your gut that something isn't right. I joined this list because my son has delayed speech and we took him to see a speech pathologist. However, I considered chelating my son originally because Andy writes in Amalgam illness that chelating can help with developmental/speech delays (as well as Attention Deficit, etc). I am also planning on being on Andy's protocol as soon as I stop nursing my son (hopefully by the time he is 2.5ish, so about a year from now) due to my own health problems (plus I still have one amalgam filling in my mouth that I have to remove after we finish nursing too). I am not chelating my son (at least not yet) but I have started supplementing him with some of the recommended supplements in the file list here and he is already showing a huge improvement. Vitamin B12 is especially important. I'm not giving him any anti-fungals or anti-parasitic things though because he is a very healthy boy. I'm giving him Multivitamins and minerals, including a lot more seaweed in our diet to make sure he is not mineral deficient, I started giving him cod liver oil every day and magnesium supplements and he is already doing so well. I also started incorporating some exercises the speech pathologist suggested when we play and already he has learned a couple of new words in just 2 weeks so I am thinking that chelation won't be necessary. But I do think it is important to get professional guidance at least at the start so you know for sure you are dealing with autism and not something else. For example, I worried my son could be on the spectrum too but there are so many other reasons for speech delays so when I started to research it I realized that he was not showing any other signs and the speech pathologist and our family doctor doesn't think there is any chance of autism either so for that I am grateful. Good luck to you! -Monika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Meg, It's greaat that you have found this list so early on in your son's life. Whether he is ASD or not, the info here will surely be helpful. If I were to start again, there would be NO vaccines, no tylenol, no advil, and certainly no other meds unless my child's life depended on it. I would buy Andy's books and also run the tests that he suggests. He has a very reasonable list of tests that he finds useful (compared to other doctors where the testing seems endless) and his tests won't cost a fortune. The hair test is important and possibly some blood tests too. (In my child's case, I would certainly have run a thyroid/cortisol test much earlier since this seems to have been an issue for years before I saw it.) Make sure you read the archives for what is necessary so that you only have to get blood from your baby once. I also probably would have consulted with Andy first instead of going the DAN route. If you post more about your baby, his symptoms etc. you might get more specific input. > > Hi. My name is Meg and I have a 13 month old son that I believe is on > the autistic spectrum. I feel like we are racing against the clock > and there are so many days that I don't know where to go, what to do, > or how to help him. And so I ask...what would you do if you could > start over again? What should we do first, second, third, etc.? I > learn so much from the moms and dads who have gone before us. Thank > you in advance for your thoughts. > > Meg > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 meg, im pretty new to this also. at 18 months we were told he has the signs of asd but until 3 years he want get the dx. he is 24 months and we have had some progress. we are about to start with homeopathy center in Houston. but i would say research all options, first. i know your mind is racing and your brain is about to info overload already, (or mine was anyway), but just read about biomedical and different dans protocols, homeopathy also. good luck and ill keep everyone posted about homeopathy if it work or not. and monique is right about the testing the fewer the better and choice someone that knows which one to do. sharon .. From: iam2l84t <mam78@...> Subject: [ ] Re: If you could start over again... Date: Saturday, January 10, 2009, 6:26 PM Meg, It's greaat that you have found this list so early on in your son's life. Whether he is ASD or not, the info here will surely be helpful. If I were to start again, there would be NO vaccines, no tylenol, no advil, and certainly no other meds unless my child's life depended on it. I would buy Andy's books and also run the tests that he suggests. He has a very reasonable list of tests that he finds useful (compared to other doctors where the testing seems endless) and his tests won't cost a fortune. The hair test is important and possibly some blood tests too. (In my child's case, I would certainly have run a thyroid/cortisol test much earlier since this seems to have been an issue for years before I saw it.) Make sure you read the archives for what is necessary so that you only have to get blood from your baby once. I also probably would have consulted with Andy first instead of going the DAN route. If you post more about your baby, his symptoms etc. you might get more specific input. > > Hi. My name is Meg and I have a 13 month old son that I believe is on > the autistic spectrum. I feel like we are racing against the clock > and there are so many days that I don't know where to go, what to do, > or how to help him. And so I ask...what would you do if you could > start over again? What should we do first, second, third, etc.? I > learn so much from the moms and dads who have gone before us. Thank > you in advance for your thoughts. > > Meg > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 The only things I would add would be to get a great DAN doctor. For my son, the B vitamins (6 and MB12 shots) , our great DAN doctor, HBOT and a TON of therapy are the keys that just got my son " declassified " off the spectrum 3 weeks ago. On Sat, Jan 10, 2009 at 8:20 PM, <Mum231ASD@...> wrote: > > In a message dated 10/01/2009 19:12:27 GMT Standard Time, > megpizzica@... <megpizzica%40> writes: > > What should we do first, second, third, etc.? I > learn so much from the moms and dads who have gone before us. Thank > you in advance for your thoughts. > > >>Houston Enzymes _www.houston-enzymes.com_ ( > http://www.houston-enzymes.com) > > Removed sugar MSG and Aspartame > > Gotten a DDI hair elements _www.directlabs.com_ (http://www.directlabs.com) > > > Started support supps and probiotics, have gotten on with chelation AC > style - see files section of this group > > Floortime 1:1 _http://www.mindspring.com/~dgn/playther.htm_ > (http://www.mindspring.com/~dgn/playther.htm) > > HTH > Mandi in UK > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 I would do much of the below Kenny > First I would stop vaccinating. Completely. > > Then I would get Andy's books - both of them. > > Run a hair test from directlabs.com - the hair elements test and decipher > them using andy's books > > I might even run a porphryn's test from labbio.net so you have a baseline of > where you started > > Then I would start adding the supplements necessary for chelation > > And then I would start chelating on the AC protocol - low and frequent > dosing. > > Since he is 13 months old, you have a little bit of time before you can get > going with Early Intervention, but once he passes the age that they will do > an evaluation - do that asap and get services started. > > I wish I hadn't waited to get the ball rolling on this. Time is of the > essence here. > > And spend as much 1 on 1 time as you can with him - and have others do the > same. Look up the floortime approach and apply the skills to your play > skills with your child. Be playfully obstructive to provoke a response, > even if it is just a look. > > > > Hope this helps, > > > > Mom to - 4 years old - recovering from PDD-NOS > > Our recovery story: http://www.recoveringnicholas.com > > > > From: [mailto:Autism- Mercury ] > On Behalf Of megpizzica > Sent: Saturday, January 10, 2009 2:12 PM > > Subject: [ ] If you could start over again... > > > > Hi. My name is Meg and I have a 13 month old son that I believe is on > the autistic spectrum. I feel like we are racing against the clock > and there are so many days that I don't know where to go, what to do, > or how to help him. And so I ask...what would you do if you could > start over again? What should we do first, second, third, etc.? I > learn so much from the moms and dads who have gone before us. Thank > you in advance for your thoughts. > > Meg > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Did you think the Eliza test was reliable? On Jan 10, 2009, at 2:33 PM, DavAliNee@... wrote: > Hi Meg, this is what I wish I had done; I wish I had...chelated low > frequent dose ala Cutler starting at 21 months when my son was dx, > done food sensitivity test- to avoid those foods, put him on > scd, if still nursing-myself as well, put him on probiotics, > digestive enzymes, a good multi without copper or iron, beguan to > treat yeast 1st with prescription antifungals then with naturals > for long term, epsom salt baths, changed all the products in our > house to healthier versions, done OAT test for parasites and yeast, > done french porphyrins test at labbio.net for metals and oxidative > stress, never let him have nitrous oxide, stopped vaccinating > immediately and no flu shots ever, read the lable of everything > that went in him and on him, begun working with good speech, OT and > floortime folks, be in a good playgroup, begun working with a DAn > to look at what needs supplementing.Primary mistake I made; I > started with behaviorial interventions and didn't realize how sick > my kid was medically until we were one full year into tx and he was > 3.Heal the baby first, get loads of support for yourself, look at > what goes into your body, supplement your body and nurse like > crazy. your beautiful baby will be fine-if it is there you caught > it well in time.My best to you, Alison M > [ ] If you could start over again... > > Hi. My name is Meg and I have a 13 month old son that I believe is on > the autistic spectrum. I feel like we are racing against the clock > and there are so many days that I don't know where to go, what to do, > or how to help him. And so I ask...what would you do if you could > start over again? What should we do first, second, third, etc.? I > learn so much from the moms and dads who have gone before us. Thank > you in advance for your thoughts. > > Meg > > ------------------------------------ > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 We've had three different companies doing blood work for food allergies and skin testing. They've all shown pretty much the same thing for major food allergies for us, not doubt peanut, soy, wheat. But we've had bananas, eggs, strawberries, apples come back negative and positive depending on the test. So the only way is by testing those foods. For us, what we thought was an asthma attack and cold, now we are talking about a 1 year old until maybe 3, finally we figured out was issues with foods. Often those symptoms can be 24 hours later. So a food diary or at least remembering what the offensive food you may have given might have triggered the issue. Also poor behavior, melt downs, not sleeping. It is so hard. Thankfully, we had so many allergies that we pulled out everything and didn't try anything for years. Now at age 6, now and again we might try something, like once a month. Tonight it was butter because I forgot his " save " butter at home. He's fine so far. But if tomorrow, if sneezing, runny nose, we'll see. At least we don't see the " asthma " type issues much any more. Colds we still have to watch out for that might trip him into needing some flovent, asthma issues. So.....no test is going to be 100%, that's been my experience for sure. Oh, apples, we eat now and again and no issues. But if he eats one every day, apple season, he " gets a cold " . So just knowing your daughter well enough. Each person is different. Tammy [ ] If you could start over again... > > Hi. My name is Meg and I have a 13 month old son that I believe is on > the autistic spectrum. I feel like we are racing against the clock > and there are so many days that I don't know where to go, what to do, > or how to help him. And so I ask...what would you do if you could > start over again? What should we do first, second, third, etc.? I > learn so much from the moms and dads who have gone before us. Thank > you in advance for your thoughts. > > Meg > > ------------------------------------ > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Hi ! where can i buy Any's books??? Thanks! > > First I would stop vaccinating. Completely. > > Then I would get Andy's books - both of them. > > Run a hair test from directlabs.com - the hair elements test and decipher > them using andy's books > > I might even run a porphryn's test from labbio.net so you have a baseline of > where you started > > Then I would start adding the supplements necessary for chelation > > And then I would start chelating on the AC protocol - low and frequent > dosing. > > Since he is 13 months old, you have a little bit of time before you can get > going with Early Intervention, but once he passes the age that they will do > an evaluation - do that asap and get services started. > > I wish I hadn't waited to get the ball rolling on this. Time is of the > essence here. > > And spend as much 1 on 1 time as you can with him - and have others do the > same. Look up the floortime approach and apply the skills to your play > skills with your child. Be playfully obstructive to provoke a response, > even if it is just a look. > > > > Hope this helps, > > > > Mom to - 4 years old - recovering from PDD-NOS > > Our recovery story: http://www.recoveringnicholas.com > > > > From: [mailto: ] > On Behalf Of megpizzica > Sent: Saturday, January 10, 2009 2:12 PM > > Subject: [ ] If you could start over again... > > > > Hi. My name is Meg and I have a 13 month old son that I believe is on > the autistic spectrum. I feel like we are racing against the clock > and there are so many days that I don't know where to go, what to do, > or how to help him. And so I ask...what would you do if you could > start over again? What should we do first, second, third, etc.? I > learn so much from the moms and dads who have gone before us. Thank > you in advance for your thoughts. > > Meg > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 www.noamalgam.com or amazon S S Re: If you could start over again... Posted by: " valicea1977 " vanessa@... valicea1977 Sun Jan 11, 2009 6:25 pm (PST) Hi ! where can i buy Any's books??? Thanks! ------------------------------------------------------------ Mold Remediation Don't risk your health! Click now for professional mold remediation! http://tagline.excite.com/fc/BK72PcZZ5gyi58zJmKUHzE5kNl3U2rSjLUciSePvgLM6rmxwVe9\ P0U/ Quote Link to comment Share on other sites More sharing options...
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