Re: What happened to her last night?

[Guest guest]

There is a fascinating quote on 's Recovering

blog... " A few days after starting chelation, he begged me to touch his

fingers, asking me, " Can you feel these? Because I can feel them now!

I can feel these fingers!' "

Your post reminds me of that.

--penumbra

> she said " itchy,itchy, "

[Guest guest]

> She's been sleeping through the night for at least a year now, but

> last night (for the first time) it was like she reverted back to those

> hard nights when she'd wake up repeatedly and grunt in this very, very

> irritated, high-pitched grunt. Thrusting her legs/knees up and down on

> the mattress vigorously

> violently pulling at her hands and fingers.

These are not exactly what happened here, but relatively close to one

of my kids when he had a yeast overgrowth problem.

Dana

[Guest guest]

, google " peripheral neuropathy " and " stocking and glove

parasthesias " and see if that is what may have been happening. Is

she verbal, enough to describe it now?

>

> Can anyone tell me what happened to our little girl last night?

>

> She ended her first round on Saturday (DMSA every 4 hours, 12.5 mg).

>

> She's been sleeping through the night for at least a year now, but

> last night (for the first time) it was like she reverted back to

those

> hard nights when she'd wake up repeatedly and grunt in this very,

very

> irritated, high-pitched grunt. Thrusting her legs/knees up and down

on

> the mattress vigorously . . . very frustrated. She has good verbal

> skills (I think she's Aspergers), so I was confused about why she

> wouldn't answer in words when I kept asking her what's wrong. She

kept

> violently pulling at her hands and fingers. We kept trying to ask

did

> her legs hurt? did her tummy hurt? Did her jammies itch? (A few

times

> she said " itchy,itchy, " but now I realize it was while she was

pulling

> at her fingers vigorously), did we need to take off her jammies? was

> she too hot? None of this got the clear answers we would expect

> ordinarily.

> This happened in bouts. Awake at 12 midnight doing this for 15

> minutes. Then again at 1am. Then again at 3am. We haven't had a

night

> like this since . . . her infancy? The only thing that made her be

> still and quieted down her intense irritation and crying was when I

> would sing to her. I thought I could sing her to sleep, since she

was

> obviously so tired, but no! When the song stopped, the behavior came

> back. After this went on for so long, I brought her to our bed

(hubby

> went to sleep in the other room) so I could keep this up in a more

> comfortable position.

>

> This morning, before breakfast, she was making the same sounds (but

> not the thrusting legs or hand-pulling). I knew she was tired from

the

> night before, but it had to be something more than tiredness.

>

> It seems like zinc really helped. I put a little liquid zinc in her

> vitamin c water this morning with breakfast(I usually don't because

> her kirkman's spectrum complete already has zinc). From then on, no

> more irritating tantrum or squealing. Yay!

>

> **But what could have caused this? Is this her first " side-effect? "

> Why did it seem like her hands and fingers bothered her so much,

> without comfort or relief? I wouldn't have expected this to happen 3

> days after the end of a round. She was really doing great before.

>

>

>

[Guest guest]

I just googled " peripheral neuropathy " and " stocking and glove

parasthesias. " Honestly, they seem like two different names for the

same thing.

If this is what she had going on that night, I'd believe it. Her

behavior would make sense if that was it. Plus, the descriptions all

said " environmental toxins exposure " as a possible cause.

Thank God it didn't happen last night. I gave her a little liquid zinc

with her vitamin water last night, hoping that would prevent a repeat

of the spell. Whether the zinc was responsible for her getting a good

night's sleep, I don't know, but I'm glad anyway.

If this was peripheral neuropathy, or stocking and glove parasthesias,

then is there a supplement to help with that (not that I could afford

any more supplements)? Or is chelation simply the solution?

>

> , google " peripheral neuropathy " and " stocking and glove

> parasthesias " and see if that is what may have been happening. Is

> she verbal, enough to describe it now?

>

>

>

[Guest guest]

When it happened to my son, he was kicking things all day long and

complaining about his index finger. Andy and others suggested I

lower the dose, and if that didn't change things, just use ALA only.

Lowering the dose didn't change things for my son, so we are just

using ALA. BUT, just to let you know, my son had the peripheral

neuropathy CONSTANTLY on and off rounds and it wouldn't go away until

around 3 weeks after the last round...I was really concerned, his

little legs were getting worn out from so much kicking. With all

this in mind, I have no idea whether your daughter's symptoms are

related to my son's - all I can say is that if she isn't acting

right, lower the dose a lot or take her off.

> >

> > , google " peripheral neuropathy " and " stocking and glove

> > parasthesias " and see if that is what may have been happening.

Is

> > she verbal, enough to describe it now?

> >

> >

> >

>