Fever

[Guest guest]

Hi Val,

No my fever was only 99.9, that is why I had so much trouble getting the

nurses to pay attention to me.. I forgot, I was put on Clindamycin for a day,

then Vanco plus gentamycin, all 3 IV, stayed on V and G for 4 days on the

third day they added flagyl and cipro. Day five I think the IV abx were

discontinued and I stayed on oral. I think that is how it happened. The

story is I went thru ER and the resident admitted me under my surgeons name,

but didn't notify him. Since my fever was only 99.9 the nurses wouldn't

listen to me. My chills were so bad, they started at my feet, my body would

jerk and my teeth would pound. I have an excellent surgeon who is very

particular and I thought he knew I was there. My husband finally called his

office, which was about 100 feet from my room and he was there waiting for me

for my appointment. I could hear him yelling as he came down the hall. The

you know what flew. I have never seen so much action in my life. The day

shift that gave me so much trouble really got a reprimand. I am not going to

bore you with the details, but I had told my husband to bury me in my purple

dress, because it won't hurt my knees!!! Anyway it was quite an ordeal, I

have a bit of pseudamonous left in my intestines, but not very much and am not

bothered with it too much.

Hugs,

Connie

By the way my normal temp is only 96 so aat 99.9 I knew I was sick, just

couldn't convince that nurse.

[Guest guest]

Hi Connie, That is such an ordeal I am glad to hear you recovered from it.

Feel better as always-Val

[Guest guest]

In a message dated 11/11/01 4:19:45 PM Pacific Standard Time, tdcc2000@... writes:

Oh my gosh, I have been so sick today with a fever. It was 102.4 for about10 hours. I went to ER and they asked me if I knew that I had a fever...duh...like I was suprised? Oh my gosh. Then, when they asked if I had any physical illness, I told them I had AIH...they asked if it was A, B, or C. So, I got to see the Physician Assistant and he gave me some phengryn (sp) with codeine for a cough that I didn't have! Then, he gave me some meds to help with the flu. The didn't give me anything for the fever. Fortunately, I took tons of tylenol and it finally broke.

The next time this happens and I get a fever, how do I deal with ER personnel to understand that AIH is a real illness? THey didn't even seem to believe me that I was on prednisone or anything to help with the AIH? Any suggestions?

debby

I keep a log of my treatments. If I go out of town, I'll download a page from a good AIH site or copy a page from a reference book. PLEASE think carefully before taking "a lot of Tylenol." It could be very harmful.

Harper

[Guest guest]

In a message dated 11/11/01 6:26:02 PM Pacific Standard Time, tdcc2000@... writes:

Harper, I had no idea that tylenol was so bad! All I know is that I was so sick. What would be a better asprin substitute? I am eager to know anything....I just was so sick and that was all we had in the house. debby

Some doctors say tylenol in moderate quantities is okay. I have a reference book that says that less than 4 grams a day of Tylenol is okay. My doctor says I can take a Tylenol if pain is really unbearable, but that I should try hard not to take any. To be on the safe side, I personally follow my doctor who says I should try not to take any Tylenol. You really do need to talk to your own doctor about what to do next time you need an analgesic. Ask the doctor how high a fever would be dangerous for you. Keep a thermometer on hand so you can determine where you stand if you develop another fever. I know, it's a problem.

Remember that Tylenol is the most common cause of drug-induced liver disease in the U.S., and be cautious. Remember that acetimenophen (Tylenol) is an active ingredient in many other drugs, such as Nyquil and Anacin 3. Read labels.

Harper

[Guest guest]

Galye,

Are you talking for all PBC patients??? The docs here at Mayo would laugh at me if I told them to put me in a separate room if I came into the ER. I am just trying to prepare myself what to do when i get my biannual bronchitis/pneumonia. This will be my first season diagnosed with PBC.

AnnMN

Re: [ ] fever

Debby, ER is supposed to treat you differently because you had a liver disease. If you have to tell them what you want them to do for you. Many times they get confused and want to treat liver patients as we are normal people. I was in ER Friday afternoon and we are not to wait in a waiting room and they should treat all of your symptoms immediately. They put IV ports before the docs see me. This last visit was foe infection and dehydration. gayle trans/6-99 ^oo^ galye@...

[Guest guest]

Debby,

ER is supposed to treat you differently because you had a liver disease. If you have to tell them what you want them to do for you. Many times they get confused and want to treat liver patients as we are normal people. I was in ER Friday afternoon and we are not to wait in a waiting room and they should treat all of your symptoms immediately. They put IV ports before the docs see me. This last visit was foe infection and dehydration.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

Debby, As for the Tylenol I almost died from Tylenol I have mentioned this to the group numerous times what Tylenol can do for you. If you need pain or fever reduction. Try Aleve and Motrin so you will take less oh yes Advil as well. Will help with the aches and fever and half of the amount can be taken with less risk. I take Vicodin for everything since I am limited. I want to make good use for pain relief.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

Ann,

No I am not talking about a specific more through a general eye. The more we know helps what we need especially in ER situations. It is a subject that is going to take more education to instruct doctors more in depth for liver disease.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

I hope you are feeling better. It has to be a pain to

not be feeling well and then have to deal with

idiots!! Take care

Bethanne

__________________________________________________

[Guest guest]

Thanks Beth....I hate ignorance in the medical profession. Hopefully I will be better tomorrow!

debby

Re: [ ] fever

I hope you are feeling better. It has to be a pain tonot be feeling well and then have to deal withidiots!! Take careBethanne__________________________________________________

[Guest guest]

Harper, I had no idea that tylenol was so bad! All I know is that I was so sick. What would be a better asprin substitute? I am eager to know anything....I just was so sick and that was all we had in the house. debby

Re: [ ] fever

In a message dated 11/11/01 4:19:45 PM Pacific Standard Time, tdcc2000@... writes:

Oh my gosh, I have been so sick today with a fever. It was 102.4 for about10 hours. I went to ER and they asked me if I knew that I had a fever...duh...like I was suprised? Oh my gosh. Then, when they asked if I had any physical illness, I told them I had AIH...they asked if it was A, B, or C. So, I got to see the Physician Assistant and he gave me some phengryn (sp) with codeine for a cough that I didn't have! Then, he gave me some meds to help with the flu. The didn't give me anything for the fever. Fortunately, I took tons of tylenol and it finally broke. The next time this happens and I get a fever, how do I deal with ER personnel to understand that AIH is a real illness? THey didn't even seem to believe me that I was on prednisone or anything to help with the AIH? Any suggestions? debby I keep a log of my treatments. If I go out of town, I'll download a page from a good AIH site or copy a page from a reference book. PLEASE think carefully before taking "a lot of Tylenol." It could be very harmful. Harper

[Guest guest]

Thank you Harper! I will be calling the doctor tomorrow. I talked with some other people who also have Celiac Sprue and since we have to maintain a gluten free diet, any medication with gluten in it is deadly to us....so that is why I had tylenol. I am sending out hubby tonight to get some advil. We can have that too...either advil or aleve.

Thanks again for your help!

debby

Re: [ ] fever

In a message dated 11/11/01 6:26:02 PM Pacific Standard Time, tdcc2000@... writes:

Harper, I had no idea that tylenol was so bad! All I know is that I was so sick. What would be a better asprin substitute? I am eager to know anything....I just was so sick and that was all we had in the house. debbySome doctors say tylenol in moderate quantities is okay. I have a reference book that says that less than 4 grams a day of Tylenol is okay. My doctor says I can take a Tylenol if pain is really unbearable, but that I should try hard not to take any. To be on the safe side, I personally follow my doctor who says I should try not to take any Tylenol. You really do need to talk to your own doctor about what to do next time you need an analgesic. Ask the doctor how high a fever would be dangerous for you. Keep a thermometer on hand so you can determine where you stand if you develop another fever. I know, it's a problem. Remember that Tylenol is the most common cause of drug-induced liver disease in the U.S., and be cautious. Remember that acetimenophen (Tylenol) is an active ingredient in many other drugs, such as Nyquil and Anacin 3. Read labels. Harper

[Guest guest]

I have been there. Just tell them it is an immune system problem not a

hepititis problem. Also You can't take tylonol. It's horrible for you.

Take aspirin for a fever if you must. Lucy

[Guest guest]

In a message dated 11/11/01 8:25:09 PM Pacific Standard Time, annjohn@... writes:

Galye,

Are you talking for all PBC patients??? The docs here at Mayo would laugh at me if I told them to put me in a separate room if I came into the ER. I am just trying to prepare myself what to do when i get my biannual bronchitis/pneumonia. This will be my first season diagnosed with PBC.

AnnMN

AnnMN, are you getting a pneumonia vaccine?

Harper

[Guest guest]

In a message dated 11/12/01 6:52:00 AM Pacific Standard Time, tdcc2000@... writes:

PS...do you tell them at ER that you have hepatitis when you sign in? Just curious because I don't think they would have treated me any differently when I went in.

DEFINITELY tell them that you have AIH. Also make it clear that you're taking Prednisone and Imuran, resulting in a compromised immune system.

The oxygen monitor is needed for many situations that have nothing to do with lung disease. Be glad you have it.

Harper

[Guest guest]

Gayle, thank you for the info. I was just put in a room and they turned the lights off. The PA listened to my heart and lungs and looked in my throat twice. Oh, he looked in my ears too. I just was too sick to know what was up. All they kept saying was that I had a high fever and they needed to get it down but did nothing! I just cannot go to this hospital again. Unless, of course, my GP is on call. THen, I will go to this hospital. But both my GP and GI were off this weekend so I could not get through to either one. My GI is 45 miles away. If she had been on call, I would have gone to the hospital there. It is an excellent hospital-not like this one in our town. It is sad.

Then, just before I left, the nurse came in and put that oxygen monitor on my finger-like they were more concerned with my nonexistant lung problem-but they wanted to treat it as if it was a lung problem.....oh well.

Today, I am much drained. I drank and drank last night-probably because I was totally dehydrated.

Now, about the Tylenol. Yes, I am beginning to remember about the Tylenol more and more. I just joined this group several months ago and am so grateful for all of the information I have received. One reason that I didn't pay much attention to the tylenol was that it is one of the pain relievers that I CAN take that does not have gluten in it. So, knowing that I could take it, I didn't pay much warning to what had been said.

THen, for the past 10 days or so, I have taken tylenol sinus each night. I am wondering if that might have had something to do with what happened yesterday. I also have taken quite regularly, Tylenol PM at night. Wow...am I ever upset at myself now! I have Vicodin on hand since it too does not have gluten in it. But, it makes me weird with the codeine. WHen I come off the meds, I get totally mean....mean enough that I don't even like myself! My family just stays clear of me, although when I had my titanium implant in my jaw, they knew I needed it, so they put up with me. I really tried to be good when I came off. SO, you can see, that I don't like that pain med either.

Well, overall, today, I do feel better somewhat. I just slept all day yesterday and off and on last night. BUt my body needed to recoup all that happened on SUnday! GOsh, I have not had that high a fever in years. Several years ago, I had a temp of 101 and thought I had died! I don't recall having this high for a long long time.

Well, thanks again for your help. debby

PS...do you tell them at ER that you have hepatitis when you sign in? Just curious because I don't think they would have treated me any differently when I went in.

Re: [ ] fever

Debby, ER is supposed to treat you differently because you had a liver disease. If you have to tell them what you want them to do for you. Many times they get confused and want to treat liver patients as we are normal people. I was in ER Friday afternoon and we are not to wait in a waiting room and they should treat all of your symptoms immediately. They put IV ports before the docs see me. This last visit was foe infection and dehydration. gayle trans/6-99 ^oo^ galye@...

[Guest guest]

Thank you kenneth! I will do that the next time!

debby

Re: [ ] fever

I have been there. Just tell them it is an immune system problem not a hepititis problem. Also You can't take tylonol. It's horrible for you. Take aspirin for a fever if you must. Lucy

[Guest guest]

Sorry Lucy....got the wrong name!!!! debby

Re: [ ] fever

I have been there. Just tell them it is an immune system problem not a hepititis problem. Also You can't take tylonol. It's horrible for you. Take aspirin for a fever if you must. Lucy

[Guest guest]

Debby,

In my case when going to ER since I am a transplant I always say that first. They pay attention and at least at my hospital ER has protocols that liver patients are to be taken in over anyone. One lady got mad at me because they took me back first and ha had been waiting 2 hours or more. As for Tylenol PM I shutter my daughter does that anyone taking Tylenol. Panics me I should by all means be dead now. I have fevers that reach 103 104 and I don't know I have them because I am so sick. I don't blame you for not wanting to go to the hospital if they are like that. I changed hospitals Because Denver General whom I call now Denver Death. treated me so bad they only treat the symptoms and since I am in the changeover of hospitals I can already tell a difference in how I feel. I still say the best is to ask the docs tons of questions. My favorite is telling my docs I have been doing lots of research they hate it. But I don't question they will take care of me.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

Debby,

You are paying in someway or another for good care. You help send your docs on elaborate vacations. They work for you. Do not let doctors intimidate you they like doing that then you won't ask any questions. The more you know the better your care will be. You will know what you need more than the docs and they need to know education of our own helps us to accept what happens to us and how we will react. Now the tests they do are actually interesting and how they help us. So I can accept the pain very fun to learn about. I still can't get some of the techs to talk but the ultra sounders are great for information.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

Dear Carole,

I had my flu shot and while everyone around me has been sick and

coughing at me, I never caught a flu or cold. My doctor originally said

not to get the flu vaccine because it may not have an effect. She did

later say I could go ahead and get it as it wouldn't hurt me. It's a

killed virus. I can't get the hepatitis vaccines yet until I am off

prednisone. I have had Hep B vaccine already before AIH happened. I am

afraid of Hep C, never know where it lurks, in a restaurant, or

wherever.

[ ] Re: fever

Pam,

I have heard of others on the sight getting flu shots. But my doc

said to stay away from them with the compramised immune system. Did

you do o.k. getting them?

Carole K

[Guest guest]

Carole...that is exactly why you should get your flu shots....since you

have a suppressed immune system, you are at a greater risk of getting

the flu, you should probably also get a pneumonia shot also...

Immunosuppressed people are among the 1st in line for the shots along

with the elderly and young children, I can't imagine a doctor telling

you not to get one. I am reminded yearly by the Cleveland Clinic and my

PCP to get my shots and am among the first to get it. The Clinic also

advised me to get a pneumonia booster every 4 or 5 yrs. also.

love jerry

[Guest guest]

i guess i can only say that i experienced a marked, transitory fever

after my tick

bite. after that, the standard lyme symptoms of fatigue and stiff neck.

i took 21 day doxy and that knocked out another long standing

infection, but the

lyme symptoms came back over a month.

i would GUESS that -if one has acute fever it is more likely a

co-infection or something

else.

fevers are associated with A LOT of things. they are not in any way symptomatic

of lyme disease in particular.

91% of lyme patients -according to one doctors survey- complain of STIFF NECK.

this stiff neck does NOT change according to muscular activity.

rather it changes according to the state of lyme in your body.

many docs claim it is an auto-immune reaction.

my response...

if eating sugar accerbates auto-immune stuff than this may be so.

if i eat sugar i am hammered the next day.

i HAVE READ that sugar inhibits part of the immune system.

so it may be the lyme guys get a little ahead during the immune inhibition

and i " pay " the next day.

>,

>

>Yes, high fever is associated with lyme or a co-infection.

>

>I was in the hospital being treated for high fevers when I first got

>infected - when they didn't know what I had going on. The fever

>lasted for more than 2 weeks ranging from 99 to 106 when they

>thought I had had it. The only thing that kept it under control for

>me then - in 1983 - was IV ABX.

>

>Best,

>Ann

>

>

>

>

[Guest guest]

<<<<<91% of lyme patients -according to one doctors survey- complain of STIFF

NECK.>>>>>

Goes to show you, what may be a popular symptom for many........ may not be a

symptom at all for a few.

This holds true for all the symptoms connected with lyme.

I never had a stiff neck....plenty of stiff and painful hip pain though.

ConnieKnwnj

It must happen in your mind, before it happens in your life.

When our bodies & minds are out of balance...........we suffer!

[Guest guest]

Then there is the other side of the coin. I'd be in a wheelchair

and/or bedridden without my meds.

I wouldn't want to have the job of balancing patient safety and

approval of new drugs. Heads should roll due to the continued

prescribing of Vioxx in spite of safety concerns. I have a feeling

they will.

a

On Tue, 14 Dec 2004 23:23:55 EST, aclavern33@... <aclavern33@...> wrote:

>

>

> Ok today I have not felt myself. By dinnertime I had 102.3 fever and no

> other symtoms other than fever, joint pain and chills. I took two extra

strength

> Tylenol and all my symtoms are gone within 2 hrs. This is strange. So is

> this what they call a RA flare?

>

> I guess I wait until morning to see if any other symtoms appear. I am not in

> the mood to make a trip to see my useless rheummy. I know all he wants to do

> is cram drugs down my throat.

>

> Oh there was a show on TV tonight talking about the Toxic effects if Arava,

> Vioxx, Bextra, Celebrex and a few other meds. And How people want the drugs

> pulled from the market due to deaths caused by toxicity of these meds but the

> FDA will not pull them. Hmmm....I am so glad I am NOT on any meds!!!! Too

much

> drama for me!

>

> Toni

>

>