Re: chemo response

[Guest guest]

Ed,

Chemo can and frequently does make a man sterile.

It may or may not ruin testicular function but in hearing

your signs and symptoms, it sounds like you may be

suffering testicular function problems. Time to see an

endo. Start there. It isn't uncommon for cancer patients

to need HRT after treatment. It's been a personal experience

of my own but, I actually had testicular cancer with surgery

and radiation. I waited too long to deal with the issue. Good

that you are on top of things early.

Good Luck, , Michigan

[Guest guest]

Yes I had this problem and getting my E2 down gave me relief.

Here read this.

http://www.medibolics.com/ArimidexBoostsTestosterone.htm

and this

http://www.smart-drugs.com/ias-estrogen.htm

Phil

chcnlntn <no_reply > wrote:

In the past 8 months I was treated for non_hodgkins lymphoma. High dosage

steroids

were a part of the treatment along with cytotoxic drugs that can cause

sterilization. Post

treatment I am left with smaller testicles. I understand structure follows

function and

they've kind of lost their function. Yesterday I noticed a change in my nipples

(larger).

At 51 yrs. old these bodily changes are kind of disturbing. Just wondering if

anybody here

has experienced this and was there reversal over time?

Ed

[Guest guest]

were are you at in MI. I live in Rochester Hills.

Phil

Vickie or <plp40@...> wrote:

Ed,

Chemo can and frequently does make a man sterile.

It may or may not ruin testicular function but in hearing

your signs and symptoms, it sounds like you may be

suffering testicular function problems. Time to see an

endo. Start there. It isn't uncommon for cancer patients

to need HRT after treatment. It's been a personal experience

of my own but, I actually had testicular cancer with surgery

and radiation. I waited too long to deal with the issue. Good

that you are on top of things early.

Good Luck, , Michigan

[Guest guest]

Phil,

I'm down in good old Plymouth / Canton...home

of the new IKEA...grumble. What a zoo.

The wife knows the Rochester area pretty well.

That was where her rescue station was a few

years ago.

[Guest guest]

Wow your close to Dr. in Lansing.

Phil

Vickie or <plp40@...> wrote:

Phil,

I'm down in good old Plymouth / Canton...home

of the new IKEA...grumble. What a zoo.

The wife knows the Rochester area pretty well.

That was where her rescue station was a few

years ago.

[Guest guest]

Yeah,

Close to U of M and Wayne State,

Beaumont, Henry Ford and Ohio

Medical College. For medical needs,

this is definately the place to live!

Dr. cannot treat " all " hypogonadal

patients. Testicular cancer and hcg are

not a good mix. Neither is messing with

hcg and prostate cancer. I am not apposed

to adding him to the mix however! I'm doing

quite well on the Androgel (was patches for

the first 3 weeks). Need to get the E down

probably but it's early in the game yet.

Going for blood work tomorrow.

(fire56)

[Guest guest]

I am not up on testicular cancer and HCG I do know some men here that had

prostate cancer and are doing good on TRT.

Phil

Vickie or <plp40@...> wrote:

Yeah,

Close to U of M and Wayne State,

Beaumont, Henry Ford and Ohio

Medical College. For medical needs,

this is definately the place to live!

Dr. cannot treat " all " hypogonadal

patients. Testicular cancer and hcg are

not a good mix. Neither is messing with

hcg and prostate cancer. I am not apposed

to adding him to the mix however! I'm doing

quite well on the Androgel (was patches for

the first 3 weeks). Need to get the E down

probably but it's early in the game yet.

Going for blood work tomorrow.

(fire56)

[Guest guest]

Phil,

I'd like to hear form a few who are post PCa

and now on T. I'm the first I know of personally.

[Guest guest]

Morning Ed,

There is a group called " Long Term Survivors Discussion Group " and

they are mainly Hodgkin's survivors and I have found a good group to

learn from.

They are apart of the ACOR.ORG group and can be found at

http://listserv.acor.org/archives/lt-survivors.html

Lida Zame is the Moderator and she runs a good group, please join

and intro yourself and I think you will find some very knowledgeable

people that have had Hodgkin's.

I have not had Hodgkin's, but a type of Germ-cell (Testicular

Cancer),I am a long term survivor of chemo and I am on TRT also.

Please copy and paste the above address into your browser and check

them out

Later.............

>

> In the past 8 months I was treated for non_hodgkins lymphoma.

High dosage steroids

> were a part of the treatment along with cytotoxic drugs that can

cause sterilization. Post

> treatment I am left with smaller testicles. I understand

structure follows function and

> they've kind of lost their function. Yesterday I noticed a change

in my nipples (larger).

> At 51 yrs. old these bodily changes are kind of disturbing. Just

wondering if anybody here

> has experienced this and was there reversal over time?

> Ed

>

[Guest guest]

Phil, as far as I know this is no problem with HCG and Testicular

Cancer.

But bHCG is on of the markers used in dx'ing the type of Testicular

Cancer involved.

Also as far as I know, there is no problems with TRT and Testicular

Cancer, but I do know chemo did kill the T production of my testes

and cause a few other problems as well.

Later.

> Yeah,

> Close to U of M and Wayne State,

> Beaumont, Henry Ford and Ohio

> Medical College. For medical needs,

> this is definately the place to live!

> Dr. cannot treat " all " hypogonadal

> patients. Testicular cancer and hcg are

> not a good mix. Neither is messing with

> hcg and prostate cancer. I am not apposed

> to adding him to the mix however! I'm doing

> quite well on the Androgel (was patches for

> the first 3 weeks). Need to get the E down

> probably but it's early in the game yet.

> Going for blood work tomorrow.

> (fire56)

>

>

[Guest guest]

Magenta,

It isn't the Hcg in itself that concerns my Uro/oncologist.

It's the fact that I had both testicular and prostate cancer

that is of some concern at this point. It's more a matter

of not wanting to throw too much to chance. I'm 11 years

out from TCa but only 14 months out from PCa. Hcg may

be helpful being that I do have some function of the one

testicle so maybe later, if the PSA stays zero. At the

moment the goal is to get my T up enough to feel human

again ..which I do after 1 month. I could care less if my

one lonely testicle gets larger. I've never had big ones

anyway although I am above average otherwise. The Docs

have offered to put in a companion for the one I have but

I have no real interest. The wife likes what's there already

so why change perfection..LOL!

It would be nice to get my DHT up above 13 and my E2 down

below it's current 57. I'd feel like a new man then! Thanks for

the in put. I'm always looking for good information.

[Guest guest]

Well back in the day Dr.'s would not put a man on TRT that had any kind of

cancer this thinking is now outdated. But still new men are checked if they

are seeing a good Dr. for cancer first before going on TRT something about it my

make it grow faster. Still if the Cancer is gone one should be ok on HCG or

TRT.

Phil

magenta_1996 <no_reply > wrote:

Phil, as far as I know this is no problem with HCG and Testicular

Cancer.

But bHCG is on of the markers used in dx'ing the type of Testicular

Cancer involved.

Also as far as I know, there is no problems with TRT and Testicular

Cancer, but I do know chemo did kill the T production of my testes

and cause a few other problems as well.

Later.

> Yeah,

> Close to U of M and Wayne State,

> Beaumont, Henry Ford and Ohio

> Medical College. For medical needs,

> this is definately the place to live!

> Dr. cannot treat " all " hypogonadal

> patients. Testicular cancer and hcg are

> not a good mix. Neither is messing with

> hcg and prostate cancer. I am not apposed

> to adding him to the mix however! I'm doing

> quite well on the Androgel (was patches for

> the first 3 weeks). Need to get the E down

> probably but it's early in the game yet.

> Going for blood work tomorrow.

> (fire56)

>

>

[Guest guest]

, I don't fully understand the PCa side of it, but from the

little I know unless you have the bad PCa, then TRT is ok and up to

normal levels.

As for TCa I have not read anything saying that any form of TRT is a

problem and Hcg would be ok if the teste work and only need the help

to lift production of Testosterone, but if you are like me, then no

amount of Hcg will help.

My testes have packed up shop and gone on holidays.

Have you had a look at the TCRC site. Doug has put some great

information together there and keeps it up to date.

If not you can find it here, http://tcrc.acor.org/index.html

Later,

magenta.

>

> Magenta,

> It isn't the Hcg in itself that concerns my Uro/oncologist.

> It's the fact that I had both testicular and prostate cancer

> that is of some concern at this point. It's more a matter

> of not wanting to throw too much to chance. I'm 11 years

> out from TCa but only 14 months out from PCa. Hcg may

> be helpful being that I do have some function of the one

> testicle so maybe later, if the PSA stays zero. At the

> moment the goal is to get my T up enough to feel human

> again ..which I do after 1 month. I could care less if my

> one lonely testicle gets larger. I've never had big ones

> anyway although I am above average otherwise. The Docs

> have offered to put in a companion for the one I have but

> I have no real interest. The wife likes what's there already

> so why change perfection..LOL!

> It would be nice to get my DHT up above 13 and my E2 down

> below it's current 57. I'd feel like a new man then! Thanks for

> the in put. I'm always looking for good information.

>

>

>

[Guest guest]

Phil, I think there is one type of PCa that grows faster with

testosterone present and I remember reading where they are using

some of the new drugs to stop Testosterone production while they

treat the cancer.

As for the rest it is ok, i know Testicular Cancer is not

Testosterone drive and TRT is completely safe.

There may be one or two doctor from the dark-ages with that

thinking, but modern thinking it's ok.

Later,

magenta.

> > Yeah,

> > Close to U of M and Wayne State,

> > Beaumont, Henry Ford and Ohio

> > Medical College. For medical needs,

> > this is definately the place to live!

> > Dr. cannot treat " all " hypogonadal

> > patients. Testicular cancer and hcg are

> > not a good mix. Neither is messing with

> > hcg and prostate cancer. I am not apposed

> > to adding him to the mix however! I'm doing

> > quite well on the Androgel (was patches for

> > the first 3 weeks). Need to get the E down

> > probably but it's early in the game yet.

> > Going for blood work tomorrow.

> > (fire56)

> >

> >

[Guest guest]

Magenta,

It isn't that I cannot physically use hcg unless one

considers that it is contraindicated in cases of PCa.

TCa isn't a contraindication, having had both is a

risk too high to ignore is all. Taking one risk at a time

is enough for now!

Be safe,

[Guest guest]

Phil / Magenta,

ALLL PCa raidly progresses with the introduction

of testosterone. This would be exactly how mine was

diagnosed in the first place. Starting T stirred up an

indolent cancer and provided a faster diagnosis and

earlier treatment. Based on pathology, I have a 3%

chance the cancer returning at this point. Compared

to the way I feel off T, I'll take that 3% chance but I, nor

my surgeon, are brave enough to throw hcg in to the

mix just yet. 49 is pretty young. Something had to give

but I'd really prefer it not be my life if ya get my drift!

One risky move at a time is enough for now and the

gel seems to be working pretty well so far. Blood next

week and PSA in late July will tell it all.

Be safe,

[Guest guest]

, if you are like me the chemo has damaged your Leydig cells and

they produce the Testosterone, therefore it would not matter how much

Hcg you used, it would not increase your Testosterone.

If you have the type of PCa that is responcive to Testosterone, then

please work closely with your doctor, specially if he's a good one.

I had an UK regime of chemo 19 years ago, but I don't think they use

it for TCa anymore and still have both my testes, what use they are.

My doctors told me it was all in my head and chemo does not cause

these problems, I now find more and more TC guys are now on TRT and

they are having trouble with some doctors to help them.

With PCa, you have to work with your doctor with this as he's knows

more then me about your cancer.

That's enough dribble from me for now.

Later,

magenta.

EGC

>

> Magenta,

> It isn't that I cannot physically use hcg unless one

> considers that it is contraindicated in cases of PCa.

> TCa isn't a contraindication, having had both is a

> risk too high to ignore is all. Taking one risk at a time

> is enough for now!

> Be safe,

>

>

[Guest guest]

Magenta,

All PCa will respond negatively to the introduction of

outside testosterone. I think you are talking about

androgen depenedent and independent...meaning

no matter what, androgen independent cancer will

progress dispite taking away all testosterone.

To answer your concern...oh yeah, I work very very

closely with a team of Docs actually. They don't

see but the rare occasional patient who needs or is

even eligable to try T replacement. There's a lot of interest

in my case by the Uro/Onc department at U of M.

It wasn't the Docs idea for me to go back to T. It's mine.

I am too young to feel like crud for the rest of

my life. The risk is worth taking after 10 years of hell

already. 30 more just sounded like torture.

As for the TCa, mine was surgery / radiation in 95

followed by an exploritory biopsy on the remaining testicle

in 97 for a possible second cancer. No tumor but the

testicle was damaged and only partially functions now.

My level has been between 197 and 241 max since 97.

I know what you mean about Docs not wanting to help.

I went a decade trusting Doctors in my other plan but

the wife (in 04) pushed me to the U for a good physical

and this time...she went with me! I was a bit mortified

when she flat out told the Uro /Onc that " he either get some

help for his low T or it's going to cause a divorce! " The Doc

just sat there with his mouth wide open...the woman

wasn't kidding...yikes! He got his team rolling on the

problem within minutes and here I am. Cancer free...

again and feeling much better after 1 month of T.

I guess I was being pretty difficulot to live with but in

the end, her threats saved my ars...again! Now I gotta

keep her..with pleasure mind you!

Be safe,

[Guest guest]

I myself almost lose my wife to Low T also now we are together 40 yrs. All it

took was a good Dr. and TRT. I hear this a lot on the net I even know of men

that went on TRT and were divorced and changed so good that they got back

together with there wife.

Phil

Vickie or <plp40@...> wrote:

Magenta,

All PCa will respond negatively to the introduction of

outside testosterone. I think you are talking about

androgen depenedent and independent...meaning

no matter what, androgen independent cancer will

progress dispite taking away all testosterone.

To answer your concern...oh yeah, I work very very

closely with a team of Docs actually. They don't

see but the rare occasional patient who needs or is

even eligable to try T replacement. There's a lot of interest

in my case by the Uro/Onc department at U of M.

It wasn't the Docs idea for me to go back to T. It's mine.

I am too young to feel like crud for the rest of

my life. The risk is worth taking after 10 years of hell

already. 30 more just sounded like torture.

As for the TCa, mine was surgery / radiation in 95

followed by an exploritory biopsy on the remaining testicle

in 97 for a possible second cancer. No tumor but the

testicle was damaged and only partially functions now.

My level has been between 197 and 241 max since 97.

I know what you mean about Docs not wanting to help.

I went a decade trusting Doctors in my other plan but

the wife (in 04) pushed me to the U for a good physical

and this time...she went with me! I was a bit mortified

when she flat out told the Uro /Onc that " he either get some

help for his low T or it's going to cause a divorce! " The Doc

just sat there with his mouth wide open...the woman

wasn't kidding...yikes! He got his team rolling on the

problem within minutes and here I am. Cancer free...

again and feeling much better after 1 month of T.

I guess I was being pretty difficulot to live with but in

the end, her threats saved my ars...again! Now I gotta

keep her..with pleasure mind you!

Be safe,

[Guest guest]

ALOHA aLL! - Unless you are still living in the 1700's with a

nissionary attitude toward the sexual aspects of a couples

relationship, everyone should know how important it is. After all?

What is the ONE thing that makes males different from females (and

visa-versa)??? OUR SEXUAL COMPONENTS!

I can only speak for me. But I feel the closest to my wife mentally,

physically and especially emotionally when we make love. It's the

only time we can, so to speak, " become one " , with each other. So I

can fully understand that. it DOESN'T mean its a shallow

relationship either. Hell, my wife stuck by my side for almost 10

years with very little intimacy. Love does that.

That's good to hear Phil, very good indeed!

Aloha,

Hawaiian Wayne

> Magenta,

> All PCa will respond negatively to the introduction of

> outside testosterone. I think you are talking about

> androgen depenedent and independent...meaning

> no matter what, androgen independent cancer will

> progress dispite taking away all testosterone.

>

> To answer your concern...oh yeah, I work very very

> closely with a team of Docs actually. They don't

> see but the rare occasional patient who needs or is

> even eligable to try T replacement. There's a lot of interest

> in my case by the Uro/Onc department at U of M.

> It wasn't the Docs idea for me to go back to T. It's mine.

> I am too young to feel like crud for the rest of

> my life. The risk is worth taking after 10 years of hell

> already. 30 more just sounded like torture.

>

> As for the TCa, mine was surgery / radiation in 95

> followed by an exploritory biopsy on the remaining testicle

> in 97 for a possible second cancer. No tumor but the

> testicle was damaged and only partially functions now.

> My level has been between 197 and 241 max since 97.

>

>

> I know what you mean about Docs not wanting to help.

> I went a decade trusting Doctors in my other plan but

> the wife (in 04) pushed me to the U for a good physical

> and this time...she went with me! I was a bit mortified

> when she flat out told the Uro /Onc that " he either get some

> help for his low T or it's going to cause a divorce! " The Doc

> just sat there with his mouth wide open...the woman

> wasn't kidding...yikes! He got his team rolling on the

> problem within minutes and here I am. Cancer free...

> again and feeling much better after 1 month of T.

> I guess I was being pretty difficulot to live with but in

> the end, her threats saved my ars...again! Now I gotta

> keep her..with pleasure mind you!

>

> Be safe,

>

>

>

[Guest guest]

If you have a doctor who is from the 21 century then hang on to

him/her.

I can't find a doctor either know about TRT of cares, I am driving

my own health care and dragging my doctor out of the darkages, but

sadly she has to follow the rules that are 20 years old.

We don't have the same drugs available as what you do and if they

are available and prescribed then I can't afford them, as the drug

companies think they need to make there next million this week.

Sadly not all doctor are as enlightened as Dr and he stand out

of the crowd of doctors in the US also.

Later,

Me.

> > Magenta,

> > All PCa will respond negatively to the introduction of

> > outside testosterone. I think you are talking about

> > androgen depenedent and independent...meaning

> > no matter what, androgen independent cancer will

> > progress dispite taking away all testosterone.

> >

> > To answer your concern...oh yeah, I work very very

> > closely with a team of Docs actually. They don't

> > see but the rare occasional patient who needs or is

> > even eligable to try T replacement. There's a lot of interest

> > in my case by the Uro/Onc department at U of M.

> > It wasn't the Docs idea for me to go back to T. It's mine.

> > I am too young to feel like crud for the rest of

> > my life. The risk is worth taking after 10 years of hell

> > already. 30 more just sounded like torture.

> >

> > As for the TCa, mine was surgery / radiation in 95

> > followed by an exploritory biopsy on the remaining testicle

> > in 97 for a possible second cancer. No tumor but the

> > testicle was damaged and only partially functions now.

> > My level has been between 197 and 241 max since 97.

> >

> >

> > I know what you mean about Docs not wanting to help.

> > I went a decade trusting Doctors in my other plan but

> > the wife (in 04) pushed me to the U for a good physical

> > and this time...she went with me! I was a bit mortified

> > when she flat out told the Uro /Onc that " he either get some

> > help for his low T or it's going to cause a divorce! " The Doc

> > just sat there with his mouth wide open...the woman

> > wasn't kidding...yikes! He got his team rolling on the

> > problem within minutes and here I am. Cancer free...

> > again and feeling much better after 1 month of T.

> > I guess I was being pretty difficulot to live with but in

> > the end, her threats saved my ars...again! Now I gotta

> > keep her..with pleasure mind you!

> >

> > Be safe,

> >

> >

> >

[Guest guest]

Hey magenta! - I'll find a site you can go to and explain to them

exactly WHY you cannot afford the meds you deed (even marriage

saving meds, as long as you explain it all!)OK? I hope to have it on

my next post. Aloha for now,

Hawaiian Wayne

> > > Magenta,

> > > All PCa will respond negatively to the introduction of

> > > outside testosterone. I think you are talking about

> > > androgen depenedent and independent...meaning

> > > no matter what, androgen independent cancer will

> > > progress dispite taking away all testosterone.

> > >

> > > To answer your concern...oh yeah, I work very very

> > > closely with a team of Docs actually. They don't

> > > see but the rare occasional patient who needs or is

> > > even eligable to try T replacement. There's a lot of interest

> > > in my case by the Uro/Onc department at U of M.

> > > It wasn't the Docs idea for me to go back to T. It's mine.

> > > I am too young to feel like crud for the rest of

> > > my life. The risk is worth taking after 10 years of hell

> > > already. 30 more just sounded like torture.

> > >

> > > As for the TCa, mine was surgery / radiation in 95

> > > followed by an exploritory biopsy on the remaining testicle

> > > in 97 for a possible second cancer. No tumor but the

> > > testicle was damaged and only partially functions now.

> > > My level has been between 197 and 241 max since 97.

> > >

> > >

> > > I know what you mean about Docs not wanting to help.

> > > I went a decade trusting Doctors in my other plan but

> > > the wife (in 04) pushed me to the U for a good physical

> > > and this time...she went with me! I was a bit mortified

> > > when she flat out told the Uro /Onc that " he either get some

> > > help for his low T or it's going to cause a divorce! " The Doc

> > > just sat there with his mouth wide open...the woman

> > > wasn't kidding...yikes! He got his team rolling on the

> > > problem within minutes and here I am. Cancer free...

> > > again and feeling much better after 1 month of T.

> > > I guess I was being pretty difficulot to live with but in

> > > the end, her threats saved my ars...again! Now I gotta

> > > keep her..with pleasure mind you!

> > >

> > > Be safe,

> > >

> > >

> > >

[Guest guest]

Thank for that Wayne.

I checked one out some time back, but I had to be living in the US,

which I'm not and I could not find a similar site for down here.

Thanks,

magenta.

> > > > Magenta,

> > > > All PCa will respond negatively to the introduction of

> > > > outside testosterone. I think you are talking about

> > > > androgen depenedent and independent...meaning

> > > > no matter what, androgen independent cancer will

> > > > progress dispite taking away all testosterone.

> > > >

> > > > To answer your concern...oh yeah, I work very very

> > > > closely with a team of Docs actually. They don't

> > > > see but the rare occasional patient who needs or is

> > > > even eligable to try T replacement. There's a lot of

interest

> > > > in my case by the Uro/Onc department at U of M.

> > > > It wasn't the Docs idea for me to go back to T. It's mine.

> > > > I am too young to feel like crud for the rest of

> > > > my life. The risk is worth taking after 10 years of hell

> > > > already. 30 more just sounded like torture.

> > > >

> > > > As for the TCa, mine was surgery / radiation in 95

> > > > followed by an exploritory biopsy on the remaining testicle

> > > > in 97 for a possible second cancer. No tumor but the

> > > > testicle was damaged and only partially functions now.

> > > > My level has been between 197 and 241 max since 97.

> > > >

> > > >

> > > > I know what you mean about Docs not wanting to help.

> > > > I went a decade trusting Doctors in my other plan but

> > > > the wife (in 04) pushed me to the U for a good physical

> > > > and this time...she went with me! I was a bit mortified

> > > > when she flat out told the Uro /Onc that " he either get some

> > > > help for his low T or it's going to cause a divorce! " The

Doc

> > > > just sat there with his mouth wide open...the woman

> > > > wasn't kidding...yikes! He got his team rolling on the

> > > > problem within minutes and here I am. Cancer free...

> > > > again and feeling much better after 1 month of T.

> > > > I guess I was being pretty difficulot to live with but in

> > > > the end, her threats saved my ars...again! Now I gotta

> > > > keep her..with pleasure mind you!

> > > >

> > > > Be safe,

> > > >

> > > >

> > > >