Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Ed, Chemo can and frequently does make a man sterile. It may or may not ruin testicular function but in hearing your signs and symptoms, it sounds like you may be suffering testicular function problems. Time to see an endo. Start there. It isn't uncommon for cancer patients to need HRT after treatment. It's been a personal experience of my own but, I actually had testicular cancer with surgery and radiation. I waited too long to deal with the issue. Good that you are on top of things early. Good Luck, , Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Yes I had this problem and getting my E2 down gave me relief. Here read this. http://www.medibolics.com/ArimidexBoostsTestosterone.htm and this http://www.smart-drugs.com/ias-estrogen.htm Phil chcnlntn <no_reply > wrote: In the past 8 months I was treated for non_hodgkins lymphoma. High dosage steroids were a part of the treatment along with cytotoxic drugs that can cause sterilization. Post treatment I am left with smaller testicles. I understand structure follows function and they've kind of lost their function. Yesterday I noticed a change in my nipples (larger). At 51 yrs. old these bodily changes are kind of disturbing. Just wondering if anybody here has experienced this and was there reversal over time? Ed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 were are you at in MI. I live in Rochester Hills. Phil Vickie or <plp40@...> wrote: Ed, Chemo can and frequently does make a man sterile. It may or may not ruin testicular function but in hearing your signs and symptoms, it sounds like you may be suffering testicular function problems. Time to see an endo. Start there. It isn't uncommon for cancer patients to need HRT after treatment. It's been a personal experience of my own but, I actually had testicular cancer with surgery and radiation. I waited too long to deal with the issue. Good that you are on top of things early. Good Luck, , Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Phil, I'm down in good old Plymouth / Canton...home of the new IKEA...grumble. What a zoo. The wife knows the Rochester area pretty well. That was where her rescue station was a few years ago. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Wow your close to Dr. in Lansing. Phil Vickie or <plp40@...> wrote: Phil, I'm down in good old Plymouth / Canton...home of the new IKEA...grumble. What a zoo. The wife knows the Rochester area pretty well. That was where her rescue station was a few years ago. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Yeah, Close to U of M and Wayne State, Beaumont, Henry Ford and Ohio Medical College. For medical needs, this is definately the place to live! Dr. cannot treat " all " hypogonadal patients. Testicular cancer and hcg are not a good mix. Neither is messing with hcg and prostate cancer. I am not apposed to adding him to the mix however! I'm doing quite well on the Androgel (was patches for the first 3 weeks). Need to get the E down probably but it's early in the game yet. Going for blood work tomorrow. (fire56) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 I am not up on testicular cancer and HCG I do know some men here that had prostate cancer and are doing good on TRT. Phil Vickie or <plp40@...> wrote: Yeah, Close to U of M and Wayne State, Beaumont, Henry Ford and Ohio Medical College. For medical needs, this is definately the place to live! Dr. cannot treat " all " hypogonadal patients. Testicular cancer and hcg are not a good mix. Neither is messing with hcg and prostate cancer. I am not apposed to adding him to the mix however! I'm doing quite well on the Androgel (was patches for the first 3 weeks). Need to get the E down probably but it's early in the game yet. Going for blood work tomorrow. (fire56) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Phil, I'd like to hear form a few who are post PCa and now on T. I'm the first I know of personally. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Morning Ed, There is a group called " Long Term Survivors Discussion Group " and they are mainly Hodgkin's survivors and I have found a good group to learn from. They are apart of the ACOR.ORG group and can be found at http://listserv.acor.org/archives/lt-survivors.html Lida Zame is the Moderator and she runs a good group, please join and intro yourself and I think you will find some very knowledgeable people that have had Hodgkin's. I have not had Hodgkin's, but a type of Germ-cell (Testicular Cancer),I am a long term survivor of chemo and I am on TRT also. Please copy and paste the above address into your browser and check them out Later............. > > In the past 8 months I was treated for non_hodgkins lymphoma. High dosage steroids > were a part of the treatment along with cytotoxic drugs that can cause sterilization. Post > treatment I am left with smaller testicles. I understand structure follows function and > they've kind of lost their function. Yesterday I noticed a change in my nipples (larger). > At 51 yrs. old these bodily changes are kind of disturbing. Just wondering if anybody here > has experienced this and was there reversal over time? > Ed > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Phil, as far as I know this is no problem with HCG and Testicular Cancer. But bHCG is on of the markers used in dx'ing the type of Testicular Cancer involved. Also as far as I know, there is no problems with TRT and Testicular Cancer, but I do know chemo did kill the T production of my testes and cause a few other problems as well. Later. > Yeah, > Close to U of M and Wayne State, > Beaumont, Henry Ford and Ohio > Medical College. For medical needs, > this is definately the place to live! > Dr. cannot treat " all " hypogonadal > patients. Testicular cancer and hcg are > not a good mix. Neither is messing with > hcg and prostate cancer. I am not apposed > to adding him to the mix however! I'm doing > quite well on the Androgel (was patches for > the first 3 weeks). Need to get the E down > probably but it's early in the game yet. > Going for blood work tomorrow. > (fire56) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Magenta, It isn't the Hcg in itself that concerns my Uro/oncologist. It's the fact that I had both testicular and prostate cancer that is of some concern at this point. It's more a matter of not wanting to throw too much to chance. I'm 11 years out from TCa but only 14 months out from PCa. Hcg may be helpful being that I do have some function of the one testicle so maybe later, if the PSA stays zero. At the moment the goal is to get my T up enough to feel human again ..which I do after 1 month. I could care less if my one lonely testicle gets larger. I've never had big ones anyway although I am above average otherwise. The Docs have offered to put in a companion for the one I have but I have no real interest. The wife likes what's there already so why change perfection..LOL! It would be nice to get my DHT up above 13 and my E2 down below it's current 57. I'd feel like a new man then! Thanks for the in put. I'm always looking for good information. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Well back in the day Dr.'s would not put a man on TRT that had any kind of cancer this thinking is now outdated. But still new men are checked if they are seeing a good Dr. for cancer first before going on TRT something about it my make it grow faster. Still if the Cancer is gone one should be ok on HCG or TRT. Phil magenta_1996 <no_reply > wrote: Phil, as far as I know this is no problem with HCG and Testicular Cancer. But bHCG is on of the markers used in dx'ing the type of Testicular Cancer involved. Also as far as I know, there is no problems with TRT and Testicular Cancer, but I do know chemo did kill the T production of my testes and cause a few other problems as well. Later. > Yeah, > Close to U of M and Wayne State, > Beaumont, Henry Ford and Ohio > Medical College. For medical needs, > this is definately the place to live! > Dr. cannot treat " all " hypogonadal > patients. Testicular cancer and hcg are > not a good mix. Neither is messing with > hcg and prostate cancer. I am not apposed > to adding him to the mix however! I'm doing > quite well on the Androgel (was patches for > the first 3 weeks). Need to get the E down > probably but it's early in the game yet. > Going for blood work tomorrow. > (fire56) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 , I don't fully understand the PCa side of it, but from the little I know unless you have the bad PCa, then TRT is ok and up to normal levels. As for TCa I have not read anything saying that any form of TRT is a problem and Hcg would be ok if the teste work and only need the help to lift production of Testosterone, but if you are like me, then no amount of Hcg will help. My testes have packed up shop and gone on holidays. Have you had a look at the TCRC site. Doug has put some great information together there and keeps it up to date. If not you can find it here, http://tcrc.acor.org/index.html Later, magenta. > > Magenta, > It isn't the Hcg in itself that concerns my Uro/oncologist. > It's the fact that I had both testicular and prostate cancer > that is of some concern at this point. It's more a matter > of not wanting to throw too much to chance. I'm 11 years > out from TCa but only 14 months out from PCa. Hcg may > be helpful being that I do have some function of the one > testicle so maybe later, if the PSA stays zero. At the > moment the goal is to get my T up enough to feel human > again ..which I do after 1 month. I could care less if my > one lonely testicle gets larger. I've never had big ones > anyway although I am above average otherwise. The Docs > have offered to put in a companion for the one I have but > I have no real interest. The wife likes what's there already > so why change perfection..LOL! > It would be nice to get my DHT up above 13 and my E2 down > below it's current 57. I'd feel like a new man then! Thanks for > the in put. I'm always looking for good information. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Phil, I think there is one type of PCa that grows faster with testosterone present and I remember reading where they are using some of the new drugs to stop Testosterone production while they treat the cancer. As for the rest it is ok, i know Testicular Cancer is not Testosterone drive and TRT is completely safe. There may be one or two doctor from the dark-ages with that thinking, but modern thinking it's ok. Later, magenta. > > Yeah, > > Close to U of M and Wayne State, > > Beaumont, Henry Ford and Ohio > > Medical College. For medical needs, > > this is definately the place to live! > > Dr. cannot treat " all " hypogonadal > > patients. Testicular cancer and hcg are > > not a good mix. Neither is messing with > > hcg and prostate cancer. I am not apposed > > to adding him to the mix however! I'm doing > > quite well on the Androgel (was patches for > > the first 3 weeks). Need to get the E down > > probably but it's early in the game yet. > > Going for blood work tomorrow. > > (fire56) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Magenta, It isn't that I cannot physically use hcg unless one considers that it is contraindicated in cases of PCa. TCa isn't a contraindication, having had both is a risk too high to ignore is all. Taking one risk at a time is enough for now! Be safe, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Phil / Magenta, ALLL PCa raidly progresses with the introduction of testosterone. This would be exactly how mine was diagnosed in the first place. Starting T stirred up an indolent cancer and provided a faster diagnosis and earlier treatment. Based on pathology, I have a 3% chance the cancer returning at this point. Compared to the way I feel off T, I'll take that 3% chance but I, nor my surgeon, are brave enough to throw hcg in to the mix just yet. 49 is pretty young. Something had to give but I'd really prefer it not be my life if ya get my drift! One risky move at a time is enough for now and the gel seems to be working pretty well so far. Blood next week and PSA in late July will tell it all. Be safe, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 , if you are like me the chemo has damaged your Leydig cells and they produce the Testosterone, therefore it would not matter how much Hcg you used, it would not increase your Testosterone. If you have the type of PCa that is responcive to Testosterone, then please work closely with your doctor, specially if he's a good one. I had an UK regime of chemo 19 years ago, but I don't think they use it for TCa anymore and still have both my testes, what use they are. My doctors told me it was all in my head and chemo does not cause these problems, I now find more and more TC guys are now on TRT and they are having trouble with some doctors to help them. With PCa, you have to work with your doctor with this as he's knows more then me about your cancer. That's enough dribble from me for now. Later, magenta. EGC > > Magenta, > It isn't that I cannot physically use hcg unless one > considers that it is contraindicated in cases of PCa. > TCa isn't a contraindication, having had both is a > risk too high to ignore is all. Taking one risk at a time > is enough for now! > Be safe, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Magenta, All PCa will respond negatively to the introduction of outside testosterone. I think you are talking about androgen depenedent and independent...meaning no matter what, androgen independent cancer will progress dispite taking away all testosterone. To answer your concern...oh yeah, I work very very closely with a team of Docs actually. They don't see but the rare occasional patient who needs or is even eligable to try T replacement. There's a lot of interest in my case by the Uro/Onc department at U of M. It wasn't the Docs idea for me to go back to T. It's mine. I am too young to feel like crud for the rest of my life. The risk is worth taking after 10 years of hell already. 30 more just sounded like torture. As for the TCa, mine was surgery / radiation in 95 followed by an exploritory biopsy on the remaining testicle in 97 for a possible second cancer. No tumor but the testicle was damaged and only partially functions now. My level has been between 197 and 241 max since 97. I know what you mean about Docs not wanting to help. I went a decade trusting Doctors in my other plan but the wife (in 04) pushed me to the U for a good physical and this time...she went with me! I was a bit mortified when she flat out told the Uro /Onc that " he either get some help for his low T or it's going to cause a divorce! " The Doc just sat there with his mouth wide open...the woman wasn't kidding...yikes! He got his team rolling on the problem within minutes and here I am. Cancer free... again and feeling much better after 1 month of T. I guess I was being pretty difficulot to live with but in the end, her threats saved my ars...again! Now I gotta keep her..with pleasure mind you! Be safe, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 I myself almost lose my wife to Low T also now we are together 40 yrs. All it took was a good Dr. and TRT. I hear this a lot on the net I even know of men that went on TRT and were divorced and changed so good that they got back together with there wife. Phil Vickie or <plp40@...> wrote: Magenta, All PCa will respond negatively to the introduction of outside testosterone. I think you are talking about androgen depenedent and independent...meaning no matter what, androgen independent cancer will progress dispite taking away all testosterone. To answer your concern...oh yeah, I work very very closely with a team of Docs actually. They don't see but the rare occasional patient who needs or is even eligable to try T replacement. There's a lot of interest in my case by the Uro/Onc department at U of M. It wasn't the Docs idea for me to go back to T. It's mine. I am too young to feel like crud for the rest of my life. The risk is worth taking after 10 years of hell already. 30 more just sounded like torture. As for the TCa, mine was surgery / radiation in 95 followed by an exploritory biopsy on the remaining testicle in 97 for a possible second cancer. No tumor but the testicle was damaged and only partially functions now. My level has been between 197 and 241 max since 97. I know what you mean about Docs not wanting to help. I went a decade trusting Doctors in my other plan but the wife (in 04) pushed me to the U for a good physical and this time...she went with me! I was a bit mortified when she flat out told the Uro /Onc that " he either get some help for his low T or it's going to cause a divorce! " The Doc just sat there with his mouth wide open...the woman wasn't kidding...yikes! He got his team rolling on the problem within minutes and here I am. Cancer free... again and feeling much better after 1 month of T. I guess I was being pretty difficulot to live with but in the end, her threats saved my ars...again! Now I gotta keep her..with pleasure mind you! Be safe, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 ALOHA aLL! - Unless you are still living in the 1700's with a nissionary attitude toward the sexual aspects of a couples relationship, everyone should know how important it is. After all? What is the ONE thing that makes males different from females (and visa-versa)??? OUR SEXUAL COMPONENTS! I can only speak for me. But I feel the closest to my wife mentally, physically and especially emotionally when we make love. It's the only time we can, so to speak, " become one " , with each other. So I can fully understand that. it DOESN'T mean its a shallow relationship either. Hell, my wife stuck by my side for almost 10 years with very little intimacy. Love does that. That's good to hear Phil, very good indeed! Aloha, Hawaiian Wayne > Magenta, > All PCa will respond negatively to the introduction of > outside testosterone. I think you are talking about > androgen depenedent and independent...meaning > no matter what, androgen independent cancer will > progress dispite taking away all testosterone. > > To answer your concern...oh yeah, I work very very > closely with a team of Docs actually. They don't > see but the rare occasional patient who needs or is > even eligable to try T replacement. There's a lot of interest > in my case by the Uro/Onc department at U of M. > It wasn't the Docs idea for me to go back to T. It's mine. > I am too young to feel like crud for the rest of > my life. The risk is worth taking after 10 years of hell > already. 30 more just sounded like torture. > > As for the TCa, mine was surgery / radiation in 95 > followed by an exploritory biopsy on the remaining testicle > in 97 for a possible second cancer. No tumor but the > testicle was damaged and only partially functions now. > My level has been between 197 and 241 max since 97. > > > I know what you mean about Docs not wanting to help. > I went a decade trusting Doctors in my other plan but > the wife (in 04) pushed me to the U for a good physical > and this time...she went with me! I was a bit mortified > when she flat out told the Uro /Onc that " he either get some > help for his low T or it's going to cause a divorce! " The Doc > just sat there with his mouth wide open...the woman > wasn't kidding...yikes! He got his team rolling on the > problem within minutes and here I am. Cancer free... > again and feeling much better after 1 month of T. > I guess I was being pretty difficulot to live with but in > the end, her threats saved my ars...again! Now I gotta > keep her..with pleasure mind you! > > Be safe, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 If you have a doctor who is from the 21 century then hang on to him/her. I can't find a doctor either know about TRT of cares, I am driving my own health care and dragging my doctor out of the darkages, but sadly she has to follow the rules that are 20 years old. We don't have the same drugs available as what you do and if they are available and prescribed then I can't afford them, as the drug companies think they need to make there next million this week. Sadly not all doctor are as enlightened as Dr and he stand out of the crowd of doctors in the US also. Later, Me. > > Magenta, > > All PCa will respond negatively to the introduction of > > outside testosterone. I think you are talking about > > androgen depenedent and independent...meaning > > no matter what, androgen independent cancer will > > progress dispite taking away all testosterone. > > > > To answer your concern...oh yeah, I work very very > > closely with a team of Docs actually. They don't > > see but the rare occasional patient who needs or is > > even eligable to try T replacement. There's a lot of interest > > in my case by the Uro/Onc department at U of M. > > It wasn't the Docs idea for me to go back to T. It's mine. > > I am too young to feel like crud for the rest of > > my life. The risk is worth taking after 10 years of hell > > already. 30 more just sounded like torture. > > > > As for the TCa, mine was surgery / radiation in 95 > > followed by an exploritory biopsy on the remaining testicle > > in 97 for a possible second cancer. No tumor but the > > testicle was damaged and only partially functions now. > > My level has been between 197 and 241 max since 97. > > > > > > I know what you mean about Docs not wanting to help. > > I went a decade trusting Doctors in my other plan but > > the wife (in 04) pushed me to the U for a good physical > > and this time...she went with me! I was a bit mortified > > when she flat out told the Uro /Onc that " he either get some > > help for his low T or it's going to cause a divorce! " The Doc > > just sat there with his mouth wide open...the woman > > wasn't kidding...yikes! He got his team rolling on the > > problem within minutes and here I am. Cancer free... > > again and feeling much better after 1 month of T. > > I guess I was being pretty difficulot to live with but in > > the end, her threats saved my ars...again! Now I gotta > > keep her..with pleasure mind you! > > > > Be safe, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Hey magenta! - I'll find a site you can go to and explain to them exactly WHY you cannot afford the meds you deed (even marriage saving meds, as long as you explain it all!)OK? I hope to have it on my next post. Aloha for now, Hawaiian Wayne > > > Magenta, > > > All PCa will respond negatively to the introduction of > > > outside testosterone. I think you are talking about > > > androgen depenedent and independent...meaning > > > no matter what, androgen independent cancer will > > > progress dispite taking away all testosterone. > > > > > > To answer your concern...oh yeah, I work very very > > > closely with a team of Docs actually. They don't > > > see but the rare occasional patient who needs or is > > > even eligable to try T replacement. There's a lot of interest > > > in my case by the Uro/Onc department at U of M. > > > It wasn't the Docs idea for me to go back to T. It's mine. > > > I am too young to feel like crud for the rest of > > > my life. The risk is worth taking after 10 years of hell > > > already. 30 more just sounded like torture. > > > > > > As for the TCa, mine was surgery / radiation in 95 > > > followed by an exploritory biopsy on the remaining testicle > > > in 97 for a possible second cancer. No tumor but the > > > testicle was damaged and only partially functions now. > > > My level has been between 197 and 241 max since 97. > > > > > > > > > I know what you mean about Docs not wanting to help. > > > I went a decade trusting Doctors in my other plan but > > > the wife (in 04) pushed me to the U for a good physical > > > and this time...she went with me! I was a bit mortified > > > when she flat out told the Uro /Onc that " he either get some > > > help for his low T or it's going to cause a divorce! " The Doc > > > just sat there with his mouth wide open...the woman > > > wasn't kidding...yikes! He got his team rolling on the > > > problem within minutes and here I am. Cancer free... > > > again and feeling much better after 1 month of T. > > > I guess I was being pretty difficulot to live with but in > > > the end, her threats saved my ars...again! Now I gotta > > > keep her..with pleasure mind you! > > > > > > Be safe, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Thank for that Wayne. I checked one out some time back, but I had to be living in the US, which I'm not and I could not find a similar site for down here. Thanks, magenta. > > > > Magenta, > > > > All PCa will respond negatively to the introduction of > > > > outside testosterone. I think you are talking about > > > > androgen depenedent and independent...meaning > > > > no matter what, androgen independent cancer will > > > > progress dispite taking away all testosterone. > > > > > > > > To answer your concern...oh yeah, I work very very > > > > closely with a team of Docs actually. They don't > > > > see but the rare occasional patient who needs or is > > > > even eligable to try T replacement. There's a lot of interest > > > > in my case by the Uro/Onc department at U of M. > > > > It wasn't the Docs idea for me to go back to T. It's mine. > > > > I am too young to feel like crud for the rest of > > > > my life. The risk is worth taking after 10 years of hell > > > > already. 30 more just sounded like torture. > > > > > > > > As for the TCa, mine was surgery / radiation in 95 > > > > followed by an exploritory biopsy on the remaining testicle > > > > in 97 for a possible second cancer. No tumor but the > > > > testicle was damaged and only partially functions now. > > > > My level has been between 197 and 241 max since 97. > > > > > > > > > > > > I know what you mean about Docs not wanting to help. > > > > I went a decade trusting Doctors in my other plan but > > > > the wife (in 04) pushed me to the U for a good physical > > > > and this time...she went with me! I was a bit mortified > > > > when she flat out told the Uro /Onc that " he either get some > > > > help for his low T or it's going to cause a divorce! " The Doc > > > > just sat there with his mouth wide open...the woman > > > > wasn't kidding...yikes! He got his team rolling on the > > > > problem within minutes and here I am. Cancer free... > > > > again and feeling much better after 1 month of T. > > > > I guess I was being pretty difficulot to live with but in > > > > the end, her threats saved my ars...again! Now I gotta > > > > keep her..with pleasure mind you! > > > > > > > > Be safe, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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