Guest guest Posted July 5, 2000 Report Share Posted July 5, 2000 : I'm just repeating what we heard from our doctor that naprosyn can cause scarring if exposed to the sun and should use suntan lotion. I'm not sure about where it causes scarring the most. One doctor didn't want Elliot on naprosyn for that reason, but next doctor said that's rediculous and just make sure to use sunscreen. Maybe others can confirm or clarify this. Regards. Charlie > > > Hi everyone, > > > This is in response to some questions that people have asked. I > > don't > > > remember exactly what all I wrote in my last letter, so if I repeat > > > anything, I'm sorry. As I've read some of your stories I am so > > grateful > > > for our journey-in comparison- so far. Several of you have mentioned > > > difficulty in getting a diagnosis. And meds/symptoms that are all > > still > > > very foreign to me. I'm really hoping that they stay that way as > > far as > > > hands on knowledge. > > > > > > I have a little girl, , who just turned 3 this April. She has > > had > > > knee pains, mostly in the middle of the night, off and on for the > > past > > > six month or so. My church has a prayer loop, and a request came > > over > > > for the 4yo grand daughter of a couple whose knees were hurting. I > > later > > > asked about the little girl, and the grandmother told me that it was > > > JRA. I spoke with my brother in law, who is an internist here in > > town > > > and he told me that the next time she complained to check for > > swelling > > > and heat in her knees. Both were present so I called him back and he > > > spoke with the rheumy in his clinic. The first question she asked > > him > > > was if had blonde hair, which she does. She's not a ped rheumy > > so > > > she wouldn't see , but gave us the name of the ped here in town > > that > > > handles the " day to day " stuff here for several children. She ran > > blood > > > work and did x-rays on 's knees. She does have fluid on both > > knees > > > but most of her blood work came back in range. Her ANA was > > positive, but > > > when the did the titer the norm is less than 40 and her's came back > > at > > > 40. (Her platelets were also a little high, but not much.) So not to > > > bad. But still enough that Dr. Sneed prefers we see a specialist. We > > > don't have a specialist here so we have to drive to Little Rock. We > > > aren't going until the 25th of July because the first two weeks of > > the > > > month are extremely busy for my husband and it would be virtually > > > impossible for him to go. We're in boro, about 2 1/2 hours > > away, so > > > it will be an all day event with the dilated eye exam and everything > > > else. Until then is taking Naprosyn twice a day. She shows > > > absolutely no symptoms. Our only problem is maybe once a week > > (sometimes > > > more, but usually less) she wakes up crying with her knee(s) > > hurting. No > > > limp, no major swelling-I had to look for it, no difficulty in > > keeping > > > up with her brothers. I'm just needing to know as much as I can so > > that > > > we stay symptom-free. > > > > > > My questions as of now: have any of you heard of Naprosyn causing > > > scarring on the face, especially around the eyes of blonde/blue eyed > > > girls? If so, do you have a source or is that just what your dr. > > said? > > > Do you know of a good web site for looking up meds? I looked it up > > in a > > > PDR, but I don't remember how current it was. > > > Do any of you know the " chances " of her outgrowing this? I had read > > that > > > somewhere, but sometimes chances consist of 1%. > > > Side effect/reactions to the eye exam. Just what will she be like > > > afterward? I've never had that done so I know very little about it. > > > > > > I think that's all for now. I'm sorry that took so long. It usually > > > takes me a lot of words to say things. (That's my husbands nice way > > of > > > saying that I talk a lot.) > > > > > > TIA for all of your help, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2000 Report Share Posted July 5, 2000 My son was on Naporsyn for about 3 years. He's doctor said that he shouldn't be out in the sun a long period of time and to always use sun block. If you look on the bottle it tell you that. I never knew the reason why. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2000 Report Share Posted July 5, 2000 I'm glad the subject of sun sensitivity with naprosyn came up. That's what is on. Thanks for the info. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 At 08:40 AM 5/20/2009, Pam wrote: > After that I did 6 weeks of hyperbaric treatments while dealing > with a wound vac on my bottom. Now I have constant discomfort from > the scar tissue. Anyone know of anything that eases the discomfort > of scar tissue? (my wounds healed from the inside out....) Good hearing from you, Pam. You can use 2-dimethylaminoethanol (DMAE) topically or by injecting into the cicatrix. Quote Link to comment Share on other sites More sharing options...
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