Greetings from a New Member

[Guest guest]

What are your recommendations on a regimen to follow for candida? Other than

diet, what antifungals do you recommend? What about a female with chronic

yeast infections and candida in the intestines? Do you recommend any

antifungal enemas?

Thanks

[Guest guest]

Big welcome to ya Lori,glad to hear you got the dragon as we call it under control.Yes there are quite a few here on enbrel and far as i know do pretty good on it,im sure theyll give you some answers.Happy to see you madit to best damn support group around take care Lori. d.Canada PS i am told by alot of people that the early years are the worst i sure hope so ive only been dx since oct 2002 so you have had this longer than me yippee always hopeful.

Greetings from a new member

Hi Everyone! My name is Lori, I've been lurking for a few days seeing what everything is like around here. I am very excited to now be a part of a group of people who all share the same disease! I am very recently diagnosed, only for about 2-3 months now, I've known what it is that has been beating me down for the last year! I am 22 years old, and I WAS extremely healthy before this. Ran 4 miles everyday, and was very active and in shape. Well, now as you all know, things are very different. Although I was extremely ill for almost a full year, I have now been put on Plaquenil and Indocin. The indocin is what has been giving me life! I usually feel great, have been able to get out of the house and feel like a real live person again. My doc wants to switch me over to Enbrel, and from what I hear about it, I'm rather excited. I hear its this wonder drug and cure all, can you confirm this, or give me any info on it? If any one is on it curre The New Search - Faster. Easier. Bingo.

[Guest guest]

In a message dated 2/23/2008 6:08:18 PM GMT Standard Time,

prentice_jon@... writes:

still plenty of room for improvement, at this point fortunately I'm

far from the nadir of my experience with ES, and of course hoping to

continue in that general direction.

Jon

Out of interest did the problem eminate from LHS behind jaw ? Also has this

effected your work etc...

uk

[Guest guest]

>

>

> Out of interest did the problem eminate from LHS behind jaw ?

Also has this

> effected your work etc...

>

> uk

>

It emanated from the right side, and spread almost everywhere,

though for the most part paresthesias have been stronger on the

right, with a few exceptions a while ago when things were much worse

for me.

I stopped working and left my apartment for a while (not knowing

what the problem was yet), then got a little better and went back to

work and returned to the apartment and within a few days of that I

found myself to be ES, and after a couple of weeks I could feel

things like a magnet held over my hand, or if people near me

received a text message or call, and a wide variety of other

things. So anyway, I quit working again shortly after that and went

into EM hiding, and have only worked some part time seasonal work

since then.

I'm 33 living in California by the way.

I've often had trouble sleeping since this started, even recently,

but less so now. Symptoms often seem to show up as I drift towards

a sleep state, like I could be feeling fine but as soon as I get

close to falling asleep symptoms pop up that sometimes prevent

sleep. Anyone else have this sort of experience? I don't know if

it could be because of a the positioning of some part of my body, or

is somehow related to the way the body functions when going to sleep.

Perhaps some sort of autonomic nervous system malfunction.

Jon

[Guest guest]

Hi Jon

Welcome to the group.

Not sure if this info is useful, Im suure you have found most of it on the

archives but here

is my 10 pence worth!

I presume you have made your house 'safe' by removing

wifi, mobiles, dect phones and anything radiating a

signal, making sure it is switched off. In fact, anything that does

not need to be plugged in, remove it and see if it

makes a difference. It is good to try and keep a

diary, this has helped me. Install a wired connection

for the internet but give yourself a break until the

symptoms settle down.

I would also suggest looking at your health and diet.

Switching to a fresh organic diet helps and also

changing anything else that adds to the toxic load on your body,

eg, all my home products/beauty products have been

switched to Eco ones.

I would also suggest speaking to someone about

vitamins and minerals as many ES people have low

B-Vits and trace minerals. I would also look at

taking an antioxidant to keep in optimum health.

I am getting some good results from Epsom Salts baths

which detoxify you. If I have been on a computer for

a long time and have one of these baths, it takes away

that horrible numb feeling...it may help and it is

cheap to try.

I would also suggest getting some fresh air and taking

up some exercise or form of relaxation if possible.

These are only my suggestions and many of the people

on this site have much more experience than me, I just

wanted to try and help if at all possible.

Please come back to me if you have any questions on

the things I mention above.

Alison

> >

> >

> > Out of interest did the problem eminate from LHS behind jaw ?

> Also has this

> > effected your work etc...

> >

> > uk

> >

>

> It emanated from the right side, and spread almost everywhere,

> though for the most part paresthesias have been stronger on the

> right, with a few exceptions a while ago when things were much worse

> for me.

>

> I stopped working and left my apartment for a while (not knowing

> what the problem was yet), then got a little better and went back to

> work and returned to the apartment and within a few days of that I

> found myself to be ES, and after a couple of weeks I could feel

> things like a magnet held over my hand, or if people near me

> received a text message or call, and a wide variety of other

> things. So anyway, I quit working again shortly after that and went

> into EM hiding, and have only worked some part time seasonal work

> since then.

> I'm 33 living in California by the way.

>

> I've often had trouble sleeping since this started, even recently,

> but less so now. Symptoms often seem to show up as I drift towards

> a sleep state, like I could be feeling fine but as soon as I get

> close to falling asleep symptoms pop up that sometimes prevent

> sleep. Anyone else have this sort of experience? I don't know if

> it could be because of a the positioning of some part of my body, or

> is somehow related to the way the body functions when going to sleep.

> Perhaps some sort of autonomic nervous system malfunction.

>

> Jon

>

[Guest guest]

Hi Jon:

Welcome! I have similar symptoms to yours. Stronger on my right side.

Would suggest you check out metals in your mouth and cavitations. That's my

next step. Hope this helps.

Donna

[Guest guest]

Hello.

As a poor sleeper myself I can attest that getting up and having a

shower will sometimes work.

> > >

> > I've often had trouble sleeping since this started, even recently,

> > but less so now. Symptoms often seem to show up as I drift

towards

> > a sleep state, like I could be feeling fine but as soon as I get

> > close to falling asleep symptoms pop up that sometimes prevent

> > sleep. Anyone else have this sort of experience? I don't know if

> > it could be because of a the positioning of some part of my body,

or

> > is somehow related to the way the body functions when going to

sleep.

> > Perhaps some sort of autonomic nervous system malfunction.

> >

> > Jon

> >

> >

> >

> >

> >

[Guest guest]

Hello all. Nice to find a place for support. My name is Al. I am a 36 yr. old

with Low T. I have been suffering this disease for 1-2 years, in hind sight I

did see symptoms of this sooner but had no idea what it was. My Doctor has me on

clomid and arimidex pills. I think they work ok, I just wish my levels where

better.

I have been reading for a while that my 300 something T levels are only half

what they should be. I came here looking for support. I will be checking the

resources here but I guess my woahs are common place. No doctor I have yet found

will get me to 600. Some days I feel like I would lose my composurefrom all of

the symptoms. I get so tired, confused and my bones ache so bad! I hate this.

Please forgive me if I rant and rave.

Anyhow, here are some things about me. I am a workaholic, or use to be. When I

got sick, with this Low T, I told my doctor; I am a workaholic who can not get

himself to do anything. He did not understand at first, but I am driven to

accomplish things. Usually, I start something and lose the energy, mental

clarity or strength. I am left with the motivation, dreams and guilt.

I think the worst of this came when I was in school, before I got diagnosed. I

have been working healthcare for a decade plus, in entry level work. I have done

nursing homes, group homes and in home care with seniors and the retarded. I got

sick of it, I was not going anywhere and stopped carring about my dreams of

becoming a clinical psychologist. I went back to school for graphic design and

got sick in my second to last year.

This is one of my biggest sorrows, because it has been 2-3 years since I

finished school the second time. This stupid disease took my future from me.

Here I sit, 2 educations under my belt, all kinds of dreams and no ability to

reach them. My clinical and design skills and knowledge seem to have become as

shriveled and old and I feel with this Low T. Most days I feel as old as my

senior clients but the doctors say I am fine now. Again, please forgive me if I

rant and rave. I feel like an accountant is telling me that is all the medicine

I am allowed. Now go be a good boy and live with it. Some days I feel like my

only hope is doing something stupid as in the movie " Q " or just walking

away from my life as in " The Hulk " .

As I said before, I will be looking at the resources here and start asking

questions, at some point. I hope to get to know some of you soon and look

forward to connecting with the group at large. Thanks for starting this place

and taking time to listen.

Al

[Guest guest]

On Sat, 24 Oct 2009 09:31:49 -0000, you wrote:

>

>As I said before, I will be looking at the resources here and start asking

questions, at some point. I hope to get to know some of you soon and look

forward to connecting with the group at large. Thanks for starting this place

and taking time to listen.

Start with http://www.aace.com/pub/pdf/guidelines/hypogonadism.pdf

[Guest guest]

Philip,

Hello and thanks for the welcome. I was on androgel originally when my PCP first

helped in discovering this syndrome. I could use it only for a month or so then

I started having a skin allergy to the stuff. I tried testim and it did the same

thing so my doctor put me on T shots. In all that time and since the diagnosis I

have only felt back to myself twice with each new med first being applied or

with all day caffene benders.

I was fine with the shots but I was still not right right. I went on another

site in another LT support forum. I also did my own reading and found the shots

make you sterile and are not so great for 20 and 30 yr olds. I went a uro

because I was coming down with frequent porstate infections, for 3 months, and

dealing with dibling and irritable bladder, 5 years prior. He put me on the

clomid and arimidex, " one to help build the TL's and the other to block it from

converting to Estro. "

It does not really matter. I can never find a doctor that listens, is on my

insurance or knows what they are talking about. When I asked the uro why I have

been having incontinent or dibbling issues for 5 years he said, " sometimes a man

just develops that way. " I ask, in their 20's? It was back when the uro issues

started that I first noticed, I had days where I was weak, shaky and confused. I

was also having sleep issues and depression. I think now this was the start of

my T issues. I was put on detrola, antidepressants and things like that up til a

year ago. Bladder vallium was not helping.

Hey what difference does it make if a hard working man turns into a feminized

male, incontinent, inept and useless. The consensus is that I am ok, right?

[Guest guest]

Feeling weak and shaky sounds like Adrenal Fatigue test your morning Cortisol

levels fasting if your below 15 then do a 4x's in a day saliva test to see what

your rithum looks like. People with this problem feel like your feeling. Men

with low T feel fatigued but going on TRT this goes away.

Read this link it talks about this problem. And I still feel you doing Clomid

and Arimidex is over kill your driving your Estradiol very low and this kills

your sex life and other problems.

http://www.tmuscle.com/article/diet_and_nutrition/adrenal_fatigue_101 & cr=dietAnd\

Nutrition

Co-Moderator

Phil

> From: tobory2k3200 <no_reply >

> Subject: Re: Greetings from a New Member

>

> Date: Tuesday, October 27, 2009, 9:17 PM

> Philip,

>

> Hello and thanks for the welcome. I was on androgel

> originally when my PCP first helped in discovering this

> syndrome. I could use it only for a month or so then I

> started having a skin allergy to the stuff. I tried testim

> and it did the same thing so my doctor put me on T shots. In

> all that time and since the diagnosis I have only felt back

> to myself twice with each new med first being applied or

> with all day caffene benders.

>

> I was fine with the shots but I was still not right right.

> I went on another site in another LT support forum. I also

> did my own reading and found the shots make you sterile and

> are not so great for 20 and 30 yr olds. I went a uro because

> I was coming down with frequent porstate infections, for 3

> months, and dealing with dibling and irritable bladder, 5

> years prior. He put me on the clomid and arimidex, " one to

> help build the TL's and the other to block it from

> converting to Estro. "

>

> It does not really matter. I can never find a doctor that

> listens, is on my insurance or knows what they are talking

> about. When I asked the uro why I have been having

> incontinent or dibbling issues for 5 years he said,

> " sometimes a man just develops that way. " I ask, in their

> 20's? It was back when the uro issues started that I first

> noticed, I had days where I was weak, shaky and confused. I

> was also having sleep issues and depression. I think now

> this was the start of my T issues. I was put on detrola,

> antidepressants and things like that up til a year ago.

> Bladder vallium was not helping.

>

> Hey what difference does it make if a hard working man

> turns into a feminized male, incontinent, inept and useless.

> The consensus is that I am ok, right?

>

>

>

> ------------------------------------

>

>

[Guest guest]

Thanks for the link to the adrenial fatique article. I will ask my doctor about

it. All of those symptoms are my daily rut. I do remember some cortisol tests

but nothing was ever found. To be honest I feel like my mind is in atrophy. I

can not follow clinical research articles, like those in the refrence section

from the AACE. I use to love reading those kinds of works but now I can not

comprehend it. I read testosterone blah blah blah, hCG blah blah blah, estrogen

blah. I keep getting asked if I am stupid at work and home. I have pretty much

forgotten everything I went to school for and cann't get it back.

I don't get how people find good doctors for this. I tried using the survey or

prescreening proccess from

http://f1.grp.fs.com/v1/ANvoStLwk--ETV5rxQnvC0JhR-wZTQavJrGeojnFHSp5QXNF_LQ\

Kk-AneKDIXZkxxfeR8vBHelwmqwlV18-yb4InnTLDHV-FDhY/Finding%20a%20Male%20Hormone%20\

Doctor. I Even called someone listed here and they refused to answer any

question until I agreed to an appointment. I will be going to the fourth new

doctor Nov. 4th, will be losing pay too. I have no illussions about the outcome,

I will still be sick but have to give a copay. I have a buddy who has a doctor

that treats him in my area for this same disease. When I ask him who the doctor

is I get no answers. It is like the episode of the show, " Mercy " , I want to

scream " what is wrong with you people? " I often feel like I am dying and no one

cares.

[Guest guest]

We call this brain fog and once you figure out what is wrong this goes away.

It's a same Dr.'s workers will not tell you if the Dr. can treat you any Dr.

that would tell me to come and see him and pay him to find out he is useless I

would not even see him. As for your Cortisol labs post them with the ranges and

units. Dr.'s look for 's or Cushings your below normal or above it.

Adrenal Insufficiency is in range of labs but your in the high end or in he

later stages of it your in the lower end of the range. On a blood test a

morning fasting Cortisol test if your 15 or lower you have a problem and need to

do a 4x's in a day Saliva test to see how your rhythm looks. Normal people have

there highest levels first thing in the morning and the levels fall off by bed

time so one can sleep.

Co-Moderator

Phil

> From: tobory2k3200 <no_reply >

> Subject: Re: Greetings from a New Member

>

> Date: Wednesday, October 28, 2009, 8:24 PM

> Thanks for the link to the adrenial

> fatique article. I will ask my doctor about it. All of those

> symptoms are my daily rut. I do remember some cortisol tests

> but nothing was ever found. To be honest I feel like my mind

> is in atrophy. I can not follow clinical research articles,

> like those in the refrence section from the AACE. I use to

> love reading those kinds of works but now I can not

> comprehend it. I read testosterone blah blah blah, hCG blah

> blah blah, estrogen blah. I keep getting asked if I am

> stupid at work and home. I have pretty much forgotten

> everything I went to school for and cann't get it back.

>

> I don't get how people find good doctors for this. I tried

> using the survey or prescreening proccess from

http://f1.grp.fs.com/v1/ANvoStLwk--ETV5rxQnvC0JhR-wZTQavJrGeojnFHSp5QXNF_LQ\

Kk-AneKDIXZkxxfeR8vBHelwmqwlV18-yb4InnTLDHV-FDhY/Finding%20a%20Male%20Hormone%20\

Doctor.

> I Even called someone listed here and they refused to answer

> any question until I agreed to an appointment. I will be

> going to the fourth new doctor Nov. 4th, will be losing pay

> too. I have no illussions about the outcome, I will still be

> sick but have to give a copay. I have a buddy who has a

> doctor that treats him in my area for this same disease.

> When I ask him who the doctor is I get no answers. It is

> like the episode of the show, " Mercy " , I want to scream

> " what is wrong with you people? " I often feel like I am

> dying and no one cares.

>

>

>

> ------------------------------------

>

>