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Sharon,

I can totally relate! I have exact same problem. I usually try to hide it

from him too. He is also Italian and is so concerned. But I figure the

pheromones (sp?) I receive are worth the next bad day, and knowing I made

him feel better helps ease some of my guilt of being such " a bad wife " . He

hates when I think that way, but its hard not to. Every time my doctor

prescribes something new, my first question is how much will this affect my

already deficient libido? It seems almost all the meds do. I don't know if

there is anything we can do, but just keep on trudging along. Do you get

tired of hearing " how are you feeling today? " because then you either have

to lie, or be sick too death of the truthful answer? I keep telling myself

the more I lie and say " Oh I feel okay today " , then maybe I'll trick my

brain in to believing that. But it doesn't work very well, but when it does,

I feel better. Take care, if you come up with any remedies let me know.

Vicki

Re: [Lyme-aid] libido

>From: helen fasy <liveitup@...>

>

>melillo wrote:

>>

>> From: " melillo " <mellillo1@...>

>>

>> OK, Margie touched on a subject I have been chewing on for the past

month.

>> How has Lyme changed our relationships with our significant other? My

>> husband is wonderful and very patient with us all BUT....

>> Every time I get the energy to make love I feel sick to my stomach and

ache

>> all over and can't get out of bed the next day. My poor husband, I try

not

>> to let him see how horrible I feel the next day, it would attack his

Italian

>> ego! But do others feel differently than they used to? It has been 10

>> years with Lyme on and off. At first I thought it was just all the

>> anti-depressents that killed my drive. And now on Celexa it has come

back.

>> But the act itself just makes me feel like I am in a major herx though I

am

>> sure that it is not that. I know that oxygen kills the spirochete and

maybe

>> the increased energy output kills off some but not enough to have a major

>> killoff.

>> Anyway, I have opened the can of worms. Anyone want to continue this

line

>> of thought or am I getting too personal? I just want to be normal in

this

>> area, it is hard enough on my hubbie with all of us so sick and me not

being

>> able to do anything a wife should be doing around here. Can't I atleast

>> enjoy sex!!!!

>> Sharon

>>

>> >Send to -Offtopiconelist messages unrelated to lyme, please.

>/archives.cgi/

>/archives.cgi/Lyme-Documents

>To unsubscribe, send email to -unsubscribeonelist

>You may substitute " subscribe " , or " digest " or " normal " for

>the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

both the message and subject header.

>

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  • 2 weeks later...

,

Maybe you and your husband shd get counselling. I have similar problems

but my boyfriend doesn't stop jumping me. I have gained tons of weight,

can't do alot of housework either. However, he is very understanding.

Maybe your husband has to learn to really understand what it is like to

have an illness. He probably can't learn that from you.

Holly

lisa86@... wrote:

>

> From: lisa86@...

>

> I am so glad you opened this subject, Sharon. It has been over 6 years since

> my husband has been affectionate with me in any sort of intimate way. There

> is, of course, the extra weight gain brought on by Lyme and an inability to

> exercise. Beyond that, there is the horrible lower back pain. My house

> suffers, too, because I am unable to stand for more than 5 or 10 minutes at a

> time. My husband does most of the housework around here, but I know he

> subconsciously holds that against me. He'd never say it aloud, but all of the

> above combine to make me completely repulsive to him (he'd deny that, too,

> but still he doesn't touch me).

>

>

>

> > Send privately messages unrelated to lyme, please.

> /archives.cgi/

> /archives.cgi/Lyme-Documents

> Email: -digestonelist

> You may substitute " unsubscribe " , " subscribe " , or " normal " for

> the word " digest " ( " normal " is the opposite of " digest " ). Leave blank both

the message and subject header.

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Barb,

It must have taken alot of effort for you to try and bring back the

closeness in your marriage. That was great. I think anyone in our

situation has to just keep trying to keep the closeness even if we arn't

in the mood. Once you start withdrawing that can end a relationship

quickly.

Holly

Barbara Fitzmaurice wrote:

>

> From: " Barbara Fitzmaurice " <BLFITZMA@...>

>

> Hi and all,

>

> I am reading the threads on sexual problems and I think all of us are having

the

> same problems. I think when I first became ill in '95 I went for a long

stretch

> without desiring any love making. By '96 when I switched to a Lyme doc I

> discovered one of the meds I was taking for high Blood Pressure was affecting

my

> libido. By then my husband had withdrawn from me also. I finally confronted

him

> but not until '98 and now sure wish I had brought up these problems long

before

> that.

>

> We have been married over 30 yrs. and I could not believe what was happening.

> Instead of him talking things over with me, there was no communication.

Finally

> I started asking him questions and then writing him letters so that I could

let

> him know I missed the love, hugs and affection and sex that we once had. It

has

> helped with our communication. We are working on staying together now and

doing

> a little better. I have run thru the gamete of emotions; guilt, anger that he

> was withdrawing from me, and now depression (because of losing what we once

had

> shared.) I think my LD scared him also and his way of dealing with the illness

> was to ignore it and just when you need his support so much more.

>

> His body heat eases my aches and pains. I have found that taking my pain med

and

> muscle relaxer helps before and after. Please discuss this with your doctor.

> There may be something he can do to help. Side effects of some drug you are on

> may be causing problems and could be adjusted. I always thought my marriage

> could withstand anything. I still hold that belief, but you have to have

> communication. And it was very hard for us to communicate after a certain

point.

> The letters I wrote did open the door as now he realizes and has a better

> understanding of what I have been thinking and how LD took away from me.

>

> Barb - MI

> BLFITZMA@...

>

> > Send privately messages unrelated to lyme, please.

> /archives.cgi/

> /archives.cgi/Lyme-Documents

> Email: -digestonelist

> You may substitute " unsubscribe " , " subscribe " , or " normal " for

> the word " digest " ( " normal " is the opposite of " digest " ). Leave blank both

the message and subject header.

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  • 1 year later...

so what's to be done about this?

Re: libido

defintely a decrease...........

Chris

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Yes, definitely a decrease which I noticed immediately after RAI when I

became hypothyroid. My endo acted like I was nuts when I mentioned it, and he

told me that sex hormones and thyroid hormones were entirely different.

Since, I've read about the relationship between libido and thyroid hormone

and no longer trust this doc.

I've experimented with a number of different herbs, synthetic and natural

estrogens and progesterone, DHEA, gingko, extra thytroid hormone....you name

it. Even tried Horny Goat Weed with Maca which helped somewhat but I'm not

certain was worth the $$.

The best results I've had have been with Dong Quai, Gingko, and DHEA, but

still, this is kind of hit and miss, and I never know when I'll be lucky.

Randi is going to share some compounding estrogen product with me that I'm

hoping will remedy things.

I would really appreciate any success anyone with this problem has had.

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I've talked to several people about this and have heard enough stories to

be quite certain that hyperthyroidism is the opposite of hypothyroidism when

it comes to sex. Sex drive increases significantly in hyperT, often to the

point of becoming an all consuming obsession, especially right before serious

hyper symptoms set in.

We did a poll a couple years ago and it was a pretty clean result: hypos,

low sex drive; hypers, high sex drive.

It may be that similar copper enzymes which break down the thyroid

hormones also break down the sex hormones. Low copper can result in high

levels of both hormones.

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That's itneresting, but do you think that at some point in hyperT, you go

right through the " high sex drive " stage to complete exhaustion when the

serious side effects set in? I have been hyper for 7 months now, though

with falling blood levels and feeling mych better, I am still apparently

quite extreamely hyper.

I had absolutely no inclination toward sex for about five monhts, but wonder

if that is just becauxse I felt so ill anyway. I used to wonder when I laid

in bed with an irregular, thumping heartrate of 115 despite beta blockers,

if sex would actually kill me if I tried!! Now I notice, as I am " coming

down " from the extreamely thyrotoxic state I was in that some interest is

creeping back.

Same for others??

>From: bu007@...

>Reply-hyperthyroidismegroups

>hyperthyroidismegroups

>Subject: Re: libido

>Date: Fri, 19 Jan 2001 02:43:31 EST

>

> I've talked to several people about this and have heard enough stories

>to

>be quite certain that hyperthyroidism is the opposite of hypothyroidism

>when

>it comes to sex. Sex drive increases significantly in hyperT, often to the

>point of becoming an all consuming obsession, especially right before

>serious

>hyper symptoms set in.

> We did a poll a couple years ago and it was a pretty clean result:

>hypos,

>low sex drive; hypers, high sex drive.

> It may be that similar copper enzymes which break down the thyroid

>hormones also break down the sex hormones. Low copper can result in high

>levels of both hormones.

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

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  • 1 year later...

In a message dated 2/5/02 11:01:10 AM Pacific Standard Time, BBNLU@... writes:

As far as the sex drive

Now, let me think about this: Most of us here are female. With AIH and its treatment we are suddenly, if temporarily, fatter, hairier, smellier, spottier, grouchier. We vacillate, in early Prednisone, between hectic middle-of-the-night urges to clean and daytime exhaustion. We develop hair-trigger tempers. We are worried and confused about the future.

Is it possible that our erotic life might be affected by all this?

Harper

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Go Harper!!! I've been there... Makes you want to put on one of those skimpy bathing suits and take your limo to the nearest spa to strut your stuff! Why don't you stop by and pick me up on the way... Tony, you can escort us... anyone here on a good dose of enulose want to jion us???

Patty

-----Original Message-----From: flatcat9@... [mailto:flatcat9@...]Sent: Tuesday, February 05, 2002 2:46 PM Subject: Re: [ ] LibidoIn a message dated 2/5/02 11:01:10 AM Pacific Standard Time, BBNLU@... writes:

As far as the sex driveNow, let me think about this: Most of us here are female. With AIH and its treatment we are suddenly, if temporarily, fatter, hairier, smellier, spottier, grouchier. We vacillate, in early Prednisone, between hectic middle-of-the-night urges to clean and daytime exhaustion. We develop hair-trigger tempers. We are worried and confused about the future. Is it possible that our erotic life might be affected by all this? Harper

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  • 9 months later...

Dear Ally,

I agree that when you feel so tired all the time it's difficult to summon up

any feelings of attraction or desire for intimacy. Getting on the right

medicine for me really helped a lot. Also, you should check with either your

family doctor or your GYN person about hormone balance. Sometimes when women

feel they have no sex drive, they are low in testosterone. It's an easy

thing to supplement with a small amount of bio-identical, transdermal

testosterone cream. It won't make you grow facial hair or get big bulky

muscles. It is only enough to restore the natural balance of that hormone

that woman need if they are to have a healthy sex drive.

You can get the best quality transdermal hormone creams from <A

HREF= " http://www.womensinternational.com/hrt.html " >Women's

International Pharmacy.</A> Your doctor likely is aware of them and if he/she

isn't, insist on having them order from there anyway! Their pricing is very

fair and the quality is excellent, plus, the hormones are like what's already

in your body so you shouldn't have any weird reactions or anything.

Good luck!

in LA

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my thought is that when you feel like sh** all the time (possibly depressed)

why would you want to have sex - that's how I feel anyway. for me,

recently, the romance came back to my relationship and that helped my sex

drive, but I'm also feeling well for the most part - I just have lots of

weight to lose still.

_________________________________________________________________

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I have to say - when my thyroid started working - or at least the hormones

started kicking in - so did my sex drive. Sometimes a bit much : ) There

is hope if that is the reason for the lack of libido. Jeanie

Re: libido

Dear Ally,

I agree that when you feel so tired all the time it's difficult to summon up

any feelings of attraction or desire for intimacy. Getting on the right

medicine for me really helped a lot. Also, you should check with either

your

family doctor or your GYN person about hormone balance. Sometimes when

women

feel they have no sex drive, they are low in testosterone. It's an easy

thing to supplement with a small amount of bio-identical, transdermal

testosterone cream. It won't make you grow facial hair or get big bulky

muscles. It is only enough to restore the natural balance of that hormone

that woman need if they are to have a healthy sex drive.

You can get the best quality transdermal hormone creams from <A

HREF= " http://www.womensinternational.com/hrt.html " >Women's

International Pharmacy.</A> Your doctor likely is aware of them and if

he/she

isn't, insist on having them order from there anyway! Their pricing is very

fair and the quality is excellent, plus, the hormones are like what's

already

in your body so you shouldn't have any weird reactions or anything.

Good luck!

in LA

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I'm 19 and my libido has been low before being diagnosed and I just feel that

for my age I should have a higher libido. It's not that I have no libido...I do

chase after guys ;) and before becoming hypo my libido was higher but now my sex

drive is much lower than any of my friends sex drives, so I just want to know if

having the right thyroid meds will raise my libido to back how it was.

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Absence of libido is a symptom of hypothyroidism. Thyroid hormone works

with other sex hormones. On the right medicine your libido should be

great! I prefer Armour over synthetics.

Gracia

> I'm 19 and my libido has been low before being diagnosed and I just feel

that for my age I should have a higher libido. It's not that I have no

libido...I do chase after guys ;) and before becoming hypo my libido was

higher but now my sex drive is much lower than any of my friends sex drives,

so I just want to know if having the right thyroid meds will raise my libido

to back how it was.

>

>

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dont know if I have a libido or not....havent had the chance to test it

out....LOL

just received blood test results please tell me what this all means

T3 uptake - 27.1

T4 free, calculated 1.41

T3 total 116

Gracia <circe@...> wrote:

Absence of libido is a symptom of hypothyroidism. Thyroid hormone works

with other sex hormones. On the right medicine your libido should be

great! I prefer Armour over synthetics.

Gracia

> I'm 19 and my libido has been low before being diagnosed and I just feel

that for my age I should have a higher libido. It's not that I have no

libido...I do chase after guys ;) and before becoming hypo my libido was

higher but now my sex drive is much lower than any of my friends sex drives,

so I just want to know if having the right thyroid meds will raise my libido

to back how it was.

>

>

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Hi you need to provide the reference ranges. Most tests done are pretty

worthless!!!! Tsh doesn't tell much when there is hashimotos. The only

tests that help a little are free t3 and free t4. There is more info on

testing at www.thyroid.about.com It sounds bizarre I know but a lot of

testing ordered wastes time and money.

Gracia

>

> dont know if I have a libido or not....havent had the chance to test it

out....LOL

> just received blood test results please tell me what this all means

> T3 uptake - 27.1

> T4 free, calculated 1.41

> T3 total 116

>

> Gracia <circe@...> wrote:

> Absence of libido is a symptom of hypothyroidism. Thyroid hormone works

> with other sex hormones. On the right medicine your libido should be

> great! I prefer Armour over synthetics.

> Gracia

>

> > I'm 19 and my libido has been low before being diagnosed and I just feel

> that for my age I should have a higher libido. It's not that I have no

> libido...I do chase after guys ;) and before becoming hypo my libido was

> higher but now my sex drive is much lower than any of my friends sex

drives,

> so I just want to know if having the right thyroid meds will raise my

libido

> to back how it was.

> >

> >

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I joined Weight Watchers and so far I am losing weight.....almost every

week....i started in sept...and have lost almost 14 lbs.

Pierce <karlynn17@...> wrote:my thought is that when you feel

like sh** all the time (possibly depressed)

why would you want to have sex - that's how I feel anyway. for me,

recently, the romance came back to my relationship and that helped my sex

drive, but I'm also feeling well for the most part - I just have lots of

weight to lose still.

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What I want to know is why you as a 19 year old are worried about libido or

lack of it if not married : ) I guess I'm old fashioned. I had plenty of

libido at your age, however. Just didn't use it. I know that isn't the way

it is as a rule anymore though. But it oughta be. My daughters aren't even

dating till they are 16 (and fine with it - my oldest is 15 and associates

with guys in groups and as friends, but nothing more yet - and she is

pretty!) and even then it won't be too cozy till they are old enough to

marry. Sex is just a *bit* too casual these days. But an important part of

marriage. Marry for friendship, though. Then when you have your ups and

downs (not just based on physical) you will be able to hang in there. We

are going on 18 years but have known eachother about 20 years and honestly

waited for marriage. He was (is) a musician and really appreciated that he

could trust me after the " types " in Hollywood. Groupies. It wasn't easy to

wait for either of us, but it was worth it. I put the brakes on at first,

but after a while he did too. Meant a lot to him. (Sorry to get so off

topic) Jeanie

RE: libido

I'm 19 and my libido has been low before being diagnosed and I just feel

that for my age I should have a higher libido. It's not that I have no

libido...I do chase after guys ;) and before becoming hypo my libido was

higher but now my sex drive is much lower than any of my friends sex drives,

so I just want to know if having the right thyroid meds will raise my libido

to back how it was.

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> > What I want to know is why you as a 19 year old are worried about

> libido or

> > lack of it if not married : ) I guess I'm old fashioned. I had

> plenty of

> > libido at your age, however. Just didn't use it. I know that

> isn't the way

> > it is as a rule anymore though. But it oughta be. My daughters

> aren't even

> > dating till they are 16 (and fine with it - my oldest is 15 and

> associates

> > with guys in groups and as friends, but nothing more yet - and

she

> is

> > pretty!) and even then it won't be too cozy till they are old

> enough to

> > marry. Sex is just a *bit* too casual these days. But an

> important part of

> > marriage. Marry for friendship, though. Then when you have your

> ups and

> > downs (not just based on physical) you will be able to hang in

> there. We

> > are going on 18 years but have known eachother about 20 years and

> honestly

> > waited for marriage. He was (is) a musician and really

appreciated

> that he

> > could trust me after the " types " in Hollywood. Groupies. It

> wasn't easy to

> > wait for either of us, but it was worth it. I put the brakes on

at

> first,

> > but after a while he did too. Meant a lot to him. (Sorry to get

> so off

> > topic) Jeanie

> >

> > RE: libido

> >

> >

> > I'm 19 and my libido has been low before being diagnosed and I

just

> feel

> > that for my age I should have a higher libido. It's not that I

> have no

> > libido...I do chase after guys ;) and before becoming hypo my

> libido was

> > higher but now my sex drive is much lower than any of my friends

> sex drives,

> > so I just want to know if having the right thyroid meds will

raise

> my libido

> > to back how it was.

> >

> >

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Yes. Once you get in your good range, you will get it back. I

suffered with low lobido for almost 8 months and then it just kind of

kicked in.

P

> I'm 19 and my libido has been low before being diagnosed and I just

feel that for my age I should have a higher libido. It's not that I

have no libido...I do chase after guys ;) and before becoming hypo my

libido was higher but now my sex drive is much lower than any of my

friends sex drives, so I just want to know if having the right

thyroid meds will raise my libido to back how it was.

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I know what you are saying and I am not saying I am worried about my libido

because I want to have casual sex. In no way will I ever just have casual sex.

I will only make love with someone I am deeply in love with...I haven't found

that man yet. But I was just worried because even though I'm waiting I would

think that for someone my age I should have a higher libido anyway, because mine

just doesn't seem normal. I don't know...maybe it just seems low because I

haven't found the right guy yet, but maybe not...who knows...it was just

something I was pondering about.

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:) I think you will find the right person for you :) I believe theres

someone out there for eveyone and you'll know who it is when you find

them :) I did, I met and married at 18(now 21)I didn't marry for any

resson(eg not for pregancy)just becasue I knew it was him and really

had no choice(i moved from Canada to AZ America)just picked up at

left in 2 weeks :) so don't give up the love of your life is out

there :)

~Ally~

> I know what you are saying and I am not saying I am worried about

my libido because I want to have casual sex. In no way will I ever

just have casual sex. I will only make love with someone I am deeply

in love with...I haven't found that man yet. But I was just worried

because even though I'm waiting I would think that for someone my age

I should have a higher libido anyway, because mine just doesn't seem

normal. I don't know...maybe it just seems low because I haven't

found the right guy yet, but maybe not...who knows...it was just

something I was pondering about.

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Oh I'm definitely not giving up. I'm sure the right one is out there for me,

I'm only 19...I have my whole life ahead of me and I know I'll find the right

guy sooner or later, I have no doubt in that.

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Good. Sorry. I didn't mean to be insulting. Just concerned. I work with

the 12-18 year olds at church and its a hard time to grow up anymore.

Everything is so in your face. It actually takes away from it. Love should

be a factor. Much better that way. Jeanie (old fogie : )

RE: libido

I know what you are saying and I am not saying I am worried about my libido

because I want to have casual sex. In no way will I ever just have casual

sex. I will only make love with someone I am deeply in love with...I

haven't found that man yet. But I was just worried because even though I'm

waiting I would think that for someone my age I should have a higher libido

anyway, because mine just doesn't seem normal. I don't know...maybe it just

seems low because I haven't found the right guy yet, but maybe not...who

knows...it was just something I was pondering about.

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