Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 --- Hi Bill a couple of questions have you had a Mri of your head done to rule out issues with pituitary lesions etc. and have you had your prolactin checked and if so post values and ranges. Because high prolactin can cause this as prolactin can shut down TSH production which can cause feelings of cold. (high E2 stimulates prolactin release as well how is your E2)? have you had adrenal hormones tested? are they normal? do you know if your anemic? have you had a complete blood count done? These are some of the areas I would be looking at to get tested if not done already. hope this helps Manraj In , williamb11 <no_reply@...> wrote: > > Friends, > > I was curious if anyone else with low T/hypogon. issues experiences a > sensitivity to the cold (I am always colder than others, shivering at > times, cold-to-touch nose, feet, penis, etc.)??? > > I had expansive thryoid testing and it looks good - in mid to upper > ranges. I don't think I have a thyroid problem. > > Could this be a result of low LH or low T?? Anyone else very > sensitive to the cold? It totally stinks... > > Blessings, > Bill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 Bill, I have this exact pain from brain or nerve injury consequent to phen/fen drugs ten years ago. Are you taking or have you taken SSRI medications or ecstasy? These medications tinker with blood flow, effected by seratonin. Blood flow is the fuel that makes you warm. Other than that, diabetic neuropathy, autonomic neuropathy, shy drager syndrome etc are other root causes. It surely sounds like an autonomic nerve issue to me unless thyroid is way out of wack. Illness will drive circulation deeper to preserve core temperature at the expense of cold painful limbs. williamb11 <no_reply > wrote: Friends, I was curious if anyone else with low T/hypogon. issues experiences a sensitivity to the cold (I am always colder than others, shivering at times, cold-to-touch nose, feet, penis, etc.)??? I had expansive thryoid testing and it looks good - in mid to upper ranges. I don't think I have a thyroid problem. Could this be a result of low LH or low T?? Anyone else very sensitive to the cold? It totally stinks... Blessings, Bill __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Thanks, Manraj. I did have a pit. MRI and all came back clean, as did prolactin, E2 and adrenals. I believe I had RBC run, but I will check my lab notes - anemia is a good thing to check. I don't have my labs with me, but will post when able. Thanks. Blessings, Bill > > > > Friends, > > > > I was curious if anyone else with low T/hypogon. issues > experiences a > > sensitivity to the cold (I am always colder than others, shivering > at > > times, cold-to-touch nose, feet, penis, etc.)??? > > > > I had expansive thryoid testing and it looks good - in mid to > upper > > ranges. I don't think I have a thyroid problem. > > > > Could this be a result of low LH or low T?? Anyone else very > > sensitive to the cold? It totally stinks... > > > > Blessings, > > Bill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Larry, Thanks for your note. Yes, to the SSRI question! SSRI's started when I was 24 and continued until about 6 weeks ago at age 38. I went on SSRI to fight energy issues caused from low T not knowing that was what it was. Since starting treatment for low T, I have easily stopped any SSRI. Maybe it is just withdrawal effects from stopping SSRI?? Do you think this sensitivity will go away as I get further from my SSRI experience???? (Thyroid does check out as OK). Thanks, Bill > Friends, > > I was curious if anyone else with low T/hypogon. issues experiences a > sensitivity to the cold (I am always colder than others, shivering at > times, cold-to-touch nose, feet, penis, etc.)??? > > I had expansive thryoid testing and it looks good - in mid to upper > ranges. I don't think I have a thyroid problem. > > Could this be a result of low LH or low T?? Anyone else very > sensitive to the cold? It totally stinks... > > Blessings, > Bill > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Bill post your tests Dr.'s say your in the normal range and you tell them how your feel and they offer Prozac. I was told my thyroid was ok for yrs. I am allways very hot yet my temps are low. Dr.'s need to use labs as a tool and listen to us when we tell them how we feel. I was hot and sweating because my thyroud is low and my cortisol is low so my body made a lot of Adrenaline because of it. Here is a link on doing temps and charting them if you were to take your Temp in the morning under your arm for 10 min's before getting out of bed for the next 4 days and do a avg. if your below 97.8 your thyroid is low. I print out this chart and keep track of my Temps doing this tells me how my adrenals and thyroid are doing. I started this before treating my Adrenals and Thyroid. http://www.drrind.com/tempgraph.asp#directions Phil williamb11 <no_reply > wrote: Friends, I was curious if anyone else with low T/hypogon. issues experiences a sensitivity to the cold (I am always colder than others, shivering at times, cold-to-touch nose, feet, penis, etc.)??? I had expansive thryoid testing and it looks good - in mid to upper ranges. I don't think I have a thyroid problem. Could this be a result of low LH or low T?? Anyone else very sensitive to the cold? It totally stinks... Blessings, Bill __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Bill, For me, the painful cold sensations continue nearly ten years later as a conseqence of the SSRI-like medication fenfluramine. I am very uncomfortable below 70-75 degrees and it is very painful when it's lower than 50. The problem continued evolving (worsening) for six months after I stopped fen/phen. Then it slowly improved but it continues to totally disupt my life. I used to shiver violently after getting out of the bath. That part of the problem improved through time. I have discussed these symptoms with another patient who had the same consequence to fen/phen diet pills and he did improve over a period of around two years to where the pain didn't disrupt his life. His neuropathy, like mine, also progressed after he stopped the medication and it later his went into remission. For both of us, symptoms began with cold feet. Then the neuropathy assended until it involved the entire body. Both of us have fibromyalgia (chronic widespread muscle pain) as a consequence. Fibromyalgia is thought to be a form of central nervous system nerve problem, so overlapping symptoms would be consistent. I don't know if this went away for him since I have not been in contact with him in years. There is no proof the fenflurmaine caused this problem for either of us, so it is speculation on my part. I know a third patient with similar consequence but I lost touch with her. She was not talkative so I know little about how her illness progressed. Fenfluramine causes seratonin release as well as blocking the reuptake. It was described in some medical journals as causing brain damage in primates. It was thought that the releasing mechanism of fenflurmamine and MDMA (ecstacy) which is quite similar, are responsible for brain injury. You probably have seen TV documentaries talking about ecstasy making " holes in the brain " . I have never seen similar reports for the SSRI family. Some psychiatrists, such as Breggin, have stated that SSRI's are neurotoxic but I have never read of proof. I wouldn't want to dismiss your problem as having SSRI's as the cause. I think this deserves a proper work-up. Autonomic and sensory neuropathy should be kept in mind. Tests for this type of neuropathy include thermography, tilt table testing, heart rate variablity, sweat test etc. These are all pretty specialized evaluations that are conducted by a subset of neurologists. A nerve conduction velocity (NCV), which is pretty painful, is of no value evaluating fine fiber nerves. That test looks for demylination of motor nerves. Mylinated nerves are not involved in cold sensation or blood flow regulation, so if a NCV test is recommended to you , ask questions. Neuropathies have many possible causes, such as diabetes, thyroid, alcohol excess, and autoimmune illness attack of fine fiber nerves for example. Neuropathies can improve when the cause is eliminated. Correcting the cause is somewhat urgent as prompt correction relates to better outcome. Do you get any change in skin color in reaction to cold exposure. For instance, do your hands react with color change and severe pain to holding some ice? There is a condition called Raynauds with this symptom. Raynauds is worsened by SSRI's and tricyclic antidepressants. It is managed with blood pressure medications of the calcium channel blocker or alpha blocker family. Procardia XL or Cardura are two examples. If you were on SSRI's for all these years, you should have been tapered off, not stopped abruptly. Since this is only six weeks later, you may want to continue the SSRI and slowly taper the dose, perhaps across as long as six months to a year. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Phil, Here are the results - all look pretty good, indicating low T as still the main issue! Cortisol: 11.9 (9am) - with 1 hour ACTH Stim - 38.0 T3: 146 (70-170) T4: 7.8 (5-11) TSH: 3.56 (0.5-5) Free T4: 1.2 (0.8-1.8) Test: 393 SHBG: 23 > Friends, > > I was curious if anyone else with low T/hypogon. issues experiences a > sensitivity to the cold (I am always colder than others, shivering at > times, cold-to-touch nose, feet, penis, etc.)??? > > I had expansive thryoid testing and it looks good - in mid to upper > ranges. I don't think I have a thyroid problem. > > Could this be a result of low LH or low T?? Anyone else very > sensitive to the cold? It totally stinks... > > Blessings, > Bill > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Now with your Cortisol test being 12 Dr. Jefferies feels this is on the low side he likes to see it 15 to over 25. I would do a slaiva test to see how it looks morning, noon, dinner and bedtime. You can get this test http://www.stopthethyroidmadness.com/recommended-labwork/ through this link at http://www.canaryclub.org/component/option,com_frontpage/Itemid,1/ No Free T3 test hard to tell what is going on I went through this with my Dr. after his reading STTM web site he does Free T4 and Free T3 with TSH. Did the Dr. test your ACTH levels before the stem. test I don't see it. Not very good at reading this so here is a good link about the ACTH Stem. test and reading it. http://www.stopthethyroidmadness.com/community/viewtopic.php?t=288 Your test 393 is low yet your SHBG is dam good. I don't remember are you on TRT is so what. Phil williamb11 <no_reply > wrote: Phil, Here are the results - all look pretty good, indicating low T as still the main issue! Cortisol: 11.9 (9am) - with 1 hour ACTH Stim - 38.0 T3: 146 (70-170) T4: 7.8 (5-11) TSH: 3.56 (0.5-5) Free T4: 1.2 (0.8-1.8) Test: 393 SHBG: 23 > Friends, > > I was curious if anyone else with low T/hypogon. issues experiences a > sensitivity to the cold (I am always colder than others, shivering at > times, cold-to-touch nose, feet, penis, etc.)??? > > I had expansive thryoid testing and it looks good - in mid to upper > ranges. I don't think I have a thyroid problem. > > Could this be a result of low LH or low T?? Anyone else very > sensitive to the cold? It totally stinks... > > Blessings, > Bill > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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