a thought

[Guest guest]

How about a little more dwelling on some positives here????? As Teri

says, we have so much for wich to be grateful. I am concerned that

comments like this go unnoticed as well dwell on all the pills, the

weight, etc. etc. If nothing else, be mad at me for saying this. Dianne

On Fri, 7 May 1999 20:32:10 -0500 teri <teri@...> writes:

>From: teri <teri@...>

>

>Anytime we get to feeling terrible, we can just look around and see

>people much worse off than we. Like this week here in Oklahoma, where

>so many died in the storm, many more hurting, many homeless. We may

>have rather cantankerous bodies, but we are alive, and we have our

>homes and families. And we have each other to be there for each other,

>to understand when we are down, when we have questions, when we just

>need a little hope.

>

>Read these somewhere -

>> > > > The older you get, the tougher it is to lose weight, because

>your

> > > > > body and your fat are real good friends.

>

>> > > > You don't stop laughing because you grow old, you grow old

> > > > > because you stop laughing.

>Find something to laugh about this weekend. It makes the body

>healthier.

>teri

>

>

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[Guest guest]

Dianne,

It's always great to dwell on the positive, but not always that easy.

Sometimes inspirational messages feel like a pat on the back and platitudes

can actually be irritating.

For me, this group is a good place to go to vent fears, anxieties,

irritations and to seek reassurance and gain perspective. That's what a

support group should be all about, isn't it? Most of us do, in fact, have

many things going on that are making our lives miserable. Many can't seem

to find a caring ear at home and perhaps are dealing with doctors who seem

detached or indifferent. When your life has been turned upside down, your

appearance has changed so much that you can't stand to look in a mirror,

you don't have a day without aches and pains, you are living with fear

of the unknown future, most of us need to talk about it to someone who

understands and sympathizes. Truth is, obesity is one of the " risks "

listed under negative side effects from Prednisone and it can be an

indicator of more serious problems.

Talking about the positives can be a good thing, but being able to freely

discuss concerns, no matter how trivial they might seem to some, is also a

positive. Open discussion with the freedom to talk about whatever is on

our minds (without fear of criticism) seems to me to be an invaluable

attribute of this or any support group.

Take care,

Geri

[Guest guest]

Geri,

Please don't assume I mean either/or, or that I am trying to define what

this group means to anyone. For me, it's just nice to hear a bit of

both. I am not being critical of what is being expressed and just chose

to express a thought. I hope that is still allowable on this forum. I

am truly happy for what this forum means to you, and I hope that never

changes. Please allow me the opportunity to express a thought every now

and again. I apologize if it was viewed as a criticism. Dianne

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[Guest guest]

Dianne:

Things some times just looks black and no bright colors in the world when you

are sick and know that you won't get rid of it. But ofcouse I try to think

of the goods things and try and do the good things.

Today I went to see my step-mother and brought her groceries. It was about

all I could do without running out of steam. But I did it. I forgot to tell

you that my stepmother lives 25 miles out in the country from me. But it made

me feel good about doing it.

I wish that I could have a good outlook everyday but the pain just won't let

me have it.

Sue AIH

Wisconsin

[Guest guest]

Dianne:

The Superior Area has what the call the SMDC this is real big. It is St

's Hospital and Duluth Clinic. They have clinics and hospitials all over

northern Minnesota and Wisconsin. The doctors are said to be the best. I

know my doctor is really great but I ran into the specialist that was real

nice until I asked to referred to the Mayo Clinic. She was very rude and I

didn't go see her after I came back from the Mayo. I think I wrote that if

Rochester isn't very far for you to travel, go to see them. The doctors and

all the people are very nice and really are concerned about you when you see

them...not thinking what they want to do after work or the patient in the

next room. You are their main concern when they see you. I really like Dr.

Czaja and he has someone see talk to you but he always comes in and talks and

examine you also..

Maybe we can get together if we met half way after you get settled in

Wisconsin.

Sue AIH

Wisconsin

[Guest guest]

Sue,

Believe it or not, my outlet usually is not good, and like many others, I

don't discuss these things with friends or family. I think especially

being in a precarious job hunting situation, the need not to let others

know I'm not well is a necessity. Am I'm glad for all the sharing that

goes on here. I'm glad you got to do something for your step mom.

I think my expressions of thought must sound like criticisms. I just got

to thinking of the devastation in Oklahoma as Teri mentioned, and the

many students I have had this year who have lost grandmothers and

grandfathers (it's been an extraordinary year for that) and for the

incredibly high number of students we lost this year in car accidents,

and my best friend, whose little girl was born premature with spina

bifida, and I am evan more greatful that so many of us are surviving, and

that there is some medication for us, though not ideal, and that this is

most of all an incredibly nice group of people here. So, I blurted. I

exhaled.

You are in a different part of Wisconsin than I am, but in general, how

is the health care in the state?

___________________________________________________________________

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[Guest guest]

Thanks and Sue for the info on Wisconsin and health care. Dianne

___________________________________________________________________

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[Guest guest]

Geri,

You are right, this group is MY sanity, thats for sure.

Could you maybe help me with what exactly the GAMMA in the blood tests

means. My latest test shows significant increase in these numbers. What

does it mean. I am aware of the meaning of most, ALT & AST and LD, and have

seen GAMMA before but it has never been explained to me, they are currently

showing 428.

Thanks, if anyone can help.

SueB.

----------

> From: Geri Spang <spangs@...>

> onelist

> Subject: Re: [ ] a thought

> Date: Sunday, 9 May 1999 5:51

>

> From: Geri Spang <spangs@...>

>

> Dianne,

> It's always great to dwell on the positive, but not always that easy.

> Sometimes inspirational messages feel like a pat on the back and

platitudes

> can actually be irritating.

>

> For me, this group is a good place to go to vent fears, anxieties,

> irritations and to seek reassurance and gain perspective. That's what a

> support group should be all about, isn't it? Most of us do, in fact,

have

> many things going on that are making our lives miserable. Many can't

seem

> to find a caring ear at home and perhaps are dealing with doctors who

seem

> detached or indifferent. When your life has been turned upside down,

your

> appearance has changed so much that you can't stand to look in a mirror,

> you don't have a day without aches and pains, you are living with fear

> of the unknown future, most of us need to talk about it to someone who

> understands and sympathizes. Truth is, obesity is one of the " risks "

> listed under negative side effects from Prednisone and it can be an

> indicator of more serious problems.

>

> Talking about the positives can be a good thing, but being able to

freely

> discuss concerns, no matter how trivial they might seem to some, is also

a

> positive. Open discussion with the freedom to talk about whatever is on

> our minds (without fear of criticism) seems to me to be an invaluable

> attribute of this or any support group.

> Take care,

> Geri

>

> ------------------------------------------------------------------------

> Always wanted to set up a book club, but can't find the time?

>

> Create an online book club through ONElist.

> ------------------------------------------------------------------------

> Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to -subscribeonelist

> 2.) To UNsubscribe send to -unsubscribeonelist

> 3.) Digest e-mail format send to -digestonelist

> 4.) Normal e-mail format send to -normalonelist

[Guest guest]

Sue,

I haven't noticed the term " gamma " on my labs so I don't know what it

means. Wish I could be more help. Hopefully someone else knows more about

it.

Take care,

Geri

[Guest guest]

I really like that Thank you!

Christo

[Guest guest]

I don't know why the media seems to think that LP suffer as I don't

see my duaghter suffering other than her sister antagonizing her over

there toys....

[Guest guest]

Morning -Anne,

My pump is on my right so i'm sure that they will

put the power unit on my left. I there a better place

to put it on your butt/hip rather than where it is

now?

So how is your pain level doing, is it helping with

both legs an back pain for you, also how active have

you been since you have had the stimulator? Does the

stimulattion bother your siatic nerve at all? With the

trial the stimulation it did bug my siatic (sp) nerve,

I could not leave it on to long or on to high. With me

i had the stimulation cranked up, I had it as high as

i could stand it most of the time! I sure hope this

works for the both of us!

Do you have the pump? You probably told me, i'm a

space case once an a while! Hang in there -Anne,

it's got to get better!

Rob in Idaho

--- shantihhh <shantihhh@...> wrote:

>

>

> I just had the stitches removed in my hip/butt at

> day 7, and also

> the ones where the leads are in my back along the

> spine, day 19.

> The ones in my back were no big deal, but wish

> they'd waited a few

> more days to remove the ones in my hip/butt as they

> are so tender

> and sore causing severe pain. It is so difficult to

> sit or turn

> onto my side in bed. Can't begin to lay on that

> side.

>

> Just a thought for others to consider. I was told

> they usually

> leave them in for 10 days, but I healed " so nicely "

> they set an

> appointment to remove them one week after the

> inplant. HUMPH!

>

> -Anne

>

>

>

>

>

>

>

__________________________________

Celebrate 's 10th Birthday!

Netrospective: 100 Moments of the Web

http://birthday./netrospective/

[Guest guest]

Mine is in my right upper buttcks and is quite sore still. Between

that inciscion and the spinal in lower back incesions for the leads

it is difficult to say the stimulator is helping.

I know that when they tried different programs on the ubit I also

had sciatic pain, but they switched it around and the sensation

stimulation is lower back and legs.

I do not have the pain pump. I have had dreadful reactions to

duragesic, opiates, nuerontin, methadone, gabitril, codeine, and

everything else they have tried.

Going out today as it is a gorgeous sunny day finally. I'll see how

I do. Of course I can't drive for a few weeks.

-Anne

>

> >

> >

> > I just had the stitches removed in my hip/butt at

> > day 7, and also

> > the ones where the leads are in my back along the

> > spine, day 19.

> > The ones in my back were no big deal, but wish

> > they'd waited a few

> > more days to remove the ones in my hip/butt as they

> > are so tender

> > and sore causing severe pain. It is so difficult to

> > sit or turn

> > onto my side in bed. Can't begin to lay on that

> > side.

> >

> > Just a thought for others to consider. I was told

> > they usually

> > leave them in for 10 days, but I healed " so nicely "

> > they set an

> > appointment to remove them one week after the

> > inplant. HUMPH!

> >

> > -Anne

> >

> >

> >

> >

> >

> >

> >

>

>

>

>

>

> __________________________________

> Celebrate 's 10th Birthday!

> Netrospective: 100 Moments of the Web

> http://birthday./netrospective/

[Guest guest]

Note: forwarded message attached.

>

>

>

> ----->

> >>May you be blessed in 2006!

> >>

> >>A great note for all to read it will take just 37 seconds to read this and

> >>perhaps change your thinking

> >>

> >>

> >>Two men, both seriously ill, occupied the same hospital room. One man was

> >>allowed to sit up in his bed for an hour each afternoon to help drain the

> >>fluid from his lungs. His bed was next to the room's only window. The

> >>other man had to spend all his time flat on his back. The men talked for

> >>hours on end. They spoke of their wives and families, their homes, their

> >>jobs, their involvement in the military service, where they had been on

> >>vacation. Every afternoon when the man in the bed by the window could sit

> >>up, he would pass the time by describing to his roommate all the things he

> >>could see outside the window. The man in the other bed began to live for

> >>those one hour periods where his world would be broadened and enlivened by

> >>all the activity and color of the world outside. The window overlooked a

> >>park with a lovely lake. Ducks and swans played on the water while

> >>children sailed their model boats. Young lovers walked arm in arm amidst

> >>flowers of every color and a fine view of the city skyline could be seen

> >>in the distance. As the man by the window described all this in exquisite

> >>detail, the man on the other side of the room would close his eyes and

> >>imagine the picturesque scene.

> >>

> >>One warm afternoon the man by the window described a parade passing by.

> >>Although the other man couldn't hear the band - he could see it. In his

> >>mind's eye as the gentleman by the window portrayed it with descriptive

> >>words. Days and weeks passed.

> >>One morning, the day nurse arrived to bring water for their baths only to

> >>find the lifeless body of the man by the window, who had died peacefully

> >>in his sleep. She was saddened and called the hospital attendants to take

> >>the body away.

> >>

> >>

> >>As soon as it seemed appropriate, the other man asked if he could be moved

> >>next to the window The nurse was happy to make the switch, and after

> >>making sure he was comfortable, she left him alone.

> >>

> >>Slowly, painfully, he propped himself up on one elbow to take his first

> >>look at the real world outside. He strained to slowly turn to look out

> >>the window beside the bed. It faced a blank wall. The man asked the nurse

> >>what could have compelled his deceased roommate who had described such

> >>wonderful things outside this window The nurse responded that the man was

> >>blind and could not even see the wall. She said, " Perhaps he just wanted

> >>to encourage you. "

> >>Epilogue:

> >>There is tremendous happiness in making others happy, despite our own

> >>situations. Shared grief is half the sorrow, but happiness when shared,

> >>is doubled. If you want to feel rich, just count all the things you have

> >>that money can't buy. " Today is a gift, that's why it is called the

> >>present. "

> >>The origin of this letter is unknown, but it brings good luck to everyone

> >>who passes it on.

> >>

> >>Do not keep this letter.

> >>

> >>

> >>

> >>

> >>Just forward it to your friends to whom you wish blessings.

> >>

> >>

> >>

> >>

> >>The greatest happiness in life is

> >>the conviction that we are loved

> >>- loved for ourselves, or rather,

> >>loved in spite of ourselves.

> >>

> >

>

Susy

Gidget(toy poodle),Yoda(Chihuahua), Dr. Pepper (Chihuahua)(Gone to the rainbow

bridge) and Teddy (Papillion).

From Missouri the Show me State

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

[Guest guest]

I

absolutely agree Lilian. Nobody should write anything in the name of TPA-UK

without our express permission. We are writing to the President of the Royal

College of Physicians and also responding to the new guideline and the latter

should be completed shortly.

However,

for those who wish to write themselves to either the RCP or their MP, please go

ahead - we need to make as much noise as possible. I will put a draft letter

for those members who wish to use it to send to their MP's on the forum

shortly.

Luv -

Sheila

I

think anything done in the name of TPA should have the permission of Sheila and

Lee first. Therefore before anything is sent or planned

for TPA it should be run by them first.

Anyone

doing something in their own name/s does not have to of course.

Lilian

[Guest guest]

This is true, I only ever send as a sufferer under my own name, never

under the name of TPA-UK.

I agree with you.

lotsa luv

Dawnx

[Guest guest]

I think you might find a full page advert would cost thousands

Lilian, but could you find this out. Certainly an excellent thought.

Luv - Sheila

Although newspapers pick and choose what they want

to write about (what they think will sell papers), they are not so choosey when

it comes to paid adverts/promotions.

So, if there is sufficient

funds, what about taking out a full or half page 'advert' in something like the

Telegraph, setting out what is happening about these guidelines

etc. without any libelous statements, but just the facts. If

funds stretch then perhaps the Mail the next week. Not

both (all) papers in the same week though. Then members can

do follow ups to keep it in the public eye, by writing letters to the paper

giving their comments on the advert/promotion.

Lilian

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.339 / Virus Database: 270.12.41/2136 - Release Date: 05/27/09

18:21:00

[Guest guest]

We as a letting agent pay £200 per week for a tiny 6"x6" ad in the local rag !!!!

Margaret

From: Sheila <sheila@...>thyroid treatment Sent: Thursday, 28 May, 2009 9:46:10Subject: RE: A thought

I think you might find a full page advert would cost thousands Lilian, but could you find this out. Certainly an excellent thought.

Luv - Sheila

Although newspapers pick and choose what they want to write about (what they think will sell papers), they are not so choosey when it comes to paid adverts/promotions.

No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 8.5.339 / Virus Database: 270.12.41/2136 - Release Date: 05/27/09 18:21:00

[Guest guest]

Minimum 3 column cms, per scc £106

Full page .................................£46,000

Oh well that has knocked that one on the head.

Lilian

[Guest guest]

As Dawn Wood of thyroid disease.org and Lyn Mynott of Thyroid UK

are collecting funds through various methods and charging fees for membership, they

too should be approached to see if they would contribute towards the cost of placing

such an advert - after all, they are there to help hypothyroid sufferers in the

UK too. If each thyroid organisation paid a third of the cost, this might

work. For 'further information', all three organisations could have their

web site placed on the advert.

Luv - Sheila

Although newspapers pick and

choose what they want to write about (what they think will sell papers), they

are not so choosey when it comes to paid adverts/promotions.

So, if there is sufficient

funds, what about taking out a full or half page 'advert' in something like the

Telegraph, setting out what is happening about these guidelines

etc. without any libellous statements, but just the facts. If

funds stretch then perhaps the Mail the next week. Not

both (all) papers in the same week though. Then members can

do follow ups to keep it in the public eye, by writing letters to the paper

giving their comments on the advert/promotion.

Lilian

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.339 / Virus Database: 270.12.41/2136 - Release Date: 05/27/09

18:21:00

[Guest guest]

Then we will carry on with my original idea of writing a 'Letter

to the Editor' of every national and local newspaper in the UK. Also, every

national newspaper in the USA.  At least, this costs nothing - only time ;o(

Luv - Sheila

Minimum 3 column cms, per scc £106

Full page .................................£46,000

Oh well that has knocked that

one on the head.

Lilian

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.339 / Virus Database: 270.12.41/2136 - Release Date: 05/27/09

18:21:00

[Guest guest]

It is a great idea Lilian - some of the papers will also do advertorials - which look like a story but are adverts and I have a feeling this may not be so expensive but mainly its in local papers - but a few of those would add up wouldnt they in terms of gettingmessages out.

Gill

I think you might find a full page advert would cost thousands Lilian, but could you find this out. Certainly an excellent thought.

..

[Guest guest]

I was not only thinking of patients reading it, I was thinking about doctors and members of BTA et.al. They are more likely to read something like the Telegraph, and it was one of those advertorials that I was thinking of.

Lilian

[Guest guest]

pj,

 

where could I get such a magnet?

From: Shirley <pj20844@...>

Subject: a thought

Date: Monday, October 26, 2009, 11:53 AM

 

BG, You may want to consider getting a 5 lb. therapeutic magnet and sleeping

with it strapped to your sore hips for a night or two. My own is a 2 1/2 lb.'er

and I have seen it do some miraculous things. Might give you diarrhea so look

out for that. The fiver will penetrate for about 10 in. and the 2 1/2'er for 5

to 6. They are kinda expensive, but will last for a century or so. pj

[Guest guest]

pj:

I have some 4 " x6 " x1/2 " ceramics I bought from magnets4less.com.  Which side

towards the body, N or S?

Ted

From: Shirley <pj20844@...>

Subject: a thought

Date: Monday, October 26, 2009, 11:53 AM

 

BG, You may want to consider getting a 5 lb. therapeutic magnet and sleeping

with it strapped to your sore hips for a night or two. My own is a 2 1/2 lb.'er

and I have seen it do some miraculous things. Might give you diarrhea so look

out for that. The fiver will penetrate for about 10 in. and the 2 1/2'er for 5

to 6. They are kinda expensive, but will last for a century or so. pj