heart problems

[Guest guest]

In a message dated 10/15/99 8:26:58 PM Eastern Daylight Time,

dodd@... writes:

> Does anyone have any knowledge or similarities to this??

I haven't Shari......

But I know reading about adrenalin and us do not mix I thought,

This might be a good time to ask or show your Drs the sticky blood info.

Hemex hypercoagulation...

I have a lazy valve or something can't remember but I do know in our group

there has been alot of heart flutters, palps etc... Some call it anxiety but

that is what my body is feeling I am not....

I have tightness but lately have been breathing better, like a band across

the chest and bones are very sore at times, I was dxd with Condrontitis sp?

besides cfs/me/fm/myco

I had tried sub linqual nitro and did like it but headaches were a bad

side effect after awhile...

Maybe you also have what they call low blood volume, too bad you have

to lie down would be curious with all the technolgy you had it you were

standing etc.

I am certainly happy for you that it wasn't a heart blockage .......and you

have the oxygen back....

It may have nothing to do with fms/cfs but we all know that high stress

throws our bodies and high or even normal physical activity will floor us

later...

How many times have we all heard from Drs well this shouldn't be or this is

rare etc etc....

Good Luck & Glad to see you back

[Guest guest]

Dear Shari,

I have had FMS for years but never experienced what you describe. I HAVE had

a different sort of feeling with my heart though, a sort of unpleasant fluttery

feeling as though a one-way valve was suddenly now flapping back and forth in

both directions rather than only going the way it should. I can usually make it

go away by holding my breath and kind of clenching muscles in the area of the

heart. Must be some kind of biofeedback I discovered unknowingly. My father who

also has FMS has also reported this type of feeling. Good luck figuring this

out!

Hugs,

Theresa

[Guest guest]

My son (who I suspect has FM)and I get this pain in the middle of our

chest. When it first started for me, I thought I was having a heart

attack. The pain feels like a spike going through my chest to my

back right below my shoulder blades and feels like it's difficult to

breathe. The pain will last a good 10 minutes or so and happens a

number of times during the day. And then it will stop and I won't

have another episode for months.

Zazzue

[Guest guest]

At 08:16 PM 10/15/99 -0400, you wrote:

> Hi, He injected nitro into the artery and within 15 seconds the

>artery had dilated " " Does anyone have any knowledge or

>similarities This does not cause a heart clenching pain to

>me.......tight pressure like MANY spots on my body!! Laying flat for

>the following 7 hours was hell. I look forward to hearing from you asap.

> I had several of these today while laying and watching tv??????

Hi,

I had a heart cath in 95, but there was no CAD. What does your cardio

propose to do now? And I still wonder if this was problem all along,

especially considering that women do not have same signs as men nor are

we taken as seriously! I'm glad you had this done, however. The

proceedure itself can cause symptoms also - did your cardio tell you this?

Still, you do need to have this cardio situation taken care of ASAP!

Take care,

CHristie

[Guest guest]

In a message dated 10/15/99 11:24:07 PM Eastern Daylight Time,

Zazzue@... writes:

<< When it first started for me, I thought I was having a heart

attack. The pain feels like a spike going through my chest to my

back right below my shoulder blades and feels like it's difficult to

breathe. The pain will last a good 10 minutes or so and happens a

number of times during the day. >>

This seems to be exactly what Berg describes when hypercoaguability is

the problem in FMS. The fibrin has built up around the muscle (and what is

the heart but a muscle) that creates the pain. But it's not a heart attack.

The first FMS patients to go on his threrapy continue to do very well on just

a maintainance dose.

Gail

[Guest guest]

In a message dated 10/16/99 5:01:02 PM Eastern Daylight Time, tab@...

writes:

> Are you going to say anything to him??

Shari & Christie.......

Sounds hard but we have to educate our Drs, these guys have gone

to school for a long time, and at least Shari has a Dr that says wow never

saw this before..

Your Cue Shari to try to open up the conversation and give him papers,

conversation,questions ?

All by not getting stressed yourself, and a head to head....

Ask , could this happen for any other reason than my stress, is the body

reacting to something etc etc. Some do have alot of knowledge and just might

work....

Just like what happened with the pych tests and I, certain Drs ignored that

info and pieced what else they had with my med papers and looked at me the

patient in front of them. What else could be causing this or that....

Good Luck.......

[Guest guest]

>

>Dr. told my family I was having these from excess adrenaline produced by

my being a high stressed individual. Do I need to tell you how angry this

makes me??? At 4:19 A.M. I woke up with one. Felt like a corkscrew turned

under outer corner of left breast (like 45 degree angle), tightness and

pressure, but not " oh I'm going to pass out " pain. I took nitro and went

away. Now was I stressed!!?? I don't think so at 4:19 A.M..

>

Dear Shari,

Will docs EVER learn??? Are you going to say sanything to him?? I am

glad the meds are working, however.

Doctors!

Christie

At 10:10 AM 10/16/99 -0400, you wrote:

> Good morning, Let me update you and answer pertinent questions.

>The name of condition is Treatment is beta-blockers and nitro to

>open arteries. My dr is treating me with 2.5 mg Norvasc - a beta blocker

>and nitro. Dr. told my family I was having these from excess adrenaline

> " " I don't think so at 4:19 A.M.. All rx's checked and they are not

>interfering

[Guest guest]

Their site is hemex.com (http etc.) and you just click in CFS/FMS.

Gail

[Guest guest]

(SNIP)

>This seems to be exactly what Berg describes when hypercoaguability is

>the problem in FMS. The fibrin has built up around the muscle (and what is

>the heart but a muscle) that creates the pain. But it's not a heart

attack.

>The first FMS patients to go on his threrapy continue to do very well on

just

>a maintainance dose.

>Gail

Hi,

Is there a site for this treatment? I would like to know more about the

fibrin build up. I had been on aspirin as a blood thinner, but now cannot

take aspirin or any blood thinner due to GI bleed this summer. Is aspirin

also used for hypercoaguablility?

Hanging in with Vit. E,

Christie

[Guest guest]

Connie............I have posted before and my symptoms of RS started when I

was 10 years old. I have had one MI and went to the ER about a month ago

with some changes in EKG. I will go back to cardiologist Sept 18. I do

think it is all related. My muscles spasm causing a shortage of blood and I

have mitral valve prolapse. I take verapamil daily and have for several

years. I am 55; had three arteriorgrams and nothing else can be found. They

may do a physiological study this round.

Good luck. There never seems to be an end to what this secondard infection

or inflammation can do to our bodies.

Jane

[Guest guest]

Hi Connie,

I have had a heart problem for years, long before I was diagnosed with this

spondy. (Prob AS)

I have a conduction problem, so that occasionally my heart goes out of its

proper rhythm fand has to be shocked back in. This occurs when I vomit,

sometimes when I sneeze and occasionally, lately, when I bend down. Its a

real nuisance and results in a trip to hospital (intensive care unit here)

to be put right.

I also have some fluid around the lining of the heart, due to the

inflammatory arthritis, so my cardiologist says.

Cheers,

Tasmania

[Guest guest]

I want to thank you (/Jane) for answering my request for info on

your heart problems relating to AS. I will be seeing someone here in

NC...just for consult. That way, I'll get two opinions, one here and one in

Fl. If any invasive procedures are needed, we'll go to Tampa area where I

have more confidence in the medical profession and facilities. Here in NC, I

had the stress test done, minus a cardiologist at hand, just 2 techs. (which

didn't sit well with my husband). The tech that injected the drug, jabbed me

three times before getting a vein (just luck) digging around each time

causing my whole hand to bruise and pain for a few days. (Using the same

needle two of the times, I might add!) In the past, I've had many trouble

sticks...but this was most ridiculous. The same person proceeded to tell me

she loved her *new* job...as you never know what will happen when someone

takes this test!!! Talk about trying to calm the patients fears....that's

really what someone needs to hear. Good bedside manner. NOT. I just felt that

if this is the way the cardiologists run their business, I don't want to be

their patient. There were some other things that happened...I won't elaborate

on. In the mean time, I'm loving all the sweet attention my hubby is giving

me...how long and far do you think I can carry this? :-)

Best regards, Connie (granny)

[Guest guest]

Hi Connie

Things haven't changed much in N.C., have they? About 25 some years ago, my

husband and I were visiting my sister in lin. she got very sick and said

she thought it might be her heart. She had a history, so we piled her in the

car and went to another town just north(she refused to go to the hospital in

lin because they just sorta killed her husband-another story). The doctor

didn't want to believe her. He took my husband aside(being the man and all) and

said that she thought she was having a heart attack, but of course she was too

young! My husband said: Well, why not, her husband died at age 30. so, he

tried to tell DH that that was out of the ordinary. So, my husband pulled out

his bottle of nitro and said: mine was age 32. The point being is that things

were and I guess still are so slow that people just didn't do the " heart thing " .

When her husband wasn't feeling well, they took him to the local hospital and

they told him nothing was wrong and sent him home. within one hour he was dead!

So, I'd say go to Florida! As for your husband, go Granny go!

Peggy

Grannyof9@... wrote:Here in NC, I

had the stress test done, minus a cardiologist at hand, just 2 techs. (which

didn't sit well with my husband).

Peggy (mhksmom)

Today is the first day of the rest of my life........

---------------------------------

[Guest guest]

I am one of the ones that has posted message regarding heart

complications due to AS. They are 1) heart block, to varying

degrees, which is damage to the electrical conduction system

of the heart (the natural pacemaker) that keeps the chambers

beating synchronously. This can be asymptomatic and if so,

is usually found during a routine EKG. If there are symptoms,

they will consist of an irregular heartbeat, feeling faint, fatigue

especially with exercise, shortness of breath, etc. If you have

any of these symptoms or any others associated with heart

block, you should see your doctor or preferably a cardiologist.

My boyfriend recently had a pacemaker implanted because

his heart block was causing a slow and erratic heartbeat. It

had progressed to second degree, and even though second

degree heart block doesn't always require a pacemaker, his

heart rate was so slow that there was danger of fainting any

time.

The second complication is aortic insufficiency, where the

aortic valve becomes damaged. This causes blood to flow

back from the aorta into the left ventricle. This too can be

asymptomatic or cause such symptoms as shortness of

breath, fatigue, etc. My boyfriend has this also. It is diagnosed

using an echocardiogram, where the heart chambers and

valves are visualized using an ultrasound machine. Both

tests are totally painless and worth getting if you have any

concerns.

These are the only ones I know about and have not heard

anything about ischemia in the coronary arteries.

I hope this helps and that you get the medical attention that

you need to address these problems, if they exist. Take

care and be well.

Lana

At 05:41 PM 9/2/02 -0400, you wrote:

>I believe a couple of you have the heart problems associated with AS. Could

>you tell me what they were and your symptoms and what they did for it? .......

[Guest guest]

For me, the heart problems began before I was diagnosed with AS, etc. It

started out as Atrial Fibrilation and now also inclused Ventricular

Tachycardia. I take 0.375 mgm of Lanoxin daily to keep the old ticker in

line. Any dose less than that and the problem comes back.

+Dave

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[Guest guest]

Hi Priscilla

You are in our prayers for your test and follow up.

I would not be too mad at your doctor for not telling you for a year. It could

have been an inconclusive echocardiogram and she was waiting for more symptoms

to present themselves. Doctors do that in this litigious society we have today.

They have to balance the good they do by not telling if something is really iffy

with the harm they could do by telling you and treating you when you didn't need

it.

+Dave

[Guest guest]

Just got this Priscilla, but will be praying for you. I was diagnosed with

Lupus prior to RS and FMF, so if you want some of the books I have, let me know

and I can drop them off on my next trip down.

Hugs,

Susie

Heart Problems

Today is a big day for me as I go for my echocardiogram at 3:00pm to see if in

fact I actually do have " Pulmonary Hypertension " (PH) which is high blood

pressure between the heart and lungs. This condition is life threatening and

lowers life expectancy to 3-5 years or 10-15 years depending on which literature

your read.

[Guest guest]

Great word! New one for my vocabulary. Thanks Dave!

Jackie

_____

litigious

+Dave

[Guest guest]

How much potassium are you using? I had to get my diet up to

about 3g a day when I was having heart issues. Calcium is very

important too.

-LanaOn 9/3/06, sharflin <sharflin@...> wrote:

I've been having heart sensations for a few weeks, and yesterday they

got worse. I can feel my heart beating and my resting pulse is up from

low 70s to high 80s. Yesterday after I exercised I felt very weak,

like my blood sugar was low. I'm not sure what is going on, maybe

those are hyper sympoms? I've been off my small dose of synthroid for

several months after starting iodine, and haven't had any bloodwork

done. I've tried magnesium, sea salt, and potassium, and none had any

impact. Any ideas would be appreciated. Sharon

[Guest guest]

Not 3 grams, I'm sure. Is there a particular brand/type of potassium

you recommend? I was thinking about calcium also but the last time I

tried it months ago, my stomach was upset. I can get some bottled

water high in calcium - do you have any suggestions for how much to

try? Thanks much for your reply Lana,

Sharon

> How much potassium are you using? I had to get my diet up to

about 3g a day

> when I was having heart issues. Calcium is very important too.

>

> -Lana

>

> On 9/3/06, sharflin <sharflin@...> wrote:

> >

> > I've been having heart sensations for a few weeks, and

yesterday they

> > got worse. I can feel my heart beating and my resting pulse is

up from

> > low 70s to high 80s. Yesterday after I exercised I felt very

weak,

> > like my blood sugar was low. I'm not sure what is going on, maybe

> > those are hyper sympoms? I've been off my small dose of

synthroid for

> > several months after starting iodine, and haven't had any

bloodwork

> > done. I've tried magnesium, sea salt, and potassium, and none

had any

> > impact. Any ideas would be appreciated. Sharon

> >

>

[Guest guest]

s low sodium tomato juice has 925 mg of potassium per 8 ounce glass.

Potassium

supplements are limited by law to 99 mg. So you must take approximately 33

pills to get the RDA

of potassium....best to get the tomato juice.

IF you already take a multi and eat dairy, i personally would not start messing

with

calcium...everything is calcium fortified these days. Either way try potassium

first. I would

get some thyroid blood work done and see if you indeed do not need thyroid

hormone.

--- sharflin <sharflin@...> wrote:

> Not 3 grams, I'm sure. Is there a particular brand/type of potassium

> you recommend? I was thinking about calcium also but the last time I

> tried it months ago, my stomach was upset. I can get some bottled

> water high in calcium - do you have any suggestions for how much to

> try? Thanks much for your reply Lana,

> Sharon

>

> > How much potassium are you using? I had to get my diet up to

> about 3g a day

> > when I was having heart issues. Calcium is very important too.

> >

> > -Lana

> >

> > On 9/3/06, sharflin <sharflin@...> wrote:

> > >

> > > I've been having heart sensations for a few weeks, and

> yesterday they

> > > got worse. I can feel my heart beating and my resting pulse is

> up from

> > > low 70s to high 80s. Yesterday after I exercised I felt very

> weak,

> > > like my blood sugar was low. I'm not sure what is going on, maybe

> > > those are hyper sympoms? I've been off my small dose of

> synthroid for

> > > several months after starting iodine, and haven't had any

> bloodwork

> > > done. I've tried magnesium, sea salt, and potassium, and none

> had any

> > > impact. Any ideas would be appreciated. Sharon

> > >

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

1 cup Lima Beans or 1 baked Potato have over 900mg of Potassium.

Orange Juice and Bananas are also good sources, coming in just under

500mg Potassium per serving. Be careful about buying processed

versions of these foods though - depending on brand there could be

little to no potassium left. Baked beans with molasses (up to

900mg Potassium per Tbsp for the good organic blackstrap type) can also

be a good source.

Make sure you are using only natural sea salt. Using pure sodium

chloride aka table salt causes you to more quickly deplete potassium.

-Lana

s

low sodium tomato juice has 925 mg of potassium per 8 ounce glass.

Potassiumsupplements are limited by law to 99 mg. So you must take

approximately 33 pills to get the RDA

of potassium....best to get the tomato juice.

[Guest guest]

Spinach is great calorie-wise along with beet greens...I use to throw them out!

http://www.health.gov/dietaryguidelines/dga2005/document/html/appendixB.htm

--- Lana Gibbons <lana.m.gibbons@...> wrote:

> 1 cup Lima Beans or 1 baked Potato have over 900mg of Potassium. Orange

> Juice and Bananas are also good sources, coming in just under 500mg

> Potassium per serving. Be careful about buying processed versions of these

> foods though - depending on brand there could be little to no potassium

> left. Baked beans with molasses (up to 900mg Potassium per Tbsp for the

> good organic blackstrap type) can also be a good source.

>

> Make sure you are using only natural sea salt. Using pure sodium chloride

> aka table salt causes you to more quickly deplete potassium.

>

> -Lana

>

> s low sodium tomato juice has 925 mg of potassium per 8 ounce

> > glass. Potassiumsupplements are limited by law to 99 mg. So you must take

> > approximately 33 pills to get the RDA

> >

> > of potassium....best to get the tomato juice.

> >

>

__________________________________________________

[Guest guest]

Sharon,

What you describe could be due to a number of things, including

hyperthyroidism. Synthroid clears out of your system by 8 weeks after

discontinuation, so the Synthroid you were taking isn't responsible for

this. If you have Hashimoto's autoimmune thyroid disease swings or

autonomous thyroid nodules, taking iodine might have induced a hyperthyroid

state. How much iodine are you taking? Have you taken your temperature?

Hyperthyroidism would elevate the temperature above normal, as would an

infection.

Adrenal insufficiency could explain heart palpitations and exercise-induced

weakness. I don't know that it would account for the increased pulse. I

agree that testing might help you sort out what is going on.

Lynn

> I've been having heart sensations for a few weeks, and yesterday they

> got worse. I can feel my heart beating and my resting pulse is up from

> low 70s to high 80s. Yesterday after I exercised I felt very weak,

> like my blood sugar was low. I'm not sure what is going on, maybe

> those are hyper sympoms? I've been off my small dose of synthroid for

> several months after starting iodine, and haven't had any bloodwork

> done. I've tried magnesium, sea salt, and potassium, and none had any

> impact. Any ideas would be appreciated. Sharon

[Guest guest]

I would suspect that you need thyroid meds and/or adrenal support. My pulse was always very rapid until I got both.

Gracia

I've been having heart sensations for a few weeks, and yesterday they got worse. I can feel my heart beating and my resting pulse is up from low 70s to high 80s. Yesterday after I exercised I felt very weak, like my blood sugar was low. I'm not sure what is going on, maybe those are hyper sympoms? I've been off my small dose of synthroid for several months after starting iodine, and haven't had any bloodwork done. I've tried magnesium, sea salt, and potassium, and none had any impact. Any ideas would be appreciated. Sharon

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