Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana I am so sorry to hear of your bad new.....sad news.....I have often wondered what doctors think happens to one after this type of bomb is dropped on someone....Of course there will be family and friends and your " Liversupport Family " always around to listen, to support,to share and to pray....But all of us can only do so much....I think you need to find a " Hands on Support " ...I know when my friends sister was first diagnosed with Breast cancer theygot her into a support group....where they meet inperson....I think you need that PERSONAL touch from others who truly know what you are going thru.....and there are some that the families can also attend....everyone at this time needs some tender loving care.... Know that I will be thinking and praying for you daily....and the candle is lit.... Sylvana....I am so sorrt that you have to go thru so much physically and mentally.... Please write and say what ever you need to....RANT...SCREAM...CRY...You have the right...and we will listen ..... I hope you are feeling the very tight HUG I have on you right now.....and will continue to hold you..... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 In a message dated 10/24/00 6:28:30 AM Eastern Daylight Time, thomas_sylvana@... writes: << he results of the biopsy and the CT scan. It is bad...the cancer has spread out. Several glands are infected and they suspect the liver aswell. >> My Dear Sylvana, I am so sorry to hear the bad news. I wish that there were words to say that would take away some of the pain and agony that you are going through. You are so very young. Let yourself cry as much as needed. What you are facing is very hard. I wish that I could tell you that the road ahead will be easy, but it isn't.However, the power of prayer ia awesome and I know that we all will be praying for you. I also know that you can lean on us and we will be there to help you carry this load. Try to take one step at the time, one day at the time. Hugs and much love, Ginger-gehud119@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 I am so sorry to hear your bad news Sylvana, I am praying for you and hoping that you will do ok with your treatment and I am here, as is the rest of the group when you need a hug!! ((((((SYLVANA))))))) Lori C. [ ] BAD News To All, Yesterday I heard the results of the biopsy and the CT scan. It is bad...the cancer has spread out. Several glands are infected and they suspect the liver aswell. My life is a mess...I am crying all day long. Probably I will be on chemo-therapy very soon. Has anyone had chemo-therapy while on Imuran?? Is this possible? What will it do to the liver?? I heard chemo destroyes the healthy cells aswell, soon there will be nothing left of me. I'm so scared, help me please! Sylvana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana, You make my heart bleed. I wish I could be close to you so I could hold you and cry with you. You have a rough road ahead. But with technology in medicine miracles do happen and you have to believe things will be good. I will pray for you. gayle/trans.6-99 galye@... ^0^ ` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana, You make my heart bleed. I wish I could be close to you so I could hold you and cry with you. You have a rough road ahead. But with technology in medicine miracles do happen and you have to believe things will be good. I will pray for you. gayle/trans.6-99 galye@... ^0^ ` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana I am so sorry for your bad news I will pray for you and your family. Pa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana, I am praying for you. [ ] BAD News To All, Yesterday I heard the results of the biopsy and the CT scan. It is bad...the cancer has spread out. Several glands are infected and they suspect the liver aswell. My life is a mess...I am crying all day long. Probably I will be on chemo-therapy very soon. Has anyone had chemo-therapy while on Imuran?? Is this possible? What will it do to the liver?? I heard chemo destroyes the healthy cells aswell, soon there will be nothing left of me. I'm so scared, help me please! Sylvana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana..... I`m very upset to read your news... as with everyone else my prayers are 1st and foremost for you. love and serenity jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana: Sorry to know that that your cancer has spread out. I hope chemo-therapy will work. You are in my prayers. aumesh ---------- At 12:20 PM 10/24/2000 +0200, you wrote: >>>> > To All, > > Yesterday I heard the results of the biopsy and the CT scan. It is bad...the cancer has spread out. Several glands are infected and they suspect the liver aswell. > My life is a mess...I am crying all day long. Probably I will be on chemo-therapy very soon. > > Has anyone had chemo-therapy while on Imuran?? Is this possible? What will it do to the liver?? I heard chemo destroyes the healthy cells aswell, soon there will be nothing left of me. > > I'm so scared, help me please! > > Sylvana > > eGroups Sponsor > <1/9629/8/_/435357/_/972383269/> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana, Please take your right hand and put it on your left arm near your shoulder, then take your left hand and put it on your right arm near your shoulder. Now give both hands a big squeeze. That's a big hug from me! I hope you will feel better real soon. If it is any consulation, I have been on chemo in '82. I thought I was going to die but I have been cancer free ever since. The people I talk with now says the chemo is not so bad as it was then. They now have meds to control the fatique and nausea. Don't be afraid to ask for them. It will make it go so much easier. My prayers are with you and anytime you need a hug, just remember how to do it and remember it's from me. God bless... Carolyn Wilkinson Eveningmoon evinmoon@... or evinmoon@... [ ] BAD News To All, Yesterday I heard the results of the biopsy and the CT scan. It is bad...the cancer has spread out. Several glands are infected and they suspect the liver aswell. My life is a mess...I am crying all day long. Probably I will be on chemo-therapy very soon. Has anyone had chemo-therapy while on Imuran?? Is this possible? What will it do to the liver?? I heard chemo destroyes the healthy cells aswell, soon there will be nothing left of me. I'm so scared, help me please! Sylvana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana- You will be in our prayers. Remember when things get too big for us to handle, just put them in God's Hands. Pat (Cyndi's Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana- You will be in our prayers. Remember when things get too big for us to handle, just put them in God's Hands. Pat (Cyndi's Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Oh Sylvana, I am so sorry that you heard bad news. I don't know what I can really say to help, other than to assure you that we are all praying for you. <<<<< hug >>>>> Don Terradon Unlimited http://www.TerradonUnlimited.com "People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000 [ ] BAD News To All, Yesterday I heard the results of the biopsy and the CT scan. It is bad...the cancer has spread out. Several glands are infected and they suspect the liver aswell. My life is a mess...I am crying all day long. Probably I will be on chemo-therapy very soon. Has anyone had chemo-therapy while on Imuran?? Is this possible? What will it do to the liver?? I heard chemo destroyes the healthy cells aswell, soon there will be nothing left of me. I'm so scared, help me please! Sylvana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Dear Sylvana, So sorry to hear your news. It's easy for me to say but I am sure your doctors will give you the treatment their skill and experience tell them is right for you knowing as they do of your liver condition as well as the cancer. Its their professional vow to cure and care for you and they will do their utmost to see you get through this. We can all imagine how you must be feeling by thinking how we ourselves would feel in these circumstances. Perhaps we could all try to contribute something to your recovery - prayers, shoulders to cry on, even snippets of information for you to collect as a source of reference to help you get over different hurdles as they crop up. I'll start off the snippets with something I came across recently, that ginger is a good aid for the nausea that can be a part of chemo - check with your doctor first of course. Thinking of you and your family. Start fighting and don't even consider losing. Janet [ ] BAD News To All, Yesterday I heard the results of the biopsy and the CT scan. It is bad...the cancer has spread out. Several glands are infected and they suspect the liver aswell. My life is a mess...I am crying all day long. Probably I will be on chemo-therapy very soon. Has anyone had chemo-therapy while on Imuran?? Is this possible? What will it do to the liver?? I heard chemo destroyes the healthy cells aswell, soon there will be nothing left of me. I'm so scared, help me please! Sylvana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Sylvana, I am so sorry to hear the news. Your in my thoughts and prayers...... Sincerely, Jen On Tue, 24 Oct 2000 12:20:51 +0200, egroups wrote: > To All, > > Yesterday I heard the results of the biopsy and the CT scan. It is bad...the > cancer has spread out. Several glands are infected and they suspect the > liver aswell. > My life is a mess...I am crying all day long. Probably I will be on > chemo-therapy very soon. > > Has anyone had chemo-therapy while on Imuran?? Is this possible? What will > it do to the liver?? I heard chemo destroyes the healthy cells aswell, soon > there will be nothing left of me. > > I'm so scared, help me please! > > Sylvana _______________________________________________________ Say Bye to Slow Internet! http://www.home.com/xinbox/signup.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Hi Carolyn, Do you know the name of these meds for nausea and fatigue? Sylvana -----Original Message-----From: Carolyn Wilkinson [mailto:evinmoon@...]Sent: dinsdag 24 oktober 2000 18:58 egroupsSubject: Re: [ ] BAD News Sylvana, Please take your right hand and put it on your left arm near your shoulder, then take your left hand and put it on your right arm near your shoulder. Now give both hands a big squeeze. That's a big hug from me! I hope you will feel better real soon. If it is any consulation, I have been on chemo in '82. I thought I was going to die but I have been cancer free ever since. The people I talk with now says the chemo is not so bad as it was then. They now have meds to control the fatique and nausea. Don't be afraid to ask for them. It will make it go so much easier. My prayers are with you and anytime you need a hug, just remember how to do it and remember it's from me. God bless... Carolyn Wilkinson Eveningmoon evinmoon@... or evinmoon@... [ ] BAD News To All, Yesterday I heard the results of the biopsy and the CT scan. It is bad...the cancer has spread out. Several glands are infected and they suspect the liver aswell. My life is a mess...I am crying all day long. Probably I will be on chemo-therapy very soon. Has anyone had chemo-therapy while on Imuran?? Is this possible? What will it do to the liver?? I heard chemo destroyes the healthy cells aswell, soon there will be nothing left of me. I'm so scared, help me please! Sylvana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Sylvana, No, I don't know their names, but I will find out. I have a friend going through chemo right now and it is helping him. It will take me a couple of days but I won't forget to ask the next time I'm down there. Hang in there hopefully it will get better. You know what they say, Early detection and all that. My tumor was the size of a grapefruit, they removed all my female organs and half my bladder, then I had to go through chemo and radiation. I was in the hospital for 3 months getting out only for a weekend once. Back then it was really hard on you but now they don't keep you in the hospital. So keep your spirits up and say to yourself all the time, "This ain't gonna get me down!" And remember the hug, it in itself can do great things! When I hug myself, I know I'm hugging the most important thing on my mind at the time. For without me, no one else is happy. Spread the cheer! And another thing, don't worry about your hair coming out, put on a ball cap and enjoy not having to worry about fixing it, it just gives you more face to wash! When mine came back, it was and still is the prettiest light "natural" blond you have ever seen! I don't have to bleach it anymore to have blond hair. And not a gray hair in my head! I'm 53 so you know it should be full of them.Any time you want to talk, you can reach me here and I'll give you my phone number if you like. I may not know the answers, but I will get them. I drive a flatbed tractor trailer across country and if I know where you are and can get a load in that direction I could stop in and see you. I don't let anything stand in my way anymore. I just keep going, like the bunny. I still have people to see and places to go before I check out of this world. Just remember you do too, so don't give up. I keep fighting back every time the doctors say, She's not going to make it." They have said that now about 4 times and I keep cheating them. They don't always know everything. And the human spirit is one of them! I have been fighting in this man's world for so long, I don't know how not to fight. It works, so keep fighting! ...Carolyn evinmoon@... or evinmoon@... My phone number is 205 854-3039 [ ] BAD News To All, Yesterday I heard the results of the biopsy and the CT scan. It is bad...the cancer has spread out. Several glands are infected and they suspect the liver aswell. My life is a mess...I am crying all day long. Probably I will be on chemo-therapy very soon. Has anyone had chemo-therapy while on Imuran?? Is this possible? What will it do to the liver?? I heard chemo destroyes the healthy cells aswell, soon there will be nothing left of me. I'm so scared, help me please! Sylvana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Treatment is NOT a cure. There is NO cure for this disease at this time. I know people who have been undetected for over 5 yrs though! Some have relapsed some have not. Your brother absolutely needs to see a liver specialist and get that biopsy. An ultrasound (scan) does NOT show liver damage, unless cirrhosis is present. Tell him to ask to be sent to a liver specialist. Unfortunately, with his heart problems treatment may be out of the question anyway. LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Thanks LeighAnn, I wasn't sure about the ultrasound, but did tell him to get a specialist and have a biopsy done. He's always been a beer drinker, too, so I'm going to tell him that drinking alcohol when you have liver disease is like drinking poison. If his heart problem keeps him from having treatment, maybe some lifestyle changes will slow down the Hep C damage. Thanks again, Marie At 07:56 PM 6/17/2003 -0000, you wrote: ><html><body> > > ><tt> >Treatment is NOT a cure. There is NO cure for this disease at this <BR> >time. I know people who have been undetected for over 5 yrs though! <BR> >Some have relapsed some have not.<BR> ><BR> >Your brother absolutely needs to see a liver specialist and get that <BR> >biopsy. An ultrasound (scan) does NOT show liver damage, unless <BR> >cirrhosis is present. Tell him to ask to be sent to a liver <BR> >specialist.<BR> ><BR> >Unfortunately, with his heart problems treatment may be out of the <BR> >question anyway.<BR> ><BR> >LeighAnn<BR> ><BR> ></tt> > ><br> > ><!-- |**|begin egp html banner|**| --> > ><table border=0 cellspacing=0 cellpadding=2> ><tr bgcolor=#FFFFCC> ><td align=center><font size= " -1 " color=#003399><b> Sponsor</b></font></td> ></tr> ><tr bgcolor=#FFFFFF> ><td align=center width=470><a href= " http://rd./M=251812.3170658.4537139.1261774/D=egroupweb/S=170 5103589:HM/A=1564416/R=0/SIG=11ti81skc/*http://www.netflix.com/Default?mqso= 60164797 & partid=3170658 " ><img src= " http://us.a1.yimg.com/us.yimg.com/a/ne/netflix/yhoo0303_b_300250a.gif " alt= " " width= " 300 " height= " 250 " border= " 0 " ></a></td> ></tr> ><tr><td><img alt= " " width=1 height=1 src= " http://us.adserver./l?M=251812.3170658.4537139.1261774/D=egrou pmail/S=:HM/A=1564416/rand=703391992 " ></td></tr> ></table> > ><!-- |**|end egp html banner|**| --> > > ><br> ><tt> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 -- i am so sorry that you was sick but you didnt let anyone down. You just get better, and if you need to talk you can always email me. tace care. Rick - In , " Corbitt " <ibecynful@c...> wrote: > I haven't posted for weeks. I've been so miserably sick. I didn't make it gang, the dr had to take me off the treatment because I just couldn't handle it. I was so certain I could and believed myself to be a strong person, but it took my down like somebody cut my legs out from under me. > On the first Sat night that I took my shot, everything was OK and stayed that way until Tues. Of course I was taking 6 pills a day and I really think the PILLS got me worse than the shot. On Tuesday, I woke up feeling very strange and weak, took me about 2 hrs to take a shower and wash and fix my hair. Went to a play and about half way thru, I started getting sick. My friend got me home where I was throwing up all night. That continued until Thursday. Called the dr because I was throwing up WATER, my pills, my blood pressure meds, everything, couldn't eat. He thought maybe I had some kind of virus. By Friday, the worst part of the nausea had stopped, but I was so weak my son came over and stayed with me for 4 days to take care of me. I took my next shot, didn't get sick, but as the week progressed I got weaker and weaker, to the point I couldn't get out of bed, couldn't feed my dogs or give them their medicine, it was awful. And then I got so depressed I was a basketcase. Went thru a terrible siege with the Mental Health Clinic (including them siccing the Sheriff's Patrol on me thinking I was suicidal (and they weren't that far wrong)) who finally gave me more Prozac and something for anxiety (Antivan?). > I am SO despondent because with Stage 4 Cirrhosis and not being able to take the treatment I don't see that I have much of a future. And I feel like I let all of you down who have taken the treatment and made it. Here I am Genotype 3, and I can't stand the treatment. I am heartbroken. I can't wait for this year to be over. From my husband's death in January, to my son's divorce in March, to this awful month of November, it's been a god awful year. I know that as the rest of this medicine gets out of my system, I will feel somewhat better, but right now I'm below sea level. > > Re: [ ] Hi, everyone. > > > Wow, that must have been scary. I've never heard of a reaction like that connected to the treatment, I hope they find that all is well. I have had migraines that lasted several days, but I don't think they ever lasted a week or more. I think I would be looking for a nuerologist too, if it was me. Keep us posted. -dz- > > angel <angelsusanne@w...> wrote: > Hi DZ and all. Well, things were going good. But, that has changed. Monday morning around two am, i awoke to a terrible crash, reached over to shake Greg gently to wake him to ask him to see what it was, and I found he was not in bed. i found him crumpled on the floor in the bathroom. he had blacked out without any warning, hit his head on the back of the toilet and also on the sink vanity, and although he talked to me when i spoke to him, I could tell he wasn't even aware of it. i touched him and that's what roused him. i will be contacting our primary care physician to see if he can refer Greg toa neurologist. He has had a " migraine " headache since Nov. 17th. It could be nothing or it could be serious, no one knows. > And, today, gidget gets tested to see if she has diabetes brought on by the use of prednisone. She has the classic symptoms. > So, let's hope the rest of December is better than its beginning. > Everyone have an enjoyable day. > Sue and Gidget > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 Dear , I am so sorry to hear that all of this has happend to you, I wish so badly that I could help you in some way. I am getting ready to start treatment myself, and as each day gets closer, I feel the need to run. but no where to go and no energy to do it. I haven't been around here much myself or posting or going into chat at the hood ..... I just havent felt like it, everything I had to say would only bring others down. I haven't even started tx yet, and I am dealing with terrible pains in my hands , joints and feet.. The primary Doc I have , sent me to a pain management clinic, they couldn't help me because my primary Doc was suppose to diagnose what the problem was first.... My primary Doc is clueless.... And to make matters even worse I am on state insurance, so I can not choose my Doctors..... GOD HELP US ....and OUR F--KED UP GOVERMENT......... I have been to the emergency room 3 times in a week, 2 times by ambulance for this dibilitating pain, and all they do is shoot me up with morphine , send me home and tell me to go see my primary doc. And he tells me his specializes in diabetics and trying to get them of insilun, and doesn't believe in narcotics. "WHAT THE HELL AM I DOING HERE??? BUT THIS IS MY PRIMARY DOC GIVEN TO ME THAT IS SUPPOSE TO HELP ME BEFORE AND WHILE ON TX....??? Am I going nuts or is this whole goverment system crazy. I have been dealing with this severe pain for over six weeks, and I have to go back to the crazy primary Doc and ask him to please draw blood , ( basicly tell him to do his job) and give me a diagnoses so I can see the pain management clinic.... And he better not put HEP C as my diagnoses, or I will seriously stragle the man... I am sorry, I just had to vent to you, as you seem to be having such a hard time, maybe my hell can bring you a little laughter or even make you smile somehow.... Or just knowing that there are those of us out there that are living , unfortunatly , a miserable existance right now... BUT I DO KNOW THIS CINDY, THIS VIRUS MAY BE KICK OUR ASSES AT THIS MOMENT..... BUT NOT FOR LONG.... WE HAVE TO FIGHT BACK GIRL.... WE HAVE TO STAY STRONG, NO ONE CAN OR WILL DO IT FOR US.... AND REMEMBER, EVEN THOUGH YOU COULD NOT STAY ON TX, THERE ARE SO MANY OTHER THINGS YOU CAN DO.... I READ ALLOT AND I HAVE COME ACCROSSS SOME AMAZING STORIES, AND MIRACLES..... YOU HAVE TO KEEP THE FAITH GIRL AND REMEMBER TO PRAY, GOD DOES HERE AND ANSWER ALL THAT ASK OF HIM WHEN YOU FEEL BETTER , PLEASE CONTACT ME AND i WILL FORWARD YOU SOME GOOD SIGHTS TO CHECK OUT LOVE YA KID'O LISAMARIE Corbitt <ibecynful@...> wrote: I haven't posted for weeks. I've been so miserably sick. I didn't make it gang, the dr had to take me off the treatment because I just couldn't handle it. I was so certain I could and believed myself to be a strong person, but it took my down like somebody cut my legs out from under me. On the first Sat night that I took my shot, everything was OK and stayed that way until Tues. Of course I was taking 6 pills a day and I really think the PILLS got me worse than the shot. On Tuesday, I woke up feeling very strange and weak, took me about 2 hrs to take a shower and wash and fix my hair. Went to a play and about half way thru, I started getting sick. My friend got me home where I was throwing up all night. That continued until Thursday. Called the dr because I was throwing up WATER, my pills, my blood pressure meds, everything, couldn't eat. He thought maybe I had some kind of virus. By Friday, the worst part of the nausea had stopped, but I was so weak my son came over and stayed with me for 4 days to take care of me. I took my next shot, didn't get sick, but as the week progressed I got weaker and weaker, to the point I couldn't get out of bed, couldn't feed my dogs or give them their medicine, it was awful. And then I got so depressed I was a basketcase. Went thru a terrible siege with the Mental Health Clinic (including them siccing the Sheriff's Patrol on me thinking I was suicidal (and they weren't that far wrong)) who finally gave me more Prozac and something for anxiety (Antivan?). I am SO despondent because with Stage 4 Cirrhosis and not being able to take the treatment I don't see that I have much of a future. And I feel like I let all of you down who have taken the treatment and made it. Here I am Genotype 3, and I can't stand the treatment. I am heartbroken. I can't wait for this year to be over. From my husband's death in January, to my son's divorce in March, to this awful month of November, it's been a god awful year. I know that as the rest of this medicine gets out of my system, I will feel somewhat better, but right now I'm below sea level. Re: [ ] Hi, everyone. Wow, that must have been scary. I've never heard of a reaction like that connected to the treatment, I hope they find that all is well. I have had migraines that lasted several days, but I don't think they ever lasted a week or more. I think I would be looking for a nuerologist too, if it was me. Keep us posted. -dz-angel <angelsusanne@...> wrote: Hi DZ and all. Well, things were going good. But, that has changed. Monday morning around two am, i awoke to a terrible crash, reached over to shake Greg gently to wake him to ask him to see what it was, and I found he was not in bed. i found him crumpled on the floor in the bathroom. he had blacked out without any warning, hit his head on the back of the toilet and also on the sink vanity, and although he talked to me when i spoke to him, I could tell he wasn't even aware of it. i touched him and that's what roused him. i will be contacting our primary care physician to see if he can refer Greg toa neurologist. He has had a "migraine" headache since Nov. 17th. It could be nothing or it could be serious, no one knows.And, today, gidget gets tested to see if she has diabetes brought on by the use of prednisone. She has the classic symptoms.So, let's hope the rest of December is better than its beginning.Everyone have an enjoyable day.Sue and Gidget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 , glad to hear from you again. It DOES take strength and courage to do this treatment, but the fact that you couldn't do it, doesn' t mean you are lacking in either. As we all know the side effects vary from one patient to the next. For some of us it is tolerable and for some it is not. I don't doubt that the medication hit you harder than it did me. You gave it your best shot and that makes you a winner in my book. We are all hopeful of new treatments coming up that are a bit less harmful to the system. I came near to being cut back on my treatment just because my blood counts were dropping to dangerous levels, but luckily snapped back enough to finish. The depression was tough and I can see you have had a few other tough blows in the course of this past year and my heart and prayers go out to you. Hang in there and don't lose hope! -dz- Corbitt <ibecynful@...> wrote: I haven't posted for weeks. I've been so miserably sick. I didn't make it gang, the dr had to take me off the treatment because I just couldn't handle it. I was so certain I could and believed myself to be a strong person, but it took my down like somebody cut my legs out from under me. On the first Sat night that I took my shot, everything was OK and stayed that way until Tues. Of course I was taking 6 pills a day and I really think the PILLS got me worse than the shot. On Tuesday, I woke up feeling very strange and weak, took me about 2 hrs to take a shower and wash and fix my hair. Went to a play and about half way thru, I started getting sick. My friend got me home where I was throwing up all night. That continued until Thursday. Called the dr because I was throwing up WATER, my pills, my blood pressure meds, everything, couldn't eat. He thought maybe I had some kind of virus. By Friday, the worst part of the nausea had stopped, but I was so weak my son came over and stayed with me for 4 days to take care of me. I took my next shot, didn't get sick, but as the week progressed I got weaker and weaker, to the point I couldn't get out of bed, couldn't feed my dogs or give them their medicine, it was awful. And then I got so depressed I was a basketcase. Went thru a terrible siege with the Mental Health Clinic (including them siccing the Sheriff's Patrol on me thinking I was suicidal (and they weren't that far wrong)) who finally gave me more Prozac and something for anxiety (Antivan?). I am SO despondent because with Stage 4 Cirrhosis and not being able to take the treatment I don't see that I have much of a future. And I feel like I let all of you down who have taken the treatment and made it. Here I am Genotype 3, and I can't stand the treatment. I am heartbroken. I can't wait for this year to be over. From my husband's death in January, to my son's divorce in March, to this awful month of November, it's been a god awful year. I know that as the rest of this medicine gets out of my system, I will feel somewhat better, but right now I'm below sea level. Re: [ ] Hi, everyone. Wow, that must have been scary. I've never heard of a reaction like that connected to the treatment, I hope they find that all is well. I have had migraines that lasted several days, but I don't think they ever lasted a week or more. I think I would be looking for a nuerologist too, if it was me. Keep us posted. -dz-angel <angelsusanne@...> wrote: Hi DZ and all. Well, things were going good. But, that has changed. Monday morning around two am, i awoke to a terrible crash, reached over to shake Greg gently to wake him to ask him to see what it was, and I found he was not in bed. i found him crumpled on the floor in the bathroom. he had blacked out without any warning, hit his head on the back of the toilet and also on the sink vanity, and although he talked to me when i spoke to him, I could tell he wasn't even aware of it. i touched him and that's what roused him. i will be contacting our primary care physician to see if he can refer Greg toa neurologist. He has had a "migraine" headache since Nov. 17th. It could be nothing or it could be serious, no one knows.And, today, gidget gets tested to see if she has diabetes brought on by the use of prednisone. She has the classic symptoms.So, let's hope the rest of December is better than its beginning.Everyone have an enjoyable day.Sue and Gidget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 Hi . I am in an HMO which sometimes presents similar problems. We do have the right to ask to be referred to a specialist. You might want to check into that and if you see a gastroenterologist or hepatologist you may get better results. Don't worry too much about the treatment before you start it. Some of us have a much easier time than others, you just have to wait and see how your body tolerates the treatment. Good luck fighting the bureaucracy, I know what a pain that can be. Don't worry about venting or complaining. This is just the venue to do that. This is no picnic for any of us, we like to have a little fun now and then, too, but we know how serious this is. -dz- Davies <lisamarie64@...> wrote: Dear , I am so sorry to hear that all of this has happend to you, I wish so badly that I could help you in some way. I am getting ready to start treatment myself, and as each day gets closer, I feel the need to run. but no where to go and no energy to do it. I haven't been around here much myself or posting or going into chat at the hood ..... I just havent felt like it, everything I had to say would only bring others down. I haven't even started tx yet, and I am dealing with terrible pains in my hands , joints and feet.. The primary Doc I have , sent me to a pain management clinic, they couldn't help me because my primary Doc was suppose to diagnose what the problem was first.... My primary Doc is clueless.... And to make matters even worse I am on state insurance, so I can not choose my Doctors..... GOD HELP US ....and OUR F--KED UP GOVERMENT......... I have been to the emergency room 3 times in a week, 2 times by ambulance for this dibilitating pain, and all they do is shoot me up with morphine , send me home and tell me to go see my primary doc. And he tells me his specializes in diabetics and trying to get them of insilun, and doesn't believe in narcotics. "WHAT THE HELL AM I DOING HERE??? BUT THIS IS MY PRIMARY DOC GIVEN TO ME THAT IS SUPPOSE TO HELP ME BEFORE AND WHILE ON TX....??? Am I going nuts or is this whole goverment system crazy. I have been dealing with this severe pain for over six weeks, and I have to go back to the crazy primary Doc and ask him to please draw blood , ( basicly tell him to do his job) and give me a diagnoses so I can see the pain management clinic.... And he better not put HEP C as my diagnoses, or I will seriously stragle the man... I am sorry, I just had to vent to you, as you seem to be having such a hard time, maybe my hell can bring you a little laughter or even make you smile somehow.... Or just knowing that there are those of us out there that are living , unfortunatly , a miserable existance right now... BUT I DO KNOW THIS CINDY, THIS VIRUS MAY BE KICK OUR ASSES AT THIS MOMENT..... BUT NOT FOR LONG.... WE HAVE TO FIGHT BACK GIRL.... WE HAVE TO STAY STRONG, NO ONE CAN OR WILL DO IT FOR US.... AND REMEMBER, EVEN THOUGH YOU COULD NOT STAY ON TX, THERE ARE SO MANY OTHER THINGS YOU CAN DO.... I READ ALLOT AND I HAVE COME ACCROSSS SOME AMAZING STORIES, AND MIRACLES..... YOU HAVE TO KEEP THE FAITH GIRL AND REMEMBER TO PRAY, GOD DOES HERE AND ANSWER ALL THAT ASK OF HIM WHEN YOU FEEL BETTER , PLEASE CONTACT ME AND i WILL FORWARD YOU SOME GOOD SIGHTS TO CHECK OUT LOVE YA KID'O LISAMARIE Corbitt <ibecynful@...> wrote: I haven't posted for weeks. I've been so miserably sick. I didn't make it gang, the dr had to take me off the treatment because I just couldn't handle it. I was so certain I could and believed myself to be a strong person, but it took my down like somebody cut my legs out from under me. On the first Sat night that I took my shot, everything was OK and stayed that way until Tues. Of course I was taking 6 pills a day and I really think the PILLS got me worse than the shot. On Tuesday, I woke up feeling very strange and weak, took me about 2 hrs to take a shower and wash and fix my hair. Went to a play and about half way thru, I started getting sick. My friend got me home where I was throwing up all night. That continued until Thursday. Called the dr because I was throwing up WATER, my pills, my blood pressure meds, everything, couldn't eat. He thought maybe I had some kind of virus. By Friday, the worst part of the nausea had stopped, but I was so weak my son came over and stayed with me for 4 days to take care of me. I took my next shot, didn't get sick, but as the week progressed I got weaker and weaker, to the point I couldn't get out of bed, couldn't feed my dogs or give them their medicine, it was awful. And then I got so depressed I was a basketcase. Went thru a terrible siege with the Mental Health Clinic (including them siccing the Sheriff's Patrol on me thinking I was suicidal (and they weren't that far wrong)) who finally gave me more Prozac and something for anxiety (Antivan?). I am SO despondent because with Stage 4 Cirrhosis and not being able to take the treatment I don't see that I have much of a future. And I feel like I let all of you down who have taken the treatment and made it. Here I am Genotype 3, and I can't stand the treatment. I am heartbroken. I can't wait for this year to be over. From my husband's death in January, to my son's divorce in March, to this awful month of November, it's been a god awful year. I know that as the rest of this medicine gets out of my system, I will feel somewhat better, but right now I'm below sea level. Re: [ ] Hi, everyone. Wow, that must have been scary. I've never heard of a reaction like that connected to the treatment, I hope they find that all is well. I have had migraines that lasted several days, but I don't think they ever lasted a week or more. I think I would be looking for a nuerologist too, if it was me. Keep us posted. -dz-angel <angelsusanne@...> wrote: Hi DZ and all. Well, things were going good. But, that has changed. Monday morning around two am, i awoke to a terrible crash, reached over to shake Greg gently to wake him to ask him to see what it was, and I found he was not in bed. i found him crumpled on the floor in the bathroom. he had blacked out without any warning, hit his head on the back of the toilet and also on the sink vanity, and although he talked to me when i spoke to him, I could tell he wasn't even aware of it. i touched him and that's what roused him. i will be contacting our primary care physician to see if he can refer Greg toa neurologist. He has had a "migraine" headache since Nov. 17th. It could be nothing or it could be serious, no one knows.And, today, gidget gets tested to see if she has diabetes brought on by the use of prednisone. She has the classic symptoms.So, let's hope the rest of December is better than its beginning.Everyone have an enjoyable day.Sue and Gidget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 In a message dated 12/3/2003 2:11:54 PM Pacific Standard Time, pawpawto3@... writes: , I am sorry the sides were so hard on you. You didn't let us down. The sides are rougher on some then others. You never know how bad they wikk be till you are there. The Tx might not have been for you, but don't give up your fight with the dragon. You have all of us here for support & lifting prayers up for you. Terry Corbitt <ibecynful@...> wrote: I haven't posted for weeks. I've been so miserably sick. I didn't make it gang, the dr had to take me off the treatment because I just couldn't handle it. I was so certain I could and believed myself to be a strong person, but it took my down like somebody cut my legs out from under me. On the first Sat night that I took my shot, everything was OK and stayed that way until Tues. Of course I was taking 6 pills a day and I really think the PILLS got me worse than the shot. On Tuesday, I woke up feeling very strange and weak, took me about 2 hrs to take a shower and wash and fix my hair. Went to a play and about half way thru, I started getting sick. My friend got me home where I was throwing up all night. That continued until Thursday. Called the dr because I was throwing up WATER, my pills, my blood pressure meds, everything, couldn't eat. He thought maybe I had some kind of virus. By Friday, the worst part of the nausea had stopped, but I was so weak my son came over and stayed with me for 4 days to take care of me. I took my next shot, didn't get sick, but as the week progressed I got weaker and weaker, to the point I couldn't get out of bed, couldn't feed my dogs or give them their medicine, it was awful. And then I got so depressed I was a basketcase. Went thru a terrible siege with the Mental Health Clinic (including them siccing the Sheriff's Patrol on me thinking I was suicidal (and they weren't that far wrong)) who finally gave me more Prozac and something for anxiety (Antivan?). I am SO despondent because with Stage 4 Cirrhosis and not being able to take the treatment I don't see that I have much of a future. And I feel like I let all of you down who have taken the treatment and made it. Here I am Genotype 3, and I can't stand the treatment. I am heartbroken. I can't wait for this year to be over. From my husband's death in January, to my son's divorce in March, to this awful month of November, it's been a god awful year. I know that as the rest of this medicine gets out of my system, I will feel somewhat better, but right now I'm below sea level. Re: [ ] Hi, everyone. i had terrible sides..i couldn;t even drive..remember where my friend;s lived..to get there!!! I HAD no support system..try doing www.liverite.com..it helped...it takes a while for the 'medicine' to leave..i thought i;d never feel normal..but you will..maybe something new will come out soon..lets hope.. Peace, Sielicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 i am sooooooooooooooooo sorry.. nothing i can type can convey how i feel for you.. i will pry for you and especially him bad news > I talked with my brother last night. His doctors have given him 2 - 4 > weeks to live. Needless to say, my family is waiting for him to > return home from the hospital so we can all fly out there. I will be > there at least two weeks. > > I prob. won't be posting much, but I'll check in from time to time. > > Barb > > > > > Quote Link to comment Share on other sites More sharing options...
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