DCIS

[Guest guest]

I've heard that DCIS (ductal carcinoma in situ, breast cancer in the

milk ducts) isn't really a cancer, it's a pre-cancer. Yet my wife's

doctors say that there are cancers present. How does that work? I

question whether she needs an operation. I read that DCIS shouldn't be

counted in the statistics for conventional therapy's success rate, as

it is almost never lethal. What are the other members thoughts on

this?

[Guest guest]

Are you also supplementing your raw diet making it a total nutritional program?

From: Arlyn

Hello,

I was just diagnosed with DCIS--grade 2 with comedo necrosis.

Apparently also positive for estrogen receptor protein. Of course, I

am being sent to a surgeon to discuss lumpectomy and radiation. (I'm

42) I'm not sure if that is the route I want to go. However, for the

last six years, I have been a vegetarian raw foodist so my heart isn't

really into alternative treatments as I am already living that life.

[Guest guest]

Look at _www.breastcancerchoices.org_ (http://www.breastcancerchoices.org)

and join the Amazon Discussion Group for alternative therapies for breast

cancer. You will find kindred spirits and long-time survivors.

L.

************************************** See what's new at http://www.aol.com

[Guest guest]

Hi Mader,

What kind of supplement are you talking about?

I cannot take multivitamins as I cannot take B12 supplements of any

kind. Now THAT's weird.

There are raw food supplements. I was using one for over a year, but

gave it up a few months ago because it was too expensive and I needed

time to catch up on my expenses. The product says if you use it you

won't get cancer. Ummm....I wonder if I can get my money back.

ar

On Thu, 20 Sep 2007 10:44:46 -0400, " Mader " <mader@...> said:

> Are you also supplementing your raw diet making it a total nutritional

> program?

--

Arlyn Grant

arlynsg@...

[Guest guest]

Hi Ar -

I was diagnosed 1 year ago with Paget's cancer of the breast (is

cancer of the nipple with comedo necrosis) with underlying DCIS and

hundreds of microcalcifications higher up in the breast covering a 4 "

by 2 " area. There are no options out there for Paget's in alternative

medicine. Traditional medicine says do mastectomy. I don't believe in

mammograms but did one begrudgingly because of the nipple lesion I

thought was possibly eczema - but it didn't go away. It burned,

itched, hurt like heck. I never suspected cancer and agreed to do a

biopsy. Had I had this to do over I would not have done the biopsy

because I feel they spread the cancers.

The area of the microcalcs came back benign, the nipple an aggressive

cancer. I saw 4 local surgeons and went to 2 very well known cancer

centers where I live. They seemed less concerned about the Paget's and

every one of them freaked about the 100s of microcalcs. They all said

these don't go away on their own, and that even with a benign path

report none of them believed it. I walked away from all of them

indicating unless someone could explain to me how I got this odd

cancer with all these calcs, no one was going to touch me. I have also

chosen to walk away from anyone, doc or otherwise, who shows fear when

speaking to me about this. For myself, I was not going to let them do

any surgery without fixing the underlying problem because, at least

this is how I choose to think, it will just come back if the terrain

is not balanced. One surgeon told me I was a poster child for

mammograms and if I ignored this I will die. I did not allow myself to

hear his fear.

It never felt right as each of the surgeons told me I needed

mastectomy. Being a researcher I sought out other avenues. I have used

many many alternative modalities in the last year - including, but not

limited to, nutrition and exercise, megadetoxing at every level,

lymphatic drainage, rife, therapeutic ultrasound, etc. - anything and

everything to try and drive this out of the breast. I studied

everything from Kelley to Schultz to Chinese remedies and everything

in between. This is what resonated with me most, especially when I

studied the emotional/mental aspect of cancer, which also required a

lot of work and letting go.

I learned how to juice, eat raw foods, and ferment vegetables. This

last June I had another breast MRI. I am happy to say that the

radiologist told my PCP that it's impossible I did not have any

surgery because microcalcs were completely gone. It was indicated that

a 2 " by 1/2 " area was showing up just behind the nipple as " most

likely " DCIS, but they wouldn't know for sure without another biopsy.

This time I declined. My doc and I are choosing to move forward as I

have been and I will be rechecked later this year. All my bloodwork is

better than perfect and my energy is good.

The thing I could not get settled within myself is the fact that all

along I thought those microcalcs were caused by something like

imbalanced pH, and that they were the bodies way of protecting itself.

I could not shake the fact that I was right and they were wrong. I

also think that my lymphatics were seriously clogged from a long-term

jawbone infection I had. But that's a whole other post!

My point in sharing this with you is because I also was leading a

fairly healthy lifestyle but I still got this. One of the things I

didn't realize is that even with a raw foods diet we need to be

careful if we have cancer or diabetes. Many raw foods recipes contain

things like bananas and dates - very high in sugar. Cancer loves sugar

and has no way of determining what kind it is - it only knows to feed

on it and spread. So I ask you to really look at your raw food diet. I

only eat berries and sometimes citrus during a cleanse.

Another thing to look at is your pH - greens, greens and more greens!

There are many women who have beaten their breast cancer by balancing

their pH and eating strict diets.

I searched all over the world for someone with my type of cancer. I

found one woman's story from the UK - that's it. But it was enough.

Then I realized I could not get so hung up on the type of cancer, or

where it was, it was still a cancer which indicated an imbalance

somewhere in the body. I also did not get hung up on statistics - such

that they are.

Regarding DCIS - I have read tons of medical journals, written to the

" experts " in the fields of alternative breast cancer - those who are

proponents of raw foods, those who have treated many cancers. What I

found is that they all speak " tumor " - I have no tumor. I have written

and called dozens of them and I've gotten no response. Most don't even

know what Paget's is. And, I still haven't found anyone who can tell

me how to pull this cancer out of the ducts. This is why so many women

are discourage - they can't find the answers in either alt or trad

fields, so they feel they must subject themselves to surgery. So I get

creative with clay packs, and put the breast in ionic footbaths, and

massage it, and use poultices, etc. I will find a way.

Someone on this board has written about the skewed statistics

regarding DCIS - they are correct. Without the DCIS cases they would

not be able to present such a high success rate. While it is true that

in many cases DCIS will never become a full blown cancer, the reality

is that we just never know. It's a heckuva scary thing to deal with.

My DCIS is definitely connected to the Paget's in the breast. However,

what gave me the most peace was weighing my options over the course of

about 4 months - for me, this is a path I will not go back on.

I do know one thing - if someone has DCIS and they do nothing to

detox, clean out, change diet, and so on, it will definitely spread

outside of the ducts - it knows no bounds if one sits and waits.

If I may share with you some input that was given to me by many breast

cancer patients - those that did both alt and trad or a combination

thereof - go within and seek the peace and strength you need to fight

this however you feel is best for you. Not for family or friends or

those filled with fear (albeit for very good reason, I know). But for

yourself - it's in this place you will have the greatest results. I

for one have a wonderful supportive husband and a PCP who believes I

can beat this thing.

Even if you choose a traditional path, in the name of wellness I would

stay with the raw foods diet, minus any high sugar foods.

I hope you have a good visit with your oncologist, and get all the

support you need to make the right decision for you.

Peace,

>

> Hello,

>

> I was just diagnosed with DCIS--grade 2 with comedo necrosis.

> Apparently also positive for estrogen receptor protein. Of course, I

> am being sent to a surgeon to discuss lumpectomy and radiation. (I'm

> 42) I'm not sure if that is the route I want to go. However, for the

> last six years, I have been a vegetarian raw foodist so my heart isn't

> really into alternative treatments as I am already living that life. I

> made an appointment with an oncologist to discuss her opinions--a

> friend of mine goes to this doctor and says she is far more open minded

> than many.

>

> I wanted to hear from others as to what their experience has been. On

> the allopathic groups, there are women who did not treat their DCIS and

> it became invasive.

>

> Thanks,

> ar

>

[Guest guest]

Arlyn,

I don't know a thing about you, so I am speaking more from the experience of

coaching alot of patients. When choosing a protocol, you need to commit to it

100%. All of the diets are listed on cancertutor.com, and my recommendation is

always to choose one that is nutritionally sound, i.e. gives your body and your

organs everything needed to detox and nourish at the same time. That's why I am

not a fan of starvation diets, you are detoxing, but not giving the nutrients

needed at the same, or within a reasonable period of time. I don't think that

starving for more days than what your body weight can handle is a good idea. So

I tell people to choose the diet they think they can stay on, make sure it has

supplements for the nutrition they are missing, but what I find is that they

modify it saying, " I can't handle this, or that, so I do sneak in some organic

chicken, or I don't take curcumin, or whatever. " The end result is that the

protocol doesn't work, these diets are designed to either starve the cancer or

kill the cancer, and adding to, or subtracting from them changes the possible

outcome. I believe that you cannot take B vitamins, so search

www.cancertutor.com and find a program that doesn't include them. Stick to it.

By the way, I am new to this board and was directed here from one of my members,

and you need to know that I have no affilitation with any particular program,

just with helping people decide the right direction and encouraging them to

stick with it. My motto is " There are no right or wrong decisions, just

decisions. " Truthfully, not my motto, but one of a patient who survived 14

years after he was given weeks.

Wishing you knowledge and peace,

Margaret

From: Arlyn Grant

....for the last six years, I have been a vegetarian raw foodist so my heart

isn't really into alternative treatments as I am already living that life

[Guest guest]

Thank you so much, . I really feel as if I have found someone to

discuss this with. I eat two bananas a day in my smoothie. Also

contained in the smoothie is rice protein powder, and frozen mixed

fruits. The rest of the day is often full of greens. Oh, I also put

spinach in my smoothie. The problem I'm having in the last year with my

raw food diet is having to be out of the house for long hours and at

work where there are many temptations. I always stay vegetarian, but

stray from raw foods until I am back home where there is no junk food.

But you are correct in needing to fix the underlying problem that caused

this in the first place. I cured many ailments when I went raw, so I

believe in the diet. But I have strayed from the perfect raw food diet.

And now, perhaps what was once the perfect diet isn't the right one

anymore.

I'll ponder what you've said some more and perhaps contact you

privately, if that is okay.

ar

--

Arlyn Grant

arlynsg@...

[Guest guest]

Margaret,

That's excellent advice. I'll definitely check out the site and the

diets. And you are right, we alter the programs and wonder why they

don't work.

ar

--

Arlyn Grant

arlynsg@...

[Guest guest]

Hi Ar -

I'm glad to help where I can. I too have fallen off the diet wagon a

few times in the last year - and each time things start to subtly

return (pain in the area, slight spread of outside lesion, etc.). I've

learned my lesson on this one. Not one iota of sugar can be included

in the diet at all.

A couple of things I forgot to mention - the Paget's lesion is

asymptomatic but spreading a bit (no itch or burn at all). The 2 " by

1/2 " area they saw on MRI in June is smaller as well - I think this is

a gland/duct getting bigger/clogged. Everything I do to the breast we

are hoping is driving things down and out, which may explain the

spread of lesion. We cannot tell at this point and won't know until

November when I redo MRI but we are hopeful. I need to have faith and

determination, not fear (and I've fallen off this wagon from time to

time as well!)

I desperately want to have an answer for others to be able to deal

with the DCIS and learn how to pull it out while supporting the immune

system. It angers me that many women are opting for very drastic

surgeries and treatment when so much is unknown. Every one of my

surgeons was so unsure of the ductal microcalcs - all said the pattern

looked cancerous, but also admitted that maybe only a small portion

were truly cancerous. Then they'd get excited that post-mastectomy

would show that too. My intuition was screaming at me to get as far

away from them as possible.

The other thing I do for immune system is a homeopathic process called

" 5 Shots " or " Auto Sanguis Therapy " . They use a very small amount of

blood mixed in with a number of homeopathics, reinject it back into

the body on certain meridian points. They also make a homeopathic

solution to take home and do drops under the tongue for one month,

then go back. I don't know that everyone has to do this, it's

something I chose to do because my immune system was tanked and this

is like my own personal vaccine that opens things up at the deepest

cellular level to help promote detox. It also has given me energy.

One other lesson I've learned is to not detox and rebuild at the same

time. I crash everytime I do this. I would highly recommend only doing

one at a time. I'm no expert on this - maybe some of the others on the

board can help with this.

You may absolutely contact me personally if you choose.

Peace,

[Guest guest]

,

I also wanted to comment on how great it is that juicing and raw foods

helped those microcalcs go away. I have microcalcs in the other breast

as well-- but apparently not in any pattern. But knowing that I might

be able to get those to be gone by getting back to raw is a great

feeling. I have a very expensive juicer that I never use anymore

because I discovered I hate juice. I prefer smoothies instead. I also

found it was way too expensive for me to buy enough produce to make just

one glass of juice. My budget is tight and getting blown out of the

water right now due to medical stuff. So much for being frugal!!

ar

--

Arlyn Grant

arlynsg@...

[Guest guest]

Hi Elliot,

I love my raw foods.

My experience has been typical, I think. Six years ago, I was very sick

with lots of ailments. I researched all the different types of raw food

diets and settled on one high in fruit and greens. I don't sprout and I

don't juice. I did try juicing, but didn't like it. Nine months later,

almost all my ailments were gone, plus I lost all my thyroid weight. I

looked fantastic. I then moved from Florida to Vermont and found my

diet was not as satisfying up there. I added wheat and dairy back in my

diet and started to gain weight again. I moved back to Florida and went

back to my diet, but continued to gain weight. I was eating between 80

and 95% raw foods daily. In December, my mother died and that sent me

into a spiral of neglectful eating. My best friend, my cat Echo, also

died in March and that sealed the deal for me. I've been eating junk

food veg now for months. I still have my fruit smoothie for breakfast

and salad for dinner, but lunch is at work and I just gave up on caring

about me anymore. Raw food diet is not easy when you have to be out of

the house for long periods of time. Plus, I'm currently working in a

hotel convention center where there is food available for free. I

always choose vegetarian, but we all know there's a lot of unhealthy

vegetarian food out there. My doctor is a raw foodist and when he

hears of my diagnosis next week, I'm sure I will get a stern lecture.

But he may also recommend vitamin regimens, etc.

Best of luck to you and your wife. I believe in the raw diet

completely. But, people need to be smart about it. I've known many raw

foodists who would ignore health problems believing them to be detox.

I follow Dr. Doug Graham's raw food plan. Though, I doubt I'll ever get

to the point of being a natural hygenist, which he is.

Take care,

ar