Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Could it be Methotrexate they're talking about? I've been on it for about 5-6 years with no effect to my liver. My sister has RA and she just started it for the first time. She said it has worked wonderfully for her. It seems to be " running out " for me, so I will be starting Enbrel today. My daughter is 19 and she said she was more than welcome to e-mail her if she wanted someone who's closer to her age and has been through a lot herself. Her name is and her e-mail is anfaith2002@.... She has been on quite a few medications herself. Feel free to e-mail me as well if you want to. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 -Hi Lori, Welcome. I am always sorry to hear of a young person with such bad PA. I also know how painful it is for the mother, It sounds like they may have recommended a med called Methotrexate for your daughter. The side effects can be scary. The good news is they have learned how to monitor for them and also have learned how to get the dosing better to minimize the bad effects. I have had PA since I was 10 years old. When I was your daughter's age they would not even cosider giving me any strong meds until I was past the childbearing years. Now they have a different philosophy and hope that if they get to the disease quicker they can prevent joint damage. I don't know how Docs feel about giving a new class of drugs,biologics, to young people. They are Enbrel,Remicade,and Humira. Just my opinion: It seems like your daughter has such a sever case and the hope with these new meds is that they will drastically reduce damage. Also, when they are successful they are like a miracle for some people with the pain. Several of my Docs have said they are sorry these meds weren't available when I was younger. I think it is good for you and your daughter to be aware of the meds that cause birth defects-I have read people on the board talk about successful pregnancies so you can reassure your daughter it is quite possible. I think you can reaasure your daughter-you put it a good way-that she will have a REASONABLY normal life. Unfortunaltely. Pa is a chronic disease and interupts the life but it is very possible yo have a GOOD life with the illness. This was very long winded. I hope it helped. My heart goes out to you and your daughter! Best Wishes. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 It is with sorrow and compassion that I answer your plea, that of a mother in search of what is best for her child. My own son is 12. If he ever showed positive for PA, I'd be quite sad. I'd be doing as you are now, looking for answers that can support him. I am only new here, myself; but I see that there are over 45,000 entries to the site. I would search the site for answers. There are 92 newsletters. If you perform a search on the site using the word " newsletter " , you will find that previous issues will show up in your search. There is much information to be gleaned from these. Also the links provided here are excellent for informing yourself. At her age, she may not want to read too much about it; but she will always be able to remember that her Mom was willing to inform herself about best current practice. If you go through the links, you will also access to the links of the links. There is lots of info, and if you dig around a bit, you will find the words that speak best to you. The good news is that people with strong minds and much heart are doing intricate research on the mechanism and the treatment of this disease. I would also search for other people/groups who are near your daughter's age who share her plight. Nothing like company for sharing one's misery. She may be able to bear her PA better if she has others to talk/write/chat with. Best wishes... Brent Herman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 god bless you for your e mail still searching for answers but am feeling more positive about things {the initail kick in the guts has gone} she has managed 3 days at school this week take care and again many thanks kate skrewtz <brentherman@...> wrote:It is with sorrow and compassion that I answer your plea, that of a mother in search of what is best for her child. My own son is 12. If he ever showed positive for PA, I'd be quite sad. I'd be doing as you are now, looking for answers that can support him. I am only new here, myself; but I see that there are over 45,000 entries to the site. I would search the site for answers. There are 92 newsletters. If you perform a search on the site using the word " newsletter " , you will find that previous issues will show up in your search. There is much information to be gleaned from these. Also the links provided here are excellent for informing yourself. At her age, she may not want to read too much about it; but she will always be able to remember that her Mom was willing to inform herself about best current practice. If you go through the links, you will also access to the links of the links. There is lots of info, and if you dig around a bit, you will find the words that speak best to you. The good news is that people with strong minds and much heart are doing intricate research on the mechanism and the treatment of this disease. I would also search for other people/groups who are near your daughter's age who share her plight. Nothing like company for sharing one's misery. She may be able to bear her PA better if she has others to talk/write/chat with. Best wishes... Brent Herman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 If you go to the American Arthritis Foundation's home page (_www.arthritis.org_ (http://www.arthritis.org) ) and click on Communities, you will see some information pertaining to children with arthritis. I noticed that there are even message boards similar to this in which you can communicate with other parents of arthritic children. I think it is a good idea to also remain on this message board given our 2000 members know more about Psoriatic Arthritis than probably any other group in the country. Just wanted to let you know that there are other communities out there where you can receive understanding and support. Kathy F. Quote Link to comment Share on other sites More sharing options...
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