Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 Hi group , im lisa i was diognosed approx three months ago with pa. i really need to learn from the start about the condition. unfortunatly im new at and have lost list serve messages direact to my email address any advise on how to reset would be a great help. life is really hard at the moment, my 8 year old daughter got diognosed with npc last oct. as you can imagine this has been devasting news [niemanns pick disease type c]. but i have also been diognosed with pa .....ive not had time to concider myself.... and just got to have a reason to wake in the morning. truth is i wake up in so much pain and as if i never slept... ive been blaming the shocking news and careing of my angel daughter on this. truth is i know deep down i have problems to ........... but she needs me and i havent got time to worry about me ...... please if any one can inlighten me on the pains i feel the aches etc maybe i can start to face up to me not thinking its all stress and hurt and pain of my daughters condition........ really need to start thinking about me and facing some truths. she needs me so much i need to sort myself out etc . just so many aches and pains etc and keep thinking oh because im worried oh because im mentally so tired...please if anyone can help inlighten me to what and how they were diognosed and what they feel..... lol oh gosh im taking time for me here writing this ... godbless everyone love lisa Quote Link to comment Share on other sites More sharing options...
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