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RE: Re: gadgets? Fran

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In a message dated 10/17/2004 7:29:23 AM Eastern Standard Time,

fran@... writes:

Soooooo. I figured out if I froze

half a bottle of bottled water, then before we leave the house, I add cold

water to the rest of the bottle. This way your water says ice cold all day

long and down here in Florida that is a big deal for me. Just had to get my

2 cents in I guess...lol. Love, Fran

That is amazing Fran. I always freeze whole bottles of water and it is

never defrosted when I want to drink it. By doing what you do is wonderful and

I

feel like a jerk for never thinking of it myself.

Janet

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Dear Janet, Well when you move to Florida you have to figure these things

out or you die from the heat. I do it every time I leave the house and it

has worked every time. It is such a simple thing, but makes a big

difference to me. How have you been feeling Janet? I thought I read where

you don't think Humira is working very well? I have to say that the last

MRI I had sort of set me off again. Just lying down on that table for 30

minutes was so miserable on my lower back. I've found out now they can do

your back MRI sitting up in a chair and that will be a big difference to me.

I think I'm actually in the middle of a flair or it's just the recent cut in

the prednisone that has brought back most of my symptoms. I'm finally down

to 10mg and I'd give anything to take it back to 12.5mg, just to feel better

for a few days. I've just worked so hard to get to this point, I don't want

to mess it up anymore. I want off this drug really bad now and I just pray

I can stay there.

So far I'm on Bextra now instead of Vioxx and I think it's bothering my

stomach, but that might all be in my mind. I know I had problems with

Celebrex. I'm still having numbness in my hand and wrist which is driving

me nuts, but take away all of those problems and I'm doing just great...lol.

Well like goes on and things can always get worse, so I'm happy with the

energy I have on Arava at least. Let me know how you are and I don't think

you are a jerk at all. Love, Fran

Re: [ ] Re: gadgets? Fran

In a message dated 10/17/2004 7:29:23 AM Eastern Standard Time,

fran@... writes:

Soooooo. I figured out if I froze

half a bottle of bottled water, then before we leave the house, I add

cold

water to the rest of the bottle. This way your water says ice cold all

day

long and down here in Florida that is a big deal for me. Just had to get

my

2 cents in I guess...lol. Love, Fran

That is amazing Fran. I always freeze whole bottles of water and it is

never defrosted when I want to drink it. By doing what you do is

wonderful and I

feel like a jerk for never thinking of it myself.

Janet

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Hi Fran,

I haven't been on for a few weeks since I was away and was wondering what

you decided to do after your last experience. Have you decided to go to

anymore clinics? I was given Bextra after the Vioxx experience but now I am

hearing that the problem is with all -2 inhibitors and not just Vioxx. That

would be Bextra and Celebrex as well. I heard that there is just not as long

a time amount on research as Vioxx and these too will be discouraged. I am

presently taking Naprosyn and it seems to help somewhat. My rheumy took me

off double Humira since it did nothing and tomorrow I will be receiving double

Enbrel in the mail. I hope that is going to be my magic potion.

Janet

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