Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 hello has anyone heard of neurotin being used for pain related to auto immune illnesses such as psoriatic arthitis and fibromyalgia? It was orginally perscribed for seizures when it was first released. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Sorry-I have very sloppy fingers lately, all I have to do is slide across the send and the message is sent- wheather I am done or not. I started Neurontin at 100 mg 3 times per day and now up to 200 mg 3 times per day and 300 mg at bedtime. I am taking less Lortabs and am slowly cutting down on this. It really helps with the pain - absolutely amazing. BUT I cannot drive and take this medication. It took a while to get used to it, really makes you fuzzy -at first. Hope this helps, Gentle Hugs, Carol M in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Neurontin was prescribed to my dad for long lasting residual pain he suffered after a severe case of facial shingles. Mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Candycane, I , myself, have taken Neurotin in high doses but it was for the diabetic neuropathy in feet and legs. I also have PA. and Fibro but was never told it would help that and I sure still hurt and had to take different meds for PA. I took Arthro Tec 75 mg 2x daily and muscle relaxers 3 x daily for PA. I am no longer on Neurotin but on Topomax but Nurotin did seem to work better for me so will go back to it for the pain from neuropathy. Zoella " If you think you are too small to make a difference, you have never been in bed with a mosquito. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 " candycane_for_me " wrote: > hello has anyone heard of neurotin being used for pain related to auto > immune illnesses such as psoriatic arthitis and fibromyalgia? It > was orginally perscribed for seizures when it was first released. Hi, Yes, Neurontin is used pretty often where I live for fibro pain. My internist is of the opinion that it helps nerve pain the most. I haven't had personal experience with it. fibro can include nerve entrapment pain . good Luck. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 I have been taking Neurontin for 6-9 months. I was originally suppose to take it twice during the day and two at bedtime. It made me so sleepy that I only take the two at bedtime. I didn't know that it was doing much until I ran out a couple days ago and I've had a couple terrible days. I also have pa and fibromyalgia. > hello > has anyone heard of neurotin being used for pain related to auto > immune illnesses such as psoriatic arthitis and fibromyalgia? It was > orginally perscribed for seizures when it was first released. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 KandyKane, Yes, I was prescribed Neurontin, but it didn't really do a whole lot for me. I only stayed on it for about a month or slightly more. Sylvia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 thanks for all the info everyone. A little about myself: I am 38 yrs old. I was first diagnosed with psoriasis at 26 and PA at 29..it is primarily in the my right ankle..metatarsals in both feet.and left elbow (I had fractured it as a teen)..My rt ankle now has minimal rotation ability and is always swollen. The metatarsls have been not good..somedays feel like i am walking on the bones. I was diagnosed with FM at 32..my main pain is in my sternum..gosh does it hurt sometimes! I have been through the gammit of meds...currently on sulfasalazine (an oldie but best for me)..and just recently changed to indocin. I tak flexiril. My rheumatologist would like me to start MXT, but I say not yet, as I have not had children yet (I am a oncologist nurse, so I am aware of all the side effects of MXT and the accumulative affects it can have, although a low dose..I want to have kids first) I guess you can say I have a stressful job which doesnt help. I am a manager with a few units which are far apart (1/4mile to be exact)..so that can bring on a challeng esp when i am sore. When I am at work..some days feel like there is little down time..I try to not let my ailments bring me down or stop what I do..and I know that I am far more fortunate than some who share my diseases. I am aware that I need to to better listen to my body. I tend to work about 55hours/week.Monday I worked 14hours..and I am still paying for it..i am so exhausted with minimal energy. Everyday, I have some pain..but I think I tune it out..or try to..I am starting to do some research on chronic pain (hence the question about neurontin)..The body and mind response is truly phenominal..I am trying to start yoga..i bought the membership..i just have to get there...lol Well that is my story..this group has been most helpful..I do know when i get down about my pain..I try to look at the positives..i can still walk..and not immobilized ...I think working with cancer patients has given me that insight...i just need to learn to pace..and not take the health i have for granted..that is the hardest for me.. Take care all Candy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Neurontin is an odd drug. It's like alcohol in that it requires a constant serum level to work. It also is supposed to take several weeks to work once you have established a constant level in your blood. Personally, I felt like I was taking a cereal bowl of the stuff every day because I was taking so many pills twice a day. I know people that it has been very effective for but it did little for me. It is also supposed to help with anxiety. There is some concern that it is being over prescribed because it is coming off patten and the manufacturer is trying to find an additional clinical use. You will find that it is being used for a number of different afflictions. = Quote Link to comment Share on other sites More sharing options...
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