Re: New Rhumy Visit..Positive Result

[Guest guest]

In a message dated 12/20/2004 8:25:34 PM Eastern Standard Time,

turrelle@... writes:

She also wants to take me off the Naproxen and put me on Flurbiprofen

instead. Anybody know anything about this stuff? It sounds like

ibruprofen....?

She also has signed me up for a marijuana for pain control study, and

is willing to give me a perscription for it, so that's cool.

Wow, Crystal,

Looks like you had a great experience. Don't worry about injecting

yourself. I was so scared to do it the first time and after it was over I

couldn't

believe I stressed out about it that much. I took Flurbiprofen years ago

and it really helped. It is generic for a drug called Ansaid. It worked great

and then I started hiving from it and had to stop it. Where do you live

that they want to do a marijuana study. You must not be in the states. Well,

take care and good luck.

Janet

[Guest guest]

Hi there Janet

I live in Canada, so we're pretty close to legalizing it, and it's

prescribable here, so that's cool.

Glad to hear some feedback on the Flurbiprofen, I've been doing a

little research today on it, seems harmless enough anyway...but I'll

keep an eye out for hives..hives are kinda like mosquito bites, right?

Thanks for the feedback

love and light

Crystal

[Guest guest]

Thank you so much . I am waiting to hear back from the Doctor's

office to see if my insurance will cover the Humira and MTX

injections. I am still so nervous about it, but as my Doctor says it

will hurt less then my tattoo. (I was younger and more brave then)

I just wanted to Thank everyone one, I am new to this disease and I

everyone has been so supportive and helpful. I hope everyone enjoys

the holiday!!!!

>

>

> In a message dated 12/22/2004 1:01:23 PM Eastern Standard Time,

> turrelle@h... writes:

>

> my new insurance info and I too will be starting injections.

Please

> > let me know how it goes for you. Thanks

>

>

> Hi Shari and Crystal,

>

> I too have a huge aversion to needles but about 6 months ago, I

decided it

> was time for me to learn how to give myself my monthly B12 shots.

I wasn't

> getting them regularly enough because I would forget about

scheduling the appts,

> etc, and my fatigue level relies on that B12 (due to a different

autoimmune

> disease). Anyway, I had the nurse at the clinic at work show me

how, then I

> went in the following month to do it in front of her and let her

coach me.

> Honestly, I was very surprised, but I actually prefer giving

myself the shot!

> I know, after a few months, the exact spot that is less likely to

cause me

> pain, and the shots hurt a lot less going into my thighs than they

did in my

> arms.

>

> I realize its not the same kind of shot, but thought I would share

for what

> its worth. I am still terrified at having blood drawn and getting

other

> shots; this is the one shot I am not queasy at all about anymore!

>

>

>

>

>

[Guest guest]

Hi Crystal,

I am still on MTX in pill form but have started injecting Enbrel. I don't

know if there is any difference in the size of the needles but all I can say is

that I found injecting it to be far easier than I thought it would be.

Although I don't really have a problem with needles in the first place so I was

pretty relaxed about it. Maybe " relaxed " is the key word here. Hope you manage

it ok. I reckon after you have done the first one, you won't look back.

Good luck.