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Dear Group,

By now you would think, there isn't much this disease could throw at me

that would catch me off guard. I mean I've gone through allergic reactions

to several drugs, doctors who didn't know what I had, many years with out a

real diagnosis, and the pain never completely ever leaving me. But yet

still it manages to surprise me.

I've been taking it easy the past few days, since you know I was going

nuts with Christmas..lol and my 4 crazy little Christmas trees. Which are

all still standing by the way and never did make it to the swimming pool...a

real accomplishment for me. Well last night my husband and I were watching

a movie and I'm in my recliner. I got up to get some water and suddenly I

felt like someone was stabbing me in the back of my upper thigh. It thought

well this is new, but maybe it's a freak pain that can go as fast as it

came...hope, hope, hope...Well I should have known better and I shouldn't

have been surprised.

Today my leg is so bad I can't put any weight on it at all without wanting

to scream. I can't figure out if the pain is coming from my lumbar disc

area, where I know I have another bad bone spur, or it's bursitis back in my

hip with a vengeance. I just had my hip injected about 3-4 weeks ago and I

doubt very much if I can talk the pain doctor into doing it again. When he

did it, the pain was totally gone. I couldn't believe how much better my

hip felt, but now the pain is worse than ever before. I'm wondering as the

shot wore off, could it have made the pain actually worse? The bad thing is

sitting even hurts. It feels like I'm sitting on a sack of sharp rocks and

they are digging into my flesh. The front of the thigh was where the pain

was before and it still bothers me, but the new pain has taken everything

else from my mind. I'm not even noticing if my hands are still burning or

numb. They are still red, so I'm guessing the burning is still going on. I

had a doctor tell me once that if the pain is bad enough, your brain will

only let one spot get through at a time. (I guess? that is something to be

thankful for?)

Has anyone ever had bursitis in the hip this bad? I suppose I could be

dealing with just arthritis and not bursitis, but the pain doctor was

positive based on where the pain was coming from it was bursitis. I'm so

discouraged because Christmas is only a few days away and I was thinking

this year, I'm so much better than last year and it's going to be a great

holiday. Don't get me wrong, I'll still have a good time with my family and

I wont' let them down, but it won't be the same with this constant

unrelenting pain.

I'm going to call the pain doctor tomorrow, and I " m scheduled for physical

therapy on my hand. There is no way I can do that now since just walking

into the place is going to be impossible, let alone sitting there trying to

work on my hand. I won't even be able to tell if it's any better or not.

The problem is even if I can get my doctor to inject it again, he's gone

until the 22nd and the 23rd. Well if anyone else has ever had this type of

pain, let me know if you have any secrets or tips that can help me in the

meantime.

I keep forgetting that PA is a disease that just keeps on giving... Take

care everyone and have a pain free holiday. Love, Fran

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Dear Fran,

I can't comment on the pain you are now suffering from, but I did want to say I

was " sorry " to hear of it! I hope it fades as quickly as it came ~ my thoughts

are with you...

Warm Wishes,

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Hi Fran:

So sorry to hear about how bad you feel.

My orthopedic doctor told me that occasionally the pain can get worse before

it gets better. You usually feel better right after because of the anesthetic

they inject first. I was told to try icing it for pain relief.

Maybe we should ice our whole body (lol).

If it does not improve in a couple days, I would definitely call. To use an

old saying, been there, done that. I had bursitis in my hip 2 years ago

during my dad's last 4 weeks on this earth and through his funeral. I was out

of

town. By the time it was injected, it was flared so bad that it took a while

to get under control. It is starting to come back again with a vengeance, but

trying to wait it out.

By the way it is 1 below F. here in Michigan.

Hope you feel better.

Barb

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Dear Barb, Well I guess I won't tell you it's supposed to get to 32 degrees

here tonight. That's a bitter wind for us.lol. Seriously, you do get used

to the warm weather and the cold is such a shock. It's great for my hands

that are burning, but hell on the joints.

Well I did call my doctor today and as usual they are great. They

rescheduled my appointment for my hand until after Christmas and then got me

in on Wednesday to get another injection in my hip. It has been about a

month since the last one. They aren't fun and in fact the last one hurt

like hell, but he has a wonderful X-ray machine, so I don't have to lie on

my side to get injected. I can just lie on my back and he can still hit the

spot. For me to lie on my side, either one is just torture. I figured if

this goes away by Wednesday then I'll just cancel the shot.

I didn't sleep at all last night from the pain and that's what made me

realize I just had to call. I had ice on it most of the night and hopefully

it will improve soon. Thanks for the support Barb, and everyone else who

gave me sympathy. Some times a " poor baby " is kind of nice to hear.lol.

Take care and have a great holiday if I don't talk to you before. Love,

Fran

Fran:

So sorry to hear about how bad you feel.

My orthopedic doctor told me that occasionally the pain can get worse before

it gets better. You usually feel better right after because of the

anesthetic

they inject first. I was told to try icing it for pain relief.

Maybe we should ice our whole body (lol).

If it does not improve in a couple days, I would definitely call. To use an

old saying, been there, done that. I had bursitis in my hip 2 years ago

during my dad's last 4 weeks on this earth and through his funeral. I was

out of

town. By the time it was injected, it was flared so bad that it took a

while

to get under control. It is starting to come back again with a vengeance,

but

trying to wait it out.

By the way it is 1 below F. here in Michigan.

Hope you feel better.

Barb

..

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Hi Fran:

By the way, I saw the kitchen utensils today. They are called OXO. Really

great things.

Let me know how the hip goes. Mine was talking to be last night. Must be

the cold.

Mine is called a trochan (sp?) bursitis.

Have a pain free night. PLEASE!!!

Barb

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I'm in my recliner. I got up to get some water and suddenly I

> felt like someone was stabbing me in the back of my upper thigh.

Hi Fran,

Are you sure it's not the fibro?

It sounds a lot like an episode I went through a few years ago.

It was caused by a 'nodules'in the hip itself.

A physiotherapist eventually 'worried' the nodules into submission.

Suzie.

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In a message dated 12/24/2004 5:37:55 PM Eastern Standard Time,

spoiltannie@... writes:

I'm in my recliner. I got up to get some water and suddenly I

> felt like someone was stabbing me in the back of my upper thigh.

Fran,

Do you think you may have sciatica. That is what it sounds like it may be.

Janet

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Hi Susie and Fran,

Maybe it has to do with recliners because I went to sit in mine the

other night when my mom called, and my hip spasmed so bad I had to

drop the phone. I couldn't sit or stand and all my poor mom heard was

ow, ow ow. It take about two minutes to subside, and my mom was

yelling into the phone " what happened, are you ok " . It hurt so bad,

and I felt so foolish just kinda sideways midair in the chair. I was

so glad when it passed. I don't know if it was fibro or the pa but

boy did it hurt.

Gentle hugs

Pat

>

>

> I'm in my recliner. I got up to get some water and suddenly I

> > felt like someone was stabbing me in the back of my upper thigh.

>

> Hi Fran,

> Are you sure it's not the fibro?

> It sounds a lot like an episode I went through a few years ago.

> It was caused by a 'nodules'in the hip itself.

> A physiotherapist eventually 'worried' the nodules into submission.

> Suzie.

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You wrote:

I got up to get some water and suddenly I

felt like someone was stabbing me in the back of my upper thigh. It thought

well this is new, but maybe it's a freak pain that can go as fast as it

came...hope, hope, hope...

Hi again Fran,

I have a little more time on my hands today so I can get round to answering

some of the mails that have come through over the past week. As I said last

night, I hope your thigh pain has subsided over the last few days. It is

strange when that happens like that isn't it? Sometimes I think that there is

someone out there who doesn't like us and practices black magic. They must be

sitting there with there little wax effigy of us and sticking the needle here,

there and everywhere. lol

Hope you got through Christmas ok and had a good time with your family

You will have seen your pain doctor by now so I hope he has been able to

help in some way.

Good luck,

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