Hi! I am new to your group

[Guest guest]

Welcome Carole --

Triplet boys! I was a SAHM too and I had two boys two years apart and they

ran me ragged (I enjoyed almost all of it). That was before PA. Mine,

fortunately, waited until mine were gone and on their own. You definitely

need the best medical care you can get. If one thing doesn't seem to work

tell you doc immediately and try something else. This is great place to

find sharing and caring. Take a look at the archives when you get a chance.

There is a lot of information there but most importantly you will see that

you are definitely not alone.

Cheri

[Guest guest]

Hi Carole,

Welcome to the group. Sorry that you need the group to the return of your PA

but you have come to the right place.

Take care,

[Guest guest]

Dear Carol,

Boy do you have your hands full. Most people would have a rough time

keeping up with 3 boys regardless of their health problems. There are other

options for you if your current medication doesn’t help. You need to

convince your doctor if you don’t get better, that he needs to try a

different drug or drugs. The sooner you can get the pain under control and

stop the disease from progressing the better your outcome will be. It took

them almost 5 years to diagnose me correctly and in that time my joints

really took a beating. Some of them are probably going to have to be

replaced and in the meantime the pain is pretty bad.

This is a great group to come to for compassion or to find out anything new

about your medication, or if you just need a nice place to vent. I’ve

learned so much from all of these people. So much more than my doctors have

ever taught me, so I’m really glad you found us.

Is there anyway you can afford to get some help at home? I realize having 3

children at once must be a real financial drain, but if you could get some

help even a couple days a week it might make a big difference for you. Or

maybe a family member can just give you a few hours a day to take a nap or

simply take care of yourself. I realize it’s hard to schedule time off from

pain because we never know when it’s going to hit, us, but it still might

help some.

Also the Vicoden is ok for a few days, but what does he expect you to do

after that, just suffer? Most rheumatologists are against painkillers since

they know your pain is chronic and you’ll need to be on them a long time.

They are very paranoid about their patients becoming addicted to

painkillers. If you still have unmanageable pain after your few days of

pain pills, you’re your doctor refuses to help anymore, look into a pain

management clinic. They are the real experts on how to deal with pain and

which drugs work the best for certain types of pain. I ended up in a pain

clinic after having facial surgery for a bad jaw joint, which turned out to

be damaged from PA, and I know for a fact the clinic saved my life. I never

would have lasted if I hadn’t found them. It takes some time before you

feel comfortable with them and they feel comfortable with you, but it’s

worth it if you can find a good doctor.

Well good luck and welcome to our little group. Let us know how you are

doing and write anytime. You can always reach the group or me. The main

thing to realize is you aren’t alone and you can get better. Take care,

Fran

[ ] Hi! I am new to your group

Hi! My name is Carole, I am 38 years old. I have had PA for 10

years. Since that time I have had triplet boys (they are now 6). My

PA went away for 8 years, and now it has reared its ugly head. I am

having a terrible time trying to keep up with my boys (I am a SAHM)

and keep up with everything. Since it has come back (almost 2 months

ago) I have had it worse than ever, it is in my hands, feet, elbows,

wrists, and knees). My dr has me currently on Sulfasalsizine,

Naproxen, and (just for a few days) Vicoden.

I really feel I need to chat with other people that have PA, as I

don't know anyone who has it. I really feel alone and so exhausted

all the time.

Thanks for listening and I will definitely be joining discussions on

this board and when I think of questions will be asking!

Carole

[Guest guest]

Hi Carole

Welcome to the PA group, if you fancy a chat just drop me a line anytime !

Hopefully you will get the support that everybody with PA needs from time to

time, you will deffo get it from this site.

After reading a few recent posts, I must say that I feel so lucky that our

NHS offers us good treatment at no costs.

Believe me when I say that The NHS gets criticised all the time over here!!!

It sounds amazing to think that a GP would not refer you because they might

lose money?? !!

We may not have all those fancy new drugs just yet! like our American pals,

but when we do at least they will be free at the point of care. That's got

to be good if you have a chronic condition like ourselves!

Micky

London

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