PA in feet

[Guest guest]

yeah i hear you on that, in my left foot, 2nd digit and proximaly to

the 2nd tarsal... Its a bummer, i had to quit my job becuase i cant

stand for maybe an hour without it starting to hurt. the dreaded

sausage toe...

> Hello all,

> I have PA in my left hand. And reading posts and listening, I hear

> about people who also have it in their feet. I would be interested

to

> hear about the symtoms, because I have been having trouble with my

> right foot. The ankle gets puffy (I sprained it very badly a few

> years ago), and the bottom of my foot aches and is soemtimes sore

to

> walk on, especially in the morning. No trouble with toes though.

> Any feedback would be helpful.

> Janice

>

> [Editor's Note: One of the 5 types of Psoriatic Arthritis is the

Distal, where the PA involves the " peripheral " parts of the body, as

opposed to the central (the torso). This type tends to be relatively

mild compared to other forms, although there are no guarantees.

Symptoms are pretty much as you note--seemingly random, although one

or two locations may become favorites. Your sprained ankle would be

a natural centerpiece. You can have pain in the heels, ankles,

metatarsal arches, etc.; it can last for a day, a week, or for

months. The pain can go away from each individual site for various

lengths of time. And as you note, the pain can loosen up during the

day.

>

> I advise you spend some time and money on the right shoes (dress,

casual, and athletic). I was truly amazed by the difference the

right shoes made.

>

> D.]

[Guest guest]

D,

You mentioned five types of PA. Where can I find all these descriptions &

symptoms of each type of PA? I was never told what type I have--just that I have

PA. Since I am on medicaid/medicare, they frown on me sticking to a Rheumy all

the time. I am so fortunate that I have a GOOD dermo, who is willing to put me

on Enbrel!

LeAnn Cayer & Furbrats Blossom & Meriko

Heart Bandits American Eskimo Dog Rescue

Railroad Coordinator www.heartbandits.com

[Editor's Note: The 5 types are Distal Interphangeal (hands and feet) which I

mentioned in the previous post, symmetric, asymmetric, (those two are pretty

much self-explanatory), ankylosing spondylitis (also called psoriatic

spondylitis--this is involvement of the lower back and the spine; can be quite

serious), and mutilans, which produces gross deformities distally--hence the

" mutilans " .

You could try the Nat'l Psoriasis Foundation for more reference information,

and/or search online (I'd type in " psoriatic arthritis 5 types " ). Hope that

helps.

D.]

[Guest guest]

HI Janice,

My PA actually STARTED in my feet, beginning with what felt like gout in my big

toe, and then pain under my heels and finally swelling of the joints in my toes

, causing 'sausage toe syndrome' , which left all my toes of both feet

permanently damaged. I have not been able to wiggle or bend my toes for over ten

years. The progression from the gouty big toe to the sausage toes took about a

year and a half , during which time the PA began to manifest itself in most of

the rest of the joints in my body, particularily the shoulders and chest. Over

the next dozen years I have dealt with PA in every joint in my body except my

elbows. Even my jaw joint ( below my right ear ) went through a period of

swelling and immobility and was left permanently damaged.

This is a strange and unpredictable malady we are dealing with, and almost

everybody is affected in a different manner, pattern and level.

Also, I have learned that areas of the body that have been traumatized ( breaks

, sprains, etc) are likely to be targeted by PA, which would explain it hitting

the ankle you had previously sprained).

Good luck and keep smiling,

Randy

[ ] PA in feet

Hello all,

I have PA in my left hand. And reading posts and listening, I hear

about people who also have it in their feet. I would be interested to

hear about the symtoms, because I have been having trouble with my

right foot. The ankle gets puffy (I sprained it very badly a few

years ago), and the bottom of my foot aches and is soemtimes sore to

walk on, especially in the morning. No trouble with toes though.

Any feedback would be helpful.

Janice

[Editor's Note: One of the 5 types of Psoriatic Arthritis is the Distal, where

the PA involves the " peripheral " parts of the body, as opposed to the central

(the torso). This type tends to be relatively mild compared to other forms,

although there are no guarantees. Symptoms are pretty much as you

note--seemingly random, although one or two locations may become favorites. Your

sprained ankle would be a natural centerpiece. You can have pain in the heels,

ankles, metatarsal arches, etc.; it can last for a day, a week, or for months.

The pain can go away from each individual site for various lengths of time. And

as you note, the pain can loosen up during the day.

I advise you spend some time and money on the right shoes (dress, casual, and

athletic). I was truly amazed by the difference the right shoes made.

D.]

Please visit our Psoriatic Arthritis Group's informational web page at:

http://www.wpunj.edu/pa/ -- created and edited by list member

aka(raharris@...).

Also,in August 2001,list member Jack aka Cornishpro@... began to

conduct extensive research which he publishes as the " Psoriatic Arthritis

Research Newsletter " , monthly in our email and digest format. Many thanks to

Jack. Back issues of the newsletter are stored on our PA webpage as well as the

archives of the list.

Don't forget that the list archives comprise a tremendous amount of

information (Over three years of messages and answers).Feel free to browse them

at your convenience.

LET'S HEAR FROM SOME OF YOU LURKERS out there! If you have a comment or

question, chances are there is a person who has been around a while who can help

you out with AT LEAST an educated guess for an answer! If not,we can steer you

in the right direction with a good website to go to,

Blessings and Peace,

Atwood-Stack, Founder

Alan , Web & List Editor

Jack , Newsletter Editor

Pat Bias, List Editor

Ron Dotson, List Editor

Orin, List Editor

, List Editor

and any others who help in any way (thank you!)

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[Guest guest]

Hi Janice,

My PA started (and is still most prevalent) in my feet and hands.

For me I had severe pain in the balls of both of my feet. I never did

get a sausage toe or any other symptom. Sometimes it got so bad I

could barely walk, and even just standing in the shower was a chore.

The meds I am on have thankfully alleviated most of the pain though,

enough that I am now able to go out and referee soccer games. For the

record, I had toe surgery on my left foot, broke the fifth metatarsal

on my right foot, and have sprained both ankles, (I was an 'active'

child), so it's probably not a huge surprise that the PA has hit me

there.

is right though, the right pair of shoes can make all the

difference in the world. It's still a little tender when I walk

around barefoot, but having good-fitting shoes makes the discomfort

pretty much go away.

Good luck.

Harry

> Hello all,

> I have PA in my left hand. And reading posts and listening, I hear

> about people who also have it in their feet. I would be interested

to

> hear about the symtoms, because I have been having trouble with my

> right foot. The ankle gets puffy (I sprained it very badly a few

> years ago), and the bottom of my foot aches and is soemtimes sore

to

> walk on, especially in the morning. No trouble with toes though.

> Any feedback would be helpful.

> Janice

>

[Guest guest]

Ten or so years ago is when the damage started to my feet...since

then all my toes are fused straight & one I walk on the knuckle. I

feel the combo of Methotrexate/Enbrel has finally stopped the

progression, & Viox helps with the pain. I wear high-top hiking boots

with two sets of inserts inside... this way I get the ancle support

& I don't have to be so scared of someone stepping on my toes. I

used to be very afraid of twisting my ancle or somehow breaking my

foot, but now I can consentrate on excersizing them.

[Guest guest]

Janice,

I have had the most trouble with PA in my feet. In my left foot it

is my heel and ankle and in my right foot it is my toes and the ball

of my foot. The thing that helped me was getting Viscoped inserts

from my doctor. They are soft, silicone type of material with a

built in arch support and pads built in that cushion your metatarsals

so that the pressure is less on the ball of your foot. You can use

them with any kind of shoe but you will have to get your shoes bigger

and possibly wider to fit with the insert in it. I am a nurse who

works 12 hour shifts and these have been great!

Eileen

[Guest guest]

Hi Everyone,

I stumbled upon this list about a week ago and decided to join. I did not

intend to post at all(Is it called lurking in

the USA?) but a lot of the stuff I've read is very similar to my situation

over quite a few years now. The mail from

Randy for instance. I could almost say that the way the arthritis progressed

initially with him mirrored my own.

I guess I should tell you a bit about myself since I am on anyway.

Psorisis decided it liked me so much it would like to live with me around the

age of 23years. At the age of 30

Arthritis moved in on me too. I was an Athlete(Or should I say I am an

athlete that can't run anymore?) and I

was training hard at the time and probably running as well as I had done for

10 years. At the end of one particular

race, I had a slight pain in my left heel. I did'nt think it was in any way

serious. Over the next few months it got

progressivly worse. I started attending a well known Physio and several other

runners went with me at different

times and their injuries would clear up after a couple of visits to him but

my " injury " just got worse. After a year

of going to and fro between doctors and initially being told that it was Gout

as my toes were now affected. They

told me that it was PA(Lucky White !! as we say in Scotland.) Since

then it has progressed and effects

feet/toes, knees, lower back, wrists/fingers, neck. Even my rib cage on bad

days.

I take Indomethacine R for the inflammation and was on Gold but I am now

taking 25mg of MTX in pill form. I

should very shortly be going on to Embrel although the professor I am dealing

with should have contacted me in

January. I think I will need to give him a call.

Couple of questions:

Do you have to keep taking MTX even when you are on Embrel?

Has anyone heard of Pencil in Cup syndrome? I have it in two of my fingers

with the result that they are much

shorter and thicker than the were.

To finish, it is good to see that other people have the same problems(Not

good for you obviously but good for me)

as I do and on the whole you seem to approach it with a sense of humour which

is what you need. (If we did'nt

laugh we would cry eh?)

Regards,

[Guest guest]

Welcome to all the newcomers! Glad to have you with us.

I don't know the answer to 's question but I can take a stab at

's. First, yes it is called lurking. I love learning new

expressions from around the world..white heather? Is heather usually

purple? I would love to see Scotland.

Some people take MTX with Enbrel and some don't. It depends on the

doc and patient. It is not required. Is it available in Scotland?

Is it hard to get?

Pencil and cup describes a type of deformity of the joint in which

the bone wears away(or gets eaten away) into the shape of a pencil

tip. Instead of fitting neatly together with the adjoining bone it

slips in and out like a pencil in and out of a cup. I have some of

these and my fingers are also shortened. These can get serious...at

least mine did so enbrel might be a good med to try.

Good Luck,

Marti