Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 In a message dated 7/8/2002 3:22:27 AM Pacific Daylight Time, writes: << Message: 16 Date: Mon, 08 Jul 2002 08:36:06 -0000 From: " kaytarot2001 " <Kaytarot@...> Subject: Ruth >> and Lydia Dear Lydia, My heart went out to you when I read all of your problems. The high ammonia doesn't help anything come together well because it causes so much difficulty in function - I know at one point I couldn't dial the phone even with a pre-programmed number. Ruth's idea of going to the state for a social worker or where ever you can find one. It there anyone else who can help you follow through? I also wondered about calling the transplant clinic - I have gotten a lot of support through them or perhaps they can point you to someone who will care for you. Keep us in touch. WE CARE!!!! With hugs, Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Just curious, when your doctor referred to a "drink", did he mean an actual alcoholic drink, or one of those non-alcoholic beers? aisha Yes, my doctor meant "real" drinks were okay -- wine, scotch, etc. I hope he's right. I enjoy knowing I CAN drink if I want to, but I rarely do. Usually when my husband has a beer, I have pour myself a shot glass full and then don't finish that. I think most of us know that "Alcohol-free" beers actually contain enough alcohol to cause problems for those with a drinking problem. When they first came out, they were marketed as non-alcoholic, and I assume they still are. I think that is outrageous. Aisha, you asked about stopping Prednisone permanently. My doctor has about a dozen AIH patients at any one time, and he said he has never had a single patient give up Prednisone successfully, that they have all had relapses. I think the Palmer book gives statistics for relapses after Prednisone elimination. I'm away from my house, and I don't remember just what she said. Some people do manage to stay off Prednisone, but the odds aren't great. I'd try it, but my doctor says it would be very risky in my particular case. Now, I'm going for a walk by the ocean bluffs, taking my binoculars along. The other night I waked from a deep sleep thinking I heard a woman screaming and dogs barking. I ran out the door to see what I could do to help, thinking I was still in the city. I realized I had no idea where to go, where the sound had come from, as it suddenly stopped, and the night was very dark. I've since learned that it was probably a mountain lion eating a wild turkey. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Can I have the complete info on the " Palmer book " ? (I would like to read/study it). I'll know in 6 months (which is the average period for the prednisone to be completely out of the body's system) whether this no-steroid protocol works or not. thanks, aisha >From: flatcat9@... >Reply- > >Subject: Re: [ ] Digest Number 2384 >Date: Mon, 8 Jul 2002 13:37:54 EDT > >Just curious, when your doctor referred to a " drink " , did he mean an actual >alcoholic drink, or one of those non-alcoholic beers? > >aisha > >Yes, my doctor meant " real " drinks were okay -- wine, scotch, etc. I hope >he's right. I enjoy knowing I CAN drink if I want to, but I rarely do. >Usually when my husband has a beer, I have pour myself a shot glass full >and >then don't finish that. > >I think most of us know that " Alcohol-free " beers actually contain enough >alcohol to cause problems for those with a drinking problem. When they >first >came out, they were marketed as non-alcoholic, and I assume they still are. >I think that is outrageous. > >Aisha, you asked about stopping Prednisone permanently. My doctor has >about >a dozen AIH patients at any one time, and he said he has never had a single >patient give up Prednisone successfully, that they have all had relapses. >I >think the Palmer book gives statistics for relapses after Prednisone >elimination. I'm away from my house, and I don't remember just what she >said. Some people do manage to stay off Prednisone, but the odds aren't >great. I'd try it, but my doctor says it would be very risky in my >particular case. > >Now, I'm going for a walk by the ocean bluffs, taking my binoculars along. >The other night I waked from a deep sleep thinking I heard a woman >screaming >and dogs barking. I ran out the door to see what I could do to help, >thinking I was still in the city. I realized I had no idea where to go, >where the sound had come from, as it suddenly stopped, and the night was >very >dark. I've since learned that it was probably a mountain lion eating a >wild >turkey. >Harper > > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Dear Harper, I love your description of the night. Do you write? Your descriptions are so vivid. Re: [ ] Digest Number 2384 Just curious, when your doctor referred to a " drink " , did he mean an actual alcoholic drink, or one of those non-alcoholic beers? aisha Yes, my doctor meant " real " drinks were okay -- wine, scotch, etc. I hope he's right. I enjoy knowing I CAN drink if I want to, but I rarely do. Usually when my husband has a beer, I have pour myself a shot glass full and then don't finish that. I think most of us know that " Alcohol-free " beers actually contain enough alcohol to cause problems for those with a drinking problem. When they first came out, they were marketed as non-alcoholic, and I assume they still are. I think that is outrageous. Aisha, you asked about stopping Prednisone permanently. My doctor has about a dozen AIH patients at any one time, and he said he has never had a single patient give up Prednisone successfully, that they have all had relapses. I think the Palmer book gives statistics for relapses after Prednisone elimination. I'm away from my house, and I don't remember just what she said. Some people do manage to stay off Prednisone, but the odds aren't great. I'd try it, but my doctor says it would be very risky in my particular case. Now, I'm going for a walk by the ocean bluffs, taking my binoculars along. The other night I waked from a deep sleep thinking I heard a woman screaming and dogs barking. I ran out the door to see what I could do to help, thinking I was still in the city. I realized I had no idea where to go, where the sound had come from, as it suddenly stopped, and the night was very dark. I've since learned that it was probably a mountain lion eating a wild turkey. Harper Group Rules 1. Please no religious, political, race or sexual preference discussions. 2. NO slamming of other members, advertising or vulgarity. Thank you! To UNsubscribe send a blank e-mail to -unsubscribeegroups Your use of is subject to the Terms of Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 Fran: Hope your feeling better soon. I know the CPAP machine for my sleep apnea helped so much I didn't need oxygen with it. Also, (as a respiratory therapist)Levabuteraol has less side effects than Albuterol (Proventil). Its like they took the bad stuff out & left the main ingredient. I do home health part-time, after 10 years in the hospital, I'm blessed I can work part-time. If you do have to continue oxygen, check out Helios. This is a liquid oxygen 3.5l lbs. & you can carry it just like a purse. Hope this helps some. I know everyone has been so good to me. Love & Prayers Quote Link to comment Share on other sites More sharing options...
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