Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 Hi Amy, From what I've read, hereditary does play a part. However, for me, I've got 6 brothers and sisters and I'm the only one with this problem. I've got plenty of older nephews and nieces and cousins and still, I'm the only one. I vaguely remember my grandmother having a problem with her skin but this wasn't until she was 98 (and she was still going up and down stairs)...so I don't count her. At first I was feeling a bit of the " why me " s. After going through some of that and getting my first dose of Enbrel for $5 (w/out insurance would have cost almost $1,300) I've moved into the " why not me " phase. I think God chose me b/c he knew I had a supportive husband and great insurance. I pray every day for those among us who aren't as fortunate. > > > I was reading a post as to whether PA is inherited. My doctors say > it is and that's how we figured out I had it. All the pieces of the > puzzle came together when I was visiting with my mother in Florida. > We were at lunch and I noticed I was scratching my head a lot - > something I had done a lot in the past and was starting to do a lot > again. I jokingly said to my mother, " I bet I have psoriasis or > something. " My mom answered back, " Yeah, you probably do, seeing it > runs in my family. " Come to find out, my mother and several of her > siblings and their children have psoriasis. I come from a very big > family so I never even thought of the connection. Since then, I've > also learned that my brother has psoriasis. My grandmother on my > dad's side had really bad arthritis, which no one knows whether it > was RA or PA or what. I also have a cousin on that side with > anklyosing spondylitis. When I told all this to my rheumatologist > who was testing me for RA at the time, it all clicked. PA was the > reason I had been suffering from a variety of symptoms for over 15 > years. So I advise anyone who is not sure of their diagnosis to > draw up a family tree and see if it holds any answers. Good luck! - > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 The way it was explained to me is that autoimmune disease are strongly linked to genetics. However, it is not the specific disease that is genetic but rather the risk of have any. So, if your mother had Lupus you are 3x more likely to develop some form of an autoimmune disease, but not necessarly Lupus. In my case (and since I am adopted I only have a limited knowledge) my grandmother had RA and my aunt has Lupus. I have a cousin with psoriasis only and I have PA. I hope this is helpful so when you look into your family history, look for any autoimmnue disease, not just PA. Heatehr > > > Hi Amy, > From what I've read, hereditary does play a part. However, for me, > I've got 6 brothers and sisters and I'm the only one with this > problem. I've got plenty of older nephews and nieces and cousins > and still, I'm the only one. I vaguely remember my grandmother > having a problem with her skin but this wasn't until she was 98 (and > she was still going up and down stairs)...so I don't count her. > > At first I was feeling a bit of the " why me " s. After going through > some of that and getting my first dose of Enbrel for $5 (w/out > insurance would have cost almost $1,300) I've moved into the " why > not me " phase. I think God chose me b/c he knew I had a supportive > husband and great insurance. I pray every day for those among us > who aren't as fortunate. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Amy, Where do they buy your medicine? I thought that Enbrel only ran about 25.00 for each dose kit. I am taking Enbrel 2x a week. I could never afford 1,300.00 a shot! WOW! Tom - in Anchorage > > > Hi Amy, > From what I've read, hereditary does play a part. However, for me, > I've got 6 brothers and sisters and I'm the only one with this > problem. I've got plenty of older nephews and nieces and cousins > and still, I'm the only one. I vaguely remember my grandmother > having a problem with her skin but this wasn't until she was 98 (and > she was still going up and down stairs)...so I don't count her. > > At first I was feeling a bit of the " why me " s. After going through > some of that and getting my first dose of Enbrel for $5 (w/out > insurance would have cost almost $1,300) I've moved into the " why > not me " phase. I think God chose me b/c he knew I had a supportive > husband and great insurance. I pray every day for those among us > who aren't as fortunate. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 --- Hi Tom, Enbrel is that expensive about $1300 -I think it's for a month supply. If you have insurance the $25 is probably the copay. God Bless, Sue in Michigan. In , " tr1rt " <tr1rt@y...> wrote: > > Amy, > > Where do they buy your medicine? I thought that Enbrel only ran about 25.00 for each > dose kit. I am taking Enbrel 2x a week. I could never afford 1,300.00 a shot! WOW! > > Tom - in Anchorage Quote Link to comment Share on other sites More sharing options...
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