Re: Re: PA heredity

[Guest guest]

In a message dated 10/19/2004 8:44:35 PM Eastern Standard Time,

heatherfitz@... writes:

I hope this is helpful so when you look into your

family history, look for any autoimmnue disease, not just PA.

Heatehr

Hi this has been my experience too...when I looked I found

autoimmune on 3 of my grandparents' sides, everything from psoriasis to lupus to

Crohn's to thyroid to pernicious anemia:-) Logically, the more sides you have

it

on, the more likely you are to get something. In my case the combination of

what I have is called Polyglandular Autoimmune Type III (pernicious anemia,

PA and P, hypothyroid and potentially celiac disease)...apparently having

autoimmune on so many sides of the family makes you more likely to have

multiple

diseases.

[Guest guest]

I can directly relate my own PA and Psoriasis to heredity. My maternal

grandfather had a horrendous case. PA Mutilans... I remember clearly his hands

being knots of flesh and bone. His middle finger and ring finger bent at the

knuckles in opposing directions and frozen in place. Obviously, the medicine we

have now is helping to prevent this from happening to me- but I do still fear it

and carefully watch my own hands. And to ad to my genetic jackpot, my father

always had what I would call a moderate case of psoriasis. So, as for heredity,

I would say I have pretty solid evidence- so much so that Wake Forest University

is studying the genetics involved and my old doctor- the professor of

rheumetology at the Univ of SC Medical School sent my samples and arranged for

my mother and father to have samples sent to WFU also.

-L

[Guest guest]

In a message dated 10/19/2004 8:44:39 PM Eastern Standard Time,

heatherfitz@... writes:

I have a cousin with psoriasis only

and I have PA. I hope this is helpful so when you look into your

family history, look for any autoimmnue disease, not just PA.

I have a cousin on my father's side with P. My father must have had PA but

was never diagnosed and I was not familiar with it at the time. He was

always in constant pain. I used to yell at him because he took Percocet every

day and I used to accuse him of not moving around enough. He is gone 3 1/2

years now and I wish I could tell him how sorry I am. I have had P for many

years and slight joint pain but since his death is when I really started to

flare. Now I am him. Can't move too much and take Vicodin. How ironic!!!!

Janet

[Guest guest]

Tom -

For people without insurance Enbrel runs $1300 for a months supply (I think

that's the going rate right now). Costs me $50 per 8 shots on Blue Cross Blue

Shield.

Some really fortunate people out there never have to find out the real price

of drugs!

TIffany

In a message dated 10/20/2004 9:04:20 PM Central Daylight Time,

tr1rt@... writes:

Amy,

Where do they buy your medicine? I thought that Enbrel only ran about 25.00

for each

dose kit. I am taking Enbrel 2x a week. I could never afford 1,300.00 a

shot! WOW!

Tom - in Anchorage

[Guest guest]

Yep, auto-immuine diseases run in my immediate family, beginning at lesat with

my fraternal grandmother and father ~ which passed on to my father (who has P

and PA), my sister (asthma and a strange blood disorder), my twin brother (mild

asthma and P) and my other sister (P, just starting)... I'm the only one on

biologics though..

Anyway, it's always fun discussing whose skin, joints or breathing is worse each

week...

(idaho)