Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 , Hi! My son and I both use Betamethasone Dipropionate Lotion 0.05% (prescription) and it works great. It is a clear liquid (in a squeeze bottle) alcohol based so you can put it on wet or dry hair and you cannot even tell you have it in...when the hair dries (if wet). We also use Selsun (Green bottle) sorry can't remember the name. Actually we haven't had to use Selsun since we have been using the above RX. The pharmacist has tried to give us the lotion (cream) in place of the squeeze bottle before so be sure when you pick it up they have given you the correct RX (it's happened more than once) and they sometimes have had to order it but it only takes a day or so to get it in. Good Luck. P in the scalp/hair is so annoying! (Va.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 In a message dated 1/5/04 3:35:51 PM Eastern Standard Time, <<Does anyone have tips or remedies that they find useful for treating the scalp. Thanks>> , Try 's Tea Tree shampoo. It is great! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Sorry , short of shaving your head and doing PUVA treatments, TGel and keeping my scalp really clean and dry is the only thing I have ever found that works, except MTX. I was nearly free of itching while on MTX. I have very thick coarse red hair and when I get sweaty (which is often these days thanks to the prednisone induced hot flashes) I know the itch will follow. I try to stay as cool as possible all the time. There are some prescription things for scalps you might want to try. I think Dovonex is one but it made my scalp feel greasy and increased the heated up feeling. I wish you luck......Cheri :-)) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 , What I use is Luxiq foam. It must be prescribed by your doctor but it works great for me. Not sure of the cost, if you have insurance then it should not be a problem. It is basicaly like a moose foam that you just spread on your scalp. I usually only use it on flare ups and after a few days it goes away. Give it a try. Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 I have to step in and beg to differ here. There is one more thing that works just as good as PUVA or MTX. Soriatane. It has cleared 3/4th of my scalp!!!!! LeAnn Cayer & Furbrats Blossom & Meriko Heart Bandits American Eskimo Dog Rescue Railroad Coordinator www.heartbandits.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 " prednisone induced hot flashes " Cheri hi, I did a ten-day tapering dose of prednisone about a month ago and still am experiencing damn hot flashes that I've never had before in my life! Is that what caused it? Does it ever go away? I find it rather bothersome although I feel warmer than usual in our near zero temps :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 HI - Now, I don't have p, just the pa, but I have a *very* scaly scalp and Neutrogena T-Gel shampoo has been a life saver. It is coal tar based, but, in my opinion, not horrible smelling, and if you use a nice- smelling conditioner afterwards, you can't smell it on your hair. I am kinda weird, I like the slight medicinal smell of it. I have been using T-Gel for about 6 years now and I have had great success with it--I can wear black again! Sam's Club and Costco carry the big bottles of this now, and you can also find the jumbo size at Target. They recommend using it only every other day. I hope this works for you. T-Gel comes in Extra Strength too, but not in the jumbo bottle size. -julie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Thanks everyone for your tips I'll give them a whirl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 I have tried may different shampoos. My best results are obtained by rubbing a few drops of T-Gel or MG217(Walgreens) in at night on the affected areas and also rub in Dovonex so I end up with this mixture on my scalp overnight. I wash it out in the AM. I use nothing during the day. > Hi, > > Does anyone have tips or remedies that they find useful for treating > the scalp. i hate that awful tar shampoo and refuse to use it. I > don't suffer very badly but I have recently suffered a flare up and > my scalp is very itchy at the moment. > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Dear , Against the itch, nothing works better than tar, in any form. Sure, tar shampoos smell... and tar ointments smell even worse! But you can avoid tar. I have gotten good results with calcipotriol (or calcipotriene, depending on country...). It is sold with the brand name Daivonex (or Dovonex, again depending on country!). Be sure to get the scalp lotion, because it also comes as ointment for other parts of the body. Apply twice daily, lightly, using the application nozzle of the little bottle. I apply it only to affected areas of the scalp, and try to use as little as possible, because it's quite expensive (but orders of magnitude less than biologic treatments!!!). The stuff comes with an instructions leaflet, stating maximum doses, and so. The amount I need is about one tenth of the maximum dosage, and in this amounts it's basically free of secondary effects, a welcome feature. Be patient. Calcipotriol starts working after about 2 weeks, and reaches full effect only after about one month. > Does anyone have tips or remedies that they find useful for treating > the scalp. NEVER, absolutely never, scrape the lesions! That makes them flare more than anything! If you don't use a tar shampoo, use a neutral one, as free as possible from scenting substances. Should I add the usual stuff about consulting your dermatologist? I guess we can obviate that recommendation by now! Everyone should know that that's the official, correct, legal, recommended, politically correct thing to do! :-) Good luck! Manfred (with scalp psoriasis for 12 years - and still alive!) -------------------------- Visit my hobby homepage! http://www.qsl.net/xq2fod -------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Jane, this is a first for me too. i had a hystorectomy and tapered off hormone replacement therapy and never had a single hot flash but the prednisone really stirs them up. I get so sweaty all over and it happens instantly! My hair is thick and feels like a soggy mop when the sweat hits. If I stick to 10 mg I'm okay, minor melt downs, but some days I am so stiff that I take 20 mg and then the hot flashes are horrible. My new doc suggested Effexor as a new approach to dealing with the hot flashes but not only did it have very little effect it changed my personality so much that I will not take it again, even if I melt down into a big puddle. I hope yours go away soon. Cheri :-)) " prednisone induced hot flashes " Cheri hi, I did a ten-day tapering dose of prednisone about a month ago and still am experiencing damn hot flashes that I've never had before in my life! Is that what caused it? Does it ever go away? I find it rather bothersome although I feel warmer than usual in our near zero temps :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Cheri, I had a hysterectomy in Sept 01 but they never suggested any hormone replacement therapy. Is that something that would stop the annoying fire that burns within me? (My fiance can't comprehend how I could be burning up when my skin feels like ice) Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Jane, I had hormone replacement therapy because they took my ovaries, if you still have one or both of yours it may be that you are beginning menopause but I would blame the prednisone if it started when you began to take it. Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Cheri, it had to have been the prednisone, I just hope it goes away. I still have ovaries and think(!) I'm too young for menopause. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Cheri, I have had psorisis of the scalp for about 35 years. No other problems. Then when I had a complete hysterectomy (dr took my ovaries out) & put me on estrogen. Because my mother had breast cancer, I went off the estrogen and that's when all heck broke loose. I began having major flushes all the time with sweating! Not sleeping well and then the leg stiffness began. Now pain in knee and hard to straiten the knees after sitting. Also at that same time began having eye problems, watering eyes, then red eyeballs, etc. I am now putting eye drops to moisture my eyes due to what I'm told is blepharitis. Did you have any of these problems or are you still on hormones? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Have you tried enbrel for the PA? I had a few patches on my head and my nails and it completely cleared my head and made my nails so much better. Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 , My mom had breast cancer too and that is when I started thinking about quitting the HRT. I didn't have a single hot flash since quitting estradial in June but as soon as I started taking prednisone in November, wham! it hit like a ton of bricks. I do suffer from heat though, but it is different than the hot flashes. I am going to explore Erythromelalgia as a possible cause. It seems that all my life I have had scalp involvment but by comparison to a lot of the contributors on this site my P is pretty mild. I have more spots now but not too bad........hands, feet, nails, under one breast, top of the crack of my butt and one small spot on my hip. My journey into PA began with a really bad fall 2 1/2 years ago. My journey with autoimmune disease, in particular allergies, began about 10 years ago after a 5 month bout with mononucleosis. So I don't know how we compare. I've just about given up on trying to figure out which came first, the chicken or the egg. I try not to blame everything on PA but it is difficult to separate symptoms because it all seems to come back to autoimmunie disease. Clear as muc????? Sorry, I feel like I am ranbling. Cheri :-)) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Thanks much Cheri, I am new to this group and appreciate your help. When I went off hormones, that when the PA began in my body. Actually it may even have been after the hysterectomy, hard to tell but the estrogen may have subdued it. Again, thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 I had a hysterectomy several years ago and that is when my PA seemed to really worsen. I am on HRT and wonder if this is making the PA worse. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Betamethasone Valerate lotion USP, 0.1% works for mine. It is a liquid in a bottle with an eye dropper top. I tried all the " shampoos " and none worked. Tom > Hi, > > Does anyone have tips or remedies that they find useful for treating > the scalp. i hate that awful tar shampoo and refuse to use it. I > don't suffer very badly but I have recently suffered a flare up and > my scalp is very itchy at the moment. > > Thanks > > Quote Link to comment Share on other sites More sharing options...
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