Guest guest Posted February 5, 2003 Report Share Posted February 5, 2003 Well I found out why I am getting a CT scan. (thanks for the replies). The x-ray technicians are seeing something in my left knee that is not PA related and is nothing to worry about...(yeah right) Anyways I have been going downhill in a bad way with my PA recently. I told my rheumy on Tuesday that I hurt bad. I really wanted to start a DMARD because I am young(22), but he is a older rhuemy and is very traditional in arthritis treatments. Start off small and go bigger. I told him my histroy... Celebrex --- worked great for a year, then stopped Vioxx (50mg)--- worked great for half a year, then stopped His next step is to put me on Volturen.... I have never heard of this drug??! Anyways he said it is a older drug and may work. I have a 6 week checkup with the same doctor. If the Volturen doesn't work he will put me on MTX. Shane " The Worried " ---------------- Moderator 2 cents: I was on Celebrex until I ended up going to the Emergency room because of upper respiratory problems due to the Celebrex. Tried Vioxx for a brief spell and it wasn't working. Went on Voltaren, actually Diclofenac is the generic and it has worked quite well for a whiile now. Good luck, PatB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2003 Report Share Posted February 5, 2003 Hi Shane, The Voltaren/Diclofenac is a NSAID. There are several. Some work for some folks, while others work better for some. Try as many as you want until or if you find one that works for you. Preventing damage to your joints should be a concern. If you currently have no joint damage, try to keep it that way (NSAID's will not necessarily prevent joint damage). I am 42, had no joint damage, tried 5 or 6 NSAIDS (including Diclofenac, none relieved my pain or reduced swelling. So now i have been on MTX for about 10 months. For me, 10mg a week means that I have no pain,no swelling. NO SIDE EFFECTS. Many others, do experience side effects. It seems to be all trial & error and can be frustrating. Good Luck. Stay Well, > > His next step is to put me on Volturen.... > I have never heard of this drug??! Anyways he said it is a older drug > and may work. I have a 6 week checkup with the same doctor. If the > Volturen doesn't work he will put me on MTX. > > > > Shane " The Worried " > ---------------- > Moderator 2 cents: I was on Celebrex until I ended up going to the Emergency room because of upper respiratory problems due to the Celebrex. Tried Vioxx for a brief spell and it wasn't working. Went on Voltaren, actually Diclofenac is the generic and it has worked quite well for a whiile now. Good luck, PatB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 In a message dated 2/6/2003 9:30:07 AM Eastern Standard Time, bevnsam@... writes: > . I > was on Mobicox with Tylenol 3 and Percocet for pain. > This has been changed to Bextra 20 mg and Oxycodin has > been added nightly to help with pain control. > In my area, doctors are not too quick to prescribe percocet and oxycodin. I need my Vicodin ES almost every night to sleep for the pain and my PCP is not too thrilled to give it out. Do most rheumy's prescribe it without a problem? I am going to ask him for it. I was just diagnosed several months ago and lived with the pain for years until now when it has gotten much worse. He is a new doctor. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Sam, Are you on any DMARDS? My toes are a problem for me too., but not as bad as yours yet. Does your Dr. not think a DMARD is necessary now? In a message dated 2/6/03 9:30:07 AM Eastern Standard Time, bevnsam@... writes: > The outcome was that the PA has caused significant > changes in my foot, especially my 2nd and 3rd toes > separating causing severe pain. Also, my right knee > is now involved - this used to be my " good " knee. I > was on Mobicox with Tylenol 3 and Percocet for pain. > This has been changed to Bextra 20 mg and Oxycodin has > been added nightly to help with pain control. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 what'd the doc say about the toes? I can't decide if I wanna go ahead and make an apt with a podiatrist as well Re: [ ] Back From The Rheumy > I, too, am just back from an appointment with my > rheumy. This was an " unscheduled " appointment as I was > having a great deal of trouble with my right foot and > wanted her opinion. > > The outcome was that the PA has caused significant > changes in my foot, especially my 2nd and 3rd toes > separating causing severe pain. Also, my right knee > is now involved - this used to be my " good " knee. I > was on Mobicox with Tylenol 3 and Percocet for pain. > This has been changed to Bextra 20 mg and Oxycodin has > been added nightly to help with pain control. > > I am SOOOOO tired of this disease and everything that > goes with it! I've decided to push myself right now > and fight back against the PA - probably not a very > bright thing to do, but I refuse to give in to it. > > Blessings, > > > Sam > > --- " shane_k_helm <shelm@...> " > <shelm@...> wrote: > --------------------------------- > Well I found out why I am getting a CT scan. > (thanks for the replies). > > The x-ray technicians are seeing something in my left > knee that is > not PA related and is nothing to worry about...(yeah > right) > > Anyways I have been going downhill in a bad way with > my PA recently. > I told my rheumy on Tuesday that I hurt bad. I really > wanted to start > a DMARD because I am young(22), but he is a older > rhuemy and is very > traditional in arthritis treatments. Start off small > and go bigger. > > I told him my histroy... > Celebrex --- worked great for a year, then stopped > Vioxx (50mg)--- worked great for half a year, then > stopped > > His next step is to put me on Volturen.... > I have never heard of this drug??! Anyways he said it > is a older drug > and may work. I have a 6 week checkup with the same > doctor. If the > Volturen doesn't work he will put me on MTX. > > > > Shane " The Worried " > ---------------- > Moderator 2 cents: I was on Celebrex until I ended up > going to the Emergency room because of upper > respiratory problems due to the Celebrex. Tried Vioxx > for a brief spell and it wasn't working. Went on > Voltaren, actually Diclofenac is the generic and it > has worked quite well for a whiile now. Good luck, > PatB > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 , She suggested that I get new orthotics that would raise the ball of my foot and push the toes together and, hopefully, ease the pain. I haven't looked into that yet as I want to wait until this flare has settled down a bit, but I plan to do this as soon as I can. Sam --- Boyd <celticangyl@...> wrote: --------------------------------- what'd the doc say about the toes? I can't decide if I wanna go ahead and make an apt with a podiatrist as well Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 I'm very blessed to have a rheumy who's #1 concern is pain control. Until I started with this doctor, it was difficult for me to get anything, even Tylenol 3. There is a huge concern about addiction, when the real concern should be pain management. Sam ----------------- Moderator note: Rheumys tend to have to write more pain meds scripts and the amount brings them under the scrutiny of the DEA. I get my pain meds from my local doctor who doesn't write as many pain meds scripts which means the Rheumy has fewer to write. Patb --- fam24@... wrote: --------------------------------- In a message dated 2/6/2003 9:30:07 AM Eastern Standard Time, bevnsam@... writes: > . I > was on Mobicox with Tylenol 3 and Percocet for pain. > This has been changed to Bextra 20 mg and Oxycodin has > been added nightly to help with pain control. > In my area, doctors are not too quick to prescribe percocet and oxycodin. I need my Vicodin ES almost every night to sleep for the pain and my PCP is not too thrilled to give it out. Do most rheumy's prescribe it without a problem? I am going to ask him for it. I was just diagnosed several months ago and lived with the pain for years until now when it has gotten much worse. He is a new doctor. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 , I've been trying to postpone starting MTX - I actually have the prescription filled already. Bextra is a last resort. If it doesn't work, I have no option but to start MTX. I've tried all the usuals - Chloroquine, Gold, etc - with little or no success. I'm so fearful of the side effects with MTX, which is why I've put off starting it before now. Sam --- pookiegut@... wrote: --------------------------------- Sam, Are you on any DMARDS? My toes are a problem for me too., but not as bad as yours yet. Does your Dr. not think a DMARD is necessary now? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 My podiatrist has been more help than my rhuemy. He can always make me more comfortable. Ks Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Sam, I finally started the MTX and at first the side effects were horrible...I was so tired. But after being on it for three weeks I feel much better. I still hurt but the side effects aren't so bad since I listened to someone on the list who said take it at night ...it really did help with the side effects. Robin, Penny, Chance, Heidi, and Hope (Florida) http://www.geocities.com/goldens4life2000/index.html , I've been trying to postpone starting MTX - I actually have the prescription filled already. Bextra is a last resort. If it doesn't work, I have no option but to start MTX. I've tried all the usuals - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Sam, Bextra is solely an NSAID. It will help the inflammation, and maybe the pain, but does NOTHING to stop progression of the disease or to stop damage. Why do you have to go for MTX? Why can't you try Arava, Azulfidine, (there are others I can't think of right now). I know I keep pushing this, but if you want a good drug guide... a list going from easy on the body to hard on the body, go get the book " Strong Women and Men Beat Arthritis " by Dr. Miriam . She lists out all of your options from prescription drugs (with a list of side effects for each) to supplements (with of list of myths and fact of what works). This is where I learned that there are SO MANY other easier on the body drugs out there than MTX for me to try before going on that. Have you tried Enbrel Sam? It's a little scary, but people who don't have problems on it seem to do very well. When I get the chance I will get my book and e-mail you the whole list. In a message dated 2/7/2003 8:23:23 AM Eastern Standard Time, bevnsam@... writes: > I've been trying to postpone starting MTX - I actually > have the prescription filled already. Bextra is a > last resort. If it doesn't work, I have no option but > to start MTX. I've tried all the usuals - > Chloroquine, Gold, etc - with little or no success. > I'm so fearful of the side effects with MTX, which is > why I've put off starting it before now. > > Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 In a message dated 2/7/2003 1:50:41 PM Eastern Standard Time, costello@... writes: > My podiatrist has been more help than my rhuemy. He can always make me more > comfortable. > Ks Di That was my next step. Calling a podiatrist. My orthopedist told me to do that because I am walking funny due to the pain. I am definitely going to give it a try. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 are they orthodics that can be prescribed by the podiatrist? or I have to buy? This just interests me as I'm on my feet all day. Re: [ ] Back From The Rheumy > , > > She suggested that I get new orthotics that would > raise the ball of my foot and push the toes together > and, hopefully, ease the pain. I haven't looked into > that yet as I want to wait until this flare has > settled down a bit, but I plan to do this as soon as I > can. > > > Sam > > --- Boyd <celticangyl@...> wrote: > --------------------------------- > what'd the doc say about the toes? I can't decide if > I wanna go ahead and > make an apt with a podiatrist as well > > > Please visit our Psoriatic Arthritis Group's informational web page at: > http://www.wpunj.edu/pa/ -- created and edited by list member aka(raharris@...). > > In August 2001 list member Jack aka(Cornishpro@...) began to conduct extensive research which he publishes as the Psoriatic Arthritic Research Newsletter monthly in our emails and digest format. Many thanks to Jack. Back issues of the newsletter are stored on our PA webpage. > > Also remember that the list archives comprise a tremendous amount of information (Over two years of messages and answers).Feel free to browse them at your convenience. > > Let's hear from some of you lurkers out there! If you have a comment or question chances are there is a person who has been around a while who can help you out with an educated guess for an answer. If not we can at least steer you in the right direction with a good website to go to for the answers. > > Blessings and Peace, > > Atwood-Stack, Founder > Alan , Web & List Editor > Jack , Newsletter Editor > Pat Bias, List Editor > Ron Dotson, List Editor > and many others who help moderate (thank you!) > > > Quote Link to comment Share on other sites More sharing options...
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