Re: P, PA & Inflamatory Bowel Disease?

[Guest guest]

I have IBD, so my problem is different from yours.

The one thing I can think of for you to try, if you haven't yet, is to be

tested for celiac disease (gluten intolerance). There is a blood test to rule it

in or out. As for your bladder, there is an inflammatory disease called

" interstitial cystitis " . I have that too. It can be treated, but you need to

see a urologist who specializes in it.

Good luck!

claire

[Guest guest]

> Hi everyone!

>

> Someone last week posted something about P and IBS

> (Irratable/Inflamatory Bowel Disease/Syndrome).....

> I've done all the diets and changes recommended by doctors and

other

> to help IBS and nothing helps it. Stress or vacations don't really

> change much either.

>

> Anyway, just wondering if some can direct me in the right direction

> with with.

>

> Thanks!

>

Hi ,

Just a thought, but recently I heard two talk show guests (one a GP

who was tired of " bandaid medicine " so became a nutritionist and the

other a naturopath). Both spoke of a syndrome called " Leaky Gut

Syndrome " . They both said that auto-immune disorders (PA, RA, lupus,

polymyalgia rheumatica, Crohn's Disease, to name a few) were caused

by this (in their opinion). This interested me a great deal because

one of my chief beefs about western medicine and our disease

specifically, is that all doctors deal with are the symptoms,

stopping the progression etc. etc. WHAT ABOUT WHAT CAUSED THE PA AND

PS IN THE FIRST PLACE??? Why do we all have this??

I digressed. In layman terms, as I understand it, the nuts and bolts

of leaky gut syndrome is that there are good flora and bad flora in

our gut. Some contributing factors that can cause this disorder are

food sensitivities, taking antibiotics, etc. When the bad flora

takes over the gut/intestines become porous and large protein

molecules leak through into the rest of the body instead of being

processed through the gut normally (however the digestive system

works). When the body is confronted with these large protein

molecules they see them as enemies and antibodies are formed to fight

back. Supposedly autoimmune disorders are then born. They can take

one (or more) of many forms, such as Crohn's, RA, PA, psoriasis,

ezema etc. IBS symptoms are generally present if someone has " leaky

gut syndrome " , such as bloating, gas, belching, to name a few. My

history is that during my teens, I was in such a growth spurt my

resistence was lowered and I continally got bronchitis. I was put on

one antibiotic after another and lost months of school at a time - I

also developed many allergies to antibiotics at this time and there

are few that I can now take when necessary. About 10 years later my

psoriasis started. Shortly after that fibromyalgia (another auto-

immune disorder) and in the last 2 or so years, PA. I saw a

naturopath a few months ago and she confirmed what I have written

above (though who knows if this is in left field or not - I don't).

I was vega-tested for food sensitivities and the list was daunting.

I am Blood type A (to refer to a few other posts today) and Eating

for your Type fits right into this as well. I should be mostly a

vegetarian and keep right away from red meats. I also feel much

better when I watch what I eat and follow this food regime.

Some of the natural supplements I am now taking are probiotics (in a

smoothy with fresh fruit - berries, and rice-based protein powder

with Omega Flax oil) - and I have more energy if I drink this every

morning by the way, as well as Moducare (plant sterols and sterolins)

and bromelein and cucurmin (from pineapple and turmeric). Taking the

moducare and b & c is as effective for me as an anti-inflammatory as

ibuprofen. As well, besides a very good multi-vitamin (no binders)

my naturopath has put me on calcium and magnesium citrate (not

carbonate). Taking 2 of these supplements a half-hour before going

to bed really helps you fall to sleep. (A co-worker of mine also

takes them and has said the same).

Sorry for being so long winded, however I was wondering if this may

be your problem, . If you seached for " Leaky Gut Syndrome " on

the net there is a great deal of explanatory information you can

find. Everyone else (???) - your thoughts re leaky gut and

natural supplements?

[Guest guest]

--->

> Someone last week posted something about P and IBS

> (Irratable/Inflamatory Bowel Disease/Syndrome). I realize that IBS

> and IBD are two separate conditions and I have a few questions

>

Hi ,

I posted a message that the Rheum I saw at Mayo told me there is a

type of colitis that is seen with PA sometimes. He didn't give me a

special name for it but said it was considered a variant. I believe

they are both autoimmune illnesses (the inflammation in the bowel

similar to the inflammation of our P and PA) He is the person who

told me that a biopsy is needed to see the inflammation. Remicade,

one of the newer biologics was developed for Krohn's disease which is

a type of colitis. He put me on Remicade to hopefully help both

diseases. I also felt after reading that IBS didn;'t seem to fit the

symptoms I was having. I have mostly pain. Sometimes I think they

use the term IBS as a catchall when they can't find anything else

wrong.

Hope this helps,

Marti

[Guest guest]

In a message dated 7/9/03 4:37:38 PM Central Daylight Time, gsitcon@...

writes:

> bowel symptoms (mostly lower/large intestine

> stuff such as tenderness, bloating, distentions, lost of gas where

> it hurts to press on my abdomen, lost of burping.

Hi Two things come to mind that you didnt include in your list of

things studied as a cause for abdominal distress; first is stimulation of the

vagus nerve which could be a mechanical pressure on the nerve most often occurs

in the upper chest, and the second is anxiety.

The first thing I would look at in anyone with abdominal complaints is

yeast, candida albicans. I'm sure that has been ruled out and that you continue

to

use dietary measures to prevent that possibility?

You mentioned a urinary problem concurrent with the bowel problem, could

you describe that? I would think that with the blood tests and colonoscopies

that a serious fungal infection should have been evident but to have urinary

and bowel problems at the same time can be suggestive of yeast infection. Orin

[Guest guest]

missionblondie@... writes:

> Sorry for being so long winded, however I was wondering if this may

> be your problem, . If you seached for " Leaky Gut Syndrome " on

> the net there is a great deal of explanatory information you can

> find. Everyone else (???) - your thoughts re leaky gut and

> natural supplements?

, , et all,

I am not sure if IBS is linked to PA or not. To tell the truth I haven't

done much research to find out if it is or not. My thought is (in my case) it

is

because I am on MTX which mimics IBS. Since my surgery in May I have been

normal since I have been off of the MTX. I start back all meds in November

(MTX, Enbrel, Bextra, Folic Acid) I cannot wait! My PA is at it worst ever and

my

Neuro still insists that I have to remain off of all my OA meds for 6 months.

It is getting harder by the day. All research I have done has not indicated

that any of these drugs would impede the fusion or the titanium rods from

taking. My Rheumy says to follow the neuro's orders even though he cannot give

me any good reason why I should be off of these meds and he is the only Rheumy

for about 70 miles or so. Sorry, I kind of rambled on off of the IBS topic.

Hope the info on MTX helps!

[Guest guest]

In a message dated 7/10/03 6:53:47 AM Eastern Daylight Time,

missionblondie@... writes:

<< Sorry for being so long winded, however I was wondering if this may

be your problem, . If you seached for " Leaky Gut Syndrome " on

the net there is a great deal of explanatory information you can

find. Everyone else (???) - your thoughts re leaky gut and

natural supplements?

>>

Hi ,

Dr. Pagano's book is all about Leaky Gut Syndrome. This theory on PA and PS

has been out a while. Have you read his book?

[Guest guest]

> Hi ,

> Dr. Pagano's book is all about Leaky Gut Syndrome. This theory on

> PA and PS has been out a while. Have you read his book?

Hi ,

I have never heard of Dr. Pagano - I would love to read the book - do

you know the title?

[Guest guest]

At 12:37 AM 7/10/2003 +0000, wrote:

> If you seached for " Leaky Gut Syndrome " on

>the net there is a great deal of explanatory information you can

>find. Everyone else (???) - your thoughts re leaky gut and

>natural supplements?

A search for " intestinal permeability " should bring up more of the science

than the colloquial " leaky gut "

Here's a few references:

1) H Mielants et al. " Intestinal Mucus Permeability in Inflammatory

Rheumatic Diseases: Role of Disease. " Journal of Rheumatology, 81:3 (1991),

394-400.

2) R et al. " Increased Intestinal Permeability in Patients with

Rheumatoid Arthritis: A side effect of oral NSAID therapy? " British Journal

of Rheumatology 26 (1987), 103-7.

3) H Mielants. " Reflections on the Link between Intestinal Inflammatory

Joint Disease " Journal of Rheumatology 8:5 (1990), 523-524

I haven't read these papers or even the abstracts, there they were in the

book " Arthritis: An alternative medicine definitive guide " , by Zampieron,

Kamhi, Goldberg, 1997, AlternativeMedicine.com, inc. as references for a

chapter on intestinal permeability.

Supplements for IBD:

------------------------------

Probiotics (in particular the Lactobacilli family of GG, acidophilus, and

salivarius), help with IBD. Source: N. Fedorak, MD (University of

Alberta), research presented at a symposium during Digestive Disease Week 2000.

Also, there are quite a few studies showing that the amino acid glutamate

plays a role in intestinal functioning, and supplementation may be beneficial.

Elfstrom

--

Elfstrom email( david@... web( http://elfstrom.com

[Guest guest]

missionblondie@... writes:

<< Hi ,

I have never heard of Dr. Pagano - I would love to read the book - do

you know the title? >>

Hmmm... I have it at home. I think it is called The Natural Healing of

Psoriasis. It is very interesting, and it is all based on leaky gut syndrome. It

has been around for YEARS.... there are some GREAT illustrations in there and

pics of people it has worked for. It takes a LOT of hard work.

[Guest guest]

Thanks so much for your input . I will definitely search out

the references. Re Probiotics, my naturopath prescribed HMF Powder

(Human Microflora) made by Genestra Brands. (I would imagine they

could be obtained in the US). Contane Lactobacillus acidophilus,

Lactobacillus bifidu and fructo-oligosaccharides.

[Guest guest]

In a message dated 7/10/2003 7:10:32 AM Eastern Daylight Time, orinok@...

writes:

> Hi Two things come to mind that you didnt include in your list of

> things studied as a cause for abdominal distress; first is stimulation of

> the

> vagus nerve which could be a mechanical pressure on the nerve most often

> occurs

> in the upper chest, and the second is anxiety.

> The first thing I would look at in anyone with abdominal complaints is

> yeast, candida albicans. I'm sure that has been ruled out and that you

> continue to

> use dietary measures to prevent that possibility?

> You mentioned a urinary problem concurrent with the bowel problem, could

> you describe that?

Hi ,

Several years ago I was having bowel problems and it also effected my

bladder. I ended up eventually in the hospital with diverticulitis which was so

inflamed that it was pressing on my bladder. It was not a pleasant experience.

My suggestion is to see a gastroenterologist and make sure you also get a

colonoscopy to see if there is anything wrong.

Janet