Re: Digest Number 443

[Guest guest]

Sue, Thanks for the info on the study drug. I am just searching for anything

to get off of pred.

Ginger AIH

[Guest guest]

,

I read a case study yesterday on several women who went into remission during

pregnancy. That would be wonderful!

Ginger AIH

[Guest guest]

Geri,

Every time I read your posts, I identify with symptoms that I am going thru.

This disease is truly unpredictable! Things change from one day to the next.

I still am smoking. With every thing else that I have given up this year, I

just can't seem to give up that one. I get a lecture from someone about it

almost daily.

My itching had been sporadic until the past couple of days and now it is

driving me nuts!! I want to scream. I see my primary doc on Thursday. I hope

she can give me something to stop it.

Take care, Ginger AIH

[Guest guest]

Ginger,

Since we are all coming clean - I too am a smoker! After I gave up alcohol I

refused to give up my only other vise! Of course then after a few years they

decided coffee was a vise! Oh well, we gotta have some vises to be human!

Hugs,

[Guest guest]

Geri,

Claritin is a pill for sinus allergies only as far as I know..

[Guest guest]

Ginger, I too have not given up smoking, though I have to next week or my

parents (I'm 50 years old!) will kill me! And don't people just love to

lecture? (in a sanctimonious way, or course!)

Honey, I am the QUEEN of itching and anti-itch endeavors, pills, potions,

lotions, ointments, creams, powders...if you want any more info, just let me

know! Good luck on Thursday.

P.S. To all, once again, Actigall did nothing to relieve my itching.

KayK in Austin, AIH/PBC

[Guest guest]

Dear Ginger,

If your AIH parallels mine, you apparently have " simple " AIH, which

blessedly means no PBC, RA, Lupus or some of the other frightening partner

diseases to AIH. That's the plus. On the downside, the symptoms I

describe about how I felt before I was diagnosed are symptoms that should

have led to an earlier discovery that I was going into end-stage liver

disease. The doctor who did my biopsy and originally diagnosed PBC

commented (more to himself), " now, if we could only figure out why your

cirrhosis developed so rapidly. " Since NO doctor had ever spotted or even

tested for liver disease, he couldn't blame himself. The first time he

ever saw me was in the OR. My biopsy showed stage IV (scale I to IV)

cirrhosis and stage 3 (scale 3-4) inflammation.

I only mention this because you are having such a terrible problem with

itching. Mine was worst pre-diagnosis, pre-medication, and it's a symptom

of serious liver disease, plain and simple. I am jumping to a conclusion

here because as the inflammation came under control and my bile ducts were

cleared through whatever procedure they did, the itching rapidly stopped.

This would be funny if it weren't so scary, but when I complained about

itching to the new Hepatologist who would become my regular AIH treating

doctor, he said, " yes, I've heard that people with liver disease have a

problem with itching.

He offered no solution, nothing to relieve it. I knew so little then, I

had no idea that I could have had at least a small bit of relief.

So, where do you stand right now, medically? Forgive me for losing track

but I'm so backlogged on re-reading and commenting on posts that I'm losing

track. Are you seeing a Hepatologist who has experienced treating people

with autoimmune liver diseases? Have you had a biopsy, and if so, what was

the conclusion? Hope I'm not making you repeat yourself and I probably am.

IMO, there's no such thing as " just " anything with this disease. " Just "

fatty liver or " just " fibrosis or " just " inflammation, means that the

process has started and it will most likely relentlessly progress to

cirrhosis and worse if not treated. From my point of view, you don't run

around putting out fires, you do fire prevention. The idea, I hope, is to

keep cirrhosis from developing and that requires medication. If it's an

autoimmune condition, that would consist of immunosuppressive drugs,

whether Imuran, Prednisone or both.

If you're having extreme symptoms and it hasn't set off a big alarm with

your doctor, it's time to move on and don't let him or her brush you off

with platitudes and condescension. Not easy to get answers, I know. I

dealt for more than a year with two Hepatologists who already were on their

way out the second they stepped into the exam room. A real joke. I now

see that as total medical irresponsibility as well as unforgivable

arrogance and lack of compassion.

I'm not in a hurry to quit smoking. I really don't give a hoot about

" social " pressures. It's a calculated risk I choose to take. I don't blow

smoke in babies faces or light up when I'm in the same room with an

asthmatic or person with emphysema. My mother also smoked and she used to

say, " it's a dirty habit, but it's MY dirty habit. " I don't demand that

anti-smokers stay in a room with me nor do I have any interest in sharing

their space. I try to be considerate, but I expect the consideration of

courtesy in return, i.e., no proselytizing. I can understand my doctor

" preaching " . It's his obligation to do that and I'd worry about him if he

didn't. But, I probably won't quit and if I ever do, it will be my very

own decision, and will never happen under pressure! If I were dying and it

would make me live a few days longer to quit - well, guess what I'd

do? There are a lot of things I don't do that the " good " people in the

world do. I am never cruel, insulting, thoughtless or unkind to anyone, at

least knowingly. I respect the right to dignity that we all should

have. But now I'm ranting.

Several people in this group have ways of controlling the itching, but that

itch that comes from inside, I'm afraid, can't be controlled with lotions

or creams. The source has to be treated or eliminated. Rashes, however,

do seem to respond to topical treatment. You might ask your doctor about

Claritan? I wonder if it helps with itching? Or is it only for allergies?

Hope you feel better and the itching doesn't drive you up the wall.

Take care,

Geri

[Guest guest]

I have taken Claritin for my allergies I still take it it works .

Pa.

[Guest guest]

I also smoke but try hard to keep it at 7 a day. i could not wake up

without my morning coffee

Pa.

[Guest guest]

Re: My Court Case - An Update

The attorneys for the college want a second deposition from me and my

friend who have brought suit concerning stachybotrys contamination. Our

attorneys are claiming that we should only be deposed for what has happened

since the previous deposition last March. This case has been pending since

1997. We are due to go to trial at the end of July.

At a mediation conference in January, we could not reach agreement. While

I can't go into details because of confidentiality, it seems evident that the

college views our case as a paltry annoyance, something like a little gnat

buzzing around, a tempest in a teapot. Since this is a state college, we are

only able to sue to a cap of $100,000. Even if we win, monetary damages will

not be sufficient to change the attitudes of college officials concerning

building maintenance.

It took three years of continual complaints and the clout of a university

environmental specialist to get the college to call in an air quality expert.

During those three years and seven previous years, unbeknownst to me, I was

working in a small office that had stachybotrys, aspergillius, and assorted

other substances growing more than halfway up the sides of two outside walls.

There was a wallpaper tear with " black stuff " peeking out just twelve

inches from my computer chair. Ants and termites visited my office, too.

When finally sampled, the level of stachy was found to be 35 million cfu/gm.

An airborne sample was not taken. I realize there is expert disagreement

concerning the validity of airborne sampling but still question why this step

was omitted.

This air-tight, brick building was quite beautiful (built in 1986) when I

began working there in 1987. A forensic architect stated in 1997 that

flashing had been incorrectly installed on the roof, allowing rain to seep

down behind bricks and form moisture pockets. In Florida, things are always

pretty humid, anyhow, and the wallpaper on my office walls was a thick

cellulose type: all in all, a perfect breeding ground for a toxic fungus

called stachybotrys. The air conditioning units were shut down on weekends

by the college to save energy, and the opening of windows was discouraged

during the week. Stachy was also found to be growing on one of the AC

system outtake pipes for the office suite.

I left this sick building almost two years ago. People who are still

working there continue to experience problems even though bleach remediation

was completed on an emergency basis in 1996 and ongoing air sampling is being

done.

As for me, I'll never be the same. I'm just trying to stay one step

ahead of the doctors. There are no winners here.

Joanne F.

[Guest guest]

-- good luck with unpacking, etc!

Debbie -- Congrats on the clean bill of health. BIG sigh of relief!!!!

Happy Labor Day to all!

Love Debbi mom to Logan (6) Eli (DS) and Milo (4 on Weds!!)

[Guest guest]

in one of the soap news letter libaries there's in struction how to make

powder puffs from fake fur like you get at walmart. the instructions seemed

simple to me but i have not tried to make one yet

Digest Number 443

>

>

[Guest guest]

in one of the soap news letter libaries there's in struction how to make

powder puffs from fake fur like you get at walmart. the instructions seemed

simple to me but i have not tried to make one yet

Digest Number 443

>

>

[Guest guest]

:

Just give me your address and I will let you know what time I'll be picking you

up.

Vickie

> > ------------------------------------------------------------------------

>

>

[Guest guest]

> Vickie - It looks like Mr. Frisky is going to come with me to the

northend meeting - so we will see you there. Thanks - Elma

[Guest guest]

Hello--

The below reminds me of a momentary experience I had around 20-25 years ago.

I had been doing a form of Transcendental Meditation, derived from a book,

for several months, and decided to hook myself up to a Radio Shack GSR

meter, which made a siren sound, higher meaning greater conductance, lower

meaning less. I had already learned to reduce the sound to a growl, then a

series of clicks, and then to turn it off, just by thinking of a lower

sound.

I strapped the Velcro attachment to my finger, and began to meditate. After

a very short time, I suddenly saw what I can only describe as " the most

brilliant flash of black I can imagine. " At the same time, the GSR meter

went up to a high-pitched squeal. This lasted about 1 second.

I assumed the squealing meant either that a burst of perspiration had exited

my finger, or that a burst of electricity from my brain had reached my

finger.

Since that time, I have tried to make it happen again, without success. I

have always wondered what happened, and whether there could possibly be

anything beneficial in being able to reproduce it, or to know what it was.

Thanks,

Gene

*****

From: Dr, Rocatti,M.D.

Sent: 7/30/03 4:51:00 PM

Subject: Re: Peak Alpha frequency

I have been reviewing the mails about the issue: Peak Alpha Frecuecy (PAF).

I had also revised many workshops on Meditation I have done the last 3

years, with 15 students each.

The first day.Saturday. I used to hook up them in O1 O2, without feeed back

just to observe. We did 10 meditation of 30 minutes every day (with breaks

of 5 minutes between each Meditation)

The second day, I used AVS form 12 hz to 8 hz sñowing down in 30 minutes.

I asked the student to pay attention to the moment of the meditation when

they feel Better and more warm and relaxed.

The data I collected, reproduced and inverted U or Gauss Bell Shape, Where

the 50% of the students ( as population does) falls under the 10.05 HZ of

PAF. And the other where distributed Up and down the Alpha band.

So, my question is that many had the PAF in 8.5 HZ and had neither the

feeling nor the life of a person who has a " energy drain or tired brain "

and felt very good. Not only that, but looks very smart. Something that

dont fits with the " High IQ " of people of Higher Alpha PAF.

In the higher frecuency in the AVS part ot the entrainment, the lower PAF

students DON´T FEEL GOOD.

This was the same to the Higher PAF students. But inverse.

THey feel good and warm in the High Frecuency Spectrrum of Alpha , and

reject the lower band in the AVS part ot the entrainment.

Well thats what I have seen.

The last issue in that in the moment any of them produces the greatest

spindles in uV or Bursts of Alpha (the Eagle Shape in Brain Mirror) (that

is why I created the QDS, with the swithces. Originally to fallow this

progressive increasing " Alpha Burst momentum " From Occipital to

Frontal.) All moves to 10 HZ band to 10.05.

So I saw they have a every day PAF and the " Special Moment in Meditation "

PAF.

The funny, well not funny, but interesting issue, was that there I had the

student we called the " paranoid guy " . Remember the 12,05 Half Alpha and

half Lobeta , in CSA a half light blue hill and the other side was green.

In the TOP exactly joineed the 2 colors.He moved also to 10.05 HZ in "

Alpha Burst momentum " From Occipital to Frontal.)

[Guest guest]

Hi--

I'm not Pete, but if you are displaying the filtered frequencies, and on the

frequency drop down window click on " show frequency " you will find the

frequencies displayed at the end of the wave display. For some reason delta

and theta frequencies are not shown. Alpha tends to change slowly, such

that you can read it. The higher frequencies flicker quickly on 1.9A, and

seem to linger longer on 2.0.

Hope that is helpful. Pete may have more to say with higher expertise.

Thanks,

Gene

*****

From: " mtlindsey2002 " <mtlindsey@...>

Subject: Help with Finding Alpha

Hi Pete,

Would you mind explaining one more time how to use the Brainmaster

to " find " a persons alpha frequency?

Thanks,

[Guest guest]

Nope, you nailed it, Gene. Thanks.

VanDeusen

Practical Brain Training.

305/251-0337

pvdadp@...

Re: Digest Number 443

Hi--

I'm not Pete, but if you are displaying the filtered frequencies, and on the

frequency drop down window click on " show frequency " you will find the

frequencies displayed at the end of the wave display. For some reason delta

and theta frequencies are not shown. Alpha tends to change slowly, such

that you can read it. The higher frequencies flicker quickly on 1.9A, and

seem to linger longer on 2.0.

Hope that is helpful. Pete may have more to say with higher expertise.

Thanks,

Gene

[Guest guest]

Hi I was wondering if anyone new of a good RA dr. in Southern NJ? Any

help would be appreciated!!

________________________________________________________________

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[Guest guest]

Hi all, I want to thank those of you who wrote to me. I am still working on

figuring out how to do the real time chats so if you can be patient with me

I'll be back with you soon. I also want you all to know that your group and

the messages are a great source of information. I read more than I write so

I know that I am learning. Imagine going through the challenges without

each other. Scary. I just wanted to tell you that you help me just by

conversing and figuring things out. Thank you again.

we promise to persevere

bless you

anne, beau, and rickey

Digest Number 443

>

>

[Guest guest]

Hi

I just copied the low dose naltrexone.org site and went through the emails I felt that proved that ldn works! Also, if you go through http://aolsearch.aol.com/aol/search?encquery=267F07715351DB3596E12B2DBB221CF0BB8E8111665632CC & invocationType=keyword_rollover & ie=ISO-8859-1 and copy all the pertinent information.

Good Luck

Cabbie

[Guest guest]

Intesresting article re: sugar and cancer .....

http://www.mercola.com/article/sugar/sugar_cancer.htm. This article comes from

http://www.mercola.com, one of the Web's most visited and trusted health

information sites.

[Guest guest]

> wrote:

> I have a meter, that measures and detects sources from 5 kHz till 30 kHz

> en from 30 kHz till 150 kHz in the air.

> It has an antenna, or I may place another probe.

>

> Shivani asks:

What meter is this, ? How much does it cost?

wrote:

There is this Stetzerizer meter, that measures the HF overload on wall

sockets.

Shivani replies:

was saying that his meter is preferable, as it can measure here

and there, not just in the circuits. This is very nice, and I wish I had

one, but so far I cannot afford it. Meanwhile, if one does have the

Stetzerizer meter, and finds that there are damaging high frequencies in the

circuits

of a building, one can logically presume that electric fields in that building

will also contain the damaging frequencies. When Dave Stetzer checked our

home with his $4,000 German meter that reads frequencies in the air, etc. the

places he identified as dangerous were ones I had already found with a

sensitive electric field meter. By sensitive, I mean able to read down to 3, 4

or 5

volts per meter. Not the Trifield, which even the more sensitive model of

is not sensitive. If the needle of that even jiggles you have a field which

can cause an ES person trouble.

There are electric fields many places where there's no magnetic field at

all, so a good electric field meter is very useful, whereas a Gauss meter is

not.

>

> also wrote:

> I find a lot of sources that can hinder electrosensibles.

> Remarkably, I found strange signals on my telephone WITH cord, which we

> normally label harmless.

> Shivani replies:

The high frequencies of electrical pollution that enter your house via the

wiring, water pipes, etc. also travel on the phone lines. High frequency is

subject to the " skin effect " which means it easly flows to the outside of

wiring of any kind, and also onto many surfaces that would not ordinarily be

considered conductive. At our home this included hollow wooden doors and

rattan

furniture.

>

> wrote:

> My wife had trouble working on my PC, she could not phone for more than a

> few minutes, and she refused to eat at the nearby dinner table about 2

> meters away.

> I could only detect the signals by placing a contact antenna probe directly

> on the display of the phone.

> Shivani replies:

I had all these same problems. And our table was wood! But, all these

had electric fields that contained the damaging high frequencies. We came up

with solutions for all 3. I am sitting now at that wood table with my

laptop, which is connected to a phone line, and I am OK. A couple of years

ago

any one of these yielded an exposure that gave me immediate symptoms.

Regards,

Shivani

[Guest guest]

Hello Shivani,

on my website there is *het bitje* October 2004.

http://www.milieuziektes.nl/Pagina110.html

At page 15, this meter, the HAARP or VLF Detector, is shortly described.

It costs 440 Euro at www.priggen.com

You wrote:

There are electric fields many places where there's no magnetic field

at

> all, so a good electric field meter is very useful, whereas a Gauss meter

is

> not.

I am sorry, but I do not agree.

Everywhere when there is tension on the line, electrical fields exist.

When the current is flowing, additional magnetic fields exist.

In my opinion, magnetic fields are much more dangerous than electrical

fields.

Nevertheless, one should measure electrical fields, as well as magnetic

fields.

Mentioned are here the AC fields.

Do not forget the DC fields, which can be also harmfull.

And of course the electromagnetic fields, by which we mean the high

frequency fields.

Note, that the Stetzeriser meter as well as the HAARP Detector measure in a

region, where the low frequency goes into the high frequency.

Shivany, are you a writer of detective stories?

Your last remark:

> I had all these same problems. And our table was wood! But, all

these

> had electric fields that contained the damaging high frequencies. We

came up

> with solutions for all 3.

seems to keep the suspense, like on television, *see the episode next week!*

I think that many here would love to see *your solutions.*

Greetings,

Claessens

member Verband Baubiologie

www.milieuziektes.nl

www.milieuziektes.be

www.hetbitje.nl

checked by Norton Antivirus

Re: Digest Number 443

> > wrote:

> > I have a meter, that measures and detects sources from 5 kHz till 30

kHz

> > en from 30 kHz till 150 kHz in the air.

> > It has an antenna, or I may place another probe.

> >

> > Shivani asks:

> What meter is this, ? How much does it cost?

>

> wrote:

> There is this Stetzerizer meter, that measures the HF overload on wall

> sockets.

> Shivani replies:

> was saying that his meter is preferable, as it can measure

here

> and there, not just in the circuits. This is very nice, and I wish I

had

> one, but so far I cannot afford it. Meanwhile, if one does have the

> Stetzerizer meter, and finds that there are damaging high frequencies in

the circuits

> of a building, one can logically presume that electric fields in that

building

> will also contain the damaging frequencies. When Dave Stetzer checked

our

> home with his $4,000 German meter that reads frequencies in the air, etc.

the

> places he identified as dangerous were ones I had already found with a

> sensitive electric field meter. By sensitive, I mean able to read down

to 3, 4 or 5

> volts per meter. Not the Trifield, which even the more sensitive model

of

> is not sensitive. If the needle of that even jiggles you have a field

which

> can cause an ES person trouble.

> There are electric fields many places where there's no magnetic field

at

> all, so a good electric field meter is very useful, whereas a Gauss meter

is

> not.

>

> >

> > also wrote:

> > I find a lot of sources that can hinder electrosensibles.

> > Remarkably, I found strange signals on my telephone WITH cord, which we

> > normally label harmless.

> > Shivani replies:

> The high frequencies of electrical pollution that enter your house via the

> wiring, water pipes, etc. also travel on the phone lines. High

frequency is

> subject to the " skin effect " which means it easly flows to the outside of

> wiring of any kind, and also onto many surfaces that would not ordinarily

be

> considered conductive. At our home this included hollow wooden doors

and rattan

> furniture.

> >

> > wrote:

> > My wife had trouble working on my PC, she could not phone for more than

a

> > few minutes, and she refused to eat at the nearby dinner table about 2

> > meters away.

> > I could only detect the signals by placing a contact antenna probe

directly

> > on the display of the phone.

> > Shivani replies:

> I had all these same problems. And our table was wood! But, all

these

> had electric fields that contained the damaging high frequencies. We

came up

> with solutions for all 3. I am sitting now at that wood table with my

> laptop, which is connected to a phone line, and I am OK. A couple of

years ago

> any one of these yielded an exposure that gave me immediate symptoms.

>

> Regards,

> Shivani

>