Re: New member -SUP - quick question

[Guest guest]

-welcome Paint and Gabe!

Many docs say 25mg a week of MTX is a good limit but others go as

high as 40mg a week. I haven't read _Arthritis Today_ for several

years. I got frustrated becaue they didn't show people who actually

had severe damage as I do....the models all looked so beautiful and

perfect. I think they had some good stuff , though. I like

www.psoriasis.org.

They have good info and cover pa. Maybe you found a good rheum ,

Paint, even thugh you do't trust him/her yet.

Hope you both enjoy the group!

Marti

-- In , " Paint " <mosier@h...> wrote:

> Hay all.

>

> New to the list or any list for that matter. I have had PA for 2

> years now and spent most of my time pertending I didn't. I finally

> decided to bite the bullet and learn more about arthritis and PA. I

> have a few questions.

>

> 1. What do you all think about Athritis Today?

>

> 2, What's up with the burning hot feet? The PA is only in my feet.

Is

> there anything I can do to help I buy new shoes when it get's too

bad.

>

> 3. Sould I stop playing tennis, Raquetball or Running? Running

seems

> to help but tennis will usualy keep me off my feet for a few day's.

>

> 4. What are the most amount of Methotrexate pills allowed to be

taken

> each week. My doc said 8. I should say I do not trust any doctors,

> most run test just to make extra $.

>

> Im sure ill have more Q's later I'm glad I found this group.

>

>

> Houston

>

> Im on Remicade and Methotraxate.

[Guest guest]

Dear , Your remark about your " burning hot feet " made me think of a

condition I have along with PA, called erythromelalgia. It causes your skin

to turn red and burn like it's on fire. Most people have it start in their

feet, but I have it in my face and my hands. it gets worse whenever I'm

exposed to heat, or any activity of any kind sets it off. The only thing

that helps is lying down or using cold gel packs or cold water.

If you think you might have this condition, there is a website, at

www.erythromelalgia.org They have a lot of information on this condition

and it can be caused from arthritis like RA and PA. I hope you don't have

it since there isn't a whole lot they can do for it and very few doctors

even know it exists, let alone how to treat it.

Anyway, I hope you find some answers to your PA problems. You have found a

wonderful support group here. Everyone is great and cares about each other

so much. It's a wonderful place to share your pain or problems. I

understand your feelings about doctors. I've seen so many in the past 6

years, I feel like I could do a study on them alone. You do need to find a

doctor you can trust though and you have some confidence in. You'll find

that most of us have changed doctors at least once and many of us have done

it several times. It takes time to find one that is just right for you.

Take care and let me know if you think you do have erythromelalgia.

Sincerely, Fran

[ ] New member -SUP - quick question

Hay all.

New to the list or any list for that matter. I have had PA for 2

years now and spent most of my time pertending I didn't. I finally

decided to bite the bullet and learn more about arthritis and PA. I

have a few questions.

1. What do you all think about Athritis Today?

2, What's up with the burning hot feet? The PA is only in my feet. Is

there anything I can do to help I buy new shoes when it get's too bad.

3. Sould I stop playing tennis, Raquetball or Running? Running seems

to help but tennis will usualy keep me off my feet for a few day's.

4. What are the most amount of Methotrexate pills allowed to be taken

each week. My doc said 8. I should say I do not trust any doctors,

most run test just to make extra $.

Im sure ill have more Q's later I'm glad I found this group.

Houston

Im on Remicade and Methotraxate.

[Guest guest]

Hi and welcome,

I think most doctors/Rheumy's will probably say that it is not advisable to

do any running, etc due to the Jarring effect on your feet. I was originally

told by the first Rheumy I attended that I could run and would know myself

when I couldn't, so for a few years I was able to go out running for certain

periods of time, then I would not be able to do it for months. My present Rheumy

though, advised against doing that sort of exercise.(I couldn't do it now

anyway) They would recommend swimming instead. I have done something called

Deep Water Jogging in the past (I've mentioned this before on this list) which

was a tremendous help. I can fully understand why you would want to continue

this. I would love to be able to run in a track or cross country race again,

or play tennis or badminton. I used to feel that I could do anything in sport

if I put my mind to it but those days are gone now. (Yes, that's right. I've

had to withdraw from the UK olympic squad! lol)

, I don't know about the US but here in the UK I think the maximum

dose for MTX is 25mg per week followed by Folic acid three days later (in my

case)

Sorry, but can't help you with your burning feet issue but hope someone else

can.

As for your question about what we think of Arthritis today. Now you are

just trying to get us to swear aren't you? lol.

Take care,

[Guest guest]

I checked into the erythromelalgia I don't think that's it. It

ususally happens when my feet are swollen. I just assumed that

everyone got this. OH well. Thanks for all the info. I stopped

tennis and raquetball for a week and feel better, I prolly need to

limit my activities as to not hurn anything. I ran yesturday and

feel great. Keep your chin/chins up yall

MIchael

> Dear , Your remark about your " burning hot feet " made me

think of a

> condition I have along with PA, called erythromelalgia. It causes

your skin

> to turn red and burn like it's on fire. Most people have it start

in their

> feet, but I have it in my face and my hands. it gets worse

whenever I'm

> exposed to heat, or any activity of any kind sets it off. The

only thing

> that helps is lying down or using cold gel packs or cold water.

>

> If you think you might have this condition, there is a website, at

> www.erythromelalgia.org They have a lot of information on this

condition

> and it can be caused from arthritis like RA and PA. I hope you

don't have

> it since there isn't a whole lot they can do for it and very few

doctors

> even know it exists, let alone how to treat it.

>

> Anyway, I hope you find some answers to your PA problems. You

have found a

> wonderful support group here. Everyone is great and cares about

each other

> so much. It's a wonderful place to share your pain or problems. I

> understand your feelings about doctors. I've seen so many in the

past 6

> years, I feel like I could do a study on them alone. You do need

to find a

> doctor you can trust though and you have some confidence in.

You'll find

> that most of us have changed doctors at least once and many of us

have done

> it several times. It takes time to find one that is just right

for you.

>

> Take care and let me know if you think you do have erythromelalgia.

> Sincerely, Fran

> [ ] New member -SUP - quick question

>

>

> Hay all.

>

> New to the list or any list for that matter. I have had PA for 2

> years now and spent most of my time pertending I didn't. I

finally

> decided to bite the bullet and learn more about arthritis and

PA. I

> have a few questions.

>

> 1. What do you all think about Athritis Today?

>

> 2, What's up with the burning hot feet? The PA is only in my

feet. Is

> there anything I can do to help I buy new shoes when it get's

too bad.

>

> 3. Sould I stop playing tennis, Raquetball or Running? Running

seems

> to help but tennis will usualy keep me off my feet for a few

day's.

>

> 4. What are the most amount of Methotrexate pills allowed to be

taken

> each week. My doc said 8. I should say I do not trust any

doctors,

> most run test just to make extra $.

>

> Im sure ill have more Q's later I'm glad I found this group.

>

>

> Houston

>

> Im on Remicade and Methotraxate.

[Guest guest]

Ive been getting the same muscle cramps in my legs at night, wakes me

up but goes away quick.

[Guest guest]

Yes? What is it Marti?

Oh I thought that you were talking about me. (beautiful and perfect?) lol.

[Guest guest]

> Yes? What is it Marti?

>

> Oh I thought that you were talking about me. (beautiful and

perfect?) lol.

>

>

>

>LOL! so that was you who was modelling...and I didn't even hear you

swear LOL!

Marti(no N)

>