Re: I need help on which creams help!

[Guest guest]

Maybe this will help you because when I got pregnant with my second child,

the psoriasis cleared up completely. It was went away and I had great skin.

As soon as I delivered it came back again and got worse and worse. This

makes me believe that hormones actually have an effect on it.

Janet

[Guest guest]

Wow, trying to have a child post metho.... still trying to pick my jaw

up.... I've had 5 docs both dermies, rheumies, and pcp tell me NO... if at

any given time I take methotrexate, having a child is no longer an option

for me. I just surprised is all.... speechless

[ ] I need help on which creams help!

> I have been off my meds, methotrexate and vioxx, since Nov. 22 because I

> want to try to have a baby. Of course I will wait until three months since

I

> have been off the meds before I try to make sure all the meds are out of

my

> system. ...

>

[Guest guest]

-- How brave to go off all you meds. I don't have an answer about

nonsteroids for psoriasis but I wash with T-Gel, not just my hair but anywhere I

have spots. I lather up the areas and leave it on for a few minutes -- all of

them. It doesn't cure but it helps the itching and flaking some. I also dry

" everywhere " with a blow dryer. That was suggested by my dermatologist who also

said to take cooler showers instead of the long hot ones I prefer. Good Luck,

Cheri

[ ] I need help on which creams help!

I have been off my meds, methotrexate and vioxx, since Nov. 22 because I

want to try to have a baby. Of course I will wait until three months since I

have been off the meds before I try to make sure all the meds are out of my

system.

Anyway, my arthritis has not been bothering me as much as when I first got

off vioxx; however, my psoriasis has gotten worse. I am not using any

steroid creams because I don't want that in my system. I did find this 3%

salicylic acid clear cream called Dermarest, but it has not improved

anything. My scalp is itching and my elbows hurt and itch. I need some

relief. I know that winter weather can make it worse, but I do live in FL.

Does any one know of anything that can relieve the reddness, scaly pathches,

and the constant itching without any harmful steroids?

Please, help me if you can. I have seen ads in the coupons in the paper that

state their product cures psoriasis and it costs $100. Also, does vitamin E

oil help at all? If anyone has any answers, let me know.

[Guest guest]

, How close are you to the coast? I live in FL too and when its

really bad, a day at the beach in the water seems to help clear me up for a

week or so...when its too cold to swim I use sea salts in the bath (Origins

has a sea salt bath).

[Guest guest]

,

My psoriasis are so bad I don't even go to the beach anymore.. I also live in

Florida.

I am trying to find a new rheumatologist as I really don't like the one my

primary doctor sent me to.

Robin, Penny, Chance, Heidi, and Hope (Florida)

http://www.geocities.com/goldens4life2000/index.html

Re: [ ] I need help on which creams help!

, How close are you to the coast? I live in FL too and when its

really bad, a day at the beach in the water seems to help clear me up for a

week or so...when its too cold to swim I use sea salts in the bath (Origins

has a sea salt bath).

[Guest guest]

I have been to three different Rheums since I have been diagnosed with this

disease (one was a Vanderbilt University Dr.), and I have asked each one about

having a child post MTX. (which I have never been on MTX at this point) The

first 2 said there is NO scientific evidence that proves having a child post MTX

is dangerous to the patient or the child, as long as you go off of MTX for

atleast 6 months before trying to have a child. The third (my current Dr.) said

he has never had a patient have a problem with bearing children post MTX, BUT

although there is no scientific evidence that bearing a child is dangerous (to

the patient or fetus) after MTX, he would agree with me not wanting to go on MTX

until I have a child. He said more for fertility issues than anything else. He

said in a FEW rare cases fertility has been a problem. (this is from case

studies in medical journals according to him) I have NEVER had a Dr. tell me

that having kids after MTX is a problem. I even asked ALL of them if they have

patients who have had successful births after taking MTX for year, and they have

all said they have tons of patients like that.

Stefanie, please ask your Doctors again, because this just doesn't sound like

any of the information I have been given... and the Dr.'s I have been to don't

know each other from Adam. (some were in TN and some were in NC) I couldn't

imagine a Dr. giving a JRA patient MTX if it was going to cause them to never

have kids again. I do have one friend that has successfully had a perfectly

healthy baby girl after being on MTX a few year. It is VERY important to be off

of it for 6 months before trying. (according to all Dr.'s I have spoken to) I

could see where some Dr.'s might think 3 months is enough time to get it out of

your system.

In a message dated 1/19/2003 11:35:44 PM Eastern Standard Time,

celticangyl@... writes:

> Wow, trying to have a child post metho.... still trying to pick my jaw

> up.... I've had 5 docs both dermies, rheumies, and pcp tell me NO... if at

> any given time I take methotrexate, having a child is no

> longer an option

> for me. I just surprised is all.... speechless

[Ed. Note: In my own personal opinion, I would even go a step further than

suggests - I'd dump the dumb rheumy altogether and look for another one.

My reasoning is that if he gives such lousy advice on MTX vs child-bearing, I

wouldn't be able to trust anything else he might say. In fact, if Stefanie will

send me his name & address, I'd like to put him in the " NOT Recommended " doctors

category in our database. Ron]

[Guest guest]

'Now I'm confused too...my doctor said it's safe to

have a a baby if you stop the methotrexate for 6

months prior to conceiving. Does anyone think once you

took it, you should never try pregnancy?

--- Boyd <celticangyl@...> wrote:

> Wow, trying to have a child post metho.... still

> trying to pick my jaw

> up.... I've had 5 docs both dermies, rheumies, and

> pcp tell me NO... if at

> any given time I take methotrexate, having a child

> is no longer an option

> for me. I just surprised is all.... speechless

>

[Guest guest]

, where are you in Florida? I have a great rheumatologist in

Orlando...

[Guest guest]

I could use the name of the rheumatologist in Orlando. I personally don't like

the one I currently go to.

Please email me privately and send the name and phone number. Thank you.

Robin, Penny, Chance, Heidi, and Hope (Florida)

http://www.geocities.com/goldens4life2000/index.html

http://www.geocities.com/goldens4life2000/MemoryofGrizz.html

http://www.geocities.com/goldens4life2000/MemoryofMuffy.html

Re: [ ] I need help on which creams help!

, where are you in Florida? I have a great rheumatologist in

Orlando...

[Guest guest]

,

I go to Dr Maclay on Hiawassee....she doesn't take insurance, but I

submit the claims and because I always spend more than my out of pocket limit

for my insurance anyway the insurance ends up paying the same amount.

Maclay sees mostly chronic fatigue, fibromyalgia and unusual diagnoses. I

had gone to many, many docs before I found her and she diagnosed me in the

first 5 minutes I saw her.

The first visit with her is 3 hours, then each subsequent appt is 1 full

hour. Her treatment philosophy is anti-meds if possible, and she uses

alternatives like physical therapy, paraffin wax treatments (argues with the

insurance co if necessary to get it covered). But she's also happy to

prescribe meds if you want to go that route. She also believes in patient

education and will give you a reading list if you wish. She has been a

lifesaver for me.

Avoid a doc at FL hospital named Sladek. He told me I needed a

psychiatrist....I was in pain and my nails in full PA glory when I saw him....

[Guest guest]

,

Have your nails gone back to normal, since you have been on this diet?

Where in FL is this Dr? She sounds so cool!

In a message dated 1/24/03 7:38:05 AM Eastern Standard Time,

rachelviognier@... writes:

> Avoid a doc at FL hospital named Sladek. He told me I needed a

> psychiatrist....I was in pain and my nails in full PA glory when I saw

> him....

>

>

>

[Guest guest]

Diet has not helped my nails, but when I cheat, I have much more fatigue than

when I stay off gluten. The doctor is in Orlando, Florida, and she is one of

a kind!