Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 In a message dated 4/2/2004 11:50:46 AM Eastern Standard Time, celticangyl@... writes: .. I am too young to feel this damned old. THe thing that made me mad was she said " did you not see that woman hobbling down the hallway? There are so many patients worse off than you, and you're just in pain " this was very out of character for her, she's never been that way before! Well I thought I'd post and update you I totally agree with you. On my last visit my rheumy told me that he would not prescribe a double dose of enbrel since the normal dose did not work. He said there are worse people then I am and he just hospitalized a woman who has swelling that doubled her knee size and red inflamation. He said that she qualifies for that dose. Since I have no redness and I am not as swollen as she was, he made light of my pain. It really erks me when he does this. I limp in there with pain and he is insensitive. I wish he could feel this for a while and have someone brush him off. I asked him what should I take and he kept thinking about it until I suggested Humira. Then he said, " Oh, that is a good idea. " Like who is the doctor here. We must take matters into our own hands and fight for ourselves. If you have a gut feeling about something, then pursue it. JANET Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 -Hi Mel, LOL!~....oh JUST pain huh? Sorry you had a rough appt. I once had an OT ,who was helping me set up my apartment with adaptive devices, tell me....You are really lucky. I have patients who don't have ANY hands. I felt like saying....well...I guess their hands don't hurt then. We can all find someone worse off than us but it still doesn't minimize what we have to go through. Hope things start looking up for you, Marti -- In , " Boyd " <celticangyl@e...> wrote: > I went for my remicade appt today, and OMGDS I was not happy when I left. I keep going and getting stuck at the min. 4-6 times and end up with no treatment, missing time off work, and hurting like hell! I actually went armed today. I asked for another DMARD instead of mtx... I was told no way because of the NASH until I had a biopsy period. I then asked for pain meds, I was told no way because of the NASH and until I had a biopsy. I then asked to go to the hospital for my tx so maybe someone from careflight could do the IV... I was told ok,you can do that, but if something happens, I am not responsible. I guess they had 2 pts almost die because they had a reaction and the hospital dicked around trying to get ahold of the doc and they almost lost 'em. Well ok, if no one is supervising me or being responsible for me I'm like Uhm, NO! I am scheduled to see a surgeon Monday to have my gallbladder removed, I'm going to see if the liver biopsy can be done at the same time, dunno we'll see. I'm also haveing a heel scan to screen for osteoporosis. I am too young to feel this damned old. THe thing that made me mad was she said " did you not see that woman hobbling down the hallway? There are so many patients worse off than you, and you're just in pain " this was very out of character for her, she's never been that way before! Well I thought I'd post and update you > > Mel > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 darned skippy hon!!! If I don't fight for myself, no one else will... She wouldn't give me the remicade, stuck me 7 times and no line- wouldn't give me pain meds until I get a liver biopsy, and there aren't any other meds to replace the mtx until the biopsy is done. She refuses to send me to the hosp. to have done, she almost lost 2 patients while the hospital dicked around trying to call the doc cuz they didn't know what to do. I lost it... I told her to order me a scooter and get the damned process over with, I'll file for disability and start planning for my own demise!! Was I being a drama queen, well of course!!!!! I was mad. But sometimes that's how I feel. Mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Exactly what I was tryin to say =))))' ----- Original Message ----- > LOL!~....oh JUST pain huh? Sorry you had a rough appt. I > once had an OT ,who was helping me set up my apartment with adaptive > devices, tell me....You are really lucky. I have patients who don't > have ANY hands. I felt like saying....well...I guess their hands > don't hurt then. We can all find someone worse off than us but it > still doesn't minimize what we have to go through. > > Hope things start looking up for you, > Marti Quote Link to comment Share on other sites More sharing options...
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