Re: Hospital Update

[Guest guest]

Thank you for the well wishing. Tomorrow brings a day of pulmonary function

tests. I have talked to both the painted turtle and the taylor family

foundation about starting a JRA camp but to no avail yet. They just dont have

the

financial support. But i keep trying.

(I'm feeling a little better..but still bored)

[Guest guest]

,

I've tried to catch up on the last few days quickly as we've had two

of my girls birthday parties, hubby out of town (of course) and been

out of town for most of the summer.

I've read the " remission " post, then the " not doing so well the next

day " post, then the " pneumonia " post, then the " I'm in the hospital

and they don't know what's going on " post all in the same evening

here. Girl, you are such a strong woman and we are praying for you.

I have no idea what the next test will bring or what the test will

be, but you have us to talk to and we'll try to get you through as

much as we can.

I think of you helping and having fun with all the cancer camp kids

and it brings a huge smile to me. My husband went to the " Starting

your own Camp " roundtable session at the AJAO conf. and we are

motivated to do something concerning that also --- also motivated by

you.

Big hug,

Stacia and Hunter 8 systemic, iritis

>

[Guest guest]

hey ! Keep your chin up and know the prayers are flowing. I know

Hospitals have to be the worst but its best to be there and get some answers and

hopefully very soon. Hang tight and hang tough girl!!!

Hugs!

Donna

[Guest guest]

You're in my thoughts, . Glad you're doing a bit better.

Elisheva

[Guest guest]

:

I hope that they find out what's wrong soon. Glad you are off the oxygen

for the most part. I'm glad that you have your own room and obviously,

your computer too! Hang in there and GET WELL SOON!

and Rob 15 Spondy

On Tue, 10 Aug 2004 21:35:09 EDT bncknwurnumber@... writes:

Its not pneumonia .. It's not a blood clot.. They don't know what it is.

They believe the trouble breathing might be related to my heart. So now

they are

checking for heart problems. I dunno when I am going to get out of here

and

they are not estimating anytime soon. It really sucks! I'm so bored. I

finally am breathing good enough to not need to be hooked up to oxygen

all the

time, only at night and when its doing bad. I'll keep you all updated

but for

now its just test after test they to figure out what wrong and I am so

bored in

this hospital room.. On the plus side they let my friends stay as late as

I

want them to and I have my own room! So that's cool. Just keep praying

for me.

Lots of Love

[Guest guest]

im sitting here in the hosp, confused , sad up set why me? what did i do to hav

a life like this? i wanna giv up but i wont. more tests docs say yes there is

umthing wrong but we do not know, with all the modern tech now adays it should

be an easy fix.the bone chip in rite hip mite hav to stay its lodged in a very

wrong spot, more pain meds to keep me out of pain, the osteo has been eating

away at my rite hip joint like quote quote, termites in a house, gee im to

young, i need a good prayer and support.well off to my room for the pain meds

hav tooken over my life again, when will this end, is it a bad dream? no im

awake its reallity

[Guest guest]

,

You are in my thoughts and prayers.

Kathy F.

[Guest guest]

Hi ,

I am so sorry that you are in such pain and in the hospital. I pray

that you have a speedy recovery and come home soon. I am just

starting to have problems with my hips and can't imagine what it will

be like if it gets much worse. We will keep you in our prayers and

keep writing. We are all with you.

pat

>

> im sitting here in the hosp, confused , sad up set why me? what did

i do to hav a life like this? i wanna giv up but i wont. more tests

docs say yes there is umthing wrong but we do not know, with all the

modern tech now adays it should be an easy fix.the bone chip in rite

hip mite hav to stay its lodged in a very wrong spot, more pain meds

to keep me out of pain, the osteo has been eating away at my rite hip

joint like quote quote, termites in a house, gee im to young, i need

a good prayer and support.well off to my room for the pain meds hav

tooken over my life again, when will this end, is it a bad dream? no

im awake its reallity

[Guest guest]

---

Hi ,

I hope you are on the way for recovery. I will pray for you. Ask

for as much pain medication as you can get so you don't have to

suffer. I will be thinking of you.

God Bless, Sue in Michigan.

In , brenda stein

<leelioness662002@y...> wrote:

>

> im sitting here in the hosp, confused , sad up set why me? what did

i do to hav a life like this? i wanna giv up but i wont. more tests

docs say yes there is umthing wrong but we do not know, with all the

modern tech now adays it should be an easy fix.the bone chip in rite

hip mite hav to stay its lodged in a very wrong spot, more pain meds

to keep me out of pain, the osteo has been eating away at my rite hip

joint like quote quote, termites in a house, gee im to young, i need

a good prayer and support.well off to my room for the pain meds hav

tooken over my life again, when will this end, is it a bad dream? no

im awake its reallity

[Guest guest]

. I am new to this site. You really got to me today, I can not imagine

what you are going through. I can only hope everything goes well for you. I

will be thinking & praying for you. Please keep us posted.

Elaine

[Guest guest]

-

Hi ,

I'll say some prayers for you. Hang in there.

Marti

-- In , brenda stein

<leelioness662002@y...> wrote:

>

> im sitting here in the hosp, confused , sad up set why me? what did

i do to hav a life like this? i wanna giv up but i wont. more tests

docs say yes there is umthing wrong but we do not know, with all the

modern tech now adays it should be an easy fix.the bone chip in rite

hip mite hav to stay its lodged in a very wrong spot, more pain meds

to keep me out of pain, the osteo has been eating away at my rite hip

joint like quote quote, termites in a house, gee im to young, i need

a good prayer and support.well off to my room for the pain meds hav

tooken over my life again, when will this end, is it a bad dream? no

im awake its reallity

[Guest guest]

,

We are all here for you and wish you well. Our thoughts and prayer are with

you.

Janet

[Guest guest]

Dear , Your description made me realize just how much I hate going to

the hospital again. I hope the surgery goes fast and you feel much better

when it's all over. I think all of us think " why me " at one point or

another in our lives, especially when it comes to being ill. You wonder

what you did wrong to bring about this form of punishment. I know you

aren't in the right place to think about this now, but when you are feeling

better it might be easier. I really do think our illness is a form of

growth (not bone growth..lol, though we get that too ) Everyone I know who

has dealt will a serious illness can state at least one way their lives are

better now or how they have realized something they never knew before. This

doesn't mean we wouldn't trade it all and be well again, I'm sure most of us

would. What I'm trying to say is you didn't do anything to cause this.

It's just a struggle or life challenge you have in your way. We all deal

with these in one form or another. Some are much easier to spot than

others.

After the surgery, give yourself time to heal. Talk to as many people as

you can and get out all the pain and frustration that has been building up

all these years. Get it all out. I really think you will begin to feel

better. You have to have hope to keep on going. Plus hope actually helps

us heal and fight off our disease, at least that's true according to what

I've been reading lately. You are a really strong lady or you never would

have made it this far. Hold on to that and stay strong. It should be over

soon and you'll be on the road to recovery. Let us know when the surgery is

over. Take care and know that you have a lot of friends who are thinking of

you and wishing for your fast recovery. Love, Fran

Re: [ ] Hospital Update

im sitting here in the hosp, confused , sad up set why me? what did i do

to hav a life like this? i wanna giv up but i wont. more tests docs say yes

there is umthing wrong but we do not know, with all the modern tech now

adays it should be an easy fix.the bone chip in rite hip mite hav to stay

its lodged in a very wrong spot, more pain meds to keep me out of pain, the

osteo has been eating away at my rite hip joint like quote quote, termites

in a house, gee im to young, i need a good prayer and support.well off to my

room for the pain meds hav tooken over my life again, when will this end, is

it a bad dream? no im awake its reallity

[Guest guest]

Hi,

This is 's 6th day in the hospital. He'll probably be there

until Wednesday, which can't come soon enough. Then he'll go back to the

partial day program for a little while. The first day was really hard, but

since then he's become friends with his roommate and gotten used to the

routine. Yesterday he seemed more like himself. He wasn't agitated and

sort of goofy from the meds anymore, and his thoughts were still bothering

him, but he was calm, and he was bored and desperate to come home with us.

I've come to terms with the idea that the hospital has been the right place

for him to be while he was feeling desperate and unsafe. The routine and

med supervision and safe environment were what he needed. The social worker

and psychiatrist, however, are awful. I'm grateful that we already have a

diagnosis and an appt. set up with an OCD therapist in 2 weeks. After a 5

minute conversation with and no meeting with us, she came to the

firm conclusion that OCD is not his problem at all, because kids with OCD

usually wash their hands a lot or have rituals around neatness. Instead,

she said he has major depression, separation anxiety and school phobia.

When I told her he has morbid thoughts type of obsessions she said that

sometimes major depression in kids causes psychotic type thinking. She's

only planning to increase the resperdol and not the celexa (he's at 20 mg)

because she doesn't think antidepressents will be much help. With the

exception of the past few weeks, my son has always been very independent and

he never had a fear of going to school. The diagnosis of separation anxiety

is way off, but the doctor was not interested in talking to me. When I

suggested that this different diagnosis makes me want to get him an

evaluation by a team of experts, she interupted me to exclaim " I am an

expert, I am a board certified child psychiatrist. "

from Foxboro, MA, another poster in this group, had an awful

experience with the same doctor 3 years ago, only her experience was much

worse because her daughter had not been diagnosed yet with OCD. My son and

's daughter were never asked standard psych screening questions, like

whether they have thoughts they can't get out of their head, whether they

count in their head, etc. The doctor is so unreasonable that I don't want

to provoke her by questioning her judgement anymore. Instead, I'm going to

get out of there as soon as possible and back into the day

program where the psychiatrist listened to me and recognized the OCD.

When everything settles down, I want to write to someone, not quite sure

who, (maybe the hospital that referred him to the day program), to make them

aware of how dangerous this doctor is to children with OCD. Maybe the OC

Foundation can offer advice.

This group has been a tremendous help during this difficult time. Thank you

all for your support.

Tamara

[Guest guest]

Hi,

This is 's 6th day in the hospital. He'll probably be there

until Wednesday, which can't come soon enough. Then he'll go back to the

partial day program for a little while. The first day was really hard, but

since then he's become friends with his roommate and gotten used to the

routine. Yesterday he seemed more like himself. He wasn't agitated and

sort of goofy from the meds anymore, and his thoughts were still bothering

him, but he was calm, and he was bored and desperate to come home with us.

I've come to terms with the idea that the hospital has been the right place

for him to be while he was feeling desperate and unsafe. The routine and

med supervision and safe environment were what he needed. The social worker

and psychiatrist, however, are awful. I'm grateful that we already have a

diagnosis and an appt. set up with an OCD therapist in 2 weeks. After a 5

minute conversation with and no meeting with us, she came to the

firm conclusion that OCD is not his problem at all, because kids with OCD

usually wash their hands a lot or have rituals around neatness. Instead,

she said he has major depression, separation anxiety and school phobia.

When I told her he has morbid thoughts type of obsessions she said that

sometimes major depression in kids causes psychotic type thinking. She's

only planning to increase the resperdol and not the celexa (he's at 20 mg)

because she doesn't think antidepressents will be much help. With the

exception of the past few weeks, my son has always been very independent and

he never had a fear of going to school. The diagnosis of separation anxiety

is way off, but the doctor was not interested in talking to me. When I

suggested that this different diagnosis makes me want to get him an

evaluation by a team of experts, she interupted me to exclaim " I am an

expert, I am a board certified child psychiatrist. "

from Foxboro, MA, another poster in this group, had an awful

experience with the same doctor 3 years ago, only her experience was much

worse because her daughter had not been diagnosed yet with OCD. My son and

's daughter were never asked standard psych screening questions, like

whether they have thoughts they can't get out of their head, whether they

count in their head, etc. The doctor is so unreasonable that I don't want

to provoke her by questioning her judgement anymore. Instead, I'm going to

get out of there as soon as possible and back into the day

program where the psychiatrist listened to me and recognized the OCD.

When everything settles down, I want to write to someone, not quite sure

who, (maybe the hospital that referred him to the day program), to make them

aware of how dangerous this doctor is to children with OCD. Maybe the OC

Foundation can offer advice.

This group has been a tremendous help during this difficult time. Thank you

all for your support.

Tamara

[Guest guest]

I'm sorry for your terrible experience. It must have been so hard. I

hope that things only get better for your family.

Bonnie

>

> Hi,

> This is 's 6th day in the hospital. He'll probably be there

> until Wednesday, which can't come soon enough. Then he'll go back

to the

> partial day program for a little while. The first day was really

hard, but

> since then he's become friends with his roommate and gotten used to the

> routine. Yesterday he seemed more like himself. He wasn't agitated

and

> sort of goofy from the meds anymore, and his thoughts were still

bothering

> him, but he was calm, and he was bored and desperate to come home

with us.

>

> I've come to terms with the idea that the hospital has been the

right place

> for him to be while he was feeling desperate and unsafe. The

routine and

> med supervision and safe environment were what he needed. The

social worker

> and psychiatrist, however, are awful. I'm grateful that we already

have a

> diagnosis and an appt. set up with an OCD therapist in 2 weeks.

After a 5

> minute conversation with and no meeting with us, she

came to the

> firm conclusion that OCD is not his problem at all, because kids

with OCD

> usually wash their hands a lot or have rituals around neatness.

Instead,

> she said he has major depression, separation anxiety and school

phobia.

> When I told her he has morbid thoughts type of obsessions she said that

> sometimes major depression in kids causes psychotic type thinking.

She's

> only planning to increase the resperdol and not the celexa (he's at

20 mg)

> because she doesn't think antidepressents will be much help. With the

> exception of the past few weeks, my son has always been very

independent and

> he never had a fear of going to school. The diagnosis of separation

anxiety

> is way off, but the doctor was not interested in talking to me. When I

> suggested that this different diagnosis makes me want to get him an

> evaluation by a team of experts, she interupted me to exclaim " I am an

> expert, I am a board certified child psychiatrist. "

>

> from Foxboro, MA, another poster in this group, had an awful

> experience with the same doctor 3 years ago, only her experience was

much

> worse because her daughter had not been diagnosed yet with OCD. My

son and

> 's daughter were never asked standard psych screening

questions, like

> whether they have thoughts they can't get out of their head, whether

they

> count in their head, etc. The doctor is so unreasonable that I

don't want

> to provoke her by questioning her judgement anymore. Instead, I'm

going to

> get out of there as soon as possible and back into the day

> program where the psychiatrist listened to me and recognized the OCD.

>

> When everything settles down, I want to write to someone, not quite

sure

> who, (maybe the hospital that referred him to the day program), to

make them

> aware of how dangerous this doctor is to children with OCD. Maybe

the OC

> Foundation can offer advice.

>

> This group has been a tremendous help during this difficult time.

Thank you

> all for your support.

>

> Tamara

>

[Guest guest]

I'm sorry for your terrible experience. It must have been so hard. I

hope that things only get better for your family.

Bonnie

>

> Hi,

> This is 's 6th day in the hospital. He'll probably be there

> until Wednesday, which can't come soon enough. Then he'll go back

to the

> partial day program for a little while. The first day was really

hard, but

> since then he's become friends with his roommate and gotten used to the

> routine. Yesterday he seemed more like himself. He wasn't agitated

and

> sort of goofy from the meds anymore, and his thoughts were still

bothering

> him, but he was calm, and he was bored and desperate to come home

with us.

>

> I've come to terms with the idea that the hospital has been the

right place

> for him to be while he was feeling desperate and unsafe. The

routine and

> med supervision and safe environment were what he needed. The

social worker

> and psychiatrist, however, are awful. I'm grateful that we already

have a

> diagnosis and an appt. set up with an OCD therapist in 2 weeks.

After a 5

> minute conversation with and no meeting with us, she

came to the

> firm conclusion that OCD is not his problem at all, because kids

with OCD

> usually wash their hands a lot or have rituals around neatness.

Instead,

> she said he has major depression, separation anxiety and school

phobia.

> When I told her he has morbid thoughts type of obsessions she said that

> sometimes major depression in kids causes psychotic type thinking.

She's

> only planning to increase the resperdol and not the celexa (he's at

20 mg)

> because she doesn't think antidepressents will be much help. With the

> exception of the past few weeks, my son has always been very

independent and

> he never had a fear of going to school. The diagnosis of separation

anxiety

> is way off, but the doctor was not interested in talking to me. When I

> suggested that this different diagnosis makes me want to get him an

> evaluation by a team of experts, she interupted me to exclaim " I am an

> expert, I am a board certified child psychiatrist. "

>

> from Foxboro, MA, another poster in this group, had an awful

> experience with the same doctor 3 years ago, only her experience was

much

> worse because her daughter had not been diagnosed yet with OCD. My

son and

> 's daughter were never asked standard psych screening

questions, like

> whether they have thoughts they can't get out of their head, whether

they

> count in their head, etc. The doctor is so unreasonable that I

don't want

> to provoke her by questioning her judgement anymore. Instead, I'm

going to

> get out of there as soon as possible and back into the day

> program where the psychiatrist listened to me and recognized the OCD.

>

> When everything settles down, I want to write to someone, not quite

sure

> who, (maybe the hospital that referred him to the day program), to

make them

> aware of how dangerous this doctor is to children with OCD. Maybe

the OC

> Foundation can offer advice.

>

> This group has been a tremendous help during this difficult time.

Thank you

> all for your support.

>

> Tamara

>

[Guest guest]

>

> After a 5

> minute conversation with and no meeting with us, she came

> to the

> firm conclusion that OCD is not his problem at all, because kids with OCD

> usually wash their hands a lot or have rituals around neatness. Instead,

> she said he has major depression, separation anxiety and school phobia.

> When I told her he has morbid thoughts type of obsessions she said that

> sometimes major depression in kids causes psychotic type thinking. She's

> only planning to increase the resperdol and not the celexa (he's at 20

> mg)

> because she doesn't think antidepressents will be much help. With the

> exception of the past few weeks, my son has always been very

> independent and

> he never had a fear of going to school. The diagnosis of separation

> anxiety

> is way off, but the doctor was not interested in talking to me. When I

> suggested that this different diagnosis makes me want to get him an

> evaluation by a team of experts, she interupted me to exclaim " I am an

> expert, I am a board certified child psychiatrist. "

Oh, this all sounds so familiar! I wish we could do something about

those bad psychiatrists out there! We had a bad one at first, too, and

it wasted months of our lives and my daughter continued to spiral out of

control. My daugher, too, was having a hard time going to school when

she had been just fine there for 3 years. Suddenly she was panicking

and not wanting me to leave her. The pdoc said it was separation

anxiety because I had just delivered the twins and she was feeling

displaced. So, lots of guilt on my part, lots of time spending one on

one time with her (hard to do with twins in the NICU that you are

nursing!) and still her anxiety was sky high. One day she mentioned

that she was counting things in her head and doing a few other mental

compulsions and it all clicked! We switched pdocs and she's gotten the

treatment that she needs. I, too, still feel angry at that first Dr.

for not knowing what the problem was. Expert! Sounds like your son's

Dr. is an expert on paper only.

Dina

[Guest guest]

>

> After a 5

> minute conversation with and no meeting with us, she came

> to the

> firm conclusion that OCD is not his problem at all, because kids with OCD

> usually wash their hands a lot or have rituals around neatness. Instead,

> she said he has major depression, separation anxiety and school phobia.

> When I told her he has morbid thoughts type of obsessions she said that

> sometimes major depression in kids causes psychotic type thinking. She's

> only planning to increase the resperdol and not the celexa (he's at 20

> mg)

> because she doesn't think antidepressents will be much help. With the

> exception of the past few weeks, my son has always been very

> independent and

> he never had a fear of going to school. The diagnosis of separation

> anxiety

> is way off, but the doctor was not interested in talking to me. When I

> suggested that this different diagnosis makes me want to get him an

> evaluation by a team of experts, she interupted me to exclaim " I am an

> expert, I am a board certified child psychiatrist. "

Oh, this all sounds so familiar! I wish we could do something about

those bad psychiatrists out there! We had a bad one at first, too, and

it wasted months of our lives and my daughter continued to spiral out of

control. My daugher, too, was having a hard time going to school when

she had been just fine there for 3 years. Suddenly she was panicking

and not wanting me to leave her. The pdoc said it was separation

anxiety because I had just delivered the twins and she was feeling

displaced. So, lots of guilt on my part, lots of time spending one on

one time with her (hard to do with twins in the NICU that you are

nursing!) and still her anxiety was sky high. One day she mentioned

that she was counting things in her head and doing a few other mental

compulsions and it all clicked! We switched pdocs and she's gotten the

treatment that she needs. I, too, still feel angry at that first Dr.

for not knowing what the problem was. Expert! Sounds like your son's

Dr. is an expert on paper only.

Dina

[Guest guest]

Hope things work out for you and Chris.

{{HUGS}} Jaxx New Zealand

[Guest guest]

Wow Tamara, that " doctor " ! Well, hopefully his final " med

adjustment " will help him or at least the current one so that he is

able to go home and do the partial day (is that same doc involved in

that??). I'll be happy too when you can get him seen by someone who

actually understands/knows about OCD. The " thing " with doctors - my

opinion - is that they are more familiar with what they are used to

seeing. So they are not necessarily " wrong " in that " depression can

bring on... " or something like that, but they are not familiar enough

with OCD to recognize it when it's right in front of them! (same

goes for things like autism, need someone who knows it all along the

spectrum)

I'm glad he's made a friend!

>

> Hi,

> This is 's 6th day in the hospital. He'll probably be

there

> until Wednesday, which can't come soon enough. Then he'll go back

to the

> partial day program for a little while. The first day was really

hard, but

> since then he's become friends with his roommate and gotten used to

the

> routine. Yesterday he seemed more like himself. He wasn't

agitated and

> sort of goofy from the meds anymore, and his thoughts were still

bothering

> him, but he was calm, and he was bored and desperate to come home

with us.

>

[Guest guest]

Wow Tamara, that " doctor " ! Well, hopefully his final " med

adjustment " will help him or at least the current one so that he is

able to go home and do the partial day (is that same doc involved in

that??). I'll be happy too when you can get him seen by someone who

actually understands/knows about OCD. The " thing " with doctors - my

opinion - is that they are more familiar with what they are used to

seeing. So they are not necessarily " wrong " in that " depression can

bring on... " or something like that, but they are not familiar enough

with OCD to recognize it when it's right in front of them! (same

goes for things like autism, need someone who knows it all along the

spectrum)

I'm glad he's made a friend!

>

> Hi,

> This is 's 6th day in the hospital. He'll probably be

there

> until Wednesday, which can't come soon enough. Then he'll go back

to the

> partial day program for a little while. The first day was really

hard, but

> since then he's become friends with his roommate and gotten used to

the

> routine. Yesterday he seemed more like himself. He wasn't

agitated and

> sort of goofy from the meds anymore, and his thoughts were still

bothering

> him, but he was calm, and he was bored and desperate to come home

with us.

>

[Guest guest]

Tamara,

Not to be negative, but my daughters first hospitalization was a nightmare.

The first doctor that came in stripped her off of all her meds and said there

was nothing wrong with her. Come to find out this doctor was one of those

naturalists that don't believe in meds for kids. If you disagree with his

doctor, your actually better off getting him discharged and getting him in

somewhere else.

I will say my daughters 2nd hospitalization was better, with a much more

understanding doctor who recognized the ocd, amongst other things.

Hang in there

Hugs

Judy

[Guest guest]

Tamara,

Glad to hear your son is doing better, despite the lack of insight on

this particular doctor's part. I don't see how he can make a

diganosis with such little information. Although he may be correct

that some of the symptoms exhibited by your son can be indicative of

these other diagnoses, it can certainly also explain good ole

fashioned OCD for many patients. For instance, if a child has

thoughts of some harm coming to a parent while separated, he may

begin to act as a child who suffers from separation anxiety, etc. It

sounds as if this doctor is not looking at the complete picture and

isn't interested in evening attempting to get a better picture before

making new diagnoses. Besides, some folks only have mental

compulsions - my son is not one to have a lot of overt compulsions,

but he, at one time, didn't want to go to school because the

obsessions he would have while there were just too much to handle at

times. Did he have separation anxiety or OCD? He had OCD.

I hope you are successful in bringing this to the attention of those

who can help current and future patients in the hands of

this " expert. " It is difficult enough to be a confused parent in the

middle of this type of ordeal, but the " experts " are supposed to be

the ones to shed light on the picture.

>

> Hi,

> This is 's 6th day in the hospital. He'll probably be

there

> until Wednesday, which can't come soon enough. Then he'll go back

to the

> partial day program for a little while. The first day was really

hard, but

> since then he's become friends with his roommate and gotten used to

the

> routine. Yesterday he seemed more like himself. He wasn't

agitated and

> sort of goofy from the meds anymore, and his thoughts were still

bothering

> him, but he was calm, and he was bored and desperate to come home

with us.

>

> I've come to terms with the idea that the hospital has been the

right place

> for him to be while he was feeling desperate and unsafe. The

routine and

> med supervision and safe environment were what he needed. The

social worker

> and psychiatrist, however, are awful. I'm grateful that we already

have a

> diagnosis and an appt. set up with an OCD therapist in 2 weeks.

After a 5

> minute conversation with and no meeting with us, she

came to the

> firm conclusion that OCD is not his problem at all, because kids

with OCD

> usually wash their hands a lot or have rituals around neatness.

Instead,

> she said he has major depression, separation anxiety and school

phobia.

> When I told her he has morbid thoughts type of obsessions she said

that

> sometimes major depression in kids causes psychotic type thinking.

She's

> only planning to increase the resperdol and not the celexa (he's at

20 mg)

> because she doesn't think antidepressents will be much help. With

the

> exception of the past few weeks, my son has always been very

independent and

> he never had a fear of going to school. The diagnosis of

separation anxiety

> is way off, but the doctor was not interested in talking to me.

When I

> suggested that this different diagnosis makes me want to get him an

> evaluation by a team of experts, she interupted me to exclaim " I am

an

> expert, I am a board certified child psychiatrist. "

>

> from Foxboro, MA, another poster in this group, had an awful

> experience with the same doctor 3 years ago, only her experience

was much

> worse because her daughter had not been diagnosed yet with OCD.

My son and

> 's daughter were never asked standard psych screening

questions, like

> whether they have thoughts they can't get out of their head,

whether they

> count in their head, etc. The doctor is so unreasonable that I

don't want

> to provoke her by questioning her judgement anymore. Instead, I'm

going to

> get out of there as soon as possible and back into the

day

> program where the psychiatrist listened to me and recognized the

OCD.

>

> When everything settles down, I want to write to someone, not quite

sure

> who, (maybe the hospital that referred him to the day program), to

make them

> aware of how dangerous this doctor is to children with OCD. Maybe

the OC

> Foundation can offer advice.

>

> This group has been a tremendous help during this difficult time.

Thank you

> all for your support.

>

> Tamara

>

[Guest guest]

Tamara,

Oops, I got carried away. I just noticed the p-doc is a she, not a

he. Well, you get the picture of my thinking on your situation

anyway.

> >

> > Hi,

> > This is 's 6th day in the hospital. He'll probably be

> there

> > until Wednesday, which can't come soon enough. Then he'll go

back

> to the

> > partial day program for a little while. The first day was really

> hard, but

> > since then he's become friends with his roommate and gotten used

to

> the

> > routine. Yesterday he seemed more like himself. He wasn't

> agitated and

> > sort of goofy from the meds anymore, and his thoughts were still

> bothering

> > him, but he was calm, and he was bored and desperate to come home

> with us.

> >

> > I've come to terms with the idea that the hospital has been the

> right place

> > for him to be while he was feeling desperate and unsafe. The

> routine and

> > med supervision and safe environment were what he needed. The

> social worker

> > and psychiatrist, however, are awful. I'm grateful that we

already

> have a

> > diagnosis and an appt. set up with an OCD therapist in 2 weeks.

> After a 5

> > minute conversation with and no meeting with us, she

> came to the

> > firm conclusion that OCD is not his problem at all, because kids

> with OCD

> > usually wash their hands a lot or have rituals around neatness.

> Instead,

> > she said he has major depression, separation anxiety and school

> phobia.

> > When I told her he has morbid thoughts type of obsessions she

said

> that

> > sometimes major depression in kids causes psychotic type

thinking.

> She's

> > only planning to increase the resperdol and not the celexa (he's

at

> 20 mg)

> > because she doesn't think antidepressents will be much help.

With

> the

> > exception of the past few weeks, my son has always been very

> independent and

> > he never had a fear of going to school. The diagnosis of

> separation anxiety

> > is way off, but the doctor was not interested in talking to me.

> When I

> > suggested that this different diagnosis makes me want to get him

an

> > evaluation by a team of experts, she interupted me to exclaim " I

am

> an

> > expert, I am a board certified child psychiatrist. "

> >

> > from Foxboro, MA, another poster in this group, had an

awful

> > experience with the same doctor 3 years ago, only her experience

> was much

> > worse because her daughter had not been diagnosed yet with OCD.

> My son and

> > 's daughter were never asked standard psych screening

> questions, like

> > whether they have thoughts they can't get out of their head,

> whether they

> > count in their head, etc. The doctor is so unreasonable that I

> don't want

> > to provoke her by questioning her judgement anymore. Instead,

I'm

> going to

> > get out of there as soon as possible and back into

the

> day

> > program where the psychiatrist listened to me and recognized the

> OCD.

> >

> > When everything settles down, I want to write to someone, not

quite

> sure

> > who, (maybe the hospital that referred him to the day program),

to

> make them

> > aware of how dangerous this doctor is to children with OCD.

Maybe

> the OC

> > Foundation can offer advice.

> >

> > This group has been a tremendous help during this difficult

time.

> Thank you

> > all for your support.

> >

> > Tamara

> >

>