Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 Hi Fran, Sorry to moan but I didn't have a good night at all. I didn't realise it at the time but when I sent that mail out I was actually not too bad compared to the way I ended up. Then I had to get up at 08:00 this morning. I had to drive to Dundee and back yesterday. It was 2.5 hours up and just under 2 hours back (90 min break in between) so I guess that and the weather was what caused the problem. Serves me right for feeling so smug recently because I wasn't too bad I don't know why it is but I certainly do struggle more at night time for some reason. While I am on. Anyone had this problem? (If I can manage to explain it) While driving home last night, every time I took a deep breath, I felt as if something was moving at the top of my rib cage. (couldn't quite tell if it felt like a rib or something in between two ribs) Does this make sense? And before you lot start I don't want anyone advising me to stop breathing. Lol Thanks for your good wishes Fran. Hopefully things will improve again soon. Good luck with your upcoming tests. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 Dear , You are right, you sure don't want to give up breathing. That wouldn't help at all. You didn't say if the thing that felt like it was moving hurt? I'm betting it did or otherwise, it might have been strange but not a big deal. I've had painful ribs so often it's unreal and have often thought, ok this time I broke one some how. Yet I never have. I've also noticed that my sternum can ache and hurt like crazy if someone presses on it. (Not that we walk around pressing on each other's sternums around here...lol.) It sound like a inflamed tendon or muscle. AS far as it moving, was it like twitching? I get that a lot from the muscle actually being in a spasm and sometimes it does drive you crazy. If it still bothers you on Monday I would go get checked out at the doctor. You can developed so many lung problems on these arthritis medications we take, and that is the last thing you want to deal with. I also think things hurt more at night because there isn't as much to distract us from the pain. Our defenses are down, we are normally exhausted from dealing with this all day long, and it just gets to be too much at night. I noticed when my parents were ill and I was taking care of them, the nighttime was always the worst. So it is probably that way for all sorts of diseases, not just PA. Not that it helps us any to know that. Well I hope it goes away for you. I've noticed sometimes these strange pains pop up and then are gone a couple days later and I never do figure out what they are or what caused them. This disease is just hard to figure out and each day is such a challenge. Have you ever taken a sleeping pill or calmative at night? Sometimes that helps. I know it's easy to get used to them and then they don't even work, but sometimes they can make a big difference. I hope tonight you fall asleep like a baby (though I don't know why people say that, when my babies fought me constantly about going to sleep...lol) Take care and feel better soon. Sincerely, Fran ----Original Message----- From: martincoyless@... [mailto:martincoyless@...] Sent: Saturday, September 11, 2004 12:51 PM Subject: Re: [ ] RE: Pain at night? Hi Fran, Sorry to moan but I didn't have a good night at all. I didn't realise it at the time but when I sent that mail out I was actually not too bad compared to the way I ended up. Then I had to get up at 08:00 this morning. I had to drive to Dundee and back yesterday. It was 2.5 hours up and just under 2 hours back (90 min break in between) so I guess that and the weather was what caused the problem. Serves me right for feeling so smug recently because I wasn't too bad I don't know why it is but I certainly do struggle more at night time for some reason. While I am on. Anyone had this problem? (If I can manage to explain it) While driving home last night, every time I took a deep breath, I felt as if something was moving at the top of my rib cage. (couldn't quite tell if it felt like a rib or something in between two ribs) Does this make sense? And before you lot start I don't want anyone advising me to stop breathing. Lol Thanks for your good wishes Fran. Hopefully things will improve again soon. Good luck with your upcoming tests. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 In a message dated 9/12/04 1:26:52 PM GMT Daylight Time, fran@... writes: You didn't say if the thing that felt like it was moving hurt? I'm betting it did or otherwise, it might have been strange but not a big deal. Hi Fran, Strangely enough, it didn't really hurt. By that I mean as my whole ribcage was painful at the time, it wasn't any worse than the rest of the area. To me, it was/is..........I'll use your word.....strange. I felt like it was something moving that shouldn't be able to move. It happens after I take a deep breath (Do you ever feel as if you have not been breathing right for a while and then you take a deeper breath than normal?) It seems to happen when I am breathing out. I don't know....... I have had a couple of strange things happen over the past ten days or so. Sometimes feel as if I am falling apart at the seams. Lol It doesn't feel as if it is anything " deep " it feels as if it is the ribcage or the muscle surrounding it. I agree with you about it being worse at night. Even when I am feeling reasonably good during the day, I still struggle at night. Hope you are ok with Ivan bearing down on you. I have been following it on the news on its path through the Caribbean. It's a bad one ok! Take extra care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Dear , Well you are right about Ivan being a bad hurricane. So far it's not expected to hit near my home or anywhere along the west coast, though we might have a storm surge from it even with it being 300 miles out in the gulf. It is one powerful storm. Even though it's not expected to make landfall near us anymore, no one is really resting until it does land. After Charlie made that sudden turn and caught everyone off guard, no one really is relaxing. This isn't one to fool around with and if it were to turn, everyone would have to run like mad to get out of the way. As is typical for me, I'm supposed to go to the Cleveland Clinic in Naples this Wednesday through Friday. Unless the weather is bad we still plan on going and I'll be glad to just get this over with. All I need is for someone else to tell me all these " strange " things are the result of PA and then I'll relax more I think. As far as your chest and the moving feeling, I think I'd go see the doctor again. I know it sounds weird and when you aren't in a lot of pain, it's easy to skip the doctor. I use any excuse I can anymore to not go...lol. But your chest isn't anything to take for granted. It sounds like you could be having lung problems especially since it happens a lot when you try and take a deep breath. Asthma a lot of times shows up only when you do breath out. (One of the strange things about asthma is during an attack the problem is getting the air out of your lungs, not in. Of course because you can't get air out, you can't get it in either, so you lose no matter what.) I don't know if you have any lung problems in your family, but I've read where PA can hurt your lungs as well as your heart. Not to worry you unnecessarily, but you can really hurt yourself by not going in when these strange symptoms occur. You also said you were having other things happen this week, so that worries me too. I know what it is like to have a spell when everything seems to be falling apart. Someday I swear I feel like that constantly. I will just get one pain somewhat under control and then something else either starts hurting and half the time I swear it's something that never even hurt before. Though by now you would think I would run out of new things to hurt. Probably you have just pulled a muscle in your rib cage or near your chest, but it makes sense to be sure. I try to not let the night get me down. It's not easy though when it's quiet and everyone is asleep. I've found I simply have to get out of bed, rather than just lie there and worry and hurt. I end up on the computer...like now..lol, or sometimes I read. I know PA has messed up my sleep because of the pain. My pain doctor put me on a new drug called gabitril this week, that is supposed to help with neuropathic pain, but the great thing is it knocks me right out and I take it at night. So far so good, I just don't stay asleep, but I'm happy now if I get 5 hours or less of sleep in a row. Well take it easy and don't wait too long to see your doctor. We can't let anything happen to you, the PA site wouldn't be the same without your great sense of humor...So take care of yourself! I'll email everyone when I get back from the Clinic. Love, Fran ----Original Message----- From: martincoyless@... [mailto:martincoyless@...] Sent: Monday, September 13, 2004 4:37 PM Subject: Re: [ ] RE: Pain at night? In a message dated 9/12/04 1:26:52 PM GMT Daylight Time, fran@... writes: You didn't say if the thing that felt like it was moving hurt? I'm betting it did or otherwise, it might have been strange but not a big deal. Hi Fran, Strangely enough, it didn't really hurt. By that I mean as my whole ribcage was painful at the time, it wasn't any worse than the rest of the area. To me, it was/is..........I'll use your word.....strange. I felt like it was something moving that shouldn't be able to move. It happens after I take a deep breath (Do you ever feel as if you have not been breathing right for a while and then you take a deeper breath than normal?) It seems to happen when I am breathing out. I don't know....... I have had a couple of strange things happen over the past ten days or so. Sometimes feel as if I am falling apart at the seams. Lol It doesn't feel as if it is anything " deep " it feels as if it is the ribcage or the muscle surrounding it. I agree with you about it being worse at night. Even when I am feeling reasonably good during the day, I still struggle at night. Hope you are ok with Ivan bearing down on you. I have been following it on the news on its path through the Caribbean. It's a bad one ok! Take extra care, Quote Link to comment Share on other sites More sharing options...
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