At My Wit's End. THANK YOU

[Guest guest]

THANK YOU to everyone who wrote to me offering advice, support and

encouragement. I will try to reply to everyone individually over the next week.

One terrific lady rang me last night from the other end of the country, and has

told me of the Rheumatologist who is the Australian expert in PA who is in

Sydney (just gotta raise the cash to get there) and about some pain meds that

have worked for her and are available here.

I really appreciate this group. I love the way people support and encourage each

other, and share news of what works etc.

God bless you all,

Greg.

been removed]

[Editor's Note: Greg, you are most welcome! Thank you for letting us know we've

been helpful. We hope you will become a regular contributor to this forum.

Please (if you don't mind) keep us up to date with you ( & your PA); I'm sure the

membership will want to know how you're doing, help you avoid any pitfalls, etc.

I have a question for you: I'm curious as to which pain meds aren't available in

Australia. In dialogues with Down Under members, I've been told by one person

that methadone isn't available, and by another, that it is. Also, I'm not sure

whether Oxycontin is possible to get; and last year, one of your countrymen was

looking for something that would help control his excruciating pain, and I

recommended Avinza (sustained release morphine sulphate).

If you can clear up what really is not available, it would help me advise

others. Thanks.

D.

[Guest guest]

Wow Greg. I'm shocked that your doc confirmed that you have broken bones on top

of all the other problems and they STILL won't give you proper pain control. I

am sending major prayers up for you that this new rheumy is going to be a

perfect doctor for you and get you back some quality of life. As far as the

government doc, if he doesn't see with all these results that you deserve the

disability pension then he must be blind! I will be watching for you post to

see how everything goes, I'm pulling for ya!

Axelrod

[Guest guest]

Greg,

Sounds as if you and I have alot in common when it comes to our

illness. It is one hard road but I have had these problems since the

age of 5 years old but I am still pressing on. I have spurs all over my

body so bad but I especiallly have alot of neck problems. Doc took

x-rays and besides all of the bones deteraratimg I have big old spurs

all over neck and spine. One spur is in my throat and the Dr. is very

concerned over it. He is afraid it will grow and cut off my

swallowling. He said he would not begin to touch it and it would be a

very serious operation if they even could operate. Please do not think

in terms of being in a wheelchair. Try to think positive Greg. I know

it is very hard to do but when I was in my twenties my Dr. said by the

time I turned 40 I would be in a wheeel chair. I made my self

determined I would show him he was wromg. I am now 50 and still walking

on my own. Somedays it is hard too but I make myself go on. I even try

to walk a mile a day . Since he told me this 20 some years ago I have

came down with alot more PA in my feet plus I am a diabetc and have a

bad case od Neuopathy in legs and feet plus extra bones in my feet plus

spurs all over my feet. In fact, I have a big spur grown over a nerve

and pressing on the nerve now . I have fought depression all my life

and I know how all this gets one down but look around you and really see

the beauty and the love given to us each day. Enjoy the new family you

have here and except all the support and love all give you. Together we

can make it. In this walk of life with all of us here in the same boat

when one cries out in pain we stop and carry you on down the road until

you are able to walk with us. We care and please except us as we are

each one of us needing each other to help use thru each big rock in the

road we can't get over unless someone helps. We are here for you Greg

Blessings upon you, Zoella.

" If you think you are too small to make a difference, you have never

been in bed with a mosquito. "

[Guest guest]

my rheumy wont' give me pain meds... the max she will give me is Darvon...

which doesn't do squat to touch the pain, I think the vicodin es does

better, but she won't prescribe pain meds period... dunno why either.