Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 In a message dated 7/16/2004 12:55:11 PM Eastern Standard Time, leonoraseinfeld@... writes: Has anyone been to the Mayo Clinic in ville, Florida? If so I would love to hear your feedback, as I have an upcoming appointment there. I was also wondering if it compares to the Rochester Mayo Clinic, which is suppossed to be the best. Thanks, Leonora Hi Leonora, I can't say how it compares to Rochester, but I went there a little over a year ago and had a great experience. I have PA, psoriasis, hypothyroid, pernicious anemia and trouble with iron absorption. I saw an endocrinologist, rheumatologist and hematologist...at the time I went, I was in a little bit of a remission, so I wasn't needing that much help, but I wanted to make sure I was doing all of the right things to take care of each one of the illnesses, as well as be aware of anything else I needed to pay attention to. My experience was incredible...the doctors all communicated with each other, and I got full transcripts of all of their notes. They looked at ALL of my problems together, and adjusted a few of my meds, as well as set some new standards to manage to...they told me that sometimes the traditional standards for things like B12 level, folic acid, iron, etc are set for the average person, but that people with autoimmune diseases should aim for different levels and they gave me all of those levels...the associated changes in treatment helped for about 6 months. I've had some challenges in the last few months but am doing OK at the moment, but the minute I feel like I need their help, I will go back... I don't know where you are traveling from, but I would encourage you to stay on campus...there is a Marriott Courtyard there...and make sure you bring plenty to read as you will have lots of free time in between appointments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Leonora, Hi My name is Keli. I live in ville, FL. I have been to the Mayo Clinic here on several different occasions. I think they are as good as any of the others. I've never been to the others so I can't be sure. Good luck with your appt. Keli > Has anyone been to the Mayo Clinic in ville, Florida? If so I would love to hear your feedback, as I have an upcoming appointment there. I was also wondering if it compares to the Rochester Mayo Clinic, which is suppossed to be the best. > > Thanks, > Leonora > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Hi, I already posted on this but it has been posted on the board yet. It probably will later. I live in Jax,FL. I was seen at mayo for several undiagnosed neurological problems. They did a lot of labs almost $1000 in just labs. The only thing they could find was a B-12 defiency. So I don't know what else to do but to deal with the symptoms. I figured if they could not figure me out then no one can. lol! So, that's where I am now. But the staff there is wonderful. The doctor told me to call back if the symptoms did not disappear with b-12 supplements, they have not but i just don't have the time and energy to go back right now. Good luck with your appt. Oh and the lab, they are wonderful. You barely can feel the needle stick. Keli > > In a message dated 7/16/2004 12:55:11 PM Eastern Standard Time, > leonoraseinfeld@y... writes: > > Has anyone been to the Mayo Clinic in ville, Florida? If so I would > love to hear your feedback, as I have an upcoming appointment there. I was > also wondering if it compares to the Rochester Mayo Clinic, which is suppossed > to be the best. > > Thanks, > Leonora > > > Hi Leonora, I can't say how it compares to Rochester, but I went there a > little over a year ago and had a great experience. I have PA, psoriasis, > hypothyroid, pernicious anemia and trouble with iron absorption. I saw an > endocrinologist, rheumatologist and hematologist...at the time I went, I was in a > little bit of a remission, so I wasn't needing that much help, but I wanted to > make sure I was doing all of the right things to take care of each one of the > illnesses, as well as be aware of anything else I needed to pay attention to. > My experience was incredible...the doctors all communicated with each > other, and I got full transcripts of all of their notes. They looked at ALL of my > problems together, and adjusted a few of my meds, as well as set some new > standards to manage to...they told me that sometimes the traditional standards > for things like B12 level, folic acid, iron, etc are set for the average > person, but that people with autoimmune diseases should aim for different levels > and they gave me all of those levels...the associated changes in treatment > helped for about 6 months. I've had some challenges in the last few months but > am doing OK at the moment, but the minute I feel like I need their help, I > will go back... > > I don't know where you are traveling from, but I would encourage you to stay > on campus...there is a Marriott Courtyard there...and make sure you bring > plenty to read as you will have lots of free time in between appointments. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 In a message dated 7/18/2004 12:45:45 PM Eastern Standard Time, krhoden78@... writes: I was seen at mayo for several undiagnosed neurological problems. They did a lot of labs almost $1000 in just labs. The only thing they could find was a B-12 defiency. Keli, did they diagnose pernicious anemia as the cause of the B12? That can cause the neurological problems...you can't solve the B12 issue with oral supplements if you have pernicious anemia...you have to inject the B12. Pernicious anemia destroys the lining of your stomach where intrinsic factor is produced...intrinsic factor is required for your body to absorb B12 intestinally...so if you aren't taking shots, the pills wouldn't help you which would explain why your symptoms haven't gone away... I was diagnosed with pernicious anemia almost 4 years ago...it took almost a full year of B12 injections to get my B12 levels back to normal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 , The doctor said they didn't know which it was. She said it may just be dietary. I don't eat a lot of meats. I took supplements for a month and had more lab work and my doctor said that the level went back to normal but my symtoms have not gotten any better. So she said that I wasn't having a problem absorbing it just not enough in my diet. Thanks for responding to my message. Keli > > In a message dated 7/18/2004 12:45:45 PM Eastern Standard Time, > krhoden78@y... writes: > > I was seen at mayo > for several undiagnosed neurological problems. They did a lot of > labs almost $1000 in just labs. The only thing they could find was a > B-12 defiency. > > > Keli, did they diagnose pernicious anemia as the cause of the B12? That can > cause the neurological problems...you can't solve the B12 issue with oral > supplements if you have pernicious anemia...you have to inject the B12. > Pernicious anemia destroys the lining of your stomach where intrinsic factor is > produced...intrinsic factor is required for your body to absorb B12 > intestinally...so if you aren't taking shots, the pills wouldn't help you which would > explain why your symptoms haven't gone away... > > I was diagnosed with pernicious anemia almost 4 years ago...it took almost a > full year of B12 injections to get my B12 levels back to normal. > > > > > Quote Link to comment Share on other sites More sharing options...
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