Re: New To The List W/A Question

[Guest guest]

Dear Deb, Welcome to our little corner of the world. it's a great group of

people and everyone really does seem to care about each other. It's like

coming home at the end of a hard day...lol.

Sorry to hear about your PA, but I'm glad you found us too. I have the same

sort of rash you are describing. In fact it drives the dermatologists nuts.

They always tell me it's not PA and have even done biopsies on it. It

mainly comes back as skin damaged from the sun, but it is always worse when

my PA intensifies. My rheumatologist doesn't believe any of the

dermatologists and says it's classic guttate psoriasis. So who knows? I

know I have all the symptoms of PA, but there is a chance it is RA too. I

also have fibro which seems to be normal with PA. My rash is on my arms and

legs. Once I get a new spot, it never completely goes away. There is

always a little scar there where the spot started. So it if keeps up I " ll

be all one color soon..lol.

Anyway, if you find out what your rash is let me know. Mine itches like

crazy too, which isn't any fun a all. It's also worse on my left side where

the PA is worse too. Well I wish I knew more or had some advice. Take care

and welcome, Love, Fran [ ] New To The List W/A Question

Hello Everyone.

My name is Deb and I was diagnosed with PA about 3 years ago, though I was

symptomatic for about 5. I was diagnosed with Fibromyalgia 2 years ago, as

well. I have been on methotrexate and NSAID's for the last 2 years, and was

on Prednisone for a year before that. I hate the MTX side effects, but must

admit that, at least for the time being, it is doing its job.

I am wondering if anyone else on the list suffers from a rash other than

the typical psoriasis? My psoriasis has never been the typical scale/plaque

kind. I do get itchy bumps on my elbows and knees, plus the very attractive

dippity-do nails, with ridges, pits and occasionally thickness, on my finger

and tow nails.

However, I also get odd bumps on my body that have common characteristics.

They start out like a simple bump, looking like an ingrown hair or

something, then get thick like a keloid, sometimes blister, and take forever

to heal. They occur mostly on my scalp, elbows, knkees, upper arms, and

infrequently on other places. Definitely not zits, but definitely

" something " . I have had them come and go for as long as I have had the

disease. I thought for a while that it was from a compromised immune

system, or a side effect of the meds I take.

>From being a lurker for the past few days, I just want to say that I feel

that this is a very supportive list and I look forward to being a part of it

and getting to know everyone.

Deb

New Mexico

[Guest guest]

---

Hi Deb,

I'm kind of new also-but I feel very welcome with this supportive

group. I have found out alot of information that I have shared with

my family, etc. from this group. Sometimes I don't have something to

say, but I still feel part of this group and always welcomed. I have

Psoriasis on my scalp awful for about 30 years-it never completely

clears up. In 2002 I broke my hip in a fall in my hallway over a

laundry basket (I'm 43 years old)it snapped before I hit the floor.

After my hospital stay and the hip repair my right index finger

wouldn't bend after that my PA flared up all over and I was finally

diagnosed by a Rheumy with PA without a referral after my GP said I

had gout this was last year. I also have Oseoporosis.

I hope someone can answer your question about the bumps you have-I

have the scally plaque type of P on my scalp.

Welcome and God Bless, Sue in Michigan.

In , " The Maugers "

<themaugers@t...> wrote:

>

> Hello Everyone.

>

> My name is Deb and I was diagnosed with PA about 3 years ago,

though I was symptomatic for about 5. I was diagnosed with

Fibromyalgia 2 years ago, as well. I have been on methotrexate and

NSAID's for the last 2 years, and was on Prednisone for a year before

that. I hate the MTX side effects, but must admit that, at least for

the time being, it is doing its job.

>

> I am wondering if anyone else on the list suffers from a rash other

than the typical psoriasis? My psoriasis has never been the typical

scale/plaque kind. I do get itchy bumps on my elbows and knees, plus

the very attractive dippity-do nails, with ridges, pits and

occasionally thickness, on my finger and tow nails.

>

> However, I also get odd bumps on my body that have common

characteristics. They start out like a simple bump, looking like an

ingrown hair or something, then get thick like a keloid, sometimes

blister, and take forever to heal. They occur mostly on my scalp,

elbows, knkees, upper arms, and infrequently on other places.

Definitely not zits, but definitely " something " . I have had them

come and go for as long as I have had the disease. I thought for a

while that it was from a compromised immune system, or a side effect

of the meds I take.

>

> From being a lurker for the past few days, I just want to say that

I feel that this is a very supportive list and I look forward to

being a part of it and getting to know everyone.

>

> Deb

> New Mexico

>

>

>

>

>

>

[Guest guest]

Welcome Deb,

Glad to have you with us. I have plaque p but I do get small red

bumps on my ears which hurt and need to be surgically cut out

sometimes. They give them a long latin name which means....small

bumps on ear...LOL! sorry I can't be of more help. keep writing..

best,

Marti

>

> Hello Everyone.

>

> My name is Deb and I was diagnosed with PA about 3 years ago,

though I was symptomatic for about 5. I was diagnosed with

Fibromyalgia 2 years ago, as well. I have been on methotrexate and

NSAID's for the last 2 years, and was on Prednisone for a year before

that. I hate the MTX side effects, but must admit that, at least for

the time being, it is doing its job.

>

> I am wondering if anyone else on the list suffers from a rash other

than the typical psoriasis? My psoriasis has never been the typical

scale/plaque kind. I do get itchy bumps on my elbows and knees, plus

the very attractive dippity-do nails, with ridges, pits and

occasionally thickness, on my finger and tow nails.

>

> However, I also get odd bumps on my body that have common

characteristics. They start out like a simple bump, looking like an

ingrown hair or something, then get thick like a keloid, sometimes

blister, and take forever to heal. They occur mostly on my scalp,

elbows, knkees, upper arms, and infrequently on other places.

Definitely not zits, but definitely " something " . I have had them

come and go for as long as I have had the disease. I thought for a

while that it was from a compromised immune system, or a side effect

of the meds I take.

>

> From being a lurker for the past few days, I just want to say that

I feel that this is a very supportive list and I look forward to

being a part of it and getting to know everyone.

>

> Deb

> New Mexico

>

>

>

>

>

>

[Guest guest]

Marti, I shouldn't laugh, but your small bumps in the ear definition cracked

me up. It sounds really painful though and I hope I don't get that one. Do

they say it's related to PA? You sure are a strong person to put up with

everything and still be smiling. I guess that just goes with this group

though. Take care and thanks for the smile, Love, Fran

[ ] Re: New To The List W/A Question

Welcome Deb,

Glad to have you with us. I have plaque p but I do get small red

bumps on my ears which hurt and need to be surgically cut out

sometimes. They give them a long latin name which means....small

bumps on ear...LOL! sorry I can't be of more help. keep writing..

best,

Marti

[Guest guest]

Hi Deb,

Welcome to the group. Sorry that I can't help you with the problem with

bumps and blisters but hopefully someone will have already mailed you with some

advice (I am still a day behind on the E-mail. I'll catch up eventually)

I liked your " Dippity do " description of the nails. Next time someone asks

me what's wrong with them I will just say they are Dippity do nails. lol

Hope you find what you are looking for with us. At least you are now in

touch with people who have a good idea of what you are going through.

Good luck,

[Guest guest]

-Hi Fran,

LOL! I don't know if the bumps on the ear are related to p and pa or

not. My Aunt(who has neither) had one on the same ear at the same

time as me. I was almost embarrased to tell her about mine.....like

oh yeah...I have that too...LOL!

it's called: chondrodermatitis nodularis chronica helius

Are there any more hurrcanes expected? I sure hope not!

Take Care,

Marti

-- In , " Fran Mishler " <fran@m...>

wrote:

>

> Marti, I shouldn't laugh, but your small bumps in the ear

definition cracked

> me up. It sounds really painful though and I hope I don't get that

one. Do

> they say it's related to PA? You sure are a strong person to put up

with

> everything and still be smiling. I guess that just goes with this

group

> though. Take care and thanks for the smile, Love, Fran

> [ ] Re: New To The List W/A Question

>

>

>

>

> Welcome Deb,

>

> Glad to have you with us. I have plaque p but I do get small red

> bumps on my ears which hurt and need to be surgically cut out

> sometimes. They give them a long latin name which means....small

> bumps on ear...LOL! sorry I can't be of more help. keep

writing..

>

> best,

> Marti

[Guest guest]

Hi Deb,

I was diagnosed with PA and psoriasis even though I've never had the

typical plaques on the knees and elbows. A couple of years ago,

before I was diagnosed, I broke out with these weird bumps like you

described. I thought they were bug bites. The first one I noticed

was on my upper arm. It seemed to appear after being in the sun for

too long (though I did not get sunburned). It itched but not

terribly. Within days, I broke out on my torso, my neck, my legs,

etc. I had about a dozen or so spots, that started small and then

grew, till they were the size of half dollars. I thought they were

hives, so, stupid me, I didn't get them checked. More than a month

later, after they were all cleared up, I told my primary doctor and

he said they weren't hives, but at the time he wasn't sure what it

was. When I told the rheumy I was seeing (I was told years ago I had

FMS and was being tested for RA due to swelling in my hands) about

the breakout and my family history of psoriasis, she diagnosed PsA

quite quickly. I haven't had another episode like that, thank God,

but I also had a baby, which put me in a sort of remission. I do

notice though, especially in the summer, I get a bunch of red bumps

right above my kneecaps that come and go. I don't know if they're

related to the condition or a type of folliculitis from shaving, but

they seem to only appear in the summer months and I shave my legs

year round! The bumps seem to get worse when I'm in the sun too

long, so I definitely feel there's a connection. Anyway, hope this

helps. If you want to talk more, please feel free to e-mail me at

aimrich@.... Take care, Amy

[Guest guest]

In a message dated 10/5/2004 1:42:31 PM Eastern Standard Time,

themaugers@... writes:

They start out like a simple bump, looking like an ingrown hair or

something, then get thick like a keloid, sometimes blister, and take forever to

heal.

They occur mostly on my scalp, elbows, knkees, upper arms, and infrequently

on other places. Definitely not zits, but definitely " something " .

Deb, I have something similar...Fran described something like that as being

like cigarette burns all over and that seems to be my problem as well...my

dermie once said they might be the guttate form and another time said they might

be p that has turned into folliculitis...she gave me an acne type scrub for

the shower to treat the folliculitis which cleared up about half of them..I

think it was called Brevacol. The others just seem to linger...