Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Since I'm new to this whole PA thing, I have a question. I notice that for me, I dont have alot of consistant and constant pain, but I find that sometimes the affected joints will almost throb, LIke my toe for instance..PAIN NOPAIN PAIN NOPAIN PAIN NOPAIN, almost as regular as my heartbeat. Sometimes it feels like fire in the joint, I'm suspecting that's where you get the term " flare " ? My thumb especially suffers from the fire joint syndrome. My pinky only seems to hurt when I extend it past it's ability to flex, when I forget that it's affected and try to use it as normal. The middle of my back and my neck seems to hurt only when I move. The collarbone hurts when I lift something, or turn it wrong. Is it normal to have different kinds of pain in different affected joints? Is there a 'normal' anymore? Comments? Crystal [Editor's Note: Crystal, many of us refer to life with PA as our " new normal " because nothing is like it used to be. I certainly experience different types of pain in different places. Some pain is permanent while some of it does the " pain nopain " reggae. Great to have you here. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 hay I remember just yesturday I was walking to the car and my left foot had a sharp pain in it that was so powerful I almost fell over. Then like it came it left and It has not returned. I also notice when wearing thin soled shoes, that when I step on rocks (little pebble type rocks) that I get shockwaves of tremendous pain. It's like the nerves are over sensitive at times. Other times I am fine. Luckely I only seem to get PA in my feet. One thing I have noticed is that my quality of life improves 10 fold if I go jogging or stair stepping in the morning before the day's swelling occures. It;s like the excersize is loosening my joints. > > Since I'm new to this whole PA thing, I have a question. I notice that for > me, I dont have alot of consistant and constant pain, but I find that > sometimes the affected joints will almost throb, LIke my toe for > instance..PAIN NOPAIN PAIN NOPAIN PAIN NOPAIN, almost as regular as my > heartbeat. Sometimes it feels like fire in the joint, I'm suspecting that's > where you get the term " flare " ? My thumb especially suffers from the fire > joint syndrome. My pinky only seems to hurt when I extend it past it's > ability to flex, when I forget that it's affected and try to use it as > normal. The middle of my back and my neck seems to hurt only when I move. > The collarbone hurts when I lift something, or turn it wrong. > > Is it normal to have different kinds of pain in different affected joints? > Is there a 'normal' anymore? > > Comments? > > Crystal > > > [Editor's Note: Crystal, many of us refer to life with PA as our " new normal " because nothing is like it used to be. I certainly experience different types of pain in different places. Some pain is permanent while some of it does the " pain nopain " reggae. Great to have you here. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 In a message dated 11/5/2004 5:59:23 AM Eastern Standard Time, wodell3320@... writes: Pain/No Pain.....absolutely. I remember walking out to get something out of the car happy to be feeling fine...thinking it was going to be a good day.....but 30 seconds later, I was limping back into the house. Oh, DO I know that oh so well. The last few days I thought I had been improving. I guess that is because I just did things around the house and didn't try much walking. Today I went out to the store with my husband and no sooner did we park and walk into the store, that enemy of mine pain started in. Then my knees throbbed and my ankle swelled up and I knew I was back to the same old pain. I wonder what it is like to feel normal again. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Hi Crystal, This is a reply to an e-mail going back a few days, but... I experience different types of pain in different areas as well... Some are more consistant and always achy (like my lower and sometimes upper back), or sharp pain " just because " , but it doesn't seem to last for long, or the pain from moving something that is hurting or inflamed. What for me is finally great, is to know that it is really happening and I am not just imagining it or going crazy... For me though, the " flares " are HUGE in comparison including major swelling, major pain and inability to move regardless of the pain (because the inflamation is so bad)... Hope you're doing well... (idaho) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 , I know what you mean. For years I thought I was just imagining these things. It is good to have a diagnosis. Now I don't feel guilty when I am too tired to do the house work M jerre > > Hi Crystal, > > This is a reply to an e-mail going back a few days, but... > > I experience different types of pain in different areas as well... Some are more consistant and always achy (like my lower and sometimes upper back), or sharp pain " just because " , but it doesn't seem to last for long, or the pain from moving something that is hurting or inflamed. What for me is finally great, is to know that it is really happening and I am not just imagining it or going crazy... For me though, the " flares " are HUGE in comparison including major swelling, major pain and inability to move regardless of the pain (because the inflamation is so bad)... > > Hope you're doing well... > > (idaho) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Hi Crystal, For me, you are in the very frustrating phase. It's like you know you are in pain and it effects your every day life signifigantly, but nothing or no one seems to " get it " because it isn't bad enough... This has been mostly my expierence with PA ~ it's good and bad. The last major flare I had was so dibilitating, but it gave me my diagnoisis and the hard core meds, so I wouldn't trade it for the world... Sounds so sad to say, but true... I don't know if the biologics only work when you're really flaring or what, but Remicade was my saviour and now I'm doing acupunture and nothing else.... I have aching and pain now and then ~ and some psorisis, but nothing major and I am glad to be off the meds... I wish you luck... And I love so many of your replies ~ your sense of humor is great.... (idaho) Turrelle LaMere <turrelle@...> wrote: Hi , any response is more than welcome, late or otherwise Sometimes I think that just regular aches and pains might be the PA showing up in a place I didn't know about yet, is that kind of paranoia regular? (see I didn't say normal? heh heh) I " m not sure if I have a vertebrae out and need to go see a chiro soon, or whether the PA has migrated to the back. It's kind of frustrating. I think when I go see the new Rhumy in Dec, I " m going to ask if we can Xray everything and pin down what is affected and what isn't. I dont think I quite know what a 'flare' is, because it seems that most of the people describing them, say that they are very dibilitating and to the point where one is almost bed ridden. I have yet to experience that (knocking on wood!) But then I caught mine pretty early, I'm sure, so maybe I'm lucky. The MTX hasn't seem to have kicked in yet, the affected joints are still sore and swelling, but I hope something works soon. Wish me luck, and thanks for replying. Bright Blessings.. Crystal > Quote Link to comment Share on other sites More sharing options...
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