Re: Calp Psoriasis

[Guest guest]

---

Hi Patty,

I don't know if you are on Enbrel-but that is the only thing that

helped my awful P on my scalp that I have had since I've been about

12 years old-Enbrel cleared up all of it, but the sad thing it hasn't

done anything for my joint pain, tireness, etc.!! My Rheumy said he

has given up on me because he has turned to the " big guns " Enbrel and

Arava combined with Methotrexate and it hasn't helped with the PA at

all. He wants me to call for a 2nd opinion of another Rheumy because

he thinks I have something else going on with my PA. I use to use T-

GEL by Neutrogena-which would help but messed up with my coloring of

my hair. T-SAL wasn't strong enough. Sorry this sounds like a

downer.

God Bless, Sue.

In , " Patty B " <pattybacon@n...>

wrote:

>

>

> Howdy everyone!

>

> I'm in need of some help/advice from some of you who've experienced

P

> on the scalp recently. I haven't had to worry much about P except

> for a little on my ankles and elbows for years but this winter it's

> beginning to get the best of me -- especially this crust that's

> forming on my scalp. I haven't kept up with any new developments

and

> have been so skeptical of any topicals in the past. Is there really

> anything worth trying nowadays?

>

> Many thanks,

>

> Patty in the cool Pineywoods of East Texas

[Guest guest]

I find something that works great and then loses effectiveness, so I use

different ones each time I shampoo. It gets a little crowded in the

shower!!!!

T-Gel is my standard. Then I use anything with tea tree oil or peppermint.

Arbonne has a good one. I order that on line. My hairdresser gave me a

really good peppermint rinse, but I put it in my shower caddy and threw away

the bottle. It tingles when I put it on--and seems to stop the itching for

hours.

At times, I use antibiotic ointment on the bleeding patches at bedtime.

That gives relief for several day. I use the liquid dovonex for scalp also.

Good luck. There is no simple solution.

Ks Di

[ ] Re: Calp Psoriasis

>

>

>

> ---

> Hi Patty,

>

> I don't know if you are on Enbrel-but that is the only thing that

> helped my awful P on my scalp that I have had since I've been about

> 12 years old-Enbrel cleared up all of it, but the sad thing it hasn't

> done anything for my joint pain, tireness, etc.!! My Rheumy said he

> has given up on me because he has turned to the " big guns " Enbrel and

> Arava combined with Methotrexate and it hasn't helped with the PA at

> all. He wants me to call for a 2nd opinion of another Rheumy because

> he thinks I have something else going on with my PA. I use to use T-

> GEL by Neutrogena-which would help but messed up with my coloring of

> my hair. T-SAL wasn't strong enough. Sorry this sounds like a

> downer.

>

> God Bless, Sue.

> In , " Patty B " <pattybacon@n...>

> wrote:

> >

> >

> > Howdy everyone!

> >

> > I'm in need of some help/advice from some of you who've experienced

> P

> > on the scalp recently. I haven't had to worry much about P except

> > for a little on my ankles and elbows for years but this winter it's

> > beginning to get the best of me -- especially this crust that's

> > forming on my scalp. I haven't kept up with any new developments

> and

> > have been so skeptical of any topicals in the past. Is there really

> > anything worth trying nowadays?

> >

> > Many thanks,

> >

> > Patty in the cool Pineywoods of East Texas

[Guest guest]

Hi Patty and Sue,

Sue, I'm very sorry that the Enbrel hasn't helped your joints. Has

your Reum. discussed other options? Before starting Enbrel, my

doctor had said if the Enbrel didn't work, Remicade would be our

next line of attack.

I'd had psoriasis for 15 years on my scalp and ears. About 18 mths.

ago my joints were attacked - BAD and the psoriasis started up on my

elbow and leg. (oh, and how could I forget my toenails...I didn't

know that was psoriasis until a couple months ago). Anyway, I've

been on Enbrel for 4 months now and my skin, joints, toenails are

all totally better. Recently I developed one tiny skin patch on my

elbow but it's absolutely no big deal. Also, last week I had some

pain in my ankle and foot. It was right after changing to the 50 mg

Enbrel and reducing the MTX to 7.5mg. Initially I was a little

scared but it seems to have disappeared as fast as it came.

I LOVE Enbrel ! Over the past couple months I've posted quite a bit

about my experience. I HIGHLY recommend giving it a try !

> >

> >

> > Howdy everyone!

> >

> > I'm in need of some help/advice from some of you who've

experienced

> P

> > on the scalp recently. I haven't had to worry much about P

except

> > for a little on my ankles and elbows for years but this winter

it's

> > beginning to get the best of me -- especially this crust that's

> > forming on my scalp. I haven't kept up with any new developments

> and

> > have been so skeptical of any topicals in the past. Is there

really

> > anything worth trying nowadays?

> >

> > Many thanks,

> >

> > Patty in the cool Pineywoods of East Texas

[Guest guest]

There is a Dovonex solution for the scalp. I've used that and Olux foam and its

helped a bit.

Good luck!

Beth

Patty B <pattybacon@...> wrote:

Howdy everyone!

I'm in need of some help/advice from some of you who've experienced P

on the scalp recently. I haven't had to worry much about P except

for a little on my ankles and elbows for years but this winter it's

beginning to get the best of me -- especially this crust that's

forming on my scalp. I haven't kept up with any new developments and

have been so skeptical of any topicals in the past. Is there really

anything worth trying nowadays?

Many thanks,

Patty in the cool Pineywoods of East Texas