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Re: Arthritic Hands

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>Vit E is a blood thinner. How does his blood remain stable???

>

Little known is that Vitamin E is a fat soluble vitamin and as such is not

absorbed into the blood system, but the lymphatic system where it is

primarily used. Unless the body water solublizes Vitamin E so it can be

used in the blood or intercellular fluid it will stay in the lymphatic

system. The same for vitamin A, D and K.

Also, almost every form of vitamin E on the market is synthetic or

identical to synthetic because of it's denaturing during its isolation out

of the food from which it was originally found such as soy beans. In such a

state, the so called " natural " vitamin E has lost much of its

effectiveness. Much the same as a quarterback on a football team without

the rest of the team.

Warm regards,

Joe Bentley

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  • 2 years later...

What I'm seeing doesn't look like

> PA symptoms but more like RA. Can we see this in PA? I have

tested

> negative for RA. Cassie

Mine too. The tip of my index finger looks like it's growing

sideways and I have toes doing it too. All of my grandmothers

fingers do this also.

I have read many times that RA and PA are very similar in thier

manifestations. Enough so one site I went to even suggested that

many people with PA was probably misdiagnosed with RA , back before

they knew much about PA.

My rhuemy told me yesterday that they are so similar that some of

the medical community is argueing over weather they are indeed

different diseases, or weather we have RA and the psoriasis is just

coincednce. Hope this helps! ---Merribeth

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Hi Cassie,

My affected thumb angles outward when I bend it. I would like to know the

answers to your questions as well. I have P and PA, negative RA. Cheryl

[ ] Arthritic Hands

> Hi All, I finally got my Enbrel restarted and am taking Vioxx again

> for a short time due to inflammation in my thumbs. My hands are

> looking different lately like there are rapid changes taking place as

> far as arthritic appearance. I'm having alot of stiffness and

> discomfort in all the fingers. One fingernail is turning white on

> the side (it looks just like the nail tips normally look). Don't know

> if that is the beginning of nail psoriasis or not. My fingers have a

> feeling of that I can't explain other than they feel like they are

> being pulled side ways and my thumbs seem to have changed shape. The

> thumbs are starting to become angled outward from the middle joint to

> the tip. It looks almost like the beginning stage of ulnar drift

> seen in Rheumatoid but I have PA with P. Do any of you have something

> similar going on with your hands. What I'm seeing doesn't look like

> PA symptoms but more like RA. Can we see this in PA? I have tested

> negative for RA. Cassie

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Cassie-

I have arthritis severely in my hands and I can relate to what you are saying.

My fingers are severely disfigured and my thumbs are fused at the middle joint

and face sideways away from the palm of my hand. My other 8 fingers are very

ugly and bent, fused from the middle knuckle and bent in a 90 degree angle. I

am only 31 years old and my arthritis started when I was 23, so in the past 9 or

so years my hands have become very disfigured and almost scary looking. I am so

self concious and embarassed of them. Shaking someones hand is not something I

like to do because of just the appearance of my hands. My fingernails have

ridges and bumps and I remember when a few of my nails had white spots on them

and when that happened usually meant that that finger was becoming involved. My

nail would start to lift and separate from the nail bed. I never lost a nail I

think because I kept a bandaid wrapped tight around the nail to keep it from

lifting as much. I am attaching photos of my hands and please let me know if

your hands appear to look anything like mine do. I too tested negative for RA

and am currently on Remicade and arava with little or no improvement.

Thanks, Kathleen

[Moderator's note: automatically deletes all attachments sent to this

forum. We have it set up this way in order to avoid potential virus attachments.

If you will send your photos to me at " PA @ spamex.com " (delete the spaces

around the @), I will post them in the Photos section of our website and post a

notification about it to the group. Ron]

[ ] Arthritic Hands

Hi All, I finally got my Enbrel restarted and am taking Vioxx again

for a short time due to inflammation in my thumbs. My hands are

looking different lately like there are rapid changes taking place as

far as arthritic appearance. I'm having alot of stiffness and

discomfort in all the fingers. One fingernail is turning white on

the side (it looks just like the nail tips normally look). Don't know

if that is the beginning of nail psoriasis or not. My fingers have a

feeling of that I can't explain other than they feel like they are

being pulled side ways and my thumbs seem to have changed shape. The

thumbs are starting to become angled outward from the middle joint to

the tip. It looks almost like the beginning stage of ulnar drift

seen in Rheumatoid but I have PA with P. Do any of you have something

similar going on with your hands. What I'm seeing doesn't look like

PA symptoms but more like RA. Can we see this in PA? I have tested

negative for RA. Cassie

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Hi folks,

I too am having a bit of drift in the fingertips... although the last two

doctors I've seen each diagnosed it differently (inter-rater reliability??)

one says it's Renaud's Syndrome but I have feeling all the time and they

never turn blue and are always one of the warmest parts of my body??? The

other rheumy just showed me her fingers and acted like I was just crazy, but

I know they are changing...seems like right in front of my eyes.

The left hand has all four fingers (excluding my thumb) hyper extending at

the first knuckle (closest to the fingertip) they actually bend UP.... the

ring finger and index finger are also turning at that same knuckle.. they

each pull in toward the middle finger. The best way I try to illustrate the

drift is to put a ruler along the canter of the knuckle to the fingertip...

that really shows how far they have moved. So far no one but me seems

alarmed. The right hand is beginning to drift now too... only two fingers

are beginning the upward trend but the turning in to the center has begun for

real.

I hope to see yet another rheumy in the next few months, but I'm considering

an orthopod I think they might take this more seriously. I'm on DMARD

therapy but nothing seems to be holding this at bay. I wouldn't care if they

can't stop it if they would at least acknowledge it is happening. I hate

when doctors bluff and act like you are seeing things. I'm pretty sure I

know what my body looks like... I know when some part of it is heading the

wrong way!! ARRRGGG!!!

Deborah

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Hi All, I believe it was Kathleen that posted and had some pictures.

Please see the moderator note and try to send your pictures to them

for the site. I'm very interested in seeing them. My hands hurt so

much. My thumbs are the worst. The other post was right about

doctors not seeing what we know and feel is happening. I detected

gradual changes before the Rheumy and I felt like I was crazy for

bringing it to his attention because he couldn't see what was

happening in the beginning. Cassie

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In a message dated 10/15/02 4:34:51 PM Central Daylight Time, dbeamon@...

writes:

> Hi All, I believe it was Kathleen that posted and had some pictures.

> Please see the moderator note and try to send your pictures to them

> for the site. I'm very interested in seeing them. My hands hurt so

> much. My thumbs are the worst. The other post was right about

> doctors not seeing what we know and feel is happening. I detected

> gradual changes before the Rheumy and I felt like I was crazy for

> bringing it to his attention because he couldn't see what was

> happening in the beginning. Cassie

>

>

I saw mention of pictures of PA joints the other day so I searched the web

for pics on the outside and xrays etc didnt find much. I would much like

to see these especially xray or bone scans if anyone can get these in a

..jpg or other format I would very much like to see them. Orin

[Moderator's note: Reminder to Kathleen - If you will email your photos to me at

PA@... (that's " PA @ spamex.com " without the spaces) I will be happy to

add your pictures to the forum " Photos " database at

http://photos./group/ /lst Ron]

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