Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 I'm an Enbrel user, It works perfectly for me, I hope it will work for you. It's good news. I found that the current needle is big :-) Jean [ ] First Shot of Enbrel Hey everyone, keep your fingers crossed for me. I gave myself my first injection of Enbrel. I have very high hopes and confidence that things are going to get better. My goal is to be able to run again pain free. I also wanted to let the Enbrel users out there know that Enbrel is changing the way injections are done. The nurse had shown me yesterday how to use the current method as well as the new method that should be out sometime in October. The biggest change is the needles will be much much smaller. The one I am using now is the size of sewing needle. Also, that whole contraption used to mix the meds is going away as well. So if you haven't heard anything as of yet from your dr you might want to ask them about it in early fall or during your next appt. Cheers, Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 In a message dated 8/7/03 12:29:43 PM Eastern Daylight Time, jean_teneglio@... writes: << he biggest change is the needles will be much much smaller. The one I am using now is the size of sewing needle. Also, that whole contraption used to mix the meds is going away as well. So if you haven't heard anything as of yet from your dr you might want to ask them about it in early fall or during your next appt. Cheers, Dennis >> So will it be pre-mixed like Humira? Man, I hope so! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 In a message dated 8/7/03 9:53:12 AM Eastern Daylight Time, dennis_jernberg@... writes: << Hey everyone, keep your fingers crossed for me. I gave myself my first injection of Enbrel. I have very high hopes and confidence that things are going to get better. My goal is to be able to run again pain free. >> YOU GO DENNIS! I did my first one two weeks ago, after months of fearing it! I am happy for you, and we can be " Enbrel junkies " together! I am feeling pretty good these days. Age 29 (as of Tuesday) Enbrel 2.5 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Hey Dennis, I am an Enbrel user and have no side effects whatsoever. I to take a long break in using it due to a change in health insurance companies. During the time that I was off the Enbrel, I was back to square one in no time at all. I spoke to my RHM about this and he told me that it is like turning a water faucet on and off. I asked if I would have to be on Enbrel the rest of my life and he told me, " let's take it one step at a time. " I also take 7.5 mg of Methotrexate a week, orally. At first I had major headaches, but that has subsided now. I a 46 year old male who has been suffering for the past 10 years gradually, not knowing what the heck was going in my body. The majority of doctors that I saw over the past ten years did their best to make me feel like it was " all in my head. " Enbrel has made a major difference in my life and spirit. There are still bad days, but not as many. Keep the faith my friend, you are on the right path to having a life again. Hugs. Jim - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Me too me too I'm an Enbrel Junkie Re: [ ] First Shot of Enbrel In a message dated 8/7/03 9:53:12 AM Eastern Daylight Time, dennis_jernberg@... writes: << Hey everyone, keep your fingers crossed for me. I gave myself my first injection of Enbrel. I have very high hopes and confidence that things are going to get better. My goal is to be able to run again pain free. >> YOU GO DENNIS! I did my first one two weeks ago, after months of fearing it! I am happy for you, and we can be " Enbrel junkies " together! I am feeling pretty good these days. Age 29 (as of Tuesday) Enbrel 2.5 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Junky junky :-) Re: [ ] First Shot of Enbrel In a message dated 8/7/03 9:53:12 AM Eastern Daylight Time, dennis_jernberg@... writes: << Hey everyone, keep your fingers crossed for me. I gave myself my first injection of Enbrel. I have very high hopes and confidence that things are going to get better. My goal is to be able to run again pain free. >> YOU GO DENNIS! I did my first one two weeks ago, after months of fearing it! I am happy for you, and we can be " Enbrel junkies " together! I am feeling pretty good these days. Age 29 (as of Tuesday) Enbrel 2.5 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Happy birthday, ! Penny > > Age 29 (as of Tuesday) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 In a message dated 8/8/03 12:58:32 PM Eastern Daylight Time, jean_teneglio@... writes: << Me too me too I'm an Enbrel Junkie >> I was so annoyed last night! I could not get the bubbles out of the syringe! Had this problem yet. I actually had to shoot it back into the vile and re-do it a few minutes later. I am sure it's not good for the med to do this, since this means it was our of the fridge for over 30 minutes. Also, I can't find a place on my leg to pinch enough fat to do this. I am a larger sized woman, but my legs are muscular, and I am young, so the only place I can pinch are my inner thigh. However, I have yet to see anything saying the inner thigh is OK? Where do you give yours on your leg Jean? I try to follow the video, but I can't pinch anything there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 In a message dated 8/8/03 11:11:47 AM Eastern Daylight Time, bugpugmom@... writes: << Happy birthday, ! Penny >> THANK YOU! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 In a message dated 8/8/03 5:20:12 PM Eastern Daylight Time, jean_teneglio@... writes: << About the fat, I have the same problem, I'm a small guy (Yes I'm a guy, is a French name for ) and I bike to the office (15 to 20 minutes bike ride twice everyday, make my leg muscular) I have no fat to grab either but I grab whatever I can and shoot. I tried yesterday in my belly, I don't like it, it hurts. So next time I'll grab what I can and shoot in the leg. Have fun (again French for ) >> Well, look at you! You are a MAN! That's too funny... I had no idea! I feel like I have met you all over again, my friend! This COULD be why Enbrel is working a little differently in the two of us too! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Yes I do have this bubbles problem, and that's what I do, I put it back in the bottle and try again, I go slowly.... maybe the speed matters? About the fat, I have the same problem, I'm a small guy (Yes I'm a guy, is a French name for ) and I bike to the office (15 to 20 minutes bike ride twice everyday, make my leg muscular) I have no fat to grab either but I grab whatever I can and shoot. I tried yesterday in my belly, I don't like it, it hurts. So next time I'll grab what I can and shoot in the leg. Have fun (again French for ) Re: [ ] First Shot of Enbrel In a message dated 8/8/03 12:58:32 PM Eastern Daylight Time, jean_teneglio@... writes: << Me too me too I'm an Enbrel Junkie >> I was so annoyed last night! I could not get the bubbles out of the syringe! Had this problem yet. I actually had to shoot it back into the vile and re-do it a few minutes later. I am sure it's not good for the med to do this, since this means it was our of the fridge for over 30 minutes. Also, I can't find a place on my leg to pinch enough fat to do this. I am a larger sized woman, but my legs are muscular, and I am young, so the only place I can pinch are my inner thigh. However, I have yet to see anything saying the inner thigh is OK? Where do you give yours on your leg Jean? I try to follow the video, but I can't pinch anything there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 > > > > Age 29 (as of Tuesday) Had a feeling you were a fellow Leo. Mine was Sunday. Happy Birthday-Enbrel working would be a great gift for you. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hehe, we have a very similar PA history but indeed maybe the gender makes a difference. But one thing's for sure I love when Enbrel does for me. I feel 30 again ;-) Cheers ( French for , but from Montreal, Quebec, not France ;-) ) Re: [ ] First Shot of Enbrel In a message dated 8/8/03 5:20:12 PM Eastern Daylight Time, jean_teneglio@... writes: << About the fat, I have the same problem, I'm a small guy (Yes I'm a guy, is a French name for ) and I bike to the office (15 to 20 minutes bike ride twice everyday, make my leg muscular) I have no fat to grab either but I grab whatever I can and shoot. I tried yesterday in my belly, I don't like it, it hurts. So next time I'll grab what I can and shoot in the leg. Have fun (again French for ) >> Well, look at you! You are a MAN! That's too funny... I had no idea! I feel like I have met you all over again, my friend! This COULD be why Enbrel is working a little differently in the two of us too! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 Happy birthday to Marti as well! Mine's in 2 weeks but I already got my present, this wonderful new FAST computer I'm typing on! Penny > Had a feeling you were a fellow Leo. Mine was Sunday. Happy > Birthday-Enbrel working would be a great gift for you. > Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 In a message dated 8/10/2003 10:19:26 PM Eastern Daylight Time, bugpugmom@... writes: > Had a feeling you were a fellow Leo. Mine was Sunday. Happy Birthday to both of you!!! Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 Wow so many funny-wonderful responses. You guys are the best even though your all a bunch of Enbrel Junkies:-) Glad I could join your group! Cheers, Dennis > Hey everyone, keep your fingers crossed for me. I gave myself my > first injection of Enbrel. I have very high hopes and confidence > that things are going to get better. My goal is to be able to run > again pain free. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 In a message dated 8/9/03 4:26:17 AM Eastern Daylight Time, mlw402@... writes: << Had a feeling you were a fellow Leo. Mine was Sunday. Happy Birthday-Enbrel working would be a great gift for you. Marti >> Amen Marti! Yes, I am a LEO... I bet a lot of people could guess that... ha! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 Don't cha know laughter is the greatest medicine of all??? Yup, this board is definitely a giggle some of the time - thank goodness for the levity - and that we can laugh at ourselves (each other) - glad too that you joined the group Dennis. > > Hey everyone, keep your fingers crossed for me. I gave myself my > > first injection of Enbrel. I have very high hopes and confidence > > that things are going to get better. My goal is to be able to run > > again pain free. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 > Happy birthday to Marti as well! Mine's in 2 weeks but I already > got my present, this wonderful new FAST computer I'm typing on! > > Penny > > -Happy Early Birthday to you Penny! In case I forget in 2 weeks. Congrats on the computer..good gift! Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 Hi Sherri, I have been taking enbrel for overy 2 years. Never any mouth soreness at all, although while taking MTX, I got some dandy mouth sores. If your entire mouth/ tongue is sore, making eating difficult, it sounds very much like thrush (yeast infection). You might do well to have your primary doc or dermie take a look. There are some easy remidies like mycostatin swish and swallow for thrush. Good luck. (WI) > <First Shot of Enbrel> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 In a message dated 8/12/03 4:57:29 AM Eastern Daylight Time, skship7464@... writes: << HI, I TOO AM A LEO, MY B.D. WAS SAT THE 9TH! DO YOU THINK THERE IS A CONNECTION TO THIS PA! HA HA >> TOO FUNNY! Happy Birthday to you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 --Hi Sherry, Happy Birthday to you! Must be a connection between Leos and PA (HAHA) Do you take folic acid for mouth sores? I also had liquid carafate that helped some. My dermie was surprised that PA could be so bad too. It can!!!!!!!!!! Good Luck, Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 In a message dated 8/12/2003 4:57:46 AM Eastern Daylight Time, skship7464@... writes: > SORES ON MY TONGUE. > I AM GOING TO MY DERMY TOMMOROW, HE IS THE ONE WHO HAS ME ON THE ENBREL AND > HE DOESN'T THINK THE PA SHOULD BE CAUSEING THIS. > LET ME HEAR FROM ANYONE THAT MIGHT HELP. I've been on Enbrel about 4 1/2 months and never had that problem. I went off last week because of a sinus infection and my knees are horrible. They still hurt on the Enbrel but not as bad. I can't wait to go back on and start the mtx as well. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 Happy birthday, Sherri! I get mouth sores from time to time, and I'm on Arava. Penny > HI, I TOO AM A LEO, MY B.D. WAS SAT THE 9TH! DO YOU THINK THERE IS A CONNECTION TO THIS PA! HA HA > HAS ANYONE OUT THERE BEEN ON ENBREL FOR A LONG TIME? > I AM STARTING TO GET SORES IN MY MOUTH? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 Thanks, Marti!!! Penny > > -Happy Early Birthday to you Penny! In case I forget in 2 weeks. > Congrats on the computer..good gift! > Marti Quote Link to comment Share on other sites More sharing options...
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