Enbrel question

[Guest guest]

---

Hi Janet,

Thanks for replying to my question-I've been sick for a few days and

haven't been " on " the internet, this isn't a good season for me and

my health bad as it is anyhow. I think you are right about the

Enbrel.

God Bless, Sue in Michigan.

In , fam24@a... wrote:

>

>

> In a message dated 11/1/2004 3:52:18 PM Eastern Standard Time,

> susieesue@y... writes:

>

> Hi everyone,

>

> I was wondering if anyone has the same dosage a week of Enbrel

that I

> have-50mg. twice a week? My Pharm. thought it was alittle much

for

> me to start out-my Derm. wrote the prescription for it.

>

>

>

> Hi Sue,

>

> I tried the Enbrel 25mg twice a week last year and it took away the

P but

> not the joint pain. I just started the 50mg dose last week and I

am taking

> the 3rd shot tonight. Maybe your derm wants try this and skip

the lower dose.

>

> Janet

>

>

>

[Guest guest]

---

Hi ,

I also got that letter about Enbrel pre-mixing-that would be great.

My Pharm. treated me awful when I called to get my Enbrel ordered.

Imagine that a Pharm. with an attitude like some of the Drs. that

have been mentioned. He evens gets an attitude with me about my pain

meds. He acts like the medication at his Pharmacy is his or

something. My Dr. office has had to call him several times to get

pain med. for me when they (Dr. office) called it in already and told

me it should be there waiting for me to pick it up. I want to ask

him if he would like to have PA and see how it is. That goes to show

you that it is hard for healthy pain free people to understand the

pain we are suffering from.

God Bless, Sue in Michigan.

In , " alexsmom45326 " <jca@e...>

wrote:

>

>

> hi,

> when i started back on enbrel in may, my dermie started me on

> 2 doses 2x a week. he said the enbrel rep had just recently told

> him that for tough psoriasis the double dose was more effective for

> the first 3 months. it did work, and some has come back since

> going back down to regular dose.

>

> also, i got a letter from enbrel today saying that soon the doses

> will come ready to shoot in 50mg vials. no more mixing,etc.

> don't know about the smaller doses, have to call them.

> i am glad they are coming already mixed and together.

>

> good luck with it.

> susan in ohio

[Guest guest]

---

Hi ,

Thanks for the response-sorry it has been late, I've been sick for a

few days-this is my worse season for illness with my PA. My Pharm.

must not be " up " on things with the medical world-it seems like he

should being involved with medicines.

Thanks again and God Bless, Sue in Michigan.

In , Axelrod

<denise.axelrod@u...> wrote:

>

> Sue,

> A new protocol for Enbrel, at least here in the states, is to start

out on 50mg twice weekly and then if you are responding well see if

you can wean off to a lower dose. Like I said this is fairly new,

just starting this type of dosing this past summer. Good Luck.

>

> [ ] Enbrel question

>

>

>

>

> Hi everyone,

>

> I was wondering if anyone has the same dosage a week of Enbrel

that I

> have-50mg. twice a week? My Pharm. thought it was alittle much

for

> me to start out-my Derm. wrote the prescription for it.

>

> Thanks and God Bless, Sue in Michigan.

[Guest guest]

I have been using Clobex lotion for psoriasis breakouts. It works so

well. Dovonex and Diprolene wasn't working for me. I changed

Dermatologists 3 different times in order to get a different lotion for

my psoriasis. Thought I would let you know about Clobex for another

option.

A friend of mine was diagnosed with PA last month. He is currently

taking Methotrexate. What other meds do they give along with

Methotrexate?

DeafEskie wrote:

>

> Has anyone ever been on Enbrel and had their dosages upped, then

> REDUCED? I am concerned that the REDUCTION of my Enbrel by my dermo

> was a " no no " . The following symptoms seem to have either returned or

> worsened:

>

> 1. Nail pitting---it had virtually almost cleared up and now its back

> at about half of the origional pittance.

>

> 2. New Psoriasis lesions came in, then with my constant battling it

> with topicals (Dovonex etc), I at least have it in control.

>

> 3. Skin sensitivity has INCREASED. Some days can barely stand to have

> something touch it.

>

> 4. Skin is PEELING????? Its as if my whole body is trying to " flake " .

> I did get a little bit of sun about a week and half ago, but it was

> not enough to give me a burn that would cause a peel.

>

> 5. Pain. Pain of course has increased again. Especially in my back.

> And the muscle pain seems to be more pronounced. Find myself taking

> more of the pain meds (a narc & a muscle relaxant).

>

> 6. I ITCH????? Yep folks, ITCHING. The Psoriasis lesions I have are

> just lesions, and there is pretty much no plaques.

>

> So now you guys see why I am taking both RX's with me on Friday to see

> my dermo--show her PROOF what I had formerly and tell her all these

> issues and get my Enbrel back up and end my poor misery. Does all this

> sound like a flare brought on by the reduction of the Enbrel? It was

> origionally (wayyy back when started in Feb 2004) 2 25 ml weekly. Then

> about July or August, we upped it to 4 25 ml weekly (two injects one

> in each leg, twice a week). Then the prefilleds came out. Jan to March

> I was on 2 50 ml injects weekly and did fairly good considering that

> it was cold bitter and harsh winter months. Now its down to 1 50 ml

> weekly. I don't think my poor body can handle all the flipfloppin of

> the doses! LOL. Enbrel is one of the best medications we could hope

> for, and it has really helped me when at the right dosage. But, sadly,

> biologics are not for everyone (((( hugs to Fran))))).

>

> Any feedback welcomed before I go to the doctor on friday so I have

> more " ammo " . And yes, I see the rheumy in May.

>

> Zoella, nice to meet you! Will write soon--I am in Oklahoma City and

> go to OU Dermatology.

>

> LeAnn in OK

> P since 1985, PA since 1999

>

>