Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 Hi, I would like to know if anyone taking Enbrel has any effects that they have noticed of their immune system becoming lower. I don't know if it is a coincidence because I have only had 4 injections, but I broke out in a cold sore in my lips about 5 days ago and just feel kind of tired. My throat is sore and glands are swollen but no fever. Also does anyone take any supplements to boost their immune system. I started taking grapeseed extract in pill form. I was told that a pill called colostrum also helps. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 Cheers Gordon, Have 1 at the RSL for me mate!! Regards, Craig Coote > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In a message dated 3/15/2003 7:41:06 PM Eastern Standard Time, fam24@... writes: > Also does anyone take any > supplements to boost their immune system. I started taking grapeseed > extract in pill form. I was told that a pill called colostrum also helps Janet - NO! No! No! Do not take supplements to BOOST your immunity!!! The whole problem we have with PA is overactive immunity. Enbrel brings you immune system down - it's SUPPOSED TO. That's how it works. Please talk to your rheumy about any infections you have noticed since starting enbrel. Mine makes me stop the enbrel until the infection is gone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In a message dated 3/15/03 7:41:20 PM Eastern Standard Time, fam24@... writes: > I would like to know if anyone taking Enbrel has any effects that they have > noticed of their immune system becoming lower. Janet, After about my 4th injection, I caught a URI. No fever, just swollen glands sore throat (do mostly to drainage), stuffy/runny nose. My drainage/sputum was green, so my internist started me on Levaqin immediately. It did clear up. Usually Levaqin or Tequin are the two new cephlasporin that help me out the best. But, ask for an Rx of Difflucan as well (I get yeast infections with these two antibiotics. I think I am getting an other infection (thanks to my mother). I am on my 3rd month of the Enbrel, still having so very bad swelling and fluid retention. I am not sure why. I am scheduled to see a nephrologist on the 25th to see if I have any kidney involvement since at 32 I have such bad HBP and have to take 2 BP meds. Could be Lupus related as I am sure it is not associated with the PA. Good luck, and try to stay healthy spring is about here. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In a message dated 3/16/2003 9:10:09 PM Eastern Standard Time, CND110370@... writes: > I am on my 3rd month of the Enbrel, still having so very bad > swelling and fluid retention. Hi , I was also having much swelling and fluid retention. did you you that Vioxx, celebrex and some other NSAIDS can cause that? I am also on HRT and since I started that my BP shot up. I take a diuretec every day which really helps. Have you tried that yet?? Gentle Hugs back, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In a message dated 3/16/2003 9:10:26 PM Eastern Standard Time, TADEL630@... writes: > > Janet - NO! No! No! Do not take supplements to BOOST your immunity!!! The > > whole problem we have with PA is overactive immunity UH OH, Tracey Maybe that is why I am having so much pain the last few days. I have been taking these supplements to have boost the immunity against infection. Am I defeating the purpose of the Embrel??? I am so glad that you told me this. How about vitamin C?? Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In a message dated 3/17/03 3:26:33 AM Central Standard Time, fam24@... writes: > In a message dated 3/16/2003 9:10:26 PM Eastern Standard Time, > TADEL630@... writes: > > > > >Janet - NO! No! No! Do not take supplements to BOOST your immunity!!! > The > > > >whole problem we have with PA is overactive immunity I dont know that I would call psoriasis a symptom of an over-active immune system, maybe more like mis-guided or confused immune system. It just so happens that if you reduce the capabilities of your immune system to attack anything you will have also reduced its capabilities to attack your own tissues. Orin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Janet, I did try a diuretic a long while back, right after I had my oldest (so about 7 years ago), and it did help some. I will definitely ask my doctor about trying that again. I take Bextra, it is the only NSAID that I have been able to tolerate and hate to think it could be the root of all evil. That would just be my luck. Ever feel like the meds are more trouble than they are worth at times. Sometimes I wonder what would happen if I just went cold turkey on all 12 of my meds. I know that my blood wouldn't be neon green anymore! LOL! Don't panic, group, I would never quit my meds cold turkey, it is just wishful thinking. " ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 In a message dated 3/17/2003 8:02:56 AM Eastern Standard Time, CND110370@... writes: > Janet, > > I did try a diuretic a long while back, right after I had my oldest (so > about > 7 years ago), and it did help some. I will definitely ask my doctor about > trying that again. I take Bextra, it is the only NSAID that I have been > able > to tolerate and hate to think it could be the root of all evil. , I am sending you all the info on Bextra. If you scroll down to the side effects, you will find that it causes swelling and water retention. Hope this is the root of your problems because this would be easy to change and feel better. Otherwise, maybe you can try the diuretic. Janet <A HREF= " http://aolsvc.health.webmd.aol.com/content/drugs/1/4046_5595?bn=Bextra " >We\ bMD with AOL Health - Valdecoxib </A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 Gordon, you have my life-time guarantee of sympathy. I had mild Costo for about five days. I didn't think I was going to make it. I am totally without that symptom now and feel silly that I complained about my arthritis before suffering that pain. I just got back from a week in Gulf Shores AL with my family. It was a lovely spring break. The 18 hours in the car both ways didn't do much for my stiffness, but the time with my family on the beach was worth every ache. I come back to Kansas with the energy to make it to spring. It actually feels like it now--but in Kansas, it can be winter again in a few hours! My prayers are with you Gordon. Hang in there! Ks Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 I would love to visit there...my family lives in AL Re: [ ] feeling a bit down > Gordon, you have my life-time guarantee of sympathy. I had mild Costo for > about five days. I didn't think I was going to make it. I am totally > without that symptom now and feel silly that I complained about my arthritis > before suffering that pain. > > I just got back from a week in Gulf Shores AL with my family. It was a > lovely spring break. The 18 hours in the car both ways didn't do much for > my stiffness, but the time with my family on the beach was worth every ache. > I come back to Kansas with the energy to make it to spring. It actually > feels like it now--but in Kansas, it can be winter again in a few hours! > > My prayers are with you Gordon. Hang in there! > > Ks Di > > > > Please visit our Psoriatic Arthritis Group's informational web page at: > http://www.wpunj.edu/pa/ -- created and edited by list member aka(raharris@...). > > In August 2001 list member Jack aka(Cornishpro@...) began to conduct extensive research which he publishes as the Psoriatic Arthritic Research Newsletter monthly in our emails and digest format. Many thanks to Jack. Back issues of the newsletter are stored on our PA webpage. > > Also remember that the list archives comprise a tremendous amount of information (Over two years of messages and answers).Feel free to browse them at your convenience. > > Let's hear from some of you lurkers out there! If you have a comment or question chances are there is a person who has been around a while who can help you out with an educated guess for an answer. If not we can at least steer you in the right direction with a good website to go to for the answers. > > Blessings and Peace, > > Atwood-Stack, Founder > Alan , Web & List Editor > Jack , Newsletter Editor > Pat Bias, List Editor > Ron Dotson, List Editor > and many others who help moderate (thank you!) > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.