Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 My GP's nurse called today Friday) and advised me that my last blood test showed my liver " ? " were elevated. My GP scheduled an ultra sound of my liver done first thing Monday AM. I know several others on this list have undergone liver biopsies, but I do not remember anyone having the ultra sound. Any insight into what the elevation means concerning my liver, and what the ultra sound might show? Any particular meds that cause the liver problems? Oddly enough I had been complaining about a pain in my abdomen and found out today that is the location of my liver. It just aches all the time, feels like a hard rock. Any info would be much appreciated. Thanks. in Poulsbo, Wa. [Editor's Note: I don't remember which drugs you're on, but MTX and Arava come to mind as two drugs that MAY cause liver problems. Please share the ultrasound findings and liver panel readings with your rheumatologist and dermy. An ultrasound shows more detail than an xray because the physician can direct the ultrasound to very specific areas and watch the live action, while an xray is a static photo. I'm sure the ultrasound will also be directed around your stomach, gall bladder, intestines, kidneys as any one of these could cause a hard rock pain. Please let us know what the findings are. We'll all be thinking of you. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Hi My specialist had an ultrasound done on my liver after being on the MTX caused me to have raised liver counts. The counts were still fairly abnormal even after I'd been off the MTX for a few months. He wanted to see if there was any permanent damage done by the MTX. It showed that I have a 'fatty' liver (so now I'm on a low fat diet) He (and so did the radiologist) thought the MTX may have caused the condition but not to be overly concerned because it is a very common complaint. The rheumy has one too. Hope your test shows nothing abnormal. Just wanted to let you know that having an ultrasound done on your liver is quite normal procedure. I found it a lot less daunting and less painful than an MRI. Good luck and wishing you well. Suzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 --- Hi , I will be praying for you. Please keep us posted. God Bless, Sue. In , " lbschroeder " <lbschroeder@e...> wrote: > > My GP's nurse called today Friday) and advised me that my last blood test showed my liver " ? " were elevated. My GP scheduled an ultra sound of my liver done first thing Monday AM. > > I know several others on this list have undergone liver biopsies, but I do not remember anyone having the ultra sound. > > Any insight into what the elevation means concerning my liver, and what the ultra sound might show? > > Any particular meds that cause the liver problems? > > Oddly enough I had been complaining about a pain in my abdomen and found out today that is the location of my liver. It just aches all the time, feels like a hard rock. > > Any info would be much appreciated. Thanks. > in Poulsbo, Wa. > > [Editor's Note: I don't remember which drugs you're on, but MTX and Arava come to mind as two drugs that MAY cause liver problems. Please share the ultrasound findings and liver panel readings with your rheumatologist and dermy. An ultrasound shows more detail than an xray because the physician can direct the ultrasound to very specific areas and watch the live action, while an xray is a static photo. I'm sure the ultrasound will also be directed around your stomach, gall bladder, intestines, kidneys as any one of these could cause a hard rock pain. Please let us know what the findings are. We'll all be thinking of you. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 Hi - the detoxigenomic test is a bloodtest - and no, we had to pay for it. Guess you could contact them and see who you could work with. - Robin [ ] Re: Homeopathy- can it work on neuro lyme? Robin, Does the detoxigenomic test from Genova use caffeine in the testing? I had to stop taking a liver detox test that they used to do (many years ago) because it used caffeine and I simply cannot tolerate caffeine. Also, do you know if it is covered by Medicare? I suspect my liver is not detoxing well, but can't take their function test. It would be good to know what is really going on with my liver! Thanks, jo > > > Hi - you're saying you feel pretty sensitive now - am wondering whether it might be at all useful to do the liver detoxigenomic test to see whether you have a hard time detoxing genetically? It tests for the genes we get from our parents for 8 enzyme pathways in phase I and four out of 10 drains in phase 2 for the liver. Phase I dysfunction is like when the bathtub fills up too much and phase II alteration is like the bathtub doesn't drain. Then an MD or ND knowledgeable in wholistic care can supervise the order of supplement treatments to help the liver do its clearing work. I had the test done through the Genova Diagnostic lab in N Carolina, and my LLMD is following me now on supplement treatments, as I am sensitive to most things I try. > > Couple other things - I've been treating my fibromyalgia pain successfully with clindamycin abx. It took the fibro pain to zero in a week's time, and still treats it. I started with 150mg 4x/day, then herxed after a month, and went to 150mgmg 2x/day. I know what each of us does does not necessarily work for someone else - I'm just reporting my treatment. Also I drink mangosteen juice and that clears up all Lyme eye symptoms for me. > > I respect homeopathy - I had both an enjoyable and difficult response to two different remedies. > > And yes, I've seen people get much improvement from stem cell injections, including someone who presented with MS-like symptoms. > > I think whatever you do, you have to try it in a gentle way. You need to be the one to evaluate how much you can handle. Take care - > Robin > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 My genomics liver detox test was a combo of urine, saliva i think, and blood. You do have to take acetaph. , aspirin, and caffeine-since you measure clearance of those substance- I was had issues with both phase I and Phase II but advice to repair or even if it can be repaired (if genetic) was unclear- just eat more cruciferous vegtables was what I took away- Great...my diet has been so good my entire life and especially good past 12 years-and I took loads of milk thistle past 2 years. Not sure how to improve my liver's detox ability......or how to tell what meds I can tolerate. I wanted to call genova but they will only talk to doctors on results. My doctor has'n't called them to talk to them His only advice was take Indole 3 carbinol or DIM........... I've taken so many supplements I'm doubtful that will help me. > > > > > > Hi - you're saying you feel pretty sensitive now - am wondering whether it might be at all useful to do the liver detoxigenomic test to see whether you have a hard time detoxing genetically? It tests for the genes we get from our parents for 8 enzyme pathways in phase I and four out of 10 drains in phase 2 for the liver. Phase I dysfunction is like when the bathtub fills up too much and phase II alteration is like the bathtub doesn't drain. Then an MD or ND knowledgeable in wholistic care can supervise the order of supplement treatments to help the liver do its clearing work. I had the test done through the Genova Diagnostic lab in N Carolina, and my LLMD is following me now on supplement treatments, as I am sensitive to most things I try. > > > > Couple other things - I've been treating my fibromyalgia pain successfully with clindamycin abx. It took the fibro pain to zero in a week's time, and still treats it. I started with 150mg 4x/day, then herxed after a month, and went to 150mgmg 2x/day. I know what each of us does does not necessarily work for someone else - I'm just reporting my treatment. Also I drink mangosteen juice and that clears up all Lyme eye symptoms for me. > > > > I respect homeopathy - I had both an enjoyable and difficult response to two different remedies. > > > > And yes, I've seen people get much improvement from stem cell injections, including someone who presented with MS-like symptoms. > > > > I think whatever you do, you have to try it in a gentle way. You need to be the one to evaluate how much you can handle. Take care - > > Robin > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 There are two separate tests. The Detoxigenomic test is a blood test and looks for polymorphisms in certain genes involved in liver detox, where as the liver detox test does involve taking caffeine, aspirin, etc, and is a combo saliva/blood. It looks at how well certain liver detox pathways are functioning. I've had both done, many years ago. Donna in NC -------------------------------------------------- From: " y093666 " <y093666@...> Sent: Tuesday, April 20, 2010 1:07 PM < > Subject: [ ] Re: liver test > My genomics liver detox test was a combo of urine, saliva i think, and > blood. You do have to take acetaph. , aspirin, and caffeine-since you > measure clearance of those substance- > > > I was had issues with both phase I and Phase II but advice to repair or > even if it can be repaired (if genetic) was unclear- just eat more > cruciferous vegtables was what I took away- > > Great...my diet has been so good my entire life and especially good past > 12 years-and I took loads of milk thistle past 2 years. > > Not sure how to improve my liver's detox ability......or how to tell what > meds I can tolerate. > > I wanted to call genova but they will only talk to doctors on results. My > doctor has'n't called them to talk to them > > His only advice was take Indole 3 carbinol or DIM........... > > I've taken so many supplements I'm doubtful that will help me. > > >> > >> > >> > Hi - you're saying you feel pretty sensitive now - am wondering >> > whether it might be at all useful to do the liver detoxigenomic test to >> > see whether you have a hard time detoxing genetically? It tests for the >> > genes we get from our parents for 8 enzyme pathways in phase I and four >> > out of 10 drains in phase 2 for the liver. Phase I dysfunction is like >> > when the bathtub fills up too much and phase II alteration is like the >> > bathtub doesn't drain. Then an MD or ND knowledgeable in wholistic care >> > can supervise the order of supplement treatments to help the liver do >> > its clearing work. I had the test done through the Genova Diagnostic >> > lab in N Carolina, and my LLMD is following me now on supplement >> > treatments, as I am sensitive to most things I try. >> > >> > Couple other things - I've been treating my fibromyalgia pain >> > successfully with clindamycin abx. It took the fibro pain to zero in a >> > week's time, and still treats it. I started with 150mg 4x/day, then >> > herxed after a month, and went to 150mgmg 2x/day. I know what each of >> > us does does not necessarily work for someone else - I'm just reporting >> > my treatment. Also I drink mangosteen juice and that clears up all Lyme >> > eye symptoms for me. >> > >> > I respect homeopathy - I had both an enjoyable and difficult response >> > to two different remedies. >> > >> > And yes, I've seen people get much improvement from stem cell >> > injections, including someone who presented with MS-like symptoms. >> > >> > I think whatever you do, you have to try it in a gentle way. You need >> > to be the one to evaluate how much you can handle. Take care - >> > Robin >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> >> >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 Hi - that's a different test than the one I did, which is called the detoxigenomic liver test - a bloodtest, no diet involved at all - to check for genetic markers from both parents as to whether we have functioning detox pathways or not. A - - means no problem, a - + means one parent was ok, the other not, and a + + means genetically deficient from both and we have trouble detoxing. I was sensitive somewhat before I ever got Lymed. My LLMD is trying to treat me for the two drains I flunked in Phase II - so yes, a knowledgeable doctor does know things to try to repair the particular pathways. My opinion - someone there should be able to speak with you - I didn't, tho, since my doctor handled it all - Robin [ ] Re: liver test My genomics liver detox test was a combo of urine, saliva i think, and blood. You do have to take acetaph. , aspirin, and caffeine-since you measure clearance of those substance- I was had issues with both phase I and Phase II but advice to repair or even if it can be repaired (if genetic) was unclear- just eat more cruciferous vegtables was what I took away- Great...my diet has been so good my entire life and especially good past 12 years-and I took loads of milk thistle past 2 years. Not sure how to improve my liver's detox ability......or how to tell what meds I can tolerate. I wanted to call genova but they will only talk to doctors on results. My doctor has'n't called them to talk to them His only advice was take Indole 3 carbinol or DIM........... I've taken so many supplements I'm doubtful that will help me. > > > > > > Hi - you're saying you feel pretty sensitive now - am wondering whether it might be at all useful to do the liver detoxigenomic test to see whether you have a hard time detoxing genetically? It tests for the genes we get from our parents for 8 enzyme pathways in phase I and four out of 10 drains in phase 2 for the liver. Phase I dysfunction is like when the bathtub fills up too much and phase II alteration is like the bathtub doesn't drain. Then an MD or ND knowledgeable in wholistic care can supervise the order of supplement treatments to help the liver do its clearing work. I had the test done through the Genova Diagnostic lab in N Carolina, and my LLMD is following me now on supplement treatments, as I am sensitive to most things I try. > > > > Couple other things - I've been treating my fibromyalgia pain successfully with clindamycin abx. It took the fibro pain to zero in a week's time, and still treats it. I started with 150mg 4x/day, then herxed after a month, and went to 150mgmg 2x/day. I know what each of us does does not necessarily work for someone else - I'm just reporting my treatment. Also I drink mangosteen juice and that clears up all Lyme eye symptoms for me. > > > > I respect homeopathy - I had both an enjoyable and difficult response to two different remedies. > > > > And yes, I've seen people get much improvement from stem cell injections, including someone who presented with MS-like symptoms. > > > > I think whatever you do, you have to try it in a gentle way. You need to be the one to evaluate how much you can handle. Take care - > > Robin > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 Donna - did the tests help you in determining what treatment you needed? - Robin [ ] Re: liver test > My genomics liver detox test was a combo of urine, saliva i think, and > blood. You do have to take acetaph. , aspirin, and caffeine-since you > measure clearance of those substance- > > > I was had issues with both phase I and Phase II but advice to repair or > even if it can be repaired (if genetic) was unclear- just eat more > cruciferous vegtables was what I took away- > > Great...my diet has been so good my entire life and especially good past > 12 years-and I took loads of milk thistle past 2 years. > > Not sure how to improve my liver's detox ability......or how to tell what > meds I can tolerate. > > I wanted to call genova but they will only talk to doctors on results. My > doctor has'n't called them to talk to them > > His only advice was take Indole 3 carbinol or DIM........... > > I've taken so many supplements I'm doubtful that will help me. > > >> > >> > >> > Hi - you're saying you feel pretty sensitive now - am wondering >> > whether it might be at all useful to do the liver detoxigenomic test to >> > see whether you have a hard time detoxing genetically? It tests for the >> > genes we get from our parents for 8 enzyme pathways in phase I and four >> > out of 10 drains in phase 2 for the liver. Phase I dysfunction is like >> > when the bathtub fills up too much and phase II alteration is like the >> > bathtub doesn't drain. Then an MD or ND knowledgeable in wholistic care >> > can supervise the order of supplement treatments to help the liver do >> > its clearing work. I had the test done through the Genova Diagnostic >> > lab in N Carolina, and my LLMD is following me now on supplement >> > treatments, as I am sensitive to most things I try. >> > >> > Couple other things - I've been treating my fibromyalgia pain >> > successfully with clindamycin abx. It took the fibro pain to zero in a >> > week's time, and still treats it. I started with 150mg 4x/day, then >> > herxed after a month, and went to 150mgmg 2x/day. I know what each of >> > us does does not necessarily work for someone else - I'm just reporting >> > my treatment. Also I drink mangosteen juice and that clears up all Lyme >> > eye symptoms for me. >> > >> > I respect homeopathy - I had both an enjoyable and difficult response >> > to two different remedies. >> > >> > And yes, I've seen people get much improvement from stem cell >> > injections, including someone who presented with MS-like symptoms. >> > >> > I think whatever you do, you have to try it in a gentle way. You need >> > to be the one to evaluate how much you can handle. Take care - >> > Robin >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> >> >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Hi, Although our symptoms are not exact, I do understand the complete terror of feeling that you are going down hill and not be able to stop it. I am really sensitive to treatment. I have 's disease so I am in a catch 22. Infection stresses adrenals, antibiotics and herbs kill infection but stress out adrenals too. I have to go up and down on my hydrocortisone just to balance it all. This year I have gotten new and terrifying symptoms: Awful dysautonomia with near syncope, MS symptoms, etc. I have become sensitive to heat(saunas are now out) and most treatments. So where does that leave me? At first it left me in a total panic :-) Then I grounded myself and started to look at the bigger picture. These are some of my suggestions: 1) Building your system should be a priority. Glyco nutrients, d-galactose, etc. 2) Electrolytes- do not underestimate the power of these. Dr. k is a big advocate of proper hydration. I dehydrate easily so these are key. 3)I love homeopathic support. I use homeopathic drainage as well as a hypothalamus remedy to help balance out my brain. I also include a blend of flower remedies to help. 4) EFT-- no matter how much we would like to ignore it, there is a very high level of emotional baggage in lyme( or any other chronic illness). Dr H.(in Hyde Park) often refers to his lyme patients as his walking wounded. If nothing else the trauma of what we go through on a daily basis is enough reason to practice this several times a day. I like Dr. Mercola's version of it. it is easy to do. 5) Simple detox methods like dry skin brushing are crucial. This will stimulate your lymph(the massages you get are great too, but this is a twice daily practice) and help to process out the sludge in your system. If you can tolerate epsom salt baths that is wonderful too. I use 4 cups of epsom salts with 1 32 ounce bottle of peroxide in really warm water. Sauna's are great too if you can tolerate the heat. It will take the pressure off of your stressed out detox pathways. 6) Picture yourself well. This is critical. Do not get so wrapped up into the " I am a genetic mutant " mindset :-) I have the mold genes, inflammation markers, as well as messed up detox pathways. I could get myself crazy about it. I have heard two wise healers speak and both have said that there are ways around these issues. Don't give in to doom and gloom. Even if you hear it from your doctor. You are a miracle, start believing that it is possible to heal. As Buddha once said, " Believe nothing, no matter where you read it or who has said it, unless it agrees with your own reason and your own common sense. " 7) Rifing may be too strong for you right now, but it doesn't mean that you won't benefit in the future. If you were to use any electrical device i would suggest the guardian. Look it up under eagle research. 8) Try to do some sort of exercise each day... before you laugh, there are plenty of ways to do this. I am extremely weak so I use the chi swinger to get my lymph moving and get some cardio benefits. you lay on the floor with your feet on the machine. Not terribly hard:-) if you can do Yoga or chi gong that is great There are many passive chi gong styles out there that even the sickest people can do. It will help to settle your nervous system down. 9) If you tolerate mag load up. The key is getting the right type for your system. You may want to try several. It will be great for many MS symptoms. 10) I do well with Young Living essential oils. There are protocols to help build the immune system. You can apply them topically to be more gentle. 11) Be aware of emfs and geopathic stress. Are you shutting off all of the power to your bedroom at night? A sleep sanctuary is important. There are many more things I can suggest, but I am becoming a posting hog. Please let me know if I can help. Do not give up. There are more options out there than you know. Plant stem cells can be a gentle but powerful option. I would also recommend getting a zyto scan if you have access to one. It is electrical and it can be draining for some sensitive patients. I would do it on a better energetic day for you. It may provide some clue as to what your body is dealing with. Hang in there. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Thanks all for the discussion of the liver tests by Genova. I'll inquire further about the detoxigenomic test since it does not require taking caffeine. Will need to find out the cost/does Medicare pay. I took the liver function tests a few times back in the 90's before I became so sensitive to caffeine. I wonder what the treatment would be anyway; if just more cruciferous veges, I'm already high in their consumption. And they can depress thyroid function so I wonder if I should be taking less. Perhaps supplements could provide the needed sulphur without the thyroid supressing effects. I don't know. Would have to do more research. My doc has suggested a liver test, so this now gives me more information to discuss it with her. Thanks a bunch, jo > > There are two separate tests. The Detoxigenomic test is a blood test and > looks for polymorphisms in certain genes involved in liver detox, where as > the liver detox test does involve taking caffeine, aspirin, etc, and is a > combo saliva/blood. It looks at how well certain liver detox pathways are > functioning. I've had both done, many years ago. > > Donna in NC > > > -------------------------------------------------- > From: " y093666 " <y093666@...> > Sent: Tuesday, April 20, 2010 1:07 PM > < > > Subject: [ ] Re: liver test Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Robin, Oh even more info after I answered previous posts! Thanks. I'll discuss it with my doc. She's quite knowledgeable and I think would be able to give me good guidance. Do you remember how expensive it was? thanks, jo > > > > Hi - that's a different test than the one I did, which is called the detoxigenomic liver test - a bloodtest, no diet involved at all - to check for genetic markers from both parents as to whether we have functioning detox pathways or not. A - - means no problem, a - + means one parent was ok, the other not, and a + + means genetically deficient from both and we have trouble detoxing. I was sensitive somewhat before I ever got Lymed. > > My LLMD is trying to treat me for the two drains I flunked in Phase II - so yes, a knowledgeable doctor does know things to try to repair the particular pathways. > > My opinion - someone there should be able to speak with you - I didn't, tho, since my doctor handled it all - Robin > > > > > Quote Link to comment Share on other sites More sharing options...
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