Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Hi Alice, Is your back and neck ok? Hope so you have plenty of problem areas as it is. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Dear Alice, I'm sorry you feel so bad. It's so hard to be sick and still have people doubt your very illness. I think it's one of the hardest things to deal with, and something we surely don't need to struggle through. All I can say on the home front is to somehow educate them to your problems. I don't know if you are married, but if a family member goes with you tot he doctor a lot of times that helps open up their eyes. Another thing is to have them read the listings on this web site. Our members are great in describing how PA takes over ones' life. Do you have the list of pain tips I've posted from time to time? If you don't and want me to send them to you, just let me know. I've posted them so often here, I hate to drive anyone else crazy with them again. They really did help my family to understand what a typical day is like in my life. I put mine on the refrigerator where I knew no one would miss it...lol. I told them all up front I wasn't looking for sympathy, just compassion and understanding. I also go way out of my way, if someone does me a small favor in thanking them. To me the little things mean the most, like someone getting me another glass of water without my asking, or getting my medication for me, when I'm having problems walking from room to room. I know the big things in life can really get your down, like living with PA, but the little things in life make it much easier to deal with. You've got a hard job to have with a chronic painful illness. I'm pretty sure I never could do what you do, even though I love babies and that part of the job has to be just thrilling. The fact that you can keep on working at such a hard physical job shows you are pretty strong and I hope you find time to catch up on your sleep. Complain here anytime! That's what we are for! At least you feel better that someone heard and understands how you feel. Take care and hope you are feeling better soon. Have fun with all those beautiful babies. Love, Fran ----Original Message----- From: Alice [mailto:alice_peters2002@...] Sent: Friday, November 12, 2004 10:22 PM Subject: [ ] Starting at the top Okay my PA symptoms to date. I need to share! No one at home gets it. Migraines. Eye aches, and pain, Cleanching jaw, mouth sores, stiff neck, shoulder aches and stiffness.... Asthma, and pains in chest not in the lungs. Elbow stiffness, Tennis and golf elbow, tendonitis in wrists. Stiff fingers and swollen fingers. That is just part of it.. I have to stop typing as things are hurting. Is there anything else I may have missed on the upper body? Oh Sinus problems, p on scalp.... more tomorrow Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Dear Alice, I just realized I got you confused with Rae, Sorry about that. You can tell my morning medication hasn't hit me yet...lol. I hope part of that 1st letter helped in someway. I still would be glad to send you the pain tips since it sounds like you could use them with the people at home. Hang in there and hopefully your pain will let go early today and you can still have a rewarding day. Take care and sorry about the other email. Love, Fran [ ] Starting at the top Okay my PA symptoms to date. I need to share! No one at home gets it. Migraines. Eye aches, and pain, Cleanching jaw, mouth sores, stiff neck, shoulder aches and stiffness.... Asthma, and pains in chest not in the lungs. Elbow stiffness, Tennis and golf elbow, tendonitis in wrists. Stiff fingers and swollen fingers. That is just part of it.. I have to stop typing as things are hurting. Is there anything else I may have missed on the upper body? Oh Sinus problems, p on scalp.... more tomorrow Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Hi Alice, I'm so sorry that " No one at home gets it " . I'm glad you are in this group, we all need extra support to get through each day and if it isn't coming from home then a support group is the absolute best place to be! I'll be hoping you a better understanding from the homefront and help from your Doctor with your symptoms. Hugs, Chris(tine) > > > Okay my PA symptoms to date. I need to share! No one at home gets > it. > > Migraines. Eye aches, and pain, Cleanching jaw, mouth sores, stiff > neck, shoulder aches and stiffness.... Asthma, and pains in chest > not in the lungs. Elbow stiffness, Tennis and golf elbow, > tendonitis in wrists. Stiff fingers and swollen fingers. > > That is just part of it.. I have to stop typing as things are > hurting. Is there anything else I may have missed on the upper body? > > Oh Sinus problems, p on scalp.... more tomorrow > > Alice Quote Link to comment Share on other sites More sharing options...
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