Re: High Dose Vit A Protocol

[Guest guest]

Jacqui

What a lovely update... I know what its like when you are just too scared to say something and update in case those gains dont last. Howver, thats a fair time passed now and she is still weiing by herself... My opinion is that if these kids can say SOMETHING they can say anything!! Its all just a behaviour. only really started to use verbal language when she was around 6. Before that she had most of the sounds at some point and could say Yes quite clearly and use it quite correctly too. I always felt that if Yes was there, other words could be learnt too. Keep at it... Any reason why you dont use PECS, just wondered being a huge fan myself??

Lots of Luck

Caroline, Aberdeenshire

xxx

[Guest guest]

SO RECEPTIVELY SHE IS REALLY GOOD YOU RECKON?

CAN SHE READ? HAVE YOU EVER TRIED TO SEE IF SHE IS HYPERLEXIC?

IF SO YOU COULD ELIMINATE PICTURES AND TRY WORDS... JUST WONDERED COS I RECKON LOTSA KIDS WITH ASD ACTUALLY SPEAK ONCE THEY CAN READ IT JUST MAKES MORE SENSE TO THEM...

WELL DONE GIRL HOPE THE GAINS CONTINUE

LUV N FLOWERS

CAROLINE

XXX

[Guest guest]

Thanks for the encouragement Caroline.

Yep - huge fan of PECS myself - unfortunately isn't (LOL).

She has got as far as exchanging the symbol (which she has been

doing successfully for over two years!) but she doesn't distinguish

between the symbols i.e. she will just give you whatever card is

nearest no matter what she actually wants. We have tried

symbols/photographs and even objects but it's a no go. My hunch is

that is an " auditory " learner rather than a " visual "

learner - which is unusual for ASD kids. But she has always

responded well to verbal commands etc.

We are still trying PECS but we just seem to have been stuck at this

stage forever!!

BW

Jacqui X

>

> Jacqui

> What a lovely update... I know what its like when you are just too

scared to

> say something and update in case those gains dont last. Howver,

thats a fair

> time passed now and she is still weiing by herself... My opinion

is that if

> these kids can say SOMETHING they can say anything!! Its all just

a behaviour.

> only really started to use verbal language when she was

around 6.

> Before that she had most of the sounds at some point and could

say Yes quite

> clearly and use it quite correctly too. I always felt that if Yes

was there,

> other words could be learnt too. Keep at it... Any reason why you

dont use

> PECS, just wondered being a huge fan myself??

> Lots of Luck

> Caroline, Aberdeenshire

> xxx

>

[Guest guest]

Thanks Caroline - will look into that. Never really thought of doing

that - everyone has always told me " ASD kids do better with

pictures/symbols - they are visual learners " and never really

fit that mould.

Thanks again

Jacqui X

>

> SO RECEPTIVELY SHE IS REALLY GOOD YOU RECKON?

> CAN SHE READ? HAVE YOU EVER TRIED TO SEE IF SHE IS HYPERLEXIC?

> IF SO YOU COULD ELIMINATE PICTURES AND TRY WORDS... JUST WONDERED

COS I

> RECKON LOTSA KIDS WITH ASD ACTUALLY SPEAK ONCE THEY CAN READ IT JUST

MAKES MORE

> SENSE TO THEM...

> WELL DONE GIRL HOPE THE GAINS CONTINUE

> LUV N FLOWERS

> CAROLINE

> XXX

>

[Guest guest]

In a message dated 26/06/2006 14:34:01 GMT Daylight Time, jacqui@... writes:

Thanks Caroline - will look into that. Never really thought of doing that - everyone has always told me "ASD kids do better with pictures/symbols - they are visual learners" and never really fit that mould.

>>>There is a little boy at Sam's school that had trouble with pictures/symbols but used words no problem

Mandi x

[Guest guest]

Seriously thanks to both of you. I just KNOW it's gonna be one of

those try this, try that, try this again, try some kinda

nevergonnaworkthing and then Boom - off we'll go!!

Jacqui X

PS Mandi sooooo pleased with your successes with Sam!!!!!

>

>

> In a message dated 26/06/2006 14:34:01 GMT Daylight Time,

> jacqui@... writes:

>

> Thanks Caroline - will look into that. Never really thought of

doing

> that - everyone has always told me " ASD kids do better with

> pictures/symbols - they are visual learners " and never

really

> fit that mould.

>

>

>

> >>>There is a little boy at Sam's school that had trouble with

> pictures/symbols but used words no problem

>

> Mandi x

>

[Guest guest]

Jacqui,

If you're considering doing a trial of Virastop, you may want to

consider adding Lauricidin too. Lauricidin is supposed to work

against the measles virus. It works by a slightly different

mechanism than the VS, although they have similarities.

If you had these two things on board for your second high dose Vit A

protocol in six months, it may mean the MV are just that much more

vulnerable. Consider though that VS is generally considered

something that you would use at higher doses for only 3 months or

so, although people use it at lower doses for longer periods.

Thanks for sharing your great news :-)

Anita

>

> If all is

> well we will repeat the two day dosing in six months as per Dr Mc.

>

> I have chatted to Dr H about a trial of either Virastop or Valtrex

> in the future - but am chuffed to bits just now!!

>

>

> BW

>

> Jacqui X

>

[Guest guest]

Anita

Thanks for this extra info - I didn't know any of that before. Will

run it by Dr H when I next see him (early August I think). There

are a number of things I would like to try but if that may help the

Vit A I may move that to top of the list!

Thanks again

Jacqui

> >

> > If all is

> > well we will repeat the two day dosing in six months as per Dr

Mc.

> >

> > I have chatted to Dr H about a trial of either Virastop or

Valtrex

> > in the future - but am chuffed to bits just now!!

> >

> >

> > BW

> >

> > Jacqui X

> >

>

[Guest guest]

>>>This is awesome Jacqui - enjoy!

Mandi x

In a message dated 26/06/2006 10:18:17 GMT Daylight Time, jacqui@... writes:

Two days 400,000ius using biocare drops, then down to a maintenance dose of 10,000ius per day which still continues (she is also having 2tsps of CLO which contains 5,000ius so my dosing was a litlle higher than Dr MC recommends)Did the two day dosing over Sat and Sun, on the Monday came up to us as we sat outside and took Hubbys hand and practically dragged him to the toilet!! With verbal prompting, pulled her own trousers and pants down, sat and did a wee!! Sometime later, she did the same to me so, trying to push her a little, I took my hand away and just verbally prompted "go to the toilet then" and off she went!! Brilliant!!We have had some WOWs that have disappeared within 24 hours in the past so we were even more thrilled to see that this has stayed right up to now!!In the last few days she is also saying "din" and giving me her cup for a drink and "din din" and banging the fridge when she is hungry. Whether this will stay we shall wait and see!

[Guest guest]

Thanks Mandi! It's about bleeping time! We haven't had a

whoopeedoo moment for ages!!

Jacqui X

>

>

> >>>This is awesome Jacqui - enjoy!

>

> Mandi x

>

> In a message dated 26/06/2006 10:18:17 GMT Daylight Time,

> jacqui@... writes:

>

> Two days 400,000ius using biocare drops, then down to a

maintenance

> dose of 10,000ius per day which still continues (she is also

having

> 2tsps of CLO which contains 5,000ius so my dosing was a litlle

> higher than Dr MC recommends)

>

> Did the two day dosing over Sat and Sun, on the Monday

came

> up to us as we sat outside and took Hubbys hand and practically

> dragged him to the toilet!! With verbal prompting, pulled her own

> trousers and pants down, sat and did a wee!! Sometime later, she

> did the same to me so, trying to push her a little, I took my

hand

> away and just verbally prompted " go to the toilet then " and off

she

> went!! Brilliant!!

>

> We have had some WOWs that have disappeared within 24 hours in

the

> past so we were even more thrilled to see that this has stayed

right

> up to now!!

>

> In the last few days she is also saying " din " and giving me her

cup

> for a drink and " din din " and banging the fridge when she is

> hungry. Whether this will stay we shall wait and see!

>

[Guest guest]

Thanks Mandi! It's about bleeping time! We haven't had a

whoopeedoo moment for ages!!

Jacqui X

>

>

> >>>This is awesome Jacqui - enjoy!

>

> Mandi x

>

> In a message dated 26/06/2006 10:18:17 GMT Daylight Time,

> jacqui@... writes:

>

> Two days 400,000ius using biocare drops, then down to a

maintenance

> dose of 10,000ius per day which still continues (she is also

having

> 2tsps of CLO which contains 5,000ius so my dosing was a litlle

> higher than Dr MC recommends)

>

> Did the two day dosing over Sat and Sun, on the Monday

came

> up to us as we sat outside and took Hubbys hand and practically

> dragged him to the toilet!! With verbal prompting, pulled her own

> trousers and pants down, sat and did a wee!! Sometime later, she

> did the same to me so, trying to push her a little, I took my

hand

> away and just verbally prompted " go to the toilet then " and off

she

> went!! Brilliant!!

>

> We have had some WOWs that have disappeared within 24 hours in

the

> past so we were even more thrilled to see that this has stayed

right

> up to now!!

>

> In the last few days she is also saying " din " and giving me her

cup

> for a drink and " din din " and banging the fridge when she is

> hungry. Whether this will stay we shall wait and see!

>

[Guest guest]

How long has he been getting 10,000 iu CLO? Vitamin A builds up in the

system, so he may already be very high level, and the high-dose may

not make a difference. Also, you could be getting to dangerous levels,

depending on how long he has been getting the CLO. Watch for toxicity

symptoms. i.e. cracked lips, rash on skin, joint pain.--Tod

>

> My 13yo is on day 2 of the high dose vit A protocol (he was vaccine

> injured as a baby). He got 400,000IU mycelized vit A (kirkman's)

> yesterday & today in the AM, away from other supps.

>

> So far I haen't seen any differences in him, for better or worse.

>

> What does it mean if nothing happens? Should the protocol be repeated

> ( & when), or discarded as another thing that didn't work?

>

> (He gets 10,000IU Green Pasture CLO everyday).

>

> Thanks, Michele

>

[Guest guest]

A good year or more on the CLO... no signs of toxicity that I can

tell (he's non verbal). (His lips do get cracked in the cold

weather, so I wouldn't know by that one).

Michele

> >

> > My 13yo is on day 2 of the high dose vit A protocol (he was

vaccine

> > injured as a baby). He got 400,000IU mycelized vit A (kirkman's)

> > yesterday & today in the AM, away from other supps.

> >

> > So far I haen't seen any differences in him, for better or worse.

> >

> > What does it mean if nothing happens? Should the protocol be

repeated

> > ( & when), or discarded as another thing that didn't work?

> >

> > (He gets 10,000IU Green Pasture CLO everyday).

> >

> > Thanks, Michele

> >

>

[Guest guest]

At more than a year at that level, I would guess the benefits of the

Vitamin A may have already been realized. Some people do the high dose

twice and see results, but Dr. McCandless that pioneered this

treatment say you should wait 6-months before doing it again, because

it takes quite a while to get it out of the system. It is fat soluble,

not water soluble, so it will take a while to get out the high doses

you just gave. If any toxicity symptoms show up, you should also stop

the daily CLO for a while. Best of luck.--Tod

-- In , " hugs_may99 " <hugs4Him99@...> wrote:

>

> A good year or more on the CLO... no signs of toxicity that I can

> tell (he's non verbal). (His lips do get cracked in the cold

> weather, so I wouldn't know by that one).

>

> Michele

>

>

> > >

> > > My 13yo is on day 2 of the high dose vit A protocol (he was

> vaccine

> > > injured as a baby). He got 400,000IU mycelized vit A (kirkman's)

> > > yesterday & today in the AM, away from other supps.

> > >

> > > So far I haen't seen any differences in him, for better or worse.

> > >

> > > What does it mean if nothing happens? Should the protocol be

> repeated

> > > ( & when), or discarded as another thing that didn't work?

> > >

> > > (He gets 10,000IU Green Pasture CLO everyday).

> > >

> > > Thanks, Michele

> > >

> >

>

[Guest guest]

Hi,

I am also going to do this protocol with my son and have been

doing some research on it. This link from Dana's website may

be helpful:

http://www.danasview.net/virrec3.htm

What a lot of people do is follow the high dose with a maintenence

dose of 25,000 IUs and also introduce OLE the day following the two

high dose days to try to eliminate other viruses. I would try that.

Many people have found that the viruses sometimes take a few days

or even weeks to emerge. Dana's website has more great information

from Dr. McCandless and lists symptoms of Vitamin A toxicity.

Best of luck!

-

>

> My 13yo is on day 2 of the high dose vit A protocol (he was vaccine

> injured as a baby). He got 400,000IU mycelized vit A (kirkman's)

> yesterday & today in the AM, away from other supps.

>

> So far I haen't seen any differences in him, for better or worse.

>

> What does it mean if nothing happens? Should the protocol be repeated

> ( & when), or discarded as another thing that didn't work?

>

> (He gets 10,000IU Green Pasture CLO everyday).

>

> Thanks, Michele

>

[Guest guest]

All that said, Andy recommends 500-1000 IU per pound per day for our

kids, so 10,000 IU shouldn't be a problem.

Anne

> > > >

> > > > My 13yo is on day 2 of the high dose vit A protocol (he was

> > vaccine

> > > > injured as a baby). He got 400,000IU mycelized vit A

(kirkman's)

> > > > yesterday & today in the AM, away from other supps.

> > > >

> > > > So far I haen't seen any differences in him, for better or

worse.

> > > >

> > > > What does it mean if nothing happens? Should the protocol be

> > repeated

> > > > ( & when), or discarded as another thing that didn't work?

> > > >

> > > > (He gets 10,000IU Green Pasture CLO everyday).

> > > >

> > > > Thanks, Michele

> > > >

> > >

> >

>

[Guest guest]

If you want to not have to be freaked out at the prospect of giving

your kid so much A at a time (i.e. the 400,000 IU for several days),

you might consider just doing what Andy recommends and giving

reasonable daily doses (500-1000 IU per lb per day). The nice thing

about doing it Andy's way is that it is feasible to give the

recommended amount from CLO, which is probably the better form of A

in the first place.

Anne

> >

> > My 13yo is on day 2 of the high dose vit A protocol (he was

vaccine

> > injured as a baby). He got 400,000IU mycelized vit A (kirkman's)

> > yesterday & today in the AM, away from other supps.

> >

> > So far I haen't seen any differences in him, for better or worse.

> >

> > What does it mean if nothing happens? Should the protocol be

repeated

> > ( & when), or discarded as another thing that didn't work?

> >

> > (He gets 10,000IU Green Pasture CLO everyday).

> >

> > Thanks, Michele

> >

>

[Guest guest]

We didn't see anything from the high A when we did it (a very long

time ago). It may be that he can't use the mycellized form (requires

some conversion in the liver, I think).

>

> My 13yo is on day 2 of the high dose vit A protocol (he was vaccine

> injured as a baby). He got 400,000IU mycelized vit A (kirkman's)

> yesterday & today in the AM, away from other supps.

>

> So far I haen't seen any differences in him, for better or worse.

>

> What does it mean if nothing happens? Should the protocol be

repeated

> ( & when), or discarded as another thing that didn't work?

>

> (He gets 10,000IU Green Pasture CLO everyday).

>

> Thanks, Michele

>

[Guest guest]

> How long has he been getting 10,000 iu CLO? Vitamin A builds up in the

> system, so he may already be very high level, and the high-dose may

> not make a difference. Also, you could be getting to dangerous levels,

> depending on how long he has been getting the CLO. Watch for toxicity

> symptoms. i.e. cracked lips, rash on skin, joint pain.--Tod

Definitely watch for symptoms of toxicity. However, vitamin A does

not necessarily " build up " in the body. My son had a measles virus

infestation, and giving lower doses of vitamin A only fed the virus.

I was able to give my son more than 100,000 IU of vitamin A for over a

month without any noticeable changes at all. After the first high

dose protocol, I was still able to give the 100,000 IU per day without

any changes. However, after the second high dose protocol, I was then

no longer able to give *any* vitamin A without causing toxicity. So

long as measles virus was present, no vitamin A was being absorbed by

the body, it was all going to the virus. But once the virus was gone,

the vitamin A was being properly absorbed. I wrote my son's story at

the bottom of this page

http://www.danasview.net/vitamina.htm

Dana

[Guest guest]

My advice is this: (in my opinion; not meant to diagnose or treat...)

I would view the Vitamin A thusly;

Vitamin A is a nutrient needed from the time we are in our Mum's womb

all the way up until we are in our 80's and 90's...

Vitamin A is an essential nutrient which bascially is needed for

eyesight; (Butter is very high in Vitamin A and should be used daily)

for example; if a child does not get adequate Vitamin at birth and

growing up. the child will have poor vision and will get sick often.

This is because Vitamin A increases the functions of the Immune

system; so low doses are really good for a lifetimee I do not see how

high dose Vitamin a would affect positively your child's in one way

or another; this is because

Vitamin A keeps healthy the Eye's sight and vision; helps the skin;

reduces colds and infections and prevents " Dry Eye (disvoered in 1930

so all in all: vitamin A does not affect the character; personality;

BUT WITH LONG TERM DOSAGE WOULD SURELY HELP THE LEARNING ABILITY;

If you want beneficial nutrients for character; those are Vitamin B's.

(reduce the Vitamin a to one drop per day at most; continue with CLO.

> >

> > My 13yo is on day 2 of the high dose vit A protocol (he was

vaccine

> > injured as a baby). He got 400,000IU mycelized vit A (kirkman's)

> > yesterday & today in the AM, away from other supps.

> >

> > So far I haen't seen any differences in him, for better or worse.

> >

> > What does it mean if nothing happens? Should the protocol be

> repeated

> > ( & when), or discarded as another thing that didn't work?

> >

> > (He gets 10,000IU Green Pasture CLO everyday).

> >

> > Thanks, Michele

> >

>