Re: I have morer questions maybe you can help m with Dana/others

[Guest guest]

>

>

>

> I am a bit worry about stress on her liver and kidneys. Are there

any signs

> I should be looking for that tells me these organs are working too

hard,

> other than blood work? Her pee first thing in the morning smells

like

> ammonia. Should I give TMG a try for that? I giving her AFP

peptize. What

> else can cause ammonia smelly pee? (She gets lots of fluids).

> Thanks ahead

>

> Leo

>

[Guest guest]

,

Thanks for your input.

I have been wondering about this pee thing for a while now and have done

some research as well. Protein is definitely a problem, but she doesn't eat

much food. She is on a hypoallergenic formula.

Leo

[Guest guest]

Supplements can be hard on your stomachs. Always listen to your

instincts. I give supplements 3 or more times a day so I am not

giving it all at once. Remember to start supplements one at a time so

you may be able to pin down what exactely is causing the problem. My

child gets rashes when she doesn't tolerate something.

God bless,

http://autismshare.com

>

> Every time I give my daughter her mito cocktail plus other

supplements, she

> acts sleepy and whiny, like her stomach hurts.

>

> I have checked all the ingredients in the supplements and I give

them with

> enzymes as some of them have rice flour. Could I be giving her too

much at

> once?

>

> I was thinking on cutting down to just the most needed (selenium,

carnitine,

> taurine, CoQ10, flax oil etc) but the other supplements need the B

vitamins

> and the other minerals for better absorption.

>

> I can try supplements without the rice flour, but I will soon be

bankrupt

> with all the supplements I am buying; plus I am not 100% sure the

rice flour

> in it is really causing the problem. She seems ok after a few

hours. She

> also has a rash with I think is yeast and I increased the yeast

protocol.

> The rash tapers off, but them it comes back and doesn't really go

away.

>

>

>

> I am a bit worry about stress on her liver and kidneys. Are there

any signs

> I should be looking for that tells me these organs are working too

hard,

> other than blood work? Her pee first thing in the morning smells

like

> ammonia. Should I give TMG a try for that? I giving her AFP

peptize. What

> else can cause ammonia smelly pee? (She gets lots of fluids).

>

>

>

> I am sorry if I am rambling, but I am trying not to get discourage.

She has

> made progress, but is still not tolerating too many foods, even

with being

> on enzyme for a while.

>

> Thanks ahead

>

> Leo

>

>

>

>

[Guest guest]

Leo, I haven't researched the protein connection yet..just noticing

this lately & thinking that I have probably seen some references to

it elsewhere/when, that I don't currently " remember, " that have

contributed to noticing this one. If you do find, or have found,

some truly helpful info or sites, I would be very interested in

seeing them...

thanks

wishing you the best

elizabeth

>

> ,

>

> Thanks for your input.

>

> I have been wondering about this pee thing for a while now and

have done

> some research as well. Protein is definitely a problem, but she

doesn't eat

> much food. She is on a hypoallergenic formula.

>

> Leo

[Guest guest]

Thank you ,

I will back off and will see if that helps.

Leo

[Guest guest]

My daughter's high ammonia is under control with alpha ketoglutaric

acid. She gets one capsule a day.

Even if your DD is not eating alot of protein, she can still have a

problem with her urea cycle and unable to get rid of nitrogen. AKA

is an easy thing to try and relatively inexpensive.

HTH

wyndie

>

> ,

>

> Thanks for your input.

>

> I have been wondering about this pee thing for a while now and

have done

> some research as well. Protein is definitely a problem, but she

doesn't eat

> much food. She is on a hypoallergenic formula.

>

> Leo

>

>

>

>

>

>

>

>

[Guest guest]

Wyndie, thank you. At the very least, this gives me a really good

place to start. If you know of any cautions involved with this supp,

that would be appreciated. In the meantime, I do believe I will be

starting an info slam. ...I know I have looked into urea cycle /

nitrogen info before & got rather overwhelmed by the possibilities

And we had more urgent issues, so it got put on the " later " list.

This helps much.

thanks again

wishing you the best

elizabeth

>

> My daughter's high ammonia is under control with alpha ketoglutaric

> acid. She gets one capsule a day.

>

> Even if your DD is not eating alot of protein, she can still have a

> problem with her urea cycle and unable to get rid of nitrogen. AKA

> is an easy thing to try and relatively inexpensive.

>

> HTH

> wyndie

[Guest guest]

Thanks Wyndie,

I have been given her an amino acid blend, but I think I will give AKA a try

by itself at a higher dose.

Leo

[Guest guest]

>

> Every time I give my daughter her mito cocktail plus other

supplements, she

> acts sleepy and whiny, like her stomach hurts.

Lower the doses and give several times per day.

Be sure to give the CoQ10 with fats.

Some of the mito supplements do tend to cause phenol issues, so you

can try giving them with No-Fenol enzyme, see if that helps.

> I was thinking on cutting down to just the most needed (selenium,

carnitine,

> taurine, CoQ10, flax oil etc) but the other supplements need the B

vitamins

> and the other minerals for better absorption.

Try dropping the selenium, and/or move from flax to fish.

Dana